RE: PATIENT COUNTEREXAMPLES TO T4-ONLY THERAPY

[Guest guest]

Dear Sheila , I filled the original questionaire out during summer , are you redoing it .

Regards Barrie .

----- Original Message -----

From: SheilaT

thyroid treatment

[Ed]

[Guest guest]

Hi Barrie

I keep sending out the same questionnaire about every three

months or so because new members are arriving on the forum all the time and I

want to catch as many people as possible who have found they felt better once

they started some form of T3 after being on T4-only with continuing

symptoms. Nothing has changed on the questionnaire, everything is exactly

the same as originally,.

Luv - Sheila

Dear

Sheila , I filled the original questionaire out during summer , are you redoing

it .

Regards

Barrie .

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[Guest guest]

Sheila

As before, I clicked on the link intending to look at the survey, but when I then clicked on the English version, all that came up was footnotes.

Regards

Lorraine

From: SheilaT <sheila@...>Subject: PATIENT COUNTEREXAMPLES TO T4-ONLY THERAPYthyroid treatment Date: Sunday, October 23, 2011, 11:26 AM

As many of you are aware, Thyroid Patient Advocacy www.tpa-uk.org.uk is in the process of creating a World Register of Counterexamples to levothyroxine-only (T4) therapy. This short survey is applicable only to those who continued to suffer symptoms on T4-only therapy, but who found those symptoms disappeared once they were started on a T3 hormone containing product , whether synthetic or natural thyroid extract.

The objective of this Register is to draw to the attention of those responsible authorities throughout the world, the dire need for an urgent re-examination of the existing protocol for the diagnosis and management of the symptoms of hypothyroidism. The patient counterexamples stands at the present time at 1371.

(A counterexample is a situation which fits the concept or premise of an idea but produces a different result. To be responsible, a scientist who finds a counterexample to his idea, must limit or abandon his idea as unworkable or not reliable. The T4-therapy does not work for all.)

If you fit this category, please complete the 3 questions with either 'YES', 'NO' or N/A here http://www.tpa-uk.org.uk/register_of_counterexamples.php . All responses will be collated online, and your email address (if you provide one) will be used ONLY to contact you at a later date should this be becomes necessary.

In a survey of 1500 hypothyroid patients undertaken by TPA-UK in 2006, the dissatisfaction of many patients is highlighted. When asked of those patients undergoing L-thyroxine therapy, "Do you feel that you have fully regained your optimal state of health?", 1176 (78.4%) answered "No"!

Please help us to show those responsible authorities where they are going wrong!

Sheila

Thyroid Patient Advocate.

[Guest guest]

That will be because you have probably forgotten that you have

already completed the survey Lorraine. The survey recognises your ISP No. so

you can't go back there again.  The survey has been ongoing for quite some time

and I keep sending it out every three months or so to catch all new members to

give them an opportunity to register their thyroid status.

Luv - sheila

Sheila

As before, I clicked on the link intending to look at the

survey, but when I then clicked on the English version, all that came up was

footnotes.

Regards

Lorraine