RE: Re: website >Patient Opinion<

[Guest guest]

Hi A, I have

just done a search of the messages yet again for Proton Pump Inhibitors, and

although this has been discussed previously, there are absolutely no messages

from you, so it looks as if it never got posted, or that didn't accept

it, though heavens knows why.

I just wanted to

see, do NOT accept a diagnosis of CFS - if you do, you will not be given any

treatment and you will not get a diagnosis of hypothyroidism. Stick it out to

get the correct diagnosis and then you will be treated with thyroid hormone

replacement which is what you need.

Luv - Sheila

Hi Sheila,

the message was sent last week and was about Proton Pump Inhibitors (Omeprazole

and the like.)

>

Another thing - I saw the ME/CFS nurse at Hope Hospital, Salford, on Tuesday.

She's really helpful with tests etc, and understands the difficulties we face.

I'm quite willing to accept a diagnosis of CFS if it helps me get what I need,

but will continue to fight for recognition of the problems thyroid patients

face.

A