Re: Reposted for Dawn (Cherub 61) from Steve's thread (IGF-1/Endo)

[Guest guest]

Hi Dawn

I have a bit more time to reply to you now.

I think you were right to complain to your GP - did he not comment on any point

2) - ie the IGF1 and the sex hormone imbalances?

>been low (even on hypothyroid diagnosis- 1.79 and has only ever gone further

down). Currently tsh is 0.17 (range 03.35-5.5) FT4 13.91 Range 9.0-24.00) and

FT3 3.7 Range 2.2-5.5). Been off work exhausted for 3months. Had synacten test

which was negative baseline 321 and post 3 mins 654. But I do believe my

adrenals are low and had the 24hr saliva test and my morning cortisol was low

and all dhea was low.

The synacthen test shows the doctor how much cortisol your adrenals can produce

if stimulated. but what if your pituitary isn't telling them to do much work?

what then?

>Im just awaiting a letter of response from them and know there is a problem

somewhere !! Any suggestions ?

Hmm not really, i'd do what you're doing, complain about them not investigating

IGF-1 etc, sex hormone imbalances.

I understand that ME is supposed to be diagnosed only if everything is checked

and is normal - but you have been checked and clearly there are abnormalities?

stick to your guns! when you get the book you'll be able to see if any of

the symptoms apply to you and see if these tie in with your imbalanced results.

let us know what they say?

chris

[Guest guest]

Sorry, I am still new to this and finding my way around the site .. Dawn 2

[Guest guest]

Please don't apologise! it's very easy done

chris

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> Sorry, I am still new to this and finding my way around the site ..

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> Dawn 2

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[Guest guest]

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> > Sorry, I am still new to this and finding my way around the site ..

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> > Dawn 2

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thanks for that info Chris. Yes you are right and I know what I have to do, its

just that you feel so crap to start with and with poor response from the guys in

charge, you end up feeling , its all in your head sometimes !!

Thanks Again

Dawn2