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I don't use this site often but thank God it's here. For the past four years I

have had no end of problems with my TSH being too high, and the associated

problems that entailed, and being able to read posts by people suffering from

the same problems have reassured me a lot, and also given me the guts to stand

up for myself today. I had a blood test last week after 10 months of being with

my new gp surgery and phoned for the results. I have been feeling really under

the weather for the last 6 months, on and off, and I was on 125mcu thyroxine,

prescribed in January because my TSH was higher again. Anyway, my results hadn't

been seen by a doctor, so the receptionist didn't know what to do...would I like

a docs appt next week....NO....tell me the numbers on the form please. Okay she

says....Serum Free T4 is 26.2, it says high!! and TSH is 0.05, is that

okay.....no it isn't okay, I think I should speak to a doctor....oh she says

will next week do....NO....I think not. Okay, will you chat to a

nurse...YES...okay. Nurse rings back, maybe you should see a doctor, yes

okay...next week be okay...NO....as soon as possible. Just get doc .....any

doc...to ring me and discuss these results. Show him the form and he can decide

for himself if he needs to contact me. Okay she says....5 minutes later doc

comes on phone...these results are not good at all, no wonder you feel so

poorly, reduce to 100mcu for a few weeks and then reduce to 75mcu and come back

for blood test in 8 weeks to make sure you haven't gone under active again. Not

perfect...but thanks to this site I was able to make my feelings known and get

something done urgently. Looking forward to feeling better now. Thanks group.

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It may not be the answer you need though…….this

doctor obviously thinks you are taking too much thyroxine because your free T4

is so high and your TSH is suppressed. He obviously has not considered that the

reason your free T4 is so high is because it is NOT CONVERTING to the active

thyroid hormone T3. It is T3 that every cell in your body and brain need to

make them function, NOT T4. If T4 is not converting, it has nowhere to go and lies

around in the blood causing symptoms of toxicity and your pituitary , which

secretes TSH when it recognises there are low levels of thyroid hormone in the

blood, has no need to secrete ANY TSH, so becomes completely suppressed,

because it has already recognised there are high levels of thyroxine in the

blood.

I reckon you don't need thyroxine - you need the active thyroid

hormone T3, so you should ask your GP for a trial - and if he doesn't want to

give you one, then you need to ask for a referral to an endocrinologist who

knows more about how the thyroid system works.

There are many of us unable to convert thyroxine into T3, and we

take T3 to replace what is not being made and feel brilliant - I am one of

them. I think you may well have to 'educate' this doctor and tell him that you

are NOT suffering with symptoms of hypothyroidism and explain to him about

conversion, or rather, a lack of conversion in your case.

I have attached a document telling you of the many different

possible causes why thyroxine suddenly doesn't work, and another document

showing you references to some of the research and studies done that show that if

certain minerals/vitamins are low in the reference range, they need to be

supplemented before thyroid hormone can work. Doctors deny that some of these

are needed, so ask for those tests mentioned and copy out the list of references

to show your GP why you need them.

Luv - Sheila

Anyway, my results hadn't been seen by a

doctor, so the receptionist didn't know what to do...would I like a docs appt

next week....NO....tell me the numbers on the form please. Okay she

says....Serum Free T4 is 26.2, it says high!! and TSH is 0.05, is that

okay.....no it isn't okay, I think I should speak to a doctor....oh she says

will next week do....NO....I think not. Okay, will you chat to a

nurse...YES...okay. Nurse rings back, maybe you should see a doctor, yes

okay...next week be okay...NO....as soon as possible. Just get doc .....any

doc...to ring me and discuss these results. Show him the form and he can decide

for himself if he needs to contact me. Okay she says....5 minutes later doc

comes on phone...these results are not good at all, no wonder you feel so

poorly, reduce to 100mcu for a few weeks and then reduce to 75mcu and come back

for blood test in 8 weeks to make sure you haven't gone under active again. Not

perfect...but thanks to this site I was able to make my feelings known and get

something done urgently. Looking forward to feeling better now. Thanks group.

2 of 2 File(s)

WHY THYROID HORMONE REPLACEMENT MAY NOT BE WORKING FOR YOU.doc

LOW MINERALS AND VITAMINS AND THE THYROID CONNECTION.doc

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