Guest guest Posted October 22, 2011 Report Share Posted October 22, 2011 HI , You forgot to tell him T3 was listed in the British National Formulary so is perfectly ok for him to prescribe. Don't hold your breath for this endo, he is going to take one look at you lowered tsh and announce that you are hyper, it will affect your heart and you should stop taking the meds immediately.... (How much faith in him do I have? ) It's true that over the range T3 (as in Graves disease) will cause a supressed TSH and bone and heart problems, but some endos have got their silly little brains all muddled and they think it is low tsh which causes the problems. Low tsh is not the same thing as high t3. You will need the article from pulse magazine which shows that low tsh is ok if the t3 isn't over range....... It's in the files just scroll down till you see it. xx > > endo " It usually works " > Me " Well it doesn't for me, or lot of other people. Can I have a precription please " > endo " We don't normally prescribe it, we need to find out if there are any ill effects " > Me " Ill effects are what I've had for 16 years with thyroxine " . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2011 Report Share Posted October 23, 2011 WELL DONE SANDRA! I'm so proud of you and everybody else should be too. It is only such conversations between patient and endocrinologist that will teach them their job. What more do they need before they will realise there are a large minority of us who are unable to convert T4 into the active T3, and that giving T3 makes their patients well again. However, neither your doctor or you should rely on the results of thyroid function test results when taking any form of T3, either synthetic or natural if you have taken your medication less than 4 to 6 hours before the blood draw. As most tests are arranged for the morning, you should not take any T3 that morning, but take it straight after the blood draw. T3 peaks in the blood between 2 to 4 hours after taking it and can give a flawed result - often your free T3 showing very high in the range giving your doctor a nasty fright, thinking you are going hyperthyroid with instructions to either cut your dose drastically or even to stop it altogether and to go back onto levothyroxine. Teach your endocrinologist that he should treat his patients symptoms and signs, and not bits of paper. Again, well done! Luv - Sheila 3 months ago 1st visit to endo and had blood tests. He wrote telling me to increase my T4 as my TSH at 6.9 was " a little on the high side " . I ignored him and started T3 as advised by Dr P. 2nd visit to endo. endo " How are you? " Me " Very well thank you. My blood pressure is down although only taking 1/4 of my prescription. I have no muscle pain, can sleep all night, didn't need the two impending operations for carpal tunnel etc etc. I feel like I am getting some life back " endo " Thats very good, how much thyroxine are you taking? Me " None, I am taking T3 " endo " What? " Me " Liothyronine " endo " Did your GP prescribe it? " Me " No, she refused it so I am treating myself " endo " Where did you get it? " Me " Ah ha! I did not take your advice about T4, having been taking it for 16 years with doses up and down. It has never done me any good. This proves that I am not able to convert T4 so I would like a prescription for T3 please. " endo " It usually works " Me " Well it doesn't for me, or lot of other people. Can I have a precription please " endo " We don't normally prescribe it, we need to find out if there are any ill effects " Me " Ill effects are what I've had for 16 years with thyroxine " . I did point out to him that inflammation prevents conversion and for years I have had a diagnosis of systemic inflammation. I asked why people like me are forced to exist years in pain, with lives ruined instead of being treated correctly. (no answer to that) In the end he said depending on the blood test results he would write to me and my GP with his recommendations. He seems very thick, these people are dangerous! I only go to get my blood tests. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2011 Report Share Posted October 23, 2011 YES WELL DONE SHANDRA. i wish i had the confidence to do the same. Angel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2011 Report Share Posted October 23, 2011 This is priceless ....it's almost like a Monty Python skit.... Cheers, JOT > > 3 months ago > 1st visit to endo and had blood tests. He wrote telling me to increase my T4 as my TSH at 6.9 was " a little on the high side " . > I ignored him and started T3 as advised by Dr P. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2011 Report Share Posted October 23, 2011 Thanks for all replies I was just so angry at the 'system' that I had to speak out. With T3 the numerous scans, Xrays, MRIs, ultrasound, nerve testing at neurologist, eye clinic, rheumatology, gastro., gyny, histology, embarassing examinations and two scheduled operations would have been unnecessary. The NHS would have saved a fortune. I am going to meet with my MP to discuss all this with her. Sheila I did as you said and had not taken my meds for about 24 hours. I just wanted to see what showed on the blood tests, especially cholesterol which I requested. > > WELL DONE SANDRA! I'm so proud of you and everybody else should be too. > Quote Link to comment Share on other sites More sharing options...
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