Guest guest Posted October 27, 2011 Report Share Posted October 27, 2011 I've been recently diagnosed with Hashimoto's decease and started on Levo - firstly 25mg, then 50 mg and from this week 70mg. My GP is not really on board and not too interested in my blood tests or their results. Good news is I got some tests done and am seeing Dr B next week. I also have had high platelets for over 6 yrs and my local hospital are talking about doing a bone marrow test. I've been tested for JAK2 and found to be negative. My recent test results are below and I'm particularly concerned re the iron and ferritin and don't know what to do or who I should bring this up with. Any help and interpretation of the results appreciated. I'm still feeling unwell even on Levo and think the iron, platelets and ferritin might be affecting me. I have large mouth ucler and a stye in my eye and am not sleeping too well despite being tired. Pam D3 - Serum 25-Hydroxy (I'm at 65) which is just in range (range 30-70 borderline deficiency) NOW TAKING D3 and have been on this for 6/7 weeks so should have this gone down yet? Serum ferritin 17 (range 10-200U) I seem to be very near the bottom of this range? Thyroid function test Serum free - 4.3 (range 2.6 - 5.7) triiodothyronine level Serum free T4 - 13.3 (range 9.00-22U) TSH - 3.43 (range 0.35-5.00) Is those below the T3 test? I did ask for one but don't know what this is or means? R Transferrin Serum transferrin 30.6 (range 28.0 42.6U) Transferrin saturation 23 (range 17-57U) Serum inorganic phosphate 1.50 (range 0.80 - 1.50) IM AT THE TOP HERE? Serum iron level 14.1 (range 10.00 - 30.00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2011 Report Share Posted October 28, 2011 Thanks Sheila. No doctor doesn't seem to know what to do about any of this. I'll raise it with Dr B when I see him next week. You mention T3 is low. Can you point me to the actual name of this on the list as I don't know which one it is? Pam PS I'll let you know re the raised platletes and bone marrow when I hear on this. Appt next week for this as well. Doesn't help having two issues being looked after by two different PCTS! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2011 Report Share Posted October 28, 2011 Hi Pam, it's the one that is written in the following manner: Serum free - 4.3 (range 2.6 - 5.7) triiodothyronine level It is difficult to understand, because it should have been written as: Serum free triiodothyronine (fT3) 4.3 (range 2.6 to 5.7). Having another look at this result, it is not as bad as I thought it was. I think I had picked up your TSH at 3.43 and thought that was your fT3 result, so apologies for that. Luv - Sheila Thanks Sheila. No doctor doesn't seem to know what to do about any of this. I'll raise it with Dr B when I see him next week. You mention T3 is low. Can you point me to the actual name of this on the list as I don't know which one it is? Pam PS I'll let you know re the raised platletes and bone marrow when I hear on this. Appt next week for this as well. Doesn't help having two issues being looked after by two different PCTS! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2011 Report Share Posted November 15, 2011 You need to be taking about 1000mcgs B12 (sublingual so it is absorbed directly into the blood stream). 25mcgs is probably the recommended daily dose only. As far as I am aware, the flushing Niacin is good for the heart as it clears the blood vessels so blood can flow easier - it can cause amazing tingling and makes you go bright red from top to toe because of the 'flushing' but talk to your doctor about this and see what he says. Don't however, be persuaded to take the non-flushing Niacin, as this does not do the job you want it to. Why are you waiting for your Statin to be reduced in February, that is a long way off, and the majority of people taking Statin's should not be taking them. Do remember also that your GP is just that - a GP and he is not a specialist, so check out that the information he is giving you is correct and the most up to date. Luv - Sheila You asked what dose folic acid I'm taking. For the last two weeks I've taken 800mcg folic acid with 25mcg of B12. For the previous couple of weeks I had taken 400mcg folic acid only but felt it wasn't enough. For the last few weeks Ive taken co-enzyme Q10 200mcg but will up this to 300mcg per day. Do you think the Niacin will be OK with my heart problems (enlarged heart)? I'm thinking of starting that when my Statin is reduced in February. I will have had one year of 80 mg Atorvastatin (even though my cardiologist said reduce it after 6 months to a lower dose - but my gp ignored him). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2011 Report Share Posted November 20, 2011 Dear Sheila Thank you for your wonderful and comprehensive response. You have clarified thing for me in simple terms my wooly brain can just about understand. I think I have been hypothyroid for many years but put my tiredness down to weight gain! Now I understand it is the other way around. I'm convinced it has led to my raised cholesterol and heart attack now I just need to convince the medical profession. I feel by ignoring me they are deliberately shortening my life. Without treatment my enlarged heart will undoubtedly progress into heart failure and eventual death. I'm 56 and want to live but I'm very frightended I'll not be able to make them listen to me. You asked what dose folic acid I'm taking. For the last two weeks I've taken 800mcg folic acid with 25mcg of B12. For the previous couple of weeks I had taken 400mcg folic acid only but felt it wasn't enough. For the last few weeks Ive taken co-enzyme Q10 200mcg but will up this to 300mcg per day. Do you think the Niacin will be OK with my heart problems (enlarged heart)? I'm thinking of starting that when my Statin is reduced in February. I will have had one year of 80 mg Atorvastatin (even though my cardiologist said reduce it after 6 months to a lower dose - but my gp ignored him). I'm seeing the endo privately although he also works within the NHS. Maybe he'll listen and hopefully he'll be OK! Sheila thank you again for such a comprehensive answer and also for listening to me. You have no idea how good it feels not to treated as a nuisance who reads the web too much. Jane x > > I now have my test results from Genova and would very much appreciate some > help in deciphering them before I see an endocrinologist for the first time > on Tuesday. > > Thyroid Hormone 24 Hour Urine > > T3 516 ref 592-1850 This is outside of the bottom of the reference range and > you need to be given a trial of some form of T3 in combination with > thyroxine (T4), either synthetic or natural thyroid extract, > T4 454 ref 347-1994 If you are not taking any form of thyroid hormone > replacement, this number should be above the middle of the reference range. > You must be feeling really poorly, > Ratio T3/T4 1.1 > > I have already shown these to my GP who will not take any notice of them - > says she has never heard of this test! > Quote Link to comment Share on other sites More sharing options...
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