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Pam - what were the numbers? Wait to see what the antibody response is because

even if the numbers are there the

function might not be. Was there a large difference between the two IgG levels?

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

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She was 387 and went to 453. 400 is considered normal for a 2.5 year old

child. How do I see what the antibody response is? Is this another test I

should request?

Pam

wife to (15 years)

mother to , 8, Hannah, 5, Rebekah 2, and Leah (5-11-2001)

Re: What does this mean?

Pam - what were the numbers? Wait to see what the antibody response is

because even if the numbers are there the

function might not be. Was there a large difference between the two IgG

levels?

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

/

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She was 387 and went to 453. 400 is considered normal for a 2.5 year old

child. How do I see what the antibody response is? Is this another test I

should request?

Pam

wife to (15 years)

mother to , 8, Hannah, 5, Rebekah 2, and Leah (5-11-2001)

Re: What does this mean?

Pam - what were the numbers? Wait to see what the antibody response is

because even if the numbers are there the

function might not be. Was there a large difference between the two IgG

levels?

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

/

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Thank you for the encouragement! I have been flat terrified that they

wouldn't do the treatment again. In my opinion, since she is obviously

struggling to stay healthy when her IgG's are around 400, then they aren't

high enough for her needs.

Rebekah has always gotten terribly ill for her vaccines. Here, MMR and

chicken pox vaccines are live-vaccines. Is this any indication that her

antibody response is poor? When she is sick, her WBC doesn't go up to even

20. Is this a sign that her antibody response is poor?

Thanks for any insight.

Pam

wife to (15 years)

mother to , 8, Hannah, 5, Rebekah 2, and Leah (5-11-2001)

Re: What does this mean?

Unfortunately the antibody testing has to be done while not on IVIG. She

would need to come off the infusions and wait

3 months for the passive antibodies to leave her system. Then they could

vaccinate her with a polysaccride bacteria and

4 weeks later draw blood to see if she mounted a response. If she did

then her antibodies are fine and the rising IgG

is a good thing. If she mounts no response by her system to the bacteria

injection then her antibody function is

deficient and she would probably benefit from continuing IVIG. 450 is

very borderline in our labs here locally so I

wouldn't worry too much about him pulling her off just yet.

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

/

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Share on other sites

Unfortunately the antibody testing has to be done while not on IVIG. She would

need to come off the infusions and wait

3 months for the passive antibodies to leave her system. Then they could

vaccinate her with a polysaccride bacteria and

4 weeks later draw blood to see if she mounted a response. If she did then her

antibodies are fine and the rising IgG

is a good thing. If she mounts no response by her system to the bacteria

injection then her antibody function is

deficient and she would probably benefit from continuing IVIG. 450 is very

borderline in our labs here locally so I

wouldn't worry too much about him pulling her off just yet.

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

/

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Share on other sites

Unfortunately the antibody testing has to be done while not on IVIG. She would

need to come off the infusions and wait

3 months for the passive antibodies to leave her system. Then they could

vaccinate her with a polysaccride bacteria and

4 weeks later draw blood to see if she mounted a response. If she did then her

antibodies are fine and the rising IgG

is a good thing. If she mounts no response by her system to the bacteria

injection then her antibody function is

deficient and she would probably benefit from continuing IVIG. 450 is very

borderline in our labs here locally so I

wouldn't worry too much about him pulling her off just yet.

Ursula Holleman

Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, Sensory

Integration Disorder, Diabetes Insipidus, colonic

inertia)

http://maceyh.home.att.net

/

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Thanks for the information about fluctuating IgG levels. We still haven't

heard from our HEM. It's been three weeks now. I guess I'll call tomorrow

to see if he has any news.

Pam

wife to (15 years)

mother to , 8, Hannah, 5, Rebekah 2, and Leah (5-11-2001)

Re: What does this mean?

Pam:

A couple of thoughts. I was told that IgG levels -- and all immunoglobulin

levels, for that matter -- do fluctuate. You're not going to stay at

exactly

the same # all the time. One thing that can make numbers go up is if you

just

fought an infection, and all your " troops " were called out to fight -- the

numbers would remain higher for a little bit. But that's no hard or fast

rule, just another piece of the puzzle. At first I tried to figure out why

the numbers were going up and down too, but finally accepted that they do

fluctuate and are not static.

's IgG and her IgA (absent at 1 yr of age) have increased as she's

aged,

I hope that happens for you too.

(mom to , 3yrs old, polysaccharide antibody def)

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Pam:

A couple of thoughts. I was told that IgG levels -- and all immunoglobulin

levels, for that matter -- do fluctuate. You're not going to stay at exactly

the same # all the time. One thing that can make numbers go up is if you just

fought an infection, and all your " troops " were called out to fight -- the

numbers would remain higher for a little bit. But that's no hard or fast

rule, just another piece of the puzzle. At first I tried to figure out why

the numbers were going up and down too, but finally accepted that they do

fluctuate and are not static.

's IgG and her IgA (absent at 1 yr of age) have increased as she's aged,

I hope that happens for you too.

(mom to , 3yrs old, polysaccharide antibody def)

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  • 1 year later...
Guest guest

> But if something didn't fully develop as I was growing up, wouldn't that

> mean

> my pediatrician missed something?

>

>

Hi -

It's been my experience many joint problems such as this shallow lateral

femoral condyle, etc. are not standard medical problems that pediatricians

screen

for. It's only when you have pain/problems that they discover things like

this. They mainly screen for major deformities, problems, etc. Margaret

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Guest guest

Margaret

Thanks. I was worried that my pediatrician didn't do his job and that

worried me because my daughter now goes to him. As far as the lateral

condyle. I need to find an anatomy picture so I can see where it is and what it

does exactly.

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  • 3 years later...
Guest guest

Stage

is the amount of scarring on a 1-4 scale. Grade is the amount of inflammation

on a 1-4 scale. See my next informational posts.

Hugs

right back at ya.

/De

what does this mean?

Hello all,

Welcome all new members. Can anyone help me under stand what this

means? " Liver (needle)BX:recurrent hepatitisCwith mild activity and

periportal fibrosis with focal bridging (batts-ludwig grade 2 of 4 ,

stage2-3 of 4 ) negative for rejection.

Thank you 4 your time

jeffrey.

hugs to all xoxoxo

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  • 4 years later...

Antibody test back and doctor says it's sort of normal.

Said pituiry working hard and could do with more thyroxine so upping from 50 to

75, not good to raise dosage too quickly apparently, concerned that I first

presented with palpitations, although he wasn't concerned at the time!

Anyway T4 is 12 with ref of 11-23 and been on 50mg thyroxine 4 weeks.

Anyone know if this means antibody test positive or not?

TIA

Vicky

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