RE: Re: Its surely time for a Dispatches documentary on this appauling state of affairs

[Guest guest]

It would be a good idea to COMPLAIN through the NHS complaints proceedure and also NHS Patient Advocacy will take up the complaint too.....it doesnt have to be a court of law; which can be costly.

After reading Sue`s story on the Thyroid-UK website (her whole journey is there in the `Rant` section), one wonders whether she could take her Primary Care Trust to Court - but it would need a damn good lawyer. Unfortunately with most of us we are in no fit condition to even think let alone do battle.Jane>

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[Guest guest]

Unfortunately Sally, such complaints have to come from individual

patients about specific complaints they have with their doctor, another member

of the medical fraternity. I tried this when I first started campaigning - see http://www.nhs.uk/choiceintheNHS/Rightsandpledges/complaints/Pages/NHScomplaints.aspx

A body such as TPA cannot put in complaints representing a

number of others, in our case, tens of thousands of sufferers. I'm afraid that

on the whole, with our particular problem, it does have to be a court of law -

and yes, it can be extremely costly - but as I keep saying, I am waiting for

our wonderful millionaire to come across us.

Luv - Sheila

It would be a good idea to COMPLAIN through the NHS complaints

proceedure and also NHS Patient Advocacy will take up the complaint too.....it

doesnt have to be a court of law; which can be costly.

>

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[Guest guest]

Hi Jane, it wasn't the Petition/survey I was talking about - it

was the following message I sent:

10 URGENT QUESTION: HAVE YOU BEEN DENIED ANY OTHER FORM OF THYROID

HORMONE REPLACEMENT FOR YOUR SYMPTOMS OF HYPOTHYROIDISM, OTHER THAN

LEVOTHYROXINE(T4) ONLY? YOU CAN HELP US AND HELP YOURSELF

1.Do you live in the Midlands and been denied a diagnosis of

hypothyroidism because your thyroid function test results were returned within

the 'normal' reference interval after consultation with endocrinologists at the

University Hospital Birmingham?

2. Were you given a diagnosis of hypothyroidism and prescribed

L-thyroxine (T4-only)?

3. Did you ask your GP/Endocrinologist for a trial of either

synthetic T3 (Liothyronine), either in combination with T4, T3 alone or a

natural thyroid extract (NDT) because you continued to suffer symptoms on

T4-only?

4. Did your GP refuse to refer you to an endocrinologist?

5. Did your GP/Endo. recommended natural desiccated thyroid

extract, but your local Primary Care Trust refused to fund NDT?

6. Did you see a private doctor who diagnosed you with

hypothyroidism after your NHS doctor had refused to give you a diagnosis

and started you on thyroid hormone replacement?

7. If you already had a diagnosis of hypothyroidism, did you see a

private doctor in order to get some form of T3 prescribed, which took away your

remaining symptoms.

8. Did you feel forced into taking your thyroid health into your

own hands and purchased some form of T3 from Internet Pharmacies to treat

your remaining symptoms - and having done that, did you find your symptoms

were mitigated or resolved completely?

9. Did you discuss such an outcome with your

GP/Endocrinologist asking them to reconsider prescribing T3 for you, but

they continued to refuse you this?

10. Would you be willing to testify to the above if we can get a

sufficient number of cases in your local Primary Care Trust?

Please write to me privately giving me your answers and the

name of your local Primary Care Trust to sheila@...

Right, well lets hope the list grows - perhaps

give the odd reminder now and again. I cannot sign atm as I`m in the early

stages of my thyroid relationship with GP. I got discharged from an endo in

Portsmouth about 6 yrs ago when I was hyper then went hypo. My blood test

results then came up normal and I felt ok so came off Levothyroxine. Why the

hell didn`t he suss that I was probably Hashis way back then ???!!! Anyway its

too late to moan about that one. I will sign your petition if I get problems

with my GP but atm he is in the monitoring stage.

Jane

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