Re: 10 UIRGENT QUESTIONS.

[Guest guest]

1. I live in Ripley, Derbyshire. Derbyshire County PCT

2. Given T4 only but didn't suit. Doctor agreed to give T3. Went to

see Endo wrt to thyroiditis attacks and he took me off T3 and now

Doctor says PCT guidelines mean she can no longer prescribe

3. Docotor is aware that I am still symptomatic on T4 only treatment

but will not follow Dr Skinner's advice due to GMC hearing

4. I would be able to visit another Endo but am scared to do so in case

I'll get another " bad " one

5. Struggling to get T3 - can't imagine they'll allow trial of Armour

6. N/A

7. Buying T3 myself over internet

8. After more research I am looking at going T3 only. Results

pending.

9. Will inform my Doctor in due course. She is aware I take T3

10. Yes

[Guest guest]

1, I dont live in the midlands but not only was i not diagnosed because of

normal thyroid blood tests, but the GP wouldnt even refer me to an

endocrinologist to investagate further, so was forced to self treat.

2, Eventually i was yes. It did nothing.

3, I did not get that far with my gp as at the time i did not know about the

diferent types of thyroid replacements.

4, Yes i was refused on the basis " the endo will laugh at me if i refer you and

your blood tests are within range " - I was fuming to say the least.

5, NA

6, Yes - Paid for out of what little money i had.

7, Yes

8, Yes i fully had to take my health into my own hands, i was left completely

alone by my gp who started to say everything was in my head.

9, No i had lost all faith in my gp and i will never speak with them again about

anything thyroid related as they do not have the knowledge.

10, Yes certainly.

I am not from the midlands but in the chance this is any help i have filled in

the form.

Steve

>

>

> 10 URGENT QUESTION: HAVE YOU BEEN DENIED ANY OTHER FORM OF THYROID

> HORMONE REPLACEMENT FOR YOUR SYMPTOMS OF HYPOTHYROIDISM, OTHER THAN

> LEVOTHYROXINE(T4) ONLY? YOU CAN HELP US AND HELP YOURSELF

[Guest guest]

Dear Sheila

Some answers for you...............

1. No

2. Yes

3. Yes

4. No

5. No

6. No

7. Yes

8. Yes, through Dr P. Still working on getting the balance right.

9. No

10. No

I hope this helps.

Best wishes

From: SheilaT <sheila@...>thyroid treatment Sent: Sunday, 23 October 2011, 22:05Subject: 10 UIRGENT QUESTIONS.

10 URGENT QUESTION: HAVE YOU BEEN DENIED ANY OTHER FORM OF THYROID HORMONE REPLACEMENT FOR YOUR SYMPTOMS OF HYPOTHYROIDISM, OTHER THAN LEVOTHYROXINE(T4) ONLY? YOU CAN HELP US AND HELP YOURSELF

1.Do you live in the Midlands and been denied a diagnosis of hypothyroidism because your thyroid function test results were returned within the 'normal' reference interval after consultation with endocrinologists at the University Hospital Birmingham?

2. Were you given a diagnosis of hypothyroidism and prescribed L-thyroxine (T4-only)?

3. Did you ask your GP/Endocrinologist for a trial of either synthetic T3 (Liothyronine), either in combination with T4, T3 alone or a natural thyroid extract (NDT) because you continued to suffer symptoms on T4-only?

4. Did your GP refuse to refer you to an endocrinologist?

5. Did your GP/Endo. recommended natural desiccated thyroid extract, but your local Primary Care Trust refused to fund NDT?

6. Did you see a private doctor who diagnosed you with hypothyroidism after your NHS doctor had refused to give you a diagnosis and started you on thyroid hormone replacement?

7. If you already had a diagnosis of hypothyroidism, did you see a private doctor in order to get some form of T3 prescribed, which took away your remaining symptoms.

8. Did you feel forced into taking your thyroid health into your own hands and purchased some form of T3 from Internet Pharmacies to treat your remaining symptoms - and having done that, did you find your symptoms were mitigated or resolved completely?

9. Did you discuss such an outcome with your GP/Endocrinologist asking them to reconsider prescribing T3 for you, but they continued to refuse you this?

10. Would you be willing to testify to the above if we can get a sufficient number of cases in your local Primary Care Trust?

Please write to me privately giving me your answers and the name of your local Primary Care Trust to sheila@...

As mentioned above, I am particiularly interested in those of you who have been in consultation with the University Hospital Birmingham and either been denied a diagnosis or denied treatment with any T3 hormone, synthetic or natural. However, if you can identify with the above and you live in another PCT area in the UK, please let me know.

Sheilae of your local Primary Care

[Guest guest]

Thanks

Sherlock. If we can get 3 other people in the same PCT that is being refused

any form of T3 we might be able to take the PCT to court. Your doctor is

telling lies that the Ripley Derbyshire County PCT will not allow her to

prescribe any form of T3. Liothyronine (T3) is in the British National Formulary

where it states categorically that doctors can prescribe 20mcgs to 60mcgs daily

for their patients. You need to challenge your GP about this and ask her to

show you in writing from the PCT that their will not allow GP's to prescribe

it.

If

I hear of any more in your area, I will be in touch.

Luv

- Sheila

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of sherlocks@...

Sent: 24 October 2011 08:42

thyroid treatment

Subject: Re: 10 UIRGENT QUESTIONS.

1. I live in Ripley, Derbyshire. Derbyshire County

PCT

2. Given T4 only but didn't suit. Doctor agreed to give T3. Went to

see Endo wrt to thyroiditis attacks and he took me off T3 and now

Doctor says PCT guidelines mean she can no longer prescribe

3. Docotor is aware that I am still symptomatic on T4 only treatment

but will not follow Dr Skinner's advice due to GMC hearing

4. I would be able to visit another Endo but am scared to do so in case

I'll get another " bad " one

5. Struggling to get T3 - can't imagine they'll allow trial of Armour

6. N/A

7. Buying T3 myself over internet

8. After more research I am looking at going T3 only. Results

pending.

9. Will inform my Doctor in due course. She is aware I take T3

10. Yes

[Guest guest]

Steve, I need to know the Primary Care Trust you are under.

Please can you send this to me privately. [sheila@...]

If we can get 4 or 5 people from the same PCT with the same or

similar complaint, we may be able to take legal action against them.

Luv - Sheila

1, I dont live in the midlands but not only was

i not diagnosed because of normal thyroid blood tests, but the GP wouldnt even

refer me to an endocrinologist to investagate further, so was forced to self

treat.

2, Eventually i was yes. It did nothing.

3, I did not get that far with my gp as at the time i did not know about the

diferent types of thyroid replacements.

4, Yes i was refused on the basis " the endo will laugh at me if i refer

you and your blood tests are within range " - I was fuming to say the

least.

5, NA

6, Yes - Paid for out of what little money i had.

7, Yes

8, Yes i fully had to take my health into my own hands, i was left completely

alone by my gp who started to say everything was in my head.

9, No i had lost all faith in my gp and i will never speak with them again

about anything thyroid related as they do not have the knowledge.

10, Yes certainly.

I am not from the midlands but in the chance this is any help i have filled in

the form.

Steve

>

>

> 10 URGENT QUESTION: HAVE YOU BEEN DENIED ANY OTHER FORM OF THYROID

> HORMONE REPLACEMENT FOR YOUR SYMPTOMS OF HYPOTHYROIDISM, OTHER THAN

> LEVOTHYROXINE(T4) ONLY? YOU CAN HELP US AND HELP YOURSELF

[Guest guest]

Thanks , but no, your responses don't help with our

particular predicament. I need those who answered 'yes' to No. 10, in that they

will be happy to testify should we decide to take legal action against the PCT.

Many thanks for taking the time to respond however.

Luv - Sheila

Dear

Sheila

Some

answers for you...............

1. No

2. Yes

3. Yes

4. No

5. No

6. No

7. Yes

8. Yes, through Dr P. Still working on

getting the balance right.

9. No

10. No

I hope this helps.

Best wishes

10. Would you be willing to testify

to the above if we can get a sufficient number of cases in your local Primary

Care Trust?

[Guest guest]

Hi Sheila,

I really can’t answer any of your questions at the moment.

My GP says that they do not issue prescriptions for T3; our PCT is North Lincolnshire.

I have been referred to an Endocrinologist at Hull, Professor Atkins whom I shall be seeing this evening.

After seeing Dr.Peatfield and after much difficulty, surfing the web etc ., I have found an inexpensive source for T3.

The source is www.unitedpharmacies.co.uk which is a Netherlands site.

The T3 is manufactured by GlaxoKline and appears to have been manufactured in Spain ( or Mexico? ).

The cost is £7:80 for 20 and airmail £5.Hope this is of some help.

Regards,Terry Walton

From: SheilaT

Sent: Sunday, October 23, 2011 10:05 PM

thyroid treatment

Subject: 10 UIRGENT QUESTIONS.

10 URGENT QUESTION: HAVE YOU BEEN DENIED ANY OTHER FORM OF THYROID HORMONE REPLACEMENT FOR YOUR SYMPTOMS OF HYPOTHYROIDISM, OTHER THAN LEVOTHYROXINE(T4) ONLY? YOU CAN HELP US AND HELP YOURSELF

1.Do you live in the Midlands and been denied a diagnosis of hypothyroidism because your thyroid function test results were returned within the 'normal' reference interval after consultation with endocrinologists at the University Hospital Birmingham?

2. Were you given a diagnosis of hypothyroidism and prescribed L-thyroxine (T4-only)?

3. Did you ask your GP/Endocrinologist for a trial of either synthetic T3 (Liothyronine), either in combination with T4, T3 alone or a natural thyroid extract (NDT) because you continued to suffer symptoms on T4-only?

4. Did your GP refuse to refer you to an endocrinologist?

5. Did your GP/Endo. recommended natural desiccated thyroid extract, but your local Primary Care Trust refused to fund NDT?

6. Did you see a private doctor who diagnosed you with hypothyroidism after your NHS doctor had refused to give you a diagnosis and started you on thyroid hormone replacement?

7. If you already had a diagnosis of hypothyroidism, did you see a private doctor in order to get some form of T3 prescribed, which took away your remaining symptoms.

8. Did you feel forced into taking your thyroid health into your own hands and purchased some form of T3 from Internet Pharmacies to treat your remaining symptoms - and having done that, did you find your symptoms were mitigated or resolved completely?

9. Did you discuss such an outcome with your GP/Endocrinologist asking them to reconsider prescribing T3 for you, but they continued to refuse you this?

10. Would you be willing to testify to the above if we can get a sufficient number of cases in your local Primary Care Trust?

Please write to me privately giving me your answers and the name of your local Primary Care Trust to sheila@...

As mentioned above, I am particiularly interested in those of you who have been in consultation with the University Hospital Birmingham and either been denied a diagnosis or denied treatment with any T3 hormone, synthetic or natural. However, if you can identify with the above and you live in another PCT area in the UK, please let me know.

Sheilae of your local Primary Care

[Guest guest]

Hi Sheila

I don't really fit your questions but you might be interested to know:

I was denied a diagnosis of hypothyroidism because my TFT's were "normal" albeit "borderline" (TSH of 3.89, 3.7, 3.8 etc with ref range of 0.4-4.0).

GP just would not accept that it could be hypothyroidism. I did get sent to an endo by a locum who put lies in his referral letter, (I had words with the practice about this!) but the endo was only concerned about the bloods! Didn't even listen to my symptoms.

GP tried sending me for every possible test and referral - PCS and ME to name but a few. The ME doc I saw thought it sounded more like hypo than ME!

I had private blood tests done and saw Dr Skinner who diagnosed me.

Then went back to my GP who accepted the diagnosis and put me on T4. No relief of symptoms, and I put on 2 stone in a few months! GP would not hear of any other treatment.

Had private bloods done again including reverse T3 and spoke to Dr Skinner who very kindly wrote to my GP suggesting that as my reverse T3 was out of range I might benefit from taking T3.

GP then happy to prescribe T3, I have been on it for approx 3 years now and haven't felt this well since I was a teenager!

Still have a problem sometimes getting bloods done as even though the GP puts on the request that I am taking T3 the lab still won't do the test!

Hope this helps.

Regards

Margree

10 UIRGENT QUESTIONS.

10 URGENT QUESTION: HAVE YOU BEEN DENIED ANY OTHER FORM OF THYROID HORMONE REPLACEMENT FOR YOUR SYMPTOMS OF HYPOTHYROIDISM, OTHER THAN LEVOTHYROXINE(T4) ONLY? YOU CAN HELP US AND HELP YOURSELF

1.Do you live in the Midlands and been denied a diagnosis of hypothyroidism because your thyroid function test results were returned within the 'normal' reference interval after consultation with endocrinologists at the University Hospital Birmingham?

2. Were you given a diagnosis of hypothyroidism and prescribed L-thyroxine (T4-only)?

3. Did you ask your GP/Endocrinologist for a trial of either synthetic T3 (Liothyronine), either in combination with T4, T3 alone or a natural thyroid extract (NDT) because you continued to suffer symptoms on T4-only?

4. Did your GP refuse to refer you to an endocrinologist?

5. Did your GP/Endo. recommended natural desiccated thyroid extract, but your local Primary Care Trust refused to fund NDT?

6. Did you see a private doctor who diagnosed you with hypothyroidism after your NHS doctor had refused to give you a diagnosis and started you on thyroid hormone replacement?

7. If you already had a diagnosis of hypothyroidism, did you see a private doctor in order to get some form of T3 prescribed, which took away your remaining symptoms.

8. Did you feel forced into taking your thyroid health into your own hands and purchased some form of T3 from Internet Pharmacies to treat your remaining symptoms - and having done that, did you find your symptoms were mitigated or resolved completely?

9. Did you discuss such an outcome with your GP/Endocrinologist asking them to reconsider prescribing T3 for you, but they continued to refuse you this?

10. Would you be willing to testify to the above if we can get a sufficient number of cases in your local Primary Care Trust?

Please write to me privately giving me your answers and the name of your local Primary Care Trust to sheila@...

As mentioned above, I am particiularly interested in those of you who have been in consultation with the University Hospital Birmingham and either been denied a diagnosis or denied treatment with any T3 hormone, synthetic or natural. However, if you can identify with the above and you live in another PCT area in the UK, please let me know.

Sheilae of your local Primary Care

[Guest guest]

Hi Sheila,No's 7,8,9 apply to me !  PLus I asked for a private prescription and they wouldnt do that either .

Kind regardsMaggieOn Sun, Oct 23, 2011 at 10:05 PM, SheilaT <sheila@...> wrote:

 

10 URGENT QUESTION: HAVE YOU BEEN DENIED ANY OTHER FORM OF THYROID HORMONE REPLACEMENT FOR YOUR SYMPTOMS OF HYPOTHYROIDISM, OTHER THAN LEVOTHYROXINE(T4) ONLY? YOU CAN HELP US AND HELP YOURSELF

1.Do you live in the Midlands and been denied a diagnosis of hypothyroidism because your thyroid function test results were returned within the 'normal' reference interval after consultation with endocrinologists at the University Hospital Birmingham?

2. Were you given a diagnosis of hypothyroidism and prescribed L-thyroxine (T4-only)?3. Did you ask your GP/Endocrinologist for a trial of either synthetic T3 (Liothyronine), either in combination with T4, T3 alone or a natural thyroid extract (NDT) because you continued to suffer symptoms on T4-only?

4. Did your GP refuse to refer you to an endocrinologist? 5. Did your GP/Endo. recommended natural desiccated thyroid extract, but your local Primary Care Trust refused to fund NDT?

6. Did you see a private doctor who diagnosed you with hypothyroidism after your NHS doctor had refused to give you a diagnosis and started you on thyroid hormone replacement?

7. If you already had a diagnosis of hypothyroidism, did you see a private doctor in order to get some form of T3 prescribed, which took away your remaining symptoms.

8. Did you feel forced into taking your thyroid health into your own hands and purchased some form of T3 from Internet Pharmacies to treat your remaining symptoms - and having done that, did you find your symptoms were mitigated or resolved completely?

9. Did you discuss such an outcome with your GP/Endocrinologist asking them to reconsider prescribing T3 for you, but they continued to refuse you this?10. Would you be willing to testify to the above if we can get a sufficient number of cases in your local Primary Care Trust?

Please write to me privately giving me your answers and the name of your local Primary Care Trust to sheila@...

As mentioned above, I am particiularly interested in those of you who have been in consultation with the University Hospital Birmingham and either been denied a diagnosis or denied treatment with any T3 hormone, synthetic or natural. However, if you can identify with the above and you live in another PCT area in the UK, please let me know.

Sheilae of your local Primary Care

[Guest guest]

Terry

You can get T3 from http://mymexicandrugstore.org (just go to their website and

search for Cytomel which is one of the brand names for T3). Make sure you do the

search using the word Cytomel as things like T3, liothyronine don't seem to

produce any results.

Their price for 300 Cynomel (T3) 25 mcg tablets is $61 (+$12 shipping to the UK)

which is a lot cheaper than your Dutch source. There will, of course, be customs

duty and Royal Mail charges to pay but it still works out to be very

inexpensive.

Note: Cynomel appears to be the Mexican brand name but it is genuine T3.

TC

>

> Hi Sheila,

>

> I really can’t answer any of your questions at the moment.

>

> My GP says that they do not issue prescriptions for T3; our PCT is North

Lincolnshire.

[Guest guest]

None of the questions apply to me but I saw the two top endos at the QE and they

were rubbish, one was so rude and arrogant that he almost got a slap!!

Both refused to countenance NDT coming up with all the BTA excuses.

Both refused to test free T3 & 4 and only one was willing to look for an

alternative form of levo to help with my allergies.

I was nearly as disgusted as I was with another hospital's endo's I saw, one of

whom told me my illness was my own fault!!

Glynis

[Guest guest]

Hi Sheila,

I don't know if you are aware but Birmingham was used as a testing area for

fluoridation of the water supply - I dont know whether it still is but it

was at one time...........so perhaps they have a lot of cases - I wonder why

!!!!

Best wishes

Mandyc

[Guest guest]

Hi Glynis,Sorry to hear about your experience.I was wondering do you mean the QE Birmingham/University Hospital Birmingham (QE/UBH- they are one and the same? If so why don't the questions apply to you, were you seeing them about something none thyroid related?I have had shocking experiences at the hands of the QE/UBH and if there is anyone else who has had bad experiences with them we need to join forces or nothing will ever changeI'd like to add a big thank you to Shelia for asking the questionsDawnFrom: glynisrose06 <arianrhod@...>thyroid treatment Sent: Monday, 24 October 2011, 17:20Subject: Re: 10 UIRGENT QUESTIONS.

None of the questions apply to me but I saw the two top endos at the QE and they were rubbish, one was so rude and arrogant that he almost got a slap!!

Both refused to countenance NDT coming up with all the BTA excuses.

Both refused to test free T3 & 4 and only one was willing to look for an alternative form of levo to help with my allergies.

I was nearly as disgusted as I was with another hospital's endo's I saw, one of whom told me my illness was my own fault!!

Glynis

[Guest guest]

Thanks for setting out the details here. I will keep your

message in case I have other patients from your particular area - that is, once

you have told me the name of your local PCT please.

There is actually no need to do thyroid function tests when a

patient is taking T3, as the results are usually flawed with the T3 having such

a short half life and peaking in the blood between 2 to 4 hours after taking

it.

Luv - Sheila

I was denied a diagnosis of hypothyroidism because my TFT's were

" normal " albeit " borderline " (TSH of 3.89, 3.7, 3.8 etc

with ref range of 0.4-4.0).

GP just would not accept that it could be hypothyroidism. I did get sent to an

endo by a locum who put lies in his referral letter, (I had words with the

practice about this!) but the endo was only concerned about the bloods! Didn't

even listen to my symptoms.

GP tried sending me for every possible test and referral - PCS and ME to name

but a few. The ME doc I saw thought it sounded more like hypo than ME!

I had private blood tests done and saw Dr Skinner who diagnosed me.

Then went back to my GP who accepted the diagnosis and put me on T4. No relief

of symptoms, and I put on 2 stone in a few months! GP would not hear of any

other treatment.

Had private bloods done again including reverse T3 and spoke to Dr Skinner who

very kindly wrote to my GP suggesting that as my reverse T3 was out of range I

might benefit from taking T3.

GP then happy to prescribe T3, I have been on it for approx 3 years now and

haven't felt this well since I was a teenager!

Still have a problem sometimes getting bloods done as even though the GP puts

on the request that I am taking T3 the lab still won't do the test!

Hope this helps.

Regards

Margree

10 UIRGENT QUESTIONS.

10 URGENT QUESTION: HAVE YOU BEEN DENIED ANY OTHER FORM OF THYROID

HORMONE REPLACEMENT FOR YOUR SYMPTOMS OF HYPOTHYROIDISM, OTHER THAN

LEVOTHYROXINE(T4) ONLY? YOU CAN HELP US AND HELP YOURSELF

1.Do you live in the Midlands and been denied a diagnosis of

hypothyroidism because your thyroid function test results were returned within

the 'normal' reference interval after consultation with endocrinologists at the

University Hospital Birmingham?

2. Were you given a diagnosis of hypothyroidism and prescribed

L-thyroxine (T4-only)?

3. Did you ask your GP/Endocrinologist for a trial of either

synthetic T3 (Liothyronine), either in combination with T4, T3 alone or a

natural thyroid extract (NDT) because you continued to suffer symptoms on

T4-only?

4. Did your GP refuse to refer you to an endocrinologist?

5. Did your GP/Endo. recommended natural desiccated thyroid

extract, but your local Primary Care Trust refused to fund NDT?

6. Did you see a private doctor who diagnosed you with

hypothyroidism after your NHS doctor had refused to give you a diagnosis

and started you on thyroid hormone replacement?

7. If you already had a diagnosis of hypothyroidism, did you see a

private doctor in order to get some form of T3 prescribed, which took away your

remaining symptoms.

8. Did you feel forced into taking your thyroid health into your

own hands and purchased some form of T3 from Internet Pharmacies to treat

your remaining symptoms - and having done that, did you find your symptoms

were mitigated or resolved completely?

9. Did you discuss such an outcome with your

GP/Endocrinologist asking them to reconsider prescribing T3 for you, but

they continued to refuse you this?

10. Would you be willing to testify to the above if we can get a

sufficient number of cases in your local Primary Care Trust?

Please write to me privately giving me your answers and the

name of your local Primary Care Trust to sheila@...

As mentioned above, I am particiularly interested in those of you

who have been in consultation with the University Hospital Birmingham

and either been denied a diagnosis or denied treatment with any T3

hormone, synthetic or natural. However, if you can identify with the above and

you live in another PCT area in the UK, please let me know.

Sheilae of your local Primary Care

[Guest guest]

I was hyperthyroid and was recommended RAI but no-one ever told me the

consequences.

If they were appalling at the QE Birmingham then the other hospital, Good Hope

in Sutton Coldfield were even worse.

I have seen 6 endos in total though only had referral to three, I saw the others

in clinics when I was fobbed off onto the juniors.

At one appointment at the QE when I was hyper, I had to wait over two hours, I

went to the reception desk and asked what was happening, I was told that someone

had 'overrun' their endo appointment. I asked if another appointment could be

made for me as I was tired and wanted to go home, I was told, no, if I didn't

wait I would be discharged!!

I said in that case tell them to get their finger out and see me as I had been

here so long - turns out my file had been 'missed' by the endo!! I kicked up a

fuss and got in to see the next one available.

Soon after the last appointment with the now head of the BTA I found an endo who

had written a paper jointly with other doctors about NDT, I went to my GP and

asked her to refer me to him, she obliged. I didn't see my GP for almost a year

after I started on NDT and when I finally did go to see her she was shocked at

the change in me, said I looked like a different person, hmm, I said, thats what

having the right medication can do....

Glynis

>

> Hi Glynis,

>

> Sorry to hear about your experience.

> I was wondering do you mean the QE Birmingham/University Hospital Birmingham

(QE/UBH- they are one and the same? If so why don't the questions apply to you,

were you seeing them about something none thyroid related?

>

> I have had shocking experiences at the hands of the  QE/UBH and if there is

anyone else who has had bad experiences with them we need to join forces or

nothing will ever change

> I'd like to add a big thank you to Shelia for asking the questions

>

> Dawn

>

> ________________________________

> From: glynisrose06 <arianrhod@...>

> thyroid treatment

> Sent: Monday, 24 October 2011, 17:20

> Subject: Re: 10 UIRGENT QUESTIONS.

>

>

>  

> None of the questions apply to me but I saw the two top endos at the QE and

they were rubbish, one was so rude and arrogant that he almost got a slap!!

>

> Both refused to countenance NDT coming up with all the BTA excuses.

>

> Both refused to test free T3 & 4 and only one was willing to look for an

alternative form of levo to help with my allergies.

>

> I was nearly as disgusted as I was with another hospital's endo's I saw, one

of whom told me my illness was my own fault!!

> Glynis

>

[Guest guest]

Yes, Bimingham water is fluoridated.

Glynis

>

> Hi Sheila,

>

> I don't know if you are aware but Birmingham was used as a testing area for

> fluoridation of the water supply - I dont know whether it still is but it

> was at one time...........so perhaps they have a lot of cases - I wonder why

> !!!!

>

> Best wishes

>

> Mandyc

>

[Guest guest]

Hi Mandy Yes we still have fluoride in the water in Brum and have done for the over 40 years - (I believe it was first introduced in 1964 and it has been in the water as long as I have been alive) Have to say I have great teeth and only 2 small fillings (not bad for 42!) and I'm hypo - I'd sooner have the fillings!Dawn (with the great teeth...) From: Mandy Jennings <amanda.jennings@...>thyroid treatment Sent: Monday, 24 October 2011, 18:59Subject: RE: 10 UIRGENT QUESTIONS.

Hi Sheila,

I don't know if you are aware but Birmingham was used as a testing area for

fluoridation of the water supply - I dont know whether it still is but it

was at one time...........so perhaps they have a lot of cases - I wonder why

!!!!

Best wishes

Mandyc

[Guest guest]

Hi Mandy,

When was that? Do you have any links to further information please?

Miriam

> I don't know if you are aware but Birmingham was used as a testing area for

fluoridation of the water supply - I dont know whether it still is but it was at

one time.

[Guest guest]

There is a list of Internet Pharmacies where you can buy many

different brands of T3, natural desiccated thyroid extract, testosterone, hydrocortisone

etc. in our FILES SECTION of this forum thyroid treatment/files/

Scroll down to the FOLDER entitled 'Internet Pharmacies.

Remind your GP that Liothyronine (T3) is a fully available and

legal thyroid hormone replacement that is published in The British National

Formulary and is used by many doctors throughout the world.

Luv - Sheila

Terry

You can get T3 from http://mymexicandrugstore.org

(just go to their website and search for Cytomel which is one of the brand

names for T3). Make sure you do the search using the word Cytomel as things

like T3, liothyronine don't seem to produce any results.

Their price for 300 Cynomel (T3) 25 mcg tablets is $61 (+$12 shipping to the

UK) which is a lot cheaper than your Dutch source. There will, of course, be

customs duty and Royal Mail charges to pay but it still works out to be very

inexpensive.

Note: Cynomel appears to be the Mexican brand name but it is genuine T3.

TC

[Guest guest]

What about No,. 10 Margaret, and what is the name and address of

your local PCT. You can write to me privately on [sheila@...]

Hi Sheila,

No's 7,8,9 apply to me !

PLus I asked for a private prescription and they wouldnt do that either .

Kind regards

Maggie

7. If you already had a diagnosis of hypothyroidism, did you see a

private doctor in order to get some form of T3 prescribed, which took away your

remaining symptoms.

8. Did you feel forced into taking your thyroid health into your

own hands and purchased some form of T3 from Internet Pharmacies to treat

your remaining symptoms - and having done that, did you find your symptoms

were mitigated or resolved completely?

9. Did you discuss such an outcome with your

GP/Endocrinologist asking them to reconsider prescribing T3 for you, but

they continued to refuse you this?

10. Would you be willing to testify to the above if we can get a

sufficient number of cases in your local Primary Care Trust?

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[Guest guest]

All doctors throughout the UK can prescribe T3 (Liothyronine)

and it is recommended in the British National Formulary that doctors can

prescribe 20mcgs to 60mcgs for patients with hypothyroidism. Your GP needs to

be informed.

Have you seen the list of Internet Pharmacies in our FILES

SECTION (this is accessible from the Menu on the Home Page of this forum). We

have listed several reputable Internet Pharmacies where you can buy T3, but

hopefully, Professor A recommended some T3 for you. Can you let us know how

your appointment with him went - but we are not allowed to use Doctors names

without their permission.

Luv - Sheila

Hi

Sheila,

I

really can’t answer any of your questions at the moment.

My

GP says that they do not issue prescriptions for T3; our PCT is North

Lincolnshire.

I

have been referred to an Endocrinologist at Hull, Professor A****** whom I shall be seeing

this evening.

After

seeing Dr.Peatfield and after much difficulty, surfing the web etc ., I have

found an inexpensive source for T3.

The

source is www.unitedpharmacies.co.uk

which is a Netherlands site.

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