Symptoms

[Guest guest]

Jess,

Try this site; http://www.fsma.org/booklet.htm this is the best I can

find. Unfortunately that's why DNA testing was invented. Going by just

symptoms is not reliable now days. As you know there are over 40

neuro-muscular diseases. Its best left in the hands of professionals,

who have all the modern diagnostic tests available to them. Most of the

symptoms could easily confused for other muscular dystrophies except the

earlier onset then say duchennes or beckers md only found in boys.

Take Care,

Cody Namesnik

codemann@...

symtoms

hey..i need ALL the symtoms anyone knows of sma please. thanks.

[Guest guest]

In a message dated 1/24/2004 5:18:58 PM Central Standard Time,

goodwulfe@... writes:

> What are you doing for it now that seems to be working, if anything?

>

IV Gamma and Transfer Factor.

Carole

[Guest guest]

In a message dated 1/24/2004 7:35:59 PM Central Standard Time,

C3814@... writes:

> >What are you doing for it now that seems to be working, if anything?

> >

>

> IV Gamma and Transfer Factor.

>

> Carole

>

Hi Carole- On what symptoms are the IV Gamma and Transfer working the best?

Thanks-

[Guest guest]

Hi ,

shift immune system back to normal ,not th2 dominent .

somish

[Guest guest]

Hi . My son has never had a nosebleed but he often had symptoms lasting

longer than the fever. The muscle and joint pain mostly. Is your child on any

meds like prednisone or something? When my son was on that his symptoms always

lasted about 2-4 days post fever. I am happy to report that he had a T & A on

July 26th and no fevers yet. He definitely should have had an episode by now so

I am pretty excited. I know this doesn't mean he will be fever free but at

least we get a break.

<threedrescue@...> wrote:I was curious if anyone had anything

similar with their children and their symptoms.

My son had a fever, soar throat, headache, and he said his throat hurt from

Wednesday to Friday (17th to 19th), his fever was high Saturday morning but gone

by noon. Saturday night he got a nosebleed then on Saturday night and on Sunday

night he has been waking up saying his toes and elbows hurt.

Has anyone else had symptoms last past when the fever goes away? This would be

the first time for us that this has happened. It also was the first time he ever

has had a nosebleed and joint pain.

[Guest guest]

,

My (2)has been having joint pain, mostly in her legs but never

goes beyond the fevers, but since the last episode (July 27-31) she has

been getting nose bleeds. My husband thought it was because she was

picking her nose, but I don't think so. It bleeds too much for that.

I'm expecting her fever anytime from tomorrow through next Wednesday.

I'll be interested to see if anyone else is having nose bleeds. Glad

to see that isn't the only one now.

Thanks for posting

Kim

> I was curious if anyone had anything similar with their children and

their symptoms.

> My son had a fever, soar throat, headache, and he said his throat

hurt from Wednesday to Friday (17th to 19th), his fever was high

Saturday morning but gone by noon. Saturday night he got a nosebleed

then on Saturday night and on Sunday night he has been waking up saying

his toes and elbows hurt.

> Has anyone else had symptoms last past when the fever goes away? This

would be the first time for us that this has happened. It also was the

first time he ever has had a nosebleed and joint pain.

>

>

>

>

[Guest guest]

My daughter has also been getting nosebleeds...in between fevers...not

during and not every time.

Re: Symptoms

> ,

> My (2)has been having joint pain, mostly in her legs but never

> goes beyond the fevers, but since the last episode (July 27-31) she has

> been getting nose bleeds. My husband thought it was because she was

> picking her nose, but I don't think so. It bleeds too much for that.

> I'm expecting her fever anytime from tomorrow through next Wednesday.

>

> I'll be interested to see if anyone else is having nose bleeds. Glad

> to see that isn't the only one now.

>

> Thanks for posting

> Kim

>

> > I was curious if anyone had anything similar with their children and

> their symptoms.

> > My son had a fever, soar throat, headache, and he said his throat

> hurt from Wednesday to Friday (17th to 19th), his fever was high

> Saturday morning but gone by noon. Saturday night he got a nosebleed

> then on Saturday night and on Sunday night he has been waking up saying

> his toes and elbows hurt.

> > Has anyone else had symptoms last past when the fever goes away? This

> would be the first time for us that this has happened. It also was the

> first time he ever has had a nosebleed and joint pain.

> >

> >

> >

> >

[Guest guest]

My son complains alot of his legs hurting during a fever episode and

once in awhile he complains his legs hurt when he has no fever. I am

keeping track of his leg pain because I think it is abnormal for a

five year old to complain of leg pain just from walking around a store

or from playing.

[Guest guest]

Hello,

Glad you are charting his leg pain. It is abnormal! But for the many of the

kids here it is not so abnormal just another thing they must deal with

We are very careful to limit Breana's activities...get her to take breaks etc.

If she has had a 'busy day' we try to have a 'quiet day the next if we can.

Long walks we have a Covoid Stroller wheelchair for her. This was purchased

last summer when she was growing out of a reg stroller! Our doc's fought like

hell with the insurance company to get them to pay for it which they did!

Re: Symptoms

My son complains alot of his legs hurting during a fever episode and

once in awhile he complains his legs hurt when he has no fever. I am

keeping track of his leg pain because I think it is abnormal for a

five year old to complain of leg pain just from walking around a store

or from playing.

[Guest guest]

My daughter also has leg pain. Not severe enough to keep her from doing

things, but she does complain about it.

She is 6 and in first grade. She says it mostly hurts when she's

sitting with her legs criss cross.

I also take an umbrella stroller on long walking days to the mall etc.

but she usually only has leg pain one time a month.

She has had only one fever since having her tonsils removed a year ago.

Does it seem like most of the kids that had their tonsils removed when

they were over 5 years old had a better outcome than the kids who had

their tonsils removed at a younger age?

Tracey

Mom to Maddie, age 6

Brent, Age 10,

League City, Texas

On Tuesday, August 23, 2005, at 04:47 PM, wrote:

> Hello,

> Glad you are charting his leg pain. It is abnormal! But for the many

> of the kids here it is not so abnormal just another thing they must

> deal with

> We are very careful to limit Breana's activities...get her to take

> breaks etc. If she has had a 'busy day' we try to have a 'quiet day

> the next if we can. Long walks we have a Covoid Stroller wheelchair

> for her. This was purchased last summer when she was growing out of a

> reg stroller! Our doc's fought like hell with the insurance company

> to get them to pay for it which they did!

>

> Re: Symptoms

>

>

> My son complains alot of his legs hurting during a fever episode and

> once in awhile he complains his legs hurt when he has no fever. I am

> keeping track of his leg pain because I think it is abnormal for a

> five year old to complain of leg pain just from walking around a

> store

> or from playing.

>

>

>

>

>

[Guest guest]

kiara complains all the time of leg pain too!

vanessa

mom of kiara 5

Re: Symptoms

My son complains alot of his legs hurting during a fever episode and

once in awhile he complains his legs hurt when he has no fever. I am

keeping track of his leg pain because I think it is abnormal for a

five year old to complain of leg pain just from walking around a store

or from playing.

[Guest guest]

My son's symptoms are not generally as severe as others I've read about - of

course he hasn't been diagnosed, so take this with a grain of salt. He gets

fevers around 103 for 5-8 days around every 5 weeks. Extremely swollen glands,

throat a little sore, no appetite, lethargic.

christy, mom of Grant 5 (possible ), & Brad 2

Donna Lenz <travzzmom@...> wrote:

Hi. Can anyone give me some experiences on their kids' severity of symptoms. We

don't know for sure if my son has but he has frequent fevers and spots on

his tonsils. The fevers seem to lessen in severity each time that they occur.

Does anyone know if there are cases of that are milder or more severe than

others? Today we were able to rule out Cyclic Neutropenia thank God. Any

information would be greatly appreciated. I'm so relieved that we're not alone.

Sincerely, Donna.

---------------------------------

Click here to donate to the Hurricane Katrina relief effort.

[Guest guest]

Here are my son's symptoms during an episode:

Fever which very quickly goes over 105 F. Usually lasts anywhere from 1-3

days and then stays around 100-102 for another few days. Throat gets

sore, tonsils swell, lymph nodes in his neck swell. Gets large ulcers

(usually several) in his mouth/throat area. Complains of headache, eye

pain, neck pain, leg pain and bellyache. Sometimes feels nauseas and has

on occasion had the dry heaves or has vomited. Loses his appetite and

barely touches any food for close to a week, give or take a day. He also

starts out with the diarrhea and by the end of the episode is constipated

(I believe because he slightly dehydrates).

Some months he only gets a few of the symptoms, and then other months he

gets all symptoms. We've been told his body is starting to " grow out " of

the which is why we're seeing different symptoms each episode. He

had been having episodes every 4 weeks, almost to the day. But now he

seems to be going 5-6 weeks between episodes.

We had always thought the Motrin/Tylenol wasn't working because of how

high the fevers go, but the ID Doctor told us that if we wouldn't be

giving him those meds. that his fevers would go even higher ... so we

continue giving him the Tylenol/Motrin because we don't want them going

any higher. We are already so scared when they hit 104-105.

My son also loses weight, like a pound or two when the episode is really bad.

Hope this helps you with the symptoms ...

Heidi

Mommy of Mason

[Guest guest]

My child can have a horrible episode one month with all symptoms and

then just a little achyness and tired the next. It is different

each time.

Hegelein

Southampton, NJ

Amy 4.9

> Hi. Can anyone give me some experiences on their kids' severity of

symptoms. We don't know for sure if my son has but he has

frequent fevers and spots on his tonsils. The fevers seem to lessen

in severity each time that they occur. Does anyone know if there are

cases of that are milder or more severe than others? Today we

were able to rule out Cyclic Neutropenia thank God. Any information

would be greatly appreciated. I'm so relieved that we're not alone.

Sincerely, Donna.

>

>

> ---------------------------------

> Click here to donate to the Hurricane Katrina relief effort.

>

>

[Guest guest]

My daughters symptoms started out as just fever only every month.

Nothing else.

As the years went on she developed joint pain, headaches, eyes

sensitive to light, sore throat and a few mouth sores each time.

The symptoms do vary from child to child as you will see with this

group.

Tracey

League city, TX

Mom to Maddie, age 6

Brent, age 10

On Friday, September 9, 2005, at 09:15 AM, Hegelein wrote:

> My child can have a horrible episode one month with all symptoms and

> then just a little achyness and tired the next. It is different

> each time.

>

> Hegelein

> Southampton, NJ

> Amy 4.9

>

>

>

>

>

>> Hi. Can anyone give me some experiences on their kids' severity of

> symptoms. We don't know for sure if my son has but he has

> frequent fevers and spots on his tonsils. The fevers seem to lessen

> in severity each time that they occur. Does anyone know if there are

> cases of that are milder or more severe than others? Today we

> were able to rule out Cyclic Neutropenia thank God. Any information

> would be greatly appreciated. I'm so relieved that we're not alone.

> Sincerely, Donna.

>>

>>

>> ---------------------------------

>> Click here to donate to the Hurricane Katrina relief effort.

>>

>>

[Guest guest]

This sounds like my son's episodes too ... for the first 6 months to a

year, he mainly had the fevers with swollen lymph nodes. (I'd have to

pull my notes on the fevers to remember the exact timing of it all) ...

but then I remember he started to have more and more symptoms. Mason

also has the sensitivity to light at times ... almost as though he has

a migraine.

Heidi

From: Tracey <Tracey4567@...>

Date: Fri Sep 9, 2005 10:53 am

Subject: Re: Re: symptoms tracey45672001

Offline

Send Email

My daughters symptoms started out as just fever only every month.

Nothing else.

As the years went on she developed joint pain, headaches, eyes

sensitive to light, sore throat and a few mouth sores each time.

The symptoms do vary from child to child as you will see with this

group.

Tracey

[Guest guest]

,

Let me know what you find out. I've had the boils problems on my shins. I've

had edema for years, but the boils thing started a year ago. It started when

the edema was the worst it had ever been and I thought it was just the edema

leaking out. I freaked, of course, because I'm diabetic, and leg and foot

ulcers are a prelude to amputation. I don't want to go there!

Now I have no boils/ulcers, and the edema is less by a bit. But I have these

big lumps under my skin in the areas where the edema was worst. They don't

go away. Right now I don't have health insurance coverage so am reluctant to

see a doctor about it. I just got the news today that my SSDI was approved,

but it will still take a little while to get it all going. So soon I will

have an income, and I will have health coverage.

Sally

Symptoms

Anyone ever have " circulation " problems with HepC. My feet are almost

always cold, sometimes look different and are swollen-more at the end

of the day. It really started about a month ago.

My toes feel numb and sort of like if you've been out skating all day

and takes forever to bring them back to life. Sometimes my lower legs

hurt and my feet and toes ache. I wonder if this is related to

the " boils " that I started getting on my shins a few weeks ago?

I had GP doc look at them this week and he just wasn't sure, though

he could see there was a problem. He felt it was not circulation TO

my feet and lower legs but that my feet weren't circulating " bad

blood? " back, hence the swelling. He didn't pursue an answer because

I was going to Minneapolis next week:

I have an appointment next week at the University of Minnesota with

the hepatologist that heads the UofM transplant team and is one of

the few hep experts around this area.

Any ideas from anyone? It's going to be completely freezing around

here for the next three months, I live in a very old farmhouse (cold

floors) and have to go out to the barn and do chores daily. I'm

trying to find socks, etc that are warmer than average. I'm going to

knit up a pair of wool socks as soon as I can.

It's a pleasure having you join in our conversations. We hope you have found

the support you need with us.

If you are using email for your posts, for easy access to our group, just

click the link-- Hepatitis C/

Happy Posting

[Guest guest]

Sally, Have you tried hot compresses with Epsom Salts? I hear that it can pull out the toxins so you can remove it. Now I dont know for sure that it would work, but since epsom salts are pretty benign, I wouldnt think it would hurt at all.. but you should of course ask your doc.. Sally Hines <shines@...> wrote: ,Let me know what you find out. I've had the boils problems on my shins. I'vehad edema for years, but the boils thing started a year ago. It started whenthe edema was the worst it had ever been and I thought it was just the edemaleaking out. I freaked, of course, because I'm diabetic, and leg and footulcers are a prelude to amputation. I don't want to go there!Now I have no boils/ulcers, and the edema is less by a bit. But I have thesebig lumps under my skin in

the areas where the edema was worst. They don'tgo away. Right now I don't have health insurance coverage so am reluctant tosee a doctor about it. I just got the news today that my SSDI was approved,but it will still take a little while to get it all going. So soon I willhave an income, and I will have health coverage.Sally-----Original Message-----From: Hepatitis C [mailto:Hepatitis C ] On Behalf Of Sent: Friday, December 02, 2005 10:15 AMHepatitis C Subject: SymptomsAnyone ever have "circulation" problems with HepC. My feet are almost always cold, sometimes look different and are swollen-more at the end of the day. It really started about a month ago.My toes feel numb and sort of like if you've been out skating all day and takes forever to bring them back to life. Sometimes my lower legs hurt and my

feet and toes ache. I wonder if this is related to the "boils" that I started getting on my shins a few weeks ago?I had GP doc look at them this week and he just wasn't sure, though he could see there was a problem. He felt it was not circulation TO my feet and lower legs but that my feet weren't circulating "bad blood?" back, hence the swelling. He didn't pursue an answer because I was going to Minneapolis next week:I have an appointment next week at the University of Minnesota with the hepatologist that heads the UofM transplant team and is one of the few hep experts around this area. Any ideas from anyone? It's going to be completely freezing around here for the next three months, I live in a very old farmhouse (cold floors) and have to go out to the barn and do chores daily. I'm trying to find socks, etc that are warmer than average. I'm going to knit up a pair of wool socks as soon as I can.

It's a pleasure having you join in our conversations. We hope you have foundthe support you need with us. If you are using email for your posts, for easy access to our group, justclick the link-- Hepatitis C/Happy Posting

[Guest guest]

, that sounds like neuropathy,, my husband has that,, ask your doc about that and see if that is what it is.. my husband treats his with antioxidants and it works quite well for him..in fact in Germany, that is exactly how they treat neuropathy.. Let us know what your doc says.. what abummer... <Bnhoffer2@...> wrote: Anyone ever have "circulation" problems with HepC. My feet are almost always cold, sometimes look different and are swollen-more at the end of the day. It really started about a month ago.My toes feel numb and sort of like if you've been out skating all day and takes forever to bring them back to life. Sometimes my lower legs hurt and my feet and toes ache. I wonder if this is related to the "boils" that I started getting on my shins a few weeks ago?I had GP doc look

at them this week and he just wasn't sure, though he could see there was a problem. He felt it was not circulation TO my feet and lower legs but that my feet weren't circulating "bad blood?" back, hence the swelling. He didn't pursue an answer because I was going to Minneapolis next week:I have an appointment next week at the University of Minnesota with the hepatologist that heads the UofM transplant team and is one of the few hep experts around this area. Any ideas from anyone? It's going to be completely freezing around here for the next three months, I live in a very old farmhouse (cold floors) and have to go out to the barn and do chores daily. I'm trying to find socks, etc that are warmer than average. I'm going to knit up a pair of wool socks as soon as I can. Jackie

[Guest guest]

, Ask your physician whether it could be Raynaud's Syndrome. That is an autoimmune problem that frequently affects HCV patients. Keep those tootsies nice and warm and if it is Raynaud's that should help a bit. Delores <Bnhoffer2@...> wrote: Anyone ever have "circulation" problems with HepC. My feet are almost always cold, sometimes look different and are swollen-more at the end of the day. It really started about a month ago.My toes feel numb and sort of like if you've been out skating all day and takes forever to bring them back to life. Sometimes my lower legs hurt and my feet and toes ache. I wonder if this is related to the "boils" that I started getting on my shins a few weeks ago?I had GP doc look at them this week and he just

wasn't sure, though he could see there was a problem. He felt it was not circulation TO my feet and lower legs but that my feet weren't circulating "bad blood?" back, hence the swelling. He didn't pursue an answer because I was going to Minneapolis next week:I have an appointment next week at the University of Minnesota with the hepatologist that heads the UofM transplant team and is one of the few hep experts around this area. Any ideas from anyone? It's going to be completely freezing around here for the next three months, I live in a very old farmhouse (cold floors) and have to go out to the barn and do chores daily. I'm trying to find socks, etc that are warmer than average. I'm going to knit up a pair of wool socks as soon as I can.

Personals Let fate take it's course directly to your email. See who's waiting for you Personals__________________________________________________

[Guest guest]

Jackie,

At the time I had the boils I was so swollen I couldn't even reach my shins. But with adequate diuretics and better general health, less stress. LOTS less stress, I'm improving. I can reach my shins, but have no boils.

Oh, and I got the letter today awarding me state health coverage back to Nov 1. Can I go to the doctor last month, now?

Sally

-----Original Message-----From: Hepatitis C [mailto:Hepatitis C ] On Behalf Of Jackie onSent: Friday, December 02, 2005 4:03 PMHepatitis C Subject: RE: Symptoms

Sally,

Have you tried hot compresses with Epsom Salts? I hear that it can pull out the toxins so you can remove it. Now I dont know for sure that it would work, but since epsom salts are pretty benign, I wouldnt think it would hurt at all.. but you should of course ask your doc.. Sally Hines <shines@...> wrote:

,Let me know what you find out. I've had the boils problems on my shins. I'vehad edema for years, but the boils thing started a year ago. It started whenthe edema was the worst it had ever been and I thought it was just the edemaleaking out. I freaked, of course, because I'm diabetic, and leg and footulcers are a prelude to amputation. I don't want to go there!Now I have no boils/ulcers, and the edema is less by a bit. But I have thesebig lumps under my skin in the areas where the edema was worst. They don'tgo away. Right now I don't have health insurance coverage so am reluctant tosee a doctor about it. I just got the news today that my SSDI was approved,but it will still take a little while to get it all going. So soon I willhave an income, and I will have health coverage.Sally-----Original Message-----From: Hepatitis C [mailto:Hepatitis C ] On Behalf Of Sent: Friday, December 02, 2005 10:15 AMHepatitis C Subject: SymptomsAnyone ever have "circulation" problems with HepC. My feet are almost always cold, sometimes look different and are swollen-more at the end of the day. It really started about a month ago.My toes feel numb and sort of like if you've been out skating all day and takes forever to bring them back to life. Sometimes my lower legs hurt and my feet and toes ache. I wonder if this is related to the "boils" that I started getting on my shins a few weeks ago?I had GP doc look at them this week and he just wasn't sure, though he could see there was a problem. He felt it was not circulation TO my feet and lower legs but that my feet weren't circulating "bad blood?" back, hence the swelling. He didn't pursue an answer because I was going to Minneapolis next week:I have an appointment next week at the University of Minnesota with the hepatologist that heads the UofM transplant team and is one of the few hep experts around this area. Any ideas from anyone? It's going to be completely freezing around here for the next three months, I live in a very old farmhouse (cold floors) and have to go out to the barn and do chores daily. I'm trying to find socks, etc that are warmer than average. I'm going to knit up a pair of wool socks as soon as I can. It's a pleasure having you join in our conversations. We hope you have foundthe support you need with us. If you are using email for your posts, for easy access to our group, justclick the link-- Hepatitis C/Happy Posting

[Guest guest]

I have neuropathy <a not-uncommon side from tx> and I treat it with neurontin, and alpha-lipoic acid and a few other goodies. Arginine is another one that seems to be helping.

Sally

-----Original Message-----From: Hepatitis C [mailto:Hepatitis C ] On Behalf Of Jackie onSent: Friday, December 02, 2005 4:05 PMHepatitis C Subject: Re: Symptoms

, that sounds like neuropathy,, my husband has that,, ask your doc about that and see if that is what it is.. my husband treats his with antioxidants and it works quite well for him..in fact in Germany, that is exactly how they treat neuropathy.. Let us know what your doc says.. what abummer...

<Bnhoffer2@...> wrote:

Anyone ever have "circulation" problems with HepC. My feet are almost always cold, sometimes look different and are swollen-more at the end of the day. It really started about a month ago.My toes feel numb and sort of like if you've been out skating all day and takes forever to bring them back to life. Sometimes my lower legs hurt and my feet and toes ache. I wonder if this is related to the "boils" that I started getting on my shins a few weeks ago?I had GP doc look at them this week and he just wasn't sure, though he could see there was a problem. He felt it was not circulation TO my feet and lower legs but that my feet weren't circulating "bad blood?" back, hence the swelling. He didn't pursue an answer because I was going to Minneapolis next week:I have an appointment next week at the University of Minnesota with the hepatologist that heads the UofM transplant team and is one of the few hep experts around this area. Any ideas from anyone? It's going to be completely freezing around here for the next three months, I live in a very old farmhouse (cold floors) and have to go out to the barn and do chores daily. I'm trying to find socks, etc that are warmer than average. I'm going to knit up a pair of wool socks as soon as I can.

Jackie

[Guest guest]

that sounds good sally,, my hubby does not have to use neurontin, thank God!Sally Hines <shines@...> wrote: I have neuropathy <a not-uncommon side from tx> and I treat it with neurontin, and alpha-lipoic acid and a few other goodies. Arginine is another one that seems to be helping. Sally -----Original Message-----From:

Hepatitis C [mailto:Hepatitis C ] On Behalf Of Jackie onSent: Friday, December 02, 2005 4:05 PMHepatitis C Subject: Re: Symptoms , that sounds like neuropathy,, my husband has that,, ask your doc about that and see if that is what it is.. my husband treats his with antioxidants and it works quite well for him..in fact in Germany, that is exactly how they treat neuropathy.. Let us know what your doc says.. what abummer... <Bnhoffer2@...> wrote: Anyone ever have "circulation" problems with HepC. My feet are almost always cold, sometimes look different and are swollen-more at the end of the day. It really started about a month ago.My toes

feel numb and sort of like if you've been out skating all day and takes forever to bring them back to life. Sometimes my lower legs hurt and my feet and toes ache. I wonder if this is related to the "boils" that I started getting on my shins a few weeks ago?I had GP doc look at them this week and he just wasn't sure, though he could see there was a problem. He felt it was not circulation TO my feet and lower legs but that my feet weren't circulating "bad blood?" back, hence the swelling. He didn't pursue an answer because I was going to Minneapolis next week:I have an appointment next week at the University of Minnesota with the hepatologist that heads the UofM transplant team and is one of the few hep experts around this area. Any ideas from anyone? It's going to be completely freezing around here for the next three months, I live in a very old farmhouse (cold floors) and have to go out to the barn and do

chores daily. I'm trying to find socks, etc that are warmer than average. I'm going to knit up a pair of wool socks as soon as I can. Jackie Jackie

[Guest guest]

YEAHHHH,,, good, now will you get insurance immediately with the approval of ssdi? I had to wait until I had been disabled for 2 years before I got that,, Sally Hines <shines@...> wrote: Jackie, At the time I had the boils I was so swollen I couldn't even reach my shins. But with adequate diuretics and better general health, less stress. LOTS less stress, I'm improving. I can reach my shins, but have no boils.

Oh, and I got the letter today awarding me state health coverage back to Nov 1. Can I go to the doctor last month, now? Sally -----Original Message-----From: Hepatitis C [mailto:Hepatitis C ] On Behalf Of Jackie onSent: Friday, December 02, 2005 4:03 PMHepatitis C Subject: RE: Symptoms Sally, Have you tried hot compresses with Epsom Salts? I hear that it can pull out the toxins so you

can remove it. Now I dont know for sure that it would work, but since epsom salts are pretty benign, I wouldnt think it would hurt at all.. but you should of course ask your doc.. Sally Hines <shines@...> wrote: ,Let me know what you find out. I've had the boils problems on my shins. I'vehad edema for years, but the boils thing started a year ago. It started whenthe edema was the worst it had ever been and I thought it was just the edemaleaking out. I freaked, of course, because I'm diabetic, and leg and footulcers are a prelude to amputation. I don't want to go there!Now I have no boils/ulcers, and the edema is less by a bit. But I have thesebig lumps under my skin in the areas where the edema was worst. They don'tgo away. Right now I don't have health insurance coverage so am

reluctant tosee a doctor about it. I just got the news today that my SSDI was approved,but it will still take a little while to get it all going. So soon I willhave an income, and I will have health coverage.Sally-----Original Message-----From: Hepatitis C [mailto:Hepatitis C ] On Behalf Of Sent: Friday, December 02, 2005 10:15 AMHepatitis C Subject: SymptomsAnyone ever have "circulation" problems with HepC. My feet are almost always cold, sometimes look different and are swollen-more at the end of the day. It really started about a month ago.My toes feel numb and sort of like if you've been out skating all day and takes forever to bring them back to life. Sometimes my lower legs hurt and my feet and toes ache. I wonder if this is related to the "boils" that I started getting on my shins a few weeks

ago?I had GP doc look at them this week and he just wasn't sure, though he could see there was a problem. He felt it was not circulation TO my feet and lower legs but that my feet weren't circulating "bad blood?" back, hence the swelling. He didn't pursue an answer because I was going to Minneapolis next week:I have an appointment next week at the University of Minnesota with the hepatologist that heads the UofM transplant team and is one of the few hep experts around this area. Any ideas from anyone? It's going to be completely freezing around here for the next three months, I live in a very old farmhouse (cold floors) and have to go out to the barn and do chores daily. I'm trying to find socks, etc that are warmer than average. I'm going to knit up a pair of wool socks as soon as I can. It's a pleasure having you join in our conversations. We hope you have foundthe

support you need with us. If you are using email for your posts, for easy access to our group, justclick the link-- Hepatitis C/Happy Posting

[Guest guest]

I have to wait 2 years on the Medicaid/medicare, but I get state coverage as of last month.

Sally

-----Original Message-----From: Hepatitis C [mailto:Hepatitis C ] On Behalf Of Jackie onSent: Friday, December 02, 2005 5:28 PMHepatitis C Subject: RE: Symptoms

YEAHHHH,,, good, now will you get insurance immediately with the approval of ssdi? I had to wait until I had been disabled for 2 years before I got that,, Sally Hines <shines@...> wrote:

Jackie,

At the time I had the boils I was so swollen I couldn't even reach my shins. But with adequate diuretics and better general health, less stress. LOTS less stress, I'm improving. I can reach my shins, but have no boils.

Oh, and I got the letter today awarding me state health coverage back to Nov 1. Can I go to the doctor last month, now?

Sally

-----Original Message-----From: Hepatitis C [mailto:Hepatitis C ] On Behalf Of Jackie onSent: Friday, December 02, 2005 4:03 PMHepatitis C Subject: RE: Symptoms

Sally,

Have you tried hot compresses with Epsom Salts? I hear that it can pull out the toxins so you can remove it. Now I dont know for sure that it would work, but since epsom salts are pretty benign, I wouldnt think it would hurt at all.. but you should of course ask your doc.. Sally Hines <shines@...> wrote:

,Let me know what you find out. I've had the boils problems on my shins. I'vehad edema for years, but the boils thing started a year ago. It started whenthe edema was the worst it had ever been and I thought it was just the edemaleaking out. I freaked, of course, because I'm diabetic, and leg and footulcers are a prelude to amputation. I don't want to go there!Now I have no boils/ulcers, and the edema is less by a bit. But I have thesebig lumps under my skin in the areas where the edema was worst. They don'tgo away. Right now I don't have health insurance coverage so am reluctant tosee a doctor about it. I just got the news today that my SSDI was approved,but it will still take a little while to get it all going. So soon I willhave an income, and I will have health coverage.Sally-----Original Message-----From: Hepatitis C [mailto:Hepatitis C ] On Behalf Of Sent: Friday, December 02, 2005 10:15 AMHepatitis C Subject: SymptomsAnyone ever have "circulation" problems with HepC. My feet are almost always cold, sometimes look different and are swollen-more at the end of the day. It really started about a month ago.My toes feel numb and sort of like if you've been out skating all day and takes forever to bring them back to life. Sometimes my lower legs hurt and my feet and toes ache. I wonder if this is related to the "boils" that I started getting on my shins a few weeks ago?I had GP doc look at them this week and he just wasn't sure, though he could see there was a problem. He felt it was not circulation TO my feet and lower legs but that my feet weren't circulating "bad blood?" back, hence the swelling. He didn't pursue an answer because I was going to Minneapolis next week:I have an appointment next week at the University of Minnesota with the hepatologist that heads the UofM transplant team and is one of the few hep experts around this area. Any ideas from anyone? It's going to be completely freezing around here for the next three months, I live in a very old farmhouse (cold floors) and have to go out to the barn and do chores daily. I'm trying to find socks, etc that are warmer than average. I'm going to knit up a pair of wool socks as soon as I can. It's a pleasure having you join in our conversations. We hope you have foundthe support you need with us. If you are using email for your posts, for easy access to our group, justclick the link-- Hepatitis C/Happy Posting