H-PYLORI

September 28, 2004

Hi ,

H-pylori is the bacteria they’ve attributed many gastric ulcers to. If the

blood test is positive they treat with antibiotics and the ulcers tend to go

away.

Do you use Emla cream when you do blood work? In the US I think you need a

prescription for it, but twenty minutes after applied the site is numb and

makes blood work on children much easier.(for me and ) I put it on both

anticubital sites (inner elbow where the pokes usually occur) then I put

saran-wrap on to hold cream in place until we get to the lab. It’s been a

lifesaver since I started using it. It’s over the counter but behind with

the druggist here in Canada so I just have to ask for it.

Best wishes in your journey.

Walton

(5)

BC Canada

Frustrated!

Hi all,

Just yet another update on Drew post tonsillectomy... for a quick re-

cap, he had the tonsillectomy 4 weeks ago now. Very rough recovery,

but went to the ENT doc on day 14 who said that his throat looked

great- no scabs left. That night, he started fevering and finally

had to give him prednisone 5 days later, which did knock the fever

out at first then came back. His mouth has been a mess since he

started the fever, of course right after seeing the ENT. He has

horrible sores, and today took him back to the doc because he's not

eating, and drinking only milk, and milkshakes. She said his throat

was covered in pus and tinged with blood (and this is on top of

about 10-15 sores in his mouth). Some sores have healed up, but I

noticed 2 new ones today- just as one heals another one starts. She

doesn't know what to do for us, and wanted us to see the ENT again

to see if maybe this was somehow to be expected after a

tonsillectomy (the throat not the sores). Have any of your children

with tonsillectomies had lingering pus in the throat after 4 weeks?

2 weeks ago, the ENT said it looked fine. (tested for strep too,

negative). His lymph nodes are huge in his neck, so all signs point

to , but after giving him the prednisone, although the fever

initially went away, it came back. Also, he's been on tylenol (and

more recently motrin) around the clock for an entire month now, not

a single day break from it. I can't even begin to imagine what this

is doing to his insides... and right now he's afraid to sleep

because he wakes up in pain. So the doctor is also sending us back

to the rheumatologist in Boston Children's, have to call tomorrow as

the office was closed by the time I got out of the doctors today. I

am hoping they can fit us in relatively soon, and if not, the

pediatrician is running some tests (wanted to wait to see if we

could get into Children's soon so we could minimize the blood draws)-

checking the usual CBC, platelet, ESR, and also doing metabolic

profile, mono titre (he's had mono before), iron, TIBC, and H pylori

(have to go look that one up). Hard to believe that he can function

on only yogurt, milk and milkshakes for an entire month- he's had

almost no solids since the surgery. Tonight he ate about 3 bites of

plain pasta. I work part time and right now I'm trying to figure

out a way to keep him out of daycare for a few weeks, as it would be

just his luck to catch the flu or something. My husband is out of

town for work until Nov 1, so right now I'm calling in every

available resource.

OK enough of the long rambling letter, but once again I just don't

know where to turn and this group is a lifesaver!!

Thanks,

mom to Drew, age 2 3/4

town, RI

September 28, 2004