Back to

[Guest guest]

For the first time in my life, I'm living rural, rural, rural........it's one hour to anything. Believe me, they don't have any public transportation or metro out here. I asked my brother what happens if you have to dial 911, he told me it's all volunteer and it takes anywhere from 30 minutes to an hour to get to you......on the lighter side, he's lived here 30 years and has never heard of anyone dieing waiting on 911. I am really out in the country. I have a lot to take care of, and I have a lot to get rid of (I'm going to start selling on eBay again - and I'm getting rid of everything except my furniture and my grandson's pictures!!!). Because I don't know how long I'll be able to live like this. I really couldn't afford to live on my own down in Texas (I was living with my daughter, her husband, and my grandson - not a good combination since my daughter and her husband have major problems), I lost everything to

medical bills before moving in with my daughter, and even tho I finally won my SSD battle, it's not enough to live on.I don't know if a lot of people know this, but when you go on SSD, if you are under 65, you don't qualify for all the Medicare Supplemental insurance plans. AND, in a lot of cases, you pay higher premiums because you're under 65. I was actually shocked when I started researching the plans available to me (AND what's available and how much the premium is depends on not only the state you live in, but the county also). Most plans are NOT available to you if you're under 65...... I had 16 Medicare supplements available to me.... and you probably think that's a lot, but most of them are horrible!! I only had 2 Medigap policies available and there was a $250.00 price difference in the two policies!! I don't know who on this planet thinks senior and disabled citizens can afford high premiums, hi co-pays, high out-of-pockets,

etc. Whoa...... not sure what got me started! Part of my disability is I get confused and have a hard time understanding directions. So I can't drive myself to my appts and have to depend on family members. So, I have to wait for my appt. My 72 year old mother (who is in excellent health) is the one who is driving me. She retired Federal Civil Service and after my father passed away 8 years ago, she went back to work parttime just to get out of the house. She retired a GS-13 and has worked parttime at WalMart, dollar stores, bakeries......just anything to keep her busy a few days a week. And she lives an hour away from me and the doctors are an hour the other way.I just wish so much I could have stayed in Texas. I'll quit rambling and whining.Take Care, B. in

ILLINOIS

[Guest guest]

CINDY;; YOU HAVE A RIGHT TO MUMBLE OR GRUMBLE ;; & TO VENT;; I KNOW ABOUT SS;; THAT IS WHAT MY HUBBY & I LIVE ON;; I WAS ON DISABILITY ALSO IN MY MIDDLE 5O.S WHEN I TURNED 62 IT CHANGED INTO REG SS;; WE HAVE HUMANA GOLD CHOICE FOR OUR MEDICARE INS ;;SO FAR IT HAS WORKED GOOD FOR US;;WE DONT PAY A MONTHLY FEE;; THAT IS OUR MEDICARE INS;WHICH COMES OUT OF OUR MONTHLY CHECKS;;; WHICH GOES UP EVERY YEAR;; & WE PAY CO-PAYS FOR DR APPOINTMENTS & PRESCRIPTIONS;;KEEP YOUR CHIN UP;; I HOPE IT ALL WORKS OUT FOR YOU FOR THE BEST;; HUGS DORT B <muttsmom55@...> wrote: For the first time in my life, I'm living rural, rural, rural........it's one hour to anything. Believe me, they don't have any public transportation or metro out here. I asked my brother what happens if you have to dial 911, he told me it's all volunteer and it takes anywhere from 30 minutes to an hour to get to you......on the lighter side, he's lived here 30 years and has never heard of anyone dieing waiting on 911. I am really out in the country. I have a lot to take care of, and I have a lot to get rid of (I'm going to start selling on eBay again - and I'm getting rid of everything except my furniture and my grandson's pictures!!!). Because I don't know how long I'll be able to live like this. I really couldn't afford to live on my own down in Texas (I was living with my daughter, her husband, and my grandson - not a good

combination since my daughter and her husband have major problems), I lost everything to medical bills before moving in with my daughter, and even tho I finally won my SSD battle, it's not enough to live on.I don't know if a lot of people know this, but when you go on SSD, if you are under 65, you don't qualify for all the Medicare Supplemental insurance plans. AND, in a lot of cases, you pay higher premiums because you're under 65. I was actually shocked when I started researching the plans available to me (AND what's available and how much the premium is depends on not only the state you live in, but the county also). Most plans are NOT available to you if you're under 65...... I had 16 Medicare supplements available to me.... and you probably think that's a lot, but most of them are horrible!! I only had 2 Medigap policies available and there was a $250.00 price difference in the two policies!! I don't know who on this planet thinks

senior and disabled citizens can afford high premiums, hi co-pays, high out-of-pockets, etc. Whoa...... not sure what got me started! Part of my disability is I get confused and have a hard time understanding directions. So I can't drive myself to my appts and have to depend on family members. So, I have to wait for my appt. My 72 year old mother (who is in excellent health) is the one who is driving me. She retired Federal Civil Service and after my father passed away 8 years ago, she went back to work parttime just to get out of the house. She retired a GS-13 and has worked parttime at WalMart, dollar stores, bakeries......just anything to keep her busy a few days a week. And she lives an hour away from me and the doctors are an hour the other way.I just wish so much I could have stayed in Texas. I'll quit rambling and whining. Take

Care, B. in ILLINOIS

[Guest guest]

Hi ,I'm and have a list of ailments as long as your arm, we share a few. I had to look up erythma nodosum, had never heard of it.....sounds painful. I am mainly a reader, but occasionally share. Just wanted to welcome you to the group. It's good to have a place where you can vent, share, and learn. Take Care, B. in ILLINOIS Hello, I'm new

my name is and I live in NC! I look forward to getting to know each of you. I have been battling my diseases sinces 1997 when I was 1st diagnosed with erythma nodosum. Since then my list has grown to rheumatoid arthritis, chronic pain, fibro myalgia, hep c, migraines, hyperthyroidism, paralyzed colon............its easier to say my eyes, heart, lungs all work well!I hope each of you have a great pain free day!c-ya, Bek------------------------------------~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./links Personal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

That's great news . I hope for you it is closer to 2 weeks than 8!!!

I will have had my stimulator 2 years this January 11th. I can still move it

around. But I think I have a different type than everyone else. Everyone else

seems to have had a much more extensive surgery. I just have a 2 " horizontal

scar on the back of my hip where my doctor inserted the stimulator and a 1 1/2 "

vertical scar on my spine. Somehow they feed the leads through from the

stimulator to the spine incision.....they offerred to explain the whole

procedure but I didn't want to hear it!!!! And I didn't have any staples or

stitches on the outside. I had the stitches that dissolve and never had to have

anything removed. It was the same way with all 3 of my back surgeries. I know

I was really sore for about 2 days after the surgery and it was probably from

whatever procedure they used to feed the leads through my body. I was sore to

the touch between the 2 incisions. But my doctor just looked at my implant

because I was concerned that it

seems to be just right under the skin. He wasn't concerned, said everything

was fine. I wish scar tissue would grow around it. But if the doctor says it's

OK, I'm not going to worry about it.

Thanks for the congrats on the weight loss. I just found out in August I'm what

they call pre-diabetic (used to be called glucose intolerant). So I immediately

started eating properly and the lbs just dropped. It was amazing, I'm actually

eating more now, just eating the right things. I was hoping after losing that

much weight (I'm only about 10 lbs overweight now for my height) when they redid

the glucose tolerance test (the one where you get to drink that yummy orange

drink!!) after 2 months my labs would come back good. But they still didn't, so

I'm on Metformin and the doctor says it will probably be for the rest of my

life. I'll tell you, it seems you get one problem fixed and something else

always pops up!!!! My doctor told me, " Welcome to old age " ! She was the first

to say something like that, before that I hadn't really considered myself to

that old, but I guess 53 is getting up there.

Good luck with your upcoming surgery, I hope you're writing in and letting us

know it sooner rather than later.

Take Care,

B. in TEXAS

Re: Getting Perm SCS on Monday

Hello,

I just wanted to say Good luck and hope the scs will work for you.

All I can say is take it very very easy dont try and do anything till

the Dr gives you the ok. I am on workers comp and they had someone

come in for 2 to 3 weeks to help me out. It was a big help with me

and family because they had to work. I was told not to do anything

for 8 weeks.

suzy

>

> Hey all,

>

> Im getting the perm scs implanted on Monday morning. Im still

nervous but Im trying to get through it! Does anyone have any post-op

ideas for recovery?

>

> Thanks and I will keep you posted!

>

>

>

>

>

>

>

[Guest guest]

Hi ,

Sorry you're alone too. All my life I have always done things for myself, it

was nice if someone helped if I was sick, but I have always hated to ask for

help. I know this is something I need to get over, especially now, when I

really do need help. I just don't want to feel like a burden, which I am!!!

But my daughters will help if I need it, especially my youngest. She will call

if she's shopping and ask if I need anything. My biggest problem is getting

around. I just don't always feel like I should be driving. I know I need to

check around, I'm sure they have local services around here that will pick me up

and take me to the doctor and bring me home. I just need to do it. Where I

live, a local grocery store, Albertsons, used to deliver to your home (this was

about 8 years ago), you would go online, place your order and pay, and they

brought them to your house. I never used it, I didn't need to back then, but I

guess it

didn't work out too well, because they no longer deliver. Sure would be nice!

Take Care,

B. in TEXAS

Re: hello everyone: HI

Mike you are a insperation to us all. We all have caregivers and they

need help too so you explaining to us why you are not in touch really

brings it all back home to us! We the rsd person really needs to be

thankful everyday hour ,minute and second for our caregivers! The UK.org

has a great pamplet for caregivers and friends of people with rsd. Our

caregivers try to understand but can not ever fully understand the day

to day life living with rsd this. So EVERYONE that has a care giver

please tell them how special they are and how much you love them,and

really appreciate them. They need to hear and feel it also!

Please have a light pain day

Dawn

>

> Hello group, I have not been online that much My wife works fulltime

> she has a full plate I need to keep up with house getting cleaned and

> taking care of. I need to do more so I will not be online as much I

> will keep up with group. My wife needs help so I need to help her.

Mike

> group owner

>

------------ --------- --------- ------

[Guest guest]

Hi ,

Great news.......you are getting the sooner rather than the later!!!!

I believe you're going to have 5 - 10 lb weight limit, you need to get

everything you're going to be needing around waist level because they're going

to tell you not to bend, twist or reach (not supposed to lift your arms over

your head).  I purchased a grabber, a device to pick things up if I dropped them

or get them down if I couldn't reach it.  It was stressed over and over that it

was very important to follow the release orders....the slightest incorrect

movement can cause your leads to move and you don't want that to happen.  And

these restrictions last about 8 weeks.  So be ready to just relax.  I was

staying at my daughters house and it is designed that you can walk in a big

circle through all the rooms, and that was my exercise everyday.  I walked 15

minutes though the house about 3 or 4 times a day.  It does get old (all the

restrictions) and you'll be tempted once you start feeling better, but be strong

because you don't want to have to

have the doctor go back in and adjust the leads!!!!  My surgery was done

outpatient.  But I do know someone who had a different model implanted (it was a

larger internal device) and she was in the hospital for 3 days, they had to

remove part of her hip bone.....her implant is in really deep....,mine is right

under my skin.  If I were you, if you have to be in the hospital for 7 days,

just kick back and enjoy getting waited on!!!!

 

Take Care,

B. in TEXAS

Date for Surgery

Hi everyone,

I've at long last got a date for my SCS replacement op. Dec 16th Yay!! Looks

like its going to be a bit of a marathon though. I have to be at the hospital on

14th and according to the neurosurgeon I'll be in hospital for anything up to 7

days post op. I saw my pain doctor today as well and it looks as though I'm

going to be hospitalised in my local hospital when I get back so that they can

keep an eye on the wounds and screen me for stuff like MRSA. Seems like I may be

spending Christmas in hospital, fab!

I was wondering, could those of you who have permanent stims fitted let me know

what you were told that you could and couldn't do afterwards and for how long?

If any of you are on your own how did you cope with doing houshold chores and

grocery shopping etc.

Take care

     

[Guest guest]

Hi ,

I'm and I've had my SCS about 2 years. I was fortunate enough be put to

sleep for the entire procedure. They woke me up when they were placing the

leads to make sure they were properly placed, but then they put me back under.

I have read on here some people were awake for the procedure or at least part of

it. I'm a coward, so even if I was given a choice, I'd get put to sleep!!!!

Welcome to the group. I've learned a lot since I've joined (not that long ago).

And everyone is really nice. I think you'll love it here. Hope to chat soon.

Take Care,

B. in TEXAS

________________________________

From: <kenya@...>

Stimulator

Sent: Sunday, January 18, 2009 7:05:26 PM

Subject: Re: Hi I'm new

Kim and Kathy thank you sooo much for taking the time to write to me. I have

kept your emails so I can re-read them when I get nervous.

I was wondering was everyone here that had the surgery an outpatient or did you

stay the night in the hospital?

I had the lapband last year and was supposed to go home that day but due to

problems with the anesthesia I ended up in the hospital for two days. Will I be

put under for this procedure?

thanks so much

melissa

Re: Hi I'm new

Hello, , and WELCOME!!

I am so happy that you have joined our awesome and wonderful group!

My name is Kathy G. I am the Co-Owner of this fantastic group. The founder

is Mike. He is a great and caring guy. You will come to see and feel the

support, friendships and the best medicine...humor in this group of wonderful

folks.

Let me give you a wee bit information about myself and my stimulators. One

thing you will see from me is that I NEVER lie about the stims or the

pumps...I tell it like it is...the good and the bad...because I would be really

upset if I was looking into one and I only got the " polyana " version. I can't

stand when people only tell the positive side of things....like they are in a

fairy tale land...the truth is what we have here....this is another plus about

us.

Okay...I have had RSD now for 26 years. It causes horrendous burning pain

in the affected limb(s). I have it througout my body....the worst is my left

foot and ankle. I have had two stims placed in for RSD. My first one was

placed in 15 years ago. It was like a miracle to me!!!! The trial worked very

well...so they were going to do the permanent one. Before I was given the

anesthesia.. .all I could do was cry from the pain...when I woke up all I could

do was cry from sheer joy that the pain was gone!!! I had this pain for

almost 1 1/2 years and within a matter of two hours...gone!

Now, comes my second one for my legs. I was able to put my foot on the

ground without sheer agony, but as for the pain in the leg...it didn't do much

for it.....I have had it looked at by two different neuro surgeons, I have had

surgery to try to fix it...to see if it moved...which it didn't. Many people

ask me if I knew how this one would of turned out prior to having the second

one put in, would I of still done it. After a while of thinking about it, I

would honestly say yes. I am now able to put my foot down on the floor, as

prior to it being implanted... I wouldn't even dare try due to the agonizing

burn that would shoot up my leg.

I was told by two of the most reputable neurosurgeons in the country...one

in Jefferson University Hospital and the other in Hopkins that

they truly beleive that my RSD is so advanced that they don't think anything at

this point would help my ankle, and they among many others strongly suggest a

below the knee amputation. (This is very unusual for RSD patients...but

since the ankle is just so severe...not much else can be done...I don't want to

scare any other RSD patient reading this....there is alot of help out there

for RSD patients...you must catch it early enough to do it....)

I also wanted to talk to you about a pain pump, . I know you are not

asking about one, but the more information you get...the better, right?

I also had a pain pump placed in. Many, Many people that I know who have

them SWEAR by them saying they can't imagine not having it in...the pain is so

much better! Here again, , I will be brutally honest with you. I

LOVED my pump when it worked. Unfortunatly though, there were times that it

didn't work...for serious reasons and I wound up in withdrawl from strong narcs.

The first time was when the pump ran dry and put me into a serious

withdrawl from strong narcs. I never missed an appointment. I was extremely anal

with the pump, as I had morphine, bubivicaine and baclofen for severe spasms.

When we figured out that the pump had run dry...I was told by the company

medtronic, that this is a fluke and never, ever happens. So..okay, I had the

pump re-filled. Several months went by...it worked great. Unfortunately,

though, after returning for another refill, I was told that the prvious refill

never dispenced any of the meds. I had thought that I had the stomach flu a

few days after I had the pump refilled, but once again it was withdrawal.

I had to have it removed due to the second malfunction. Now, please

remember what I said...some folks swear by their pump and would NEVER, EVER give

their pumps away.

As far as the procedure in placing the stims, . The first one was a

breeze. I think the first one was so much easier for me since I was so much

thinner back then. Presently, I am taking a med whose major side effect is

" rapid weight gain " ...well. .they were not kidding...I have gained over 200

pounds in the past 2 years...of course it couldn't be rapid weight loss..oh no!

LOL I think that the second stim placement was a wee bit more painful like

i said due to the extra weight. The recuperation period is about 6-8 weeks.

The most IMPORTANT AND VITAL THING TO REMEMBER IS not to twist, bend or

lift anything heavier than 10 pounds. If you follow these basic rules, you

should be fine. As far as pain goes, I had to take percocet for only two days

for the surgical pain.

I hope I have answered all your questions and then some, . I am

positive that even if I missed one, I am sure that you will be receiving a ton

of

replies from alot of others folks in our group....like I told you...our

group is full of great and caring folks.

If I can be of any further help, or you need a shoulder or an ear...please

don't hesitate to contact me...._....KGavi@ aol.com_

(mailto:me........KGavi@ aol.com) or eyes for _Lenny (DOT) com_

(mailto:Lenny (DOT) com)

or (215)783-9066. ..this is my cell.

Once again, Welcome to our group.

Take care.

Kathy G

Group Co-Owner

************ **A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola. com/promoclk/ 100000075x121585 5013x1201028747/ aol?redir=

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cemailfooterNO62)

[Guest guest]

I have 4 different programs on my remote for my scs. One covers all areas

including the hip and I also have one just for my hip area, the others are for

my legs/feet. So yes, I can feel it in my hips/lower back. It all depends on

where they place the leads. That's why they wake you up during the surgery so

they can adjust the leads to make sure you are getting proper coverage.

Take Care,

B. in TEXAS

________________________________

From: <kenya@...>

Stimulator

Sent: Friday, March 13, 2009 10:16:22 AM

Subject: help I have questions about trial

Hi Guys, I had my trial yesterday. It took 2hrs and 20 min to get it where I

thought I could feel it in my hip.

I have pain in my left leg and hip. The stim goes down both legs, I thought that

it would only go down one?

I cant feel it going to my hip, does anyone?

I have had to adjust this alot is that normal? and ouch dont leave this thing on

when going to the bathroom. I guess I am just really scared it seems like a big

life change. I quit taking my pills today to see how this thing really works.

thanks,

melissa

[Guest guest]

Yup, I'm doing it right. 5% = 6.25 mg. X 12 drops= 75 mg.

That is correct and now that we've all figured that out, I think I'll now go to 100 mg. which would be 16 drops per day because I have just one thing to clear up.

Diabetes = GONE

Neuropathy = GONE

Body Temperature = NORMAL NOW

Digestion = FABULOUS

Sinus & Lung Congestion = IMPROVED BUT STILL NOT QUITE THERE. So that's my next step to watch for.

Bonnie

From: iodine [mailto:iodine ] On Behalf Of DeNormandieSent: November 9, 2011 5:24 PMiodine Subject: Back to

I don't know if u are wrong. I know that 7% is 34.0 mg. times that by 15 drops is 47.60 mg. That is why I'm asking. It took me awhile to figure out my dose and I was pretty satisfied with that but upon reading what you wrote now I am questioning my math. on;t think your drop at 5% 12 drop can equal 75mg. Sorry but when I do the math yours comes out wrong.Maybe recalculate for your benefit.

From: Bonnie Cole <bonnieview@...>iodine Sent: Wed, November 9, 2011 1:35:01 PMSubject: RE: Back to Louise & blood sugar #'s

:

I hope I haven't been doing this wrong. I was told that Lugol's Liquid (5%) is 6.25 mg. per drop and my 12 drops daily should amount to 75 mg.

Please let me know if I'm wrong.

Bonnie

From: iodine [mailto:iodine ] On Behalf Of DeNormandieSent: November 9, 2011 2:23 PMiodine Subject: Re: Back to Louise & blood sugar #'s

Okay, since I've gone on Lugol's 7 % I'm confused after reading Bonnie's post. At 7% it is 3.40mg. I need 15 drops to get at 47.60mg. How can 12 drops of 5% be at 75mg?I rechecked my math on this.Can someone correct me or maybe I am right on with what I am taking and the amount and Bonnie is not taking as much as she thinks she is taking.

From: Bonnie Cole <bonnieview@...>iodine Sent: Wed, November 9, 2011 1:13:18 PMSubject: Back to Louise & blood sugar #'s

Hi Louise:

While I was at 20 mg. per day of Lugol's Liquid of 5% (I never heard of 6%), NOTHING happened, except my digestion started to improve. I have Gastroparesis and nothing is moving out of the stomach for up to 20 hours. That is how long it takes to digest a meal, so I had SIBO (Small Intestinal Bacterial Overgrowth) but didn't know it. I'm still learning about this terrible affliction that a lot of Diabetics have.

When I reached 50 mg. by increasing one more drop each week (and it took 8 weeks to reach 8 drops daily) once I got to that point, my Blood Sugar had gone TOO LOW a few times, while taking Metformin, so I gradually weaned myself off that drug, which I have since learned damages the Kidneys.

I was still continuing to increase my dose each week and am now at 12 drops (75 mg.) per day. I have been sitting at 75 mg. now for a month. My Blood Sugar still amazes me each time I take it. I've tried eating chocolates which I really missed this past 13 years and had to deprive myself of a lot of good things. I couldn't even eat a whole potato, now I can eat 2 if I want to.

My blood sugar will climb a bit to where it worries me but I don't run and get any pills now and within about 2 hours it is back down to a good place.

Bonnie

From: iodine [mailto:iodine ] On Behalf Of Louise HillSent: November 9, 2011 12:20 PMiodine Subject: Re: TMJ and iodine+

Bonnie, I am struggling at the moment with very high morning glucose. I quit eating large amounts of carbs years ago but now it seems that proteins are causing high BS. This morning my fasting BS was 134 the highest it's ever been.

I am taking around 20 mg of 6% Lugol's at the moment, I was taking Iodoral but for some reason it caused reactions ( not detox ones ) that I don't feel when I take Lugol's. How fast did you raise you dose? I'd love for my BS to go down and to get rid of the insulin resistance.

Louise

On Nov 5, 2011, at 3:23 PM, Bonnie Cole wrote:

:

Isn't that amazing? I wonder how that could have happened? I don't know what causes it, so I couldn't figure it out. What do you think? Isn't that from a misaligned BITE?

Stay with it and let the List know whatever OTHER great benefits you find.

When I reached 50 mg. (going slow) at the 8th week, I LOST MY DIABETES.

This is great stuff.

Bonnie

From: iodine [mailto:iodine ] On Behalf Of susanherman_98325Sent: November 4, 2011 4:00 AMiodine Subject: TMJ and iodine

Is it at all possible that this iodine has cured or taken away my TMJ symptoms. TMJ is jaw pain and clicking. It has GONE????Thanks so much.I take 50mgs so far. Only for about 2-3 weeks. Go figure...

[Guest guest]

and Bonnie, there have been some Gardasil injured girls diagnosed with Gastroparesis. So you are saying Iodine helps with this? I would like to direct them here if so. What protocol are you following and how long did it take to see changes?

Jeannie

Back to Louise & blood sugar #'s

Hi Louise:

While I was at 20 mg. per day of Lugol's Liquid of 5% (I never heard of 6%), NOTHING happened, except my digestion started to improve. I have Gastroparesis and nothing is moving out of the stomach for up to 20 hours. That is how long it takes to digest a meal, so I had SIBO (Small Intestinal Bacterial Overgrowth) but didn't know it. I'm still learning about this terrible affliction that a lot of Diabetics have.

When I reached 50 mg. by increasing one more drop each week (and it took 8 weeks to reach 8 drops daily) once I got to that point, my Blood Sugar had gone TOO LOW a few times, while taking Metformin, so I gradually weaned myself off that drug, which I have since learned damages the Kidneys.

I was still continuing to increase my dose each week and am now at 12 drops (75 mg.) per day. I have been sitting at 75 mg. now for a month. My Blood Sugar still amazes me each time I take it. I've tried eating chocolates which I really missed this past 13 years and had to deprive myself of a lot of good things. I couldn't even eat a whole potato, now I can eat 2 if I want to.

My blood sugar will climb a bit to where it worries me but I don't run and get any pills now and within about 2 hours it is back down to a good place.

Bonnie

From: iodine [mailto:iodine ] On Behalf Of Louise HillSent: November 9, 2011 12:20 PMiodine Subject: Re: TMJ and iodine+

Bonnie, I am struggling at the moment with very high morning glucose. I quit eating large amounts of carbs years ago but now it seems that proteins are causing high BS. This morning my fasting BS was 134 the highest it's ever been.

I am taking around 20 mg of 6% Lugol's at the moment, I was taking Iodoral but for some reason it caused reactions ( not detox ones ) that I don't feel when I take Lugol's. How fast did you raise you dose? I'd love for my BS to go down and to get rid of the insulin resistance.

Louise

On Nov 5, 2011, at 3:23 PM, Bonnie Cole wrote:

:

Isn't that amazing? I wonder how that could have happened? I don't know what causes it, so I couldn't figure it out. What do you think? Isn't that from a misaligned BITE?

Stay with it and let the List know whatever OTHER great benefits you find.

When I reached 50 mg. (going slow) at the 8th week, I LOST MY DIABETES.

This is great stuff.

Bonnie

From: iodine [mailto:iodine ] On Behalf Of susanherman_98325Sent: November 4, 2011 4:00 AMiodine Subject: TMJ and iodine

Is it at all possible that this iodine has cured or taken away my TMJ symptoms. TMJ is jaw pain and clicking. It has GONE????Thanks so much.I take 50mgs so far. Only for about 2-3 weeks. Go figure...

[Guest guest]

Hi Bonnie,

I started painting the Lugol's on my skin over a year ago (no idea how many drops it is, but usually a fairly dark patch, 2 inches by 2 inches) following a dental extraction.

At the time I was taking Champix (and was down to 2 or 3 cigarettes per day) and I think it interacted with the anaesthesia. I stopped the Champix soon after as I was having strong urges to commit violence!

My morning temperature dropped to 34.4c but my GP did not think that was a problem. My regular annual blood test showed TSH in the (very wide) normal range.

BUT - I have so many of the symptoms of an underactive thyroid, and was concerned that if I did get ill would be unable to burn the invader out.

Managed to raise morning temperature to around 36.6c, but did not actually get into the iodine forum until recently and didn't realise that I should be taking companion nutrients as well.

Just purchased Himalayan salt, have a multi with B vitamins, and some Magnesium (1g tablets), regularly eat brazil nuts which are high in selenium and have the cheese and flaxseed oil mix 3 or 4 times a week (if I use ground flaxseed instead of just the oil it does speed things up ) and occasionally have some organic sulphur or some dairy kefir so I am hoping that these extras will help the iodine work better. Not quite up to taking the Lugol's in water yet.

I have MS so expect to have chronic fatigue - but not the rest of the symptoms!

~~~~~~~~~~~~~~~~~~~~~~~~~~~

Back to Louise & blood sugar #'s

Hi Louise:

While I was at 20 mg. per day of Lugol's Liquid of 5% (I never heard of 6%), NOTHING happened, except my digestion started to improve. I have Gastroparesis and nothing is moving out of the stomach for up to 20 hours. That is how long it takes to digest a meal, so I had SIBO (Small Intestinal Bacterial Overgrowth) but didn't know it. I'm still learning about this terrible affliction that a lot of Diabetics have.

When I reached 50 mg. by increasing one more drop each week (and it took 8 weeks to reach 8 drops daily) once I got to that point, my Blood Sugar had gone TOO LOW a few times, while taking Metformin, so I gradually weaned myself off that drug, which I have since learned damages the Kidneys.

I was still continuing to increase my dose each week and am now at 12 drops (75 mg.) per day. I have been sitting at 75 mg. now for a month. My Blood Sugar still amazes me each time I take it. I've tried eating chocolates which I really missed this past 13 years and had to deprive myself of a lot of good things. I couldn't even eat a whole potato, now I can eat 2 if I want to.

My blood sugar will climb a bit to where it worries me but I don't run and get any pills now and within about 2 hours it is back down to a good place.

Bonnie

From: iodine [mailto:iodine ] On Behalf Of Louise HillSent: November 9, 2011 12:20 PMiodine Subject: Re: TMJ and iodine+

Bonnie, I am struggling at the moment with very high morning glucose. I quit eating large amounts of carbs years ago but now it seems that proteins are causing high BS. This morning my fasting BS was 134 the highest it's ever been.

I am taking around 20 mg of 6% Lugol's at the moment, I was taking Iodoral but for some reason it caused reactions ( not detox ones ) that I don't feel when I take Lugol's. How fast did you raise you dose? I'd love for my BS to go down and to get rid of the insulin resistance.

Louise

On Nov 5, 2011, at 3:23 PM, Bonnie Cole wrote:

:

Isn't that amazing? I wonder how that could have happened? I don't know what causes it, so I couldn't figure it out. What do you think? Isn't that from a misaligned BITE?

Stay with it and let the List know whatever OTHER great benefits you find.

When I reached 50 mg. (going slow) at the 8th week, I LOST MY DIABETES.

This is great stuff.

Bonnie

From: iodine [mailto:iodine ] On Behalf Of susanherman_98325Sent: November 4, 2011 4:00 AMiodine Subject: TMJ and iodine

Is it at all possible that this iodine has cured or taken away my TMJ symptoms. TMJ is jaw pain and clicking. It has GONE????Thanks so much.I take 50mgs so far. Only for about 2-3 weeks. Go figure...

[Guest guest]

Hi Jeannie,

The current treatments for vaccine injury usually include probiotics, heavy metal detox and glutamine to heal the gut. Iodine may help it work better.

Perhaps check for the Wakefield approach?

- Don't believe all headlines - he was highly respected until he connected gut injury to vaccines - and found that those with autism spectrum usually (always?) had gut problems.

The connection valid. Only a short step for ordinary people to connect the dots.Did not make vaccine manufacturers happy. Nuff said.

It would be wonderful if these girls can be helped.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Back to Louise & blood sugar #'s

Hi Louise:

While I was at 20 mg. per day of Lugol's Liquid of 5% (I never heard of 6%), NOTHING happened, except my digestion started to improve. I have Gastroparesis and nothing is moving out of the stomach for up to 20 hours. That is how long it takes to digest a meal, so I had SIBO (Small Intestinal Bacterial Overgrowth) but didn't know it. I'm still learning about this terrible affliction that a lot of Diabetics have.

When I reached 50 mg. by increasing one more drop each week (and it took 8 weeks to reach 8 drops daily) once I got to that point, my Blood Sugar had gone TOO LOW a few times, while taking Metformin, so I gradually weaned myself off that drug, which I have since learned damages the Kidneys.

I was still continuing to increase my dose each week and am now at 12 drops (75 mg.) per day. I have been sitting at 75 mg. now for a month. My Blood Sugar still amazes me each time I take it. I've tried eating chocolates which I really missed this past 13 years and had to deprive myself of a lot of good things. I couldn't even eat a whole potato, now I can eat 2 if I want to.

My blood sugar will climb a bit to where it worries me but I don't run and get any pills now and within about 2 hours it is back down to a good place.

Bonnie

From: iodine [mailto:iodine ] On Behalf Of Louise HillSent: November 9, 2011 12:20 PMiodine Subject: Re: TMJ and iodine+

Bonnie, I am struggling at the moment with very high morning glucose. I quit eating large amounts of carbs years ago but now it seems that proteins are causing high BS. This morning my fasting BS was 134 the highest it's ever been.

I am taking around 20 mg of 6% Lugol's at the moment, I was taking Iodoral but for some reason it caused reactions ( not detox ones ) that I don't feel when I take Lugol's. How fast did you raise you dose? I'd love for my BS to go down and to get rid of the insulin resistance.

Louise

On Nov 5, 2011, at 3:23 PM, Bonnie Cole wrote:

:

Isn't that amazing? I wonder how that could have happened? I don't know what causes it, so I couldn't figure it out. What do you think? Isn't that from a misaligned BITE?

Stay with it and let the List know whatever OTHER great benefits you find.

When I reached 50 mg. (going slow) at the 8th week, I LOST MY DIABETES.

This is great stuff.

Bonnie

From: iodine [mailto:iodine ] On Behalf Of susanherman_98325Sent: November 4, 2011 4:00 AMiodine Subject: TMJ and iodine

Is it at all possible that this iodine has cured or taken away my TMJ symptoms. TMJ is jaw pain and clicking. It has GONE????Thanks so much.I take 50mgs so far. Only for about 2-3 weeks. Go figure...

[Guest guest]

Hi Jeannie,

I did not even know that my problem had a name until Bonnie's response!

It is another thing my GP does not think important.

Will know better how iodine affects it as I go along.

.........................................................................

The Gardisil debacle makes me cross!

First of all, HPV appears under the same conditions as cancer - a depressed immune system. There is actually no proof that protection against HPVs will protect against cancer - only a healthy immune system can do that. And vaccination usually weakens the immune system.

Secondly, anyone thinking of having the HPV vaccine is supposed to be screened for a prior infection - could even be a simple wart on your thumb. Going to try to send you a document to look through - the FDA knows that having any form of HPV prior to the vaccine increases the chance of an adverse reaction. But the information is not on the vaccine box.......................

(In particular view Tables 17 and 19 of study 13, starting at page 13.)

There is no evidence that the vaccine will be effective for more than a year or two - so why recommend it for children?

It only addresses four out of a possible 100-odd strains.

Most HPVs resolve without intervention - in fact most cervical cancer is resolved without the woman knowing a thing about it - but blood tests will show the markers. The most effective method to not die of cervical cancer is a regular pap smear once the female becomes sexually active. Uncomfortable - often. Embarrassing - frequently. But preferable to some of the nasty adverse reactions!

As for the shot now being recommended for boys - and children as young as 8 - there are no words for this kind of stupidity!

I could fill a book with my concerns!

My daughter was offered a free HPV vaccine - and refused. The GP was perplexed "why would you not take the opportunity to avoid dying of cancer of the cervix?"

She replied that one of the known adverse effects is sterility - and she and her husband wanted to start a family.

Also, that she has only ever been intimate with her husband and made him be tested for all STDs before they started sexual intimacy. So she was extremely unlikely to ever get an HPV.

and lastly - there were no statistics that showed any drop in the cervical cancer rates since Gardisil started being used. To say he was stunned would be an understatement!

~~~~~~~~~~~~~~~~~~~~~~~~~~

Back to Louise & blood sugar #'s

Hi Louise:

While I was at 20 mg. per day of Lugol's Liquid of 5% (I never heard of 6%), NOTHING happened, except my digestion started to improve. I have Gastroparesis and nothing is moving out of the stomach for up to 20 hours. That is how long it takes to digest a meal, so I had SIBO (Small Intestinal Bacterial Overgrowth) but didn't know it. I'm still learning about this terrible affliction that a lot of Diabetics have.

When I reached 50 mg. by increasing one more drop each week (and it took 8 weeks to reach 8 drops daily) once I got to that point, my Blood Sugar had gone TOO LOW a few times, while taking Metformin, so I gradually weaned myself off that drug, which I have since learned damages the Kidneys.

I was still continuing to increase my dose each week and am now at 12 drops (75 mg.) per day. I have been sitting at 75 mg. now for a month. My Blood Sugar still amazes me each time I take it. I've tried eating chocolates which I really missed this past 13 years and had to deprive myself of a lot of good things. I couldn't even eat a whole potato, now I can eat 2 if I want to.

My blood sugar will climb a bit to where it worries me but I don't run and get any pills now and within about 2 hours it is back down to a good place.

Bonnie

From: iodine [mailto:iodine ] On Behalf Of Louise HillSent: November 9, 2011 12:20 PMiodine Subject: Re: TMJ and iodine+

Bonnie, I am struggling at the moment with very high morning glucose. I quit eating large amounts of carbs years ago but now it seems that proteins are causing high BS. This morning my fasting BS was 134 the highest it's ever been.

I am taking around 20 mg of 6% Lugol's at the moment, I was taking Iodoral but for some reason it caused reactions ( not detox ones ) that I don't feel when I take Lugol's. How fast did you raise you dose? I'd love for my BS to go down and to get rid of the insulin resistance.

Louise

On Nov 5, 2011, at 3:23 PM, Bonnie Cole wrote:

:

Isn't that amazing? I wonder how that could have happened? I don't know what causes it, so I couldn't figure it out. What do you think? Isn't that from a misaligned BITE?

Stay with it and let the List know whatever OTHER great benefits you find.

When I reached 50 mg. (going slow) at the 8th week, I LOST MY DIABETES.

This is great stuff.

Bonnie

From: iodine [mailto:iodine ] On Behalf Of susanherman_98325Sent: November 4, 2011 4:00 AMiodine Subject: TMJ and iodine

Is it at all possible that this iodine has cured or taken away my TMJ symptoms. TMJ is jaw pain and clicking. It has GONE????Thanks so much.I take 50mgs so far. Only for about 2-3 weeks. Go figure...

1 of 1 File(s)

Gardasil background document 2006.pdf

[Guest guest]

Hi ,If you have MS, have you looked at Low Dose Naltrexone? I copied and pasted some info I keep handy to post about LDN for lists that talk about MS and fibro. Using it, my pain has gone down about 40-50%. Adding the Iodine, has dropped it another 10%. You might want to look at it. There are lots of groups on , very willing to help you out. If you want more info, just let me know. Glowing,grace~ Have you heard of Low Dose Naltrexone otherwise known as LDN? When used in low doses, (3.0-4.5 mg per day) it has wonderful, life changing effects with illnesses such as Crohn’s Disease, prostate cancer and multiple sclerosis, along with many other immune system disorders.

One lady reported treating her Crohn’s disease with LDN. She claims to the LDN has helped reduce her symptoms significantly. One of the guys on the list has both MS and prostate cancer and he swears by this med. I’ve heard people with MS talk about leaving canes, braces, and even wheelchairs by the wayside after starting treatment with Low Dose Naltrexone.

It’s cheap, easy to take (it’s a compounded pill or you can dissolve a 50 mg pill in 50 ml of distilled water and take what you need each nite, letting you work up to the best dose for you) and effective against all sorts of auto immune disorders. If I understand correctly, it works by encouraging the body to release more of the endorphins that our immune system seems to lack. It’s taken once a day, before bed. It is an immune system modulator, helping the immune system to function at its best.

Amazingly, it helps 85% of people with MS stop the progression of their disease. You still have some who aren’t helped, but just think of all the people who wouldn’t have to take those life shortening MS drugs who could have a better life!

Check out more info at LDNInfo.org or on Facebook at Got Endorphins. Lots of info and personal testimonies.

http://articles.mercola.com/sites/articles/archive/2011/09/19/one-of-the-rare-drugs-that-actually-helps-your-body-to-heal-itself.aspx?e_cid=20110919_DNL_art_3

I used www.AllDayChemist.com in India to get my Naltrexone. You don’t need an Rx with ADC. It is called Revia and comes in 50 mg tablets, in a 10 pack. There is a standard $25.00 shipping charge on all orders. If you are going to order for several people, do it all at once and split the shipping charge. I ordered $400+ last time and it was still only $25.00. I recommend them highly. Just don't use Titan Money. In fact, if you send ADC a check, I think you get a discount.

Wishing you the best! Oh, it does sometimes take 3-4 weeks to get, so don't be surprised if it takes a while. However, my last order came in less than 2 weeks. LDN is the BEST investment I have ever made in my health.

I would suggest looking at the Iodine Protocol. It has helped my issues a lot. iodine/ is a great place for info on Iodine. They are busy, much like the LDN groups, so you might want to consider the digest mode. There is also info at www.breastcancerchoices.org, http://www.optimox.com/pics/Iodine/opt_Research_I.shtml and on Facebook, Iodine4Health.

You might also look at adrenal issues. I just heard about the salt part for addressing adrenal fatigue. Started taking one tablespoon of Himalayan salt and it really helped. Then, I got a new brand and it was too salty. So am now using the Himalayan Stones and keeping them in water and take one tsp. of that each morning on an empty stomach. I also use Adrenal Rebuilder by Dr. , who wrote the book about Adrenal Fatigue – 21st Century Stress Problem.

, on the Iodine list recommends Biotics Research Cytozyme AD. It is cheaper, but I haven't tried it. For now, I am going to stick with 's since it is raising my temps and helping me feel better. Slow process!

This is the best general article I have seen on LDN. This is the link. But I copied and pasted it for your review.

http://www.drwhitaker.com/legacy/issues/pwp_nc/scntr_LDN_0309.htmlHere is a copy in case the link does not work: Comments in Italics are my personal comments.Immune Enhancement LDN: A Lifesaving DrugIn October 2005, Dee Alejo was diagnosed with advanced cervical cancer. She had surgery, followed by chemotherapy and radiation, but the cancer had metastasized to her lungs. In February 2007, she was told she had four to nine months to live. When she contacted a friend to relay the bad news, her friend told her about an inexpensive, non-toxic drug that was being used to successfully treat cancer.Dee was anxious to give it a try, but she couldn't find a doctor who would prescribe it. Desperate, Dee tracked down the physician who discovered this therapy, got a prescription, and began taking it. Today, nearly two years later, Dee is back at work and glowing with health. Although she still has evidence of tumors in her lungs, they appear to be calcifying rather than growing, and she has virtually no symptoms.Twelve years ago, Vicki Finlayson developed numbness and tingling in her arms and legs. After two years, many tests, and unrelenting pain and fatigue, as well as speech, memory, and balance problems, she was diagnosed with a severe form of multiple sclerosis (MS). For the next eight years, Vicki spent most of her time on the couch or in bed, "depressed and hating life." She tried one drug after another, from weekly injections and steroid infusions to a lengthy list of narcotics and other medications. Nothing provided much relief, and side effects landed her in the hospital.In 2005, Vicki's husband heard about an inexpensive, nontoxic drug that was helping people with MS. Although she was skeptical, Vicki convinced her doctor to write a prescription. Just two days after she started taking it, her pain began to subside and her energy returned, and within six months, all of her symptoms were gone. Today, Vicki takes no other medications, and she's back to playing golf.The drug that produced such miraculous results for Dee, Vicki, and tens of thousands of others is low-dose Naltrexone (LDN).LDN is a major breakthrough, but like other innovative therapies, it's virtually ignored by conventional physicians. It's the same old song and dance: "If it were any good, I'd know about it." Yet this safe, economical drug stands to benefit millions—not only those with cancer and MS, but also people dealing with autism, Parkinson's, fibromyalgia, chronic fatigue syndrome, and other autoimmune diseases.All About Endorphins

If you ask your doctor about Naltrexone, he'll probably tell you it's for treating addiction, and he's right. Naltrexone was approved more than 20 years ago for facilitating heroin withdrawal, and it's now used for alcoholism as well. So how does such a drug help patients with cancer, MS, and other diseases? It's all about endorphins.Endorphins were discovered in the 1970s after scientists found that morphine, heroin, and other opiates relieved pain and enhanced mood by binding to opioid receptors in the brain. They concluded there must be natural compounds that also latch on to these receptors, and they went on to identify peptides that have effects similar to opiate drugs. They named these peptides endorphins, from the words endogenous (meaning made in the body) and morphine.The best known endorphin is beta-endorphin, which is produced in response to physical exercise. Beta-endorphin is believed to be responsible for the "runner's high" experienced during and after a long run. However, it's just one of a number of endorphins that are made in the brain and adrenal glands, and they do far more than increase pain tolerance and sense of well-being.A Momentous Discovery

In the 1980s, it was noted that Naltrexone boosts endorphin levels. Based on this knowledge, New York City physician Bernard Bihari, MD, and colleagues hypothesized that patients with AIDS, who have significant reductions in levels of circulating endorphins, could benefit from low doses of this drug. So they conducted a study in which AIDS patients took 1.75 to 4.5 mg of Naltrexone at bedtime.The results were incredible. The endorphin levels of these patients soared, and they not only felt better, but their viral counts went down, they gained weight, and their health improved dramatically. The effects were so remarkable that Dr. Bihari began using LDN not only for AIDS but also for other diseases marked by immune system dysfunction. To his delight, the results were equally positive.Dr. Bihari had stumbled upon a momentous discovery: Endorphins play a central role in immune function, and LDN enhances the immune response by stimulating endorphin production.LDN Boosts Immune Function

It would be several years before the mechanisms were understood, but we now know that when LDN is taken at bedtime, it binds to opioid receptors and temporarily blocks endorphins from attaching. This action signals the body to increase endorphin production, an effect that can last as long as 18 hours.Opioid receptors aren't exclusive to the brain. They're also present on all types of immune cells, including macrophages, natural killer cells, T- and B-cells, and even stem cells. As a result, the flood of endorphins set into motion by LDN stimulates the immune system and enhances the body's ability to fight disease.The benefits of this remarkable drug have been proven in a number of scientific studies, several of which were presented at the Fourth Annual LDN Conference held in 2008 on the campus of the University of Southern California School of Medicine.Cancer, Autoimmune Diseases…

Burton Berkson, MD, discussed the use of LDN for cancer. He gave an update on a case he published two years ago involving a patient with metastatic pancreatic cancer who was treated with LDN and intravenous alpha lipoic acid after failing a course of chemo. The patient continues to do well eight years after his "terminal" diagnosis. Dr. Berkson and others also reported on patients who have successfully used LDN for cancers of the liver, breast, ovary, prostate, lung, and colon, as well as lymphoma and melanoma.The benefits of LDN for patients with multiple sclerosis, rheumatoid arthritis, lupus, and other autoimmune disorders were addressed as well. ish physician Tom Gilhooly, MD, focused on MS (Scotland has the world's highest rate of the disease) and the excellent outcomes of patients treated with LDN. Dr. Gilhooly is currently involved in a clinical trial on the urological effects of LDN in patients with multiple sclerosis.Skip Lenz, PharmD, also talked about LDN's therapeutic effects on MS. He conducted an informal survey of 185 people, most of them with MS, who were taking LDN and found that 56 percent had improvements in symptoms, and 32 percent held steady—amazing results considering the progressive nature of MS and the toxicity of conventional treatments.…Autism, and More

Jacquelyn McCandless, MD, discussed her experience with LDN and children who have autism, which now affects one in 150 American kids. Autism is marked by immune dysfunction and is considered by many to be an autoimmune disorder potentially brought on by the excessive use of vaccinations. Dr. McCandless stated that the majority of these kids become more social and exhibit better eye contact and more interaction with others after they start taking LDN. Their sleep is also improved, and they get fewer colds and other infections. Gluck, MD, who chaired the conference and, aside from Dr. Bihari, has done more than anyone to advance the use of LDN, gave an overview of other new research. Highlights included a 2007 study showing that 89 percent of patients with Crohn's disease had symptomatic improvement with LDN, and a 2008 Italian study demonstrating that LDN stopped progression in all but one of 40 patients with an aggressive type of MS. He also reported on continuing research into LDN's effects on inflammatory bowel disease, fibromyalgia, and MS.Truth be told, we have barely scratched the surface when it comes to the therapeutic potential of this drug. Patients and physicians—including those at Whitaker Wellness—get consistently good results with LDN. In addition to the conditions discussed above, it's also helpful for allergies, Parkinson's disease, chronic fatigue syndrome, leaky gut and other gastrointestinal problems, corneal ulcers, and overall immune support. And Dr. McCandless calls LDN "the best anti-aging medicine going."Ignored by Conventional Doctors

So we're back to the same old question: Why don't conventional physicians prescribe LDN? First, they don't know about it. Doctors get most of their information from pharmaceutical reps and medical journals, which are essentially drug ads cloaked in the mantle of science. Because Naltrexone's patent expired years ago, no drug company will ever research or promote LDN. Furthermore, LDN is inexpensive (about $30 for a month's supply), so there's no profit motive. Plus, it would compete with newer, far more expensive drugs. Many patients with serious chronic disease spend hundreds or thousands of dollars a month on medications, and some cancer drugs cost more than $100,000 a year! No profit-motivated company is going to derail that gravy train. Comment from grace - (I order mine from www.AllDayChemist.com in India because I couldn’t get 5 physicians, even after they saw the awesome results, to Rx it for me. No Rx is needed there. And they are wonderful people!) Second, Naltrexone has been approved by the FDA only for opiate and alcohol dependence. And although the "off-label use" of a drug—prescribing it to treat conditions other than those for which it's approved—is perfectly legal, many doctors are too timid to do it.Finally, most physicians are unwilling to think outside the box. If a patient asks me about a therapy and I'm unfamiliar with it, I'll check it out and, as long as it's safe and makes sense, I'll help the patient give it a try. There's a wealth of data on LDN on the Internet—just Google LDN and see for yourself. Unfortunately, most physicians are so stuck in their biases that they prefer to just say no.Patients Are Spreading the Word

Physicians may not be embracing LDN, but patients certainly are. Vicki, the woman who was nearly crippled with MS, walked 53 miles from her home to the California state capitol building in Sacramento to talk with Governor Schwarzenegger's staff about raising awareness of LDN. Dee, the "terminal" cancer patient, has created a Web site to get the word out (ldn4cancer.com).A couple of patients have written books on LDN and more will soon be released. Still others, realizing that well-organized studies are the only way to get the attention of the scientific community, are raising money or using their own resources to fund research (although the current science is more than adequate).I wish them luck, and I'll do everything I can to help, but I'm not optimistic. This reminds me of the Dilantin saga. Jack Dreyfus has spent $80 million of his personal fortune trying to get doctors to recognize the extremely beneficial off-label uses of this safe, inexpensive, low-dose drug for treating anxiety and depression. Forty years later, it's still ignored. Meanwhile, the pharmaceutical companies have made billions of dollars on antidepressants that are not only dangerous, but mind-numbing as well.If you are suffering with any of the conditions discussed in this article, LDN certainly merits a therapeutic trial. Talk to your doctor, present the research and sources of additional information, and if he/she isn't open to prescribing LDN, then find a new physician.Recommendations:LDN requires a prescription (although you can get it at All Day Chemist without one if you can’t find a supportive physician) and is obtained through compounding pharmacies. (Regular pharmacies typically carry only 50 mg capsules.) Good ones include Skip's Pharmacy, (800) 553-7429, Wellness Pharmacy, (800) 227-2627, and McGuff Pharmacy, (877) 444-1133.

The optimal dose of LDN is 4.5 mg at bedtime. Some people have vivid dreams when they first begin using LDN. If this is an issue for you, start with 1.5–3 mg and build up over two months. Do not take LDN if you use narcotic drugs—it blocks their effects and causes withdrawal symptoms. LDN may be started only after narcotics are completely out of your system, typically 1-2 weeks is recommended.

We routinely prescribe LDN at the Whitaker Wellness Institute. To see a physician here, call (800) 488-1500.

To learn more, visit Dr. Gluck's Web site, www.LowDoseNaltrexone.org and search the Internet for LDN.Reference:

A Revolution in Research: The Fourth Annual Low-Dose Naltrexone Conference. October 11, 2008. http:LDN-for-Cancer.com updated version now

Re: Back to

Posted by: " Marsh" hmarsh@... newbieheathermarsh

Thu Nov 10, 2011 8:00 am (PST)

Hi Bonnie,I started painting the Lugol's on my skin over a year ago (no idea how many drops it is, but usually a fairly dark patch, 2 inches by 2 inches) following a dental extraction.At the time I was taking Champix (and was down to 2 or 3 cigarettes per day) and I think it interacted with the anaesthesia. I stopped the Champix soon after as I was having strong urges to commit violence! My morning temperature dropped to 34.4c but my GP did not think that was a problem. My regular annual blood test showed TSH in the (very wide) normal range.BUT - I have so many of the symptoms of an underactive thyroid, and was concerned that if I did get ill would be unable to burn the invader out. Managed to raise morning temperature to around 36.6c, but did not actually get into the iodine forum until recently and didn't realise that I should be taking companion nutrients as well.Just purchased Himalayan salt, have a multi with B vitamins, and some Magnesium (1g tablets), regularly eat brazil nuts which are high in selenium and have the cheese and flaxseed oil mix 3 or 4 times a week (if I use ground flaxseed instead of just the oil it does speed things up ) and occasionally have some organic sulphur or some dairy kefir so I am hoping that these extras will help the iodine work better. Not quite up to taking the Lugol's in water yet.I have MS so expect to have chronic fatigue - but not the rest of the symptoms!