Guest guest Posted June 28, 2000 Report Share Posted June 28, 2000 Hi, my name is Annette and I have been ill for 15 years. I have CFS, FM, Stealth Virus, PMR, Neurocardiogenic Syncope, colitis, recuring encephalitis which has caused Encephalopathy. I have ben hospitalized with IV Acyclovir 5 times for Encephalitis and numerous times for other things and tests. I am constantly getting new symptoms and the past 4 years had to move in with my parents because I can no longer take care of myself. The IV Acyclovir has literally saved my life on a few occasions but does not " cure " me or make me well. I am able to walk w/ a walker about 40 ft. and sit up longer and get my mental faculties back when I get the IV Acyclovir. I have tried Zovirax and Valtrex tablets which did not give me any improvement. Now I test highly positive to the " Stealth " Virus by Dr. . Has anyone else sent their blood to Dr. at CCID in CA to be tested??? If so what are you trying?? I have heard that IV Ganciclovir is the best drug for fighting Stealth and HHV6 but should only be used as a last resort, as it is highly toxic, possibly causing renal failure and getting into the bone marrow. Unfortunately for some reason antiviral tablets do not get to my brain. I have heard about a lot of people using Immunocal and ImmunoPro. I am afraid to detox as have wound up in the hospital many times trying to use herbs and juicing. Has anyone tried Trans Factor?? I have been receiving info. on it and it seems to be much milder than the others. It is nmanufactured by 4Life and is patented. The web page is www.transfactor.com if anyone is interested. They have Much more info. they can email you also. I don't know but will talk to my Dr. about it LOL. Thanks for this group and I would love to hear if anyone has " Stealth " or experience w/ Trans Factor. Thank you. Sincerely, Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2000 Report Share Posted June 30, 2000 > > Hi, my name is Annette and I have been ill for 15 years. I have CFS, FM, > Stealth Virus, PMR, Neurocardiogenic Syncope, colitis, recuring > encephalitis which has caused Encephalopathy. > > I have ben hospitalized with IV Acyclovir 5 times for Encephalitis and > numerous times for other things and tests. I am constantly getting new > symptoms and the past 4 years had to move in with my parents because I > can no longer take care of myself. > > The IV Acyclovir has literally saved my life on a few occasions but does > not " cure " me or make me well. I am able to walk w/ a walker about 40 > ft. and sit up longer and get my mental faculties back when I get the IV > Acyclovir. > > I have tried Zovirax and Valtrex tablets which did not give me any > improvement. > > Now I test highly positive to the " Stealth " Virus by Dr. . Has > anyone else sent their blood to Dr. at CCID in CA to be tested??? > If so what are you trying?? I have heard that IV Ganciclovir is the > best drug for fighting Stealth and HHV6 but should only be used as a > last resort, as it is highly toxic, possibly causing renal failure and > getting into the bone marrow. Unfortunately for some reason antiviral > tablets do not get to my brain. > > I have heard about a lot of people using Immunocal and ImmunoPro. I am > afraid to detox as have wound up in the hospital many times trying to > use herbs and juicing. > > Has anyone tried Trans Factor?? I have been receiving info. on it and it > seems to be much milder than the others. It is nmanufactured by 4Life > and is patented. The web page is www.transfactor.com if anyone is > interested. They have Much more info. they can email you also. I don't > know but will talk to my Dr. about it LOL. > > Thanks for this group and I would love to hear if anyone has " Stealth " > or experience w/ Trans Factor. Thank you. > > Sincerely, > Annette Hi Annette, Welcome aboard. From your history, it sounds like your immune system is just about non-functional. You would probably do well to follow up this line of thinking. Dr. Cheney says that the reason we crash on other detox programs is because we are missing a piece of the system the body uses to take out the trash. The whey products restore that piece and even people who have failed at other detox regemens are able to detox sucessfully once they have enough glutathione in their systems. Among other things, glutathione acts as a transport molecule to get the toxins out of the body. The herbal programs assume this mechanism is in place, so what winds up happening is you get a bunch of wastes liberated into the bloodstream, but then they just wind up poisoning you all over again. Detox with the whey is no picnic for some of us, (though not a problem for others), but it is fundamentally different from the other programs you have tried. My opinion, based on the reading I've done on glutathione, is that you stand a MUCH better chance of getting your immune system functioning if you start with a whey product. The bottom line is that without glutathione, your immune system can't function normally, no matter what other things you try. I'd recommend starting with a weaker whey like Immunocal or a product that is supposed to be equivalent but much cheaper from http://www.lef.org/ I haven't heard nearly as many people have negative reactions to those products as they do to Immupro. That is not to say that you wouldn't benefit from TF. See my earlier post on 4Life for a couple of recommendations. I have gotten pretty good results by starting on whey, then waiting about 6 weeks before starting TF. If you do start the TF or the whey, START SLOWLY! A quarter tsp of whey or one TF every three or four days to start. You sound pretty fragile, and both of these products can be a little rocky at the start. Unless you have autoimmune problems, you should not get damaged by either one, but DON'T follow the instructions on the bottle, listen to your body and don't be in a hurry. I don't know much of anything about stealth pathogens, but based on your description, your immune system is in a state of " anergy " . That is lifelessness for us non medical types. Anything you can do to support it is likely to help you out over time. Luke Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2001 Report Share Posted October 4, 2001 Hi Abby Welcome to the list. I live in Canada. I have been married for 13 years and we have two daughters. Our oldest, Coral, is 11 (thinks she is 15.lol) our youngest is Skylar and she is autistic, she will be 9 next week. Skylar has been mainstreamed in school with a full time E.A. since kindergarten and is now in grade 4. She is doing very well. I have not been on this list long but have found it a great place for support, advice and just to vent. I look forward to hearing more from you. Tracey abby.fermont@... wrote: > --- I just wanted to introduce myself. I've just joined your group. > I live in the UK, my daughter is 4 and has just been diagnosed with > ASD after being thought 'borderline'. She has just started > mainstream school with full time help. The school are doing their > best, but they have never had a child with ASD before and find some > of her 'behaviours' difficult. > > I hope she will continue in mainstream, but it's early days. I'll be > very interested to speak to you all, I tried chatting, but no one > else was on-line! > > Abby > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2001 Report Share Posted October 4, 2001 Welcome Abby- Glad you've found us, this is a great group. I am Deanna, mom to Bridget and . Bridget is 5.6 and ASD, is 2.5 and not. I'm homeschooling Bridget this year for Kindergarten. She has speech at a local college and takes a music class. Welcome again! Deanna > > > --- I just wanted to introduce myself. I've just joined your group. > > I live in the UK, my daughter is 4 and has just been diagnosed with > > ASD after being thought 'borderline'. She has just started > > mainstream school with full time help. The school are doing their > > best, but they have never had a child with ASD before and find some > > of her 'behaviours' difficult. > > > > I hope she will continue in mainstream, but it's early days. I'll be > > very interested to speak to you all, I tried chatting, but no one > > else was on-line! > > > > Abby > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 Hi Abby... welcome to the group. My daughter's autism is mild as well. She entered the special ed preschool at age 4 and has been doing great ever since. They had never experienced anyone quite like my daughter. I sent them articles, books, etc... don't know if they liked that much but, too bad! LOL! Sometimes I think dealing with people who know very little about autism can be a good thing because you and your child are the one teaching them and they do not come in thinking they have all the answers. My daughter has come a very long way since age 4... so there is lots of hope. Take care! Lyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 I have a 6 year old about to turn 7 next week.She is the middle child of 3, she has an older sister,[9] and younger brother [3]. she talks, and is trying very hard, and i see slight improvements somedays, then i see a regression at others. Very fussy with food, and has her certain routines, that if change usually ends in tears, but once i work on it and get her used to the idea we are ok. she is a lovely little girl. she is in normal school with an aide, for 2 hours a day. Has alot of trouble remembering other kids names, which i guess in a school with over 200 kids in it she will always have trouble. Glad you have found this group. I had been looking for such a thing, and stumbled over it while looking up info on Temple Grandin, and i was so amazed. they are nice people here, so welcome, and hope you make some good contacts. I'm in australia by the way. Cheryl Introduce myself I just got a computer and stumbled across this website. Wow I had no idea what i've been missing. Ihave an 11 year old duaughter that is autistic. She is 1 of 5 children. All the rest are boys. Can you believe that? Statistically speaking what are the chances of that? Slim to nill,huh? She is recently having a lot of medical problems to boot.It seems that they've been there maybe all along but have been overlooked due to an extremely high pain tolerance,Lack of cooperation in administering testing/getting blood,and of course lack of communication.Its been a long hard road,but we are hanging in there. Shes a great kid and has made a ton of progress over the years.She does things that in the beginning they said she'd never do.Ihave never met anyone with a daughter thats autistic. Id love to talk with someone else with a girl. Hope to hear from someone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2001 Report Share Posted October 13, 2001 Hi! Nice to have you on the list. My name is Tracey and I have two daughters. My oldest, Coral, is 11 and is an average kid and our youngest, Skylar, is 9 and is autistic. We live in Canada. Skylar is now classified as verbal (did not speak until the age of 41/2) and is high functioning. She is in a regular classroom with a full time E.A. She has come a long way over the years and has made great progress. I was very glad to find this group as well. All the information I had ever found was on boys who were autistic. When you have autistic daughters we have some different problems than the boys. This group is a great place to vent, get advice and support. It is a great group of people. I am sure you will be glad that you joined the list. Look forward to hearing from you. Tracey cysyko@... wrote: > I just got a computer and stumbled across this website. Wow I had no > idea what i've been missing. Ihave an 11 year old duaughter that is > autistic. She is 1 of 5 children. All the rest are boys. Can you > believe that? Statistically speaking what are the chances of that? > Slim to nill,huh? She is recently having a lot of medical problems to > boot.It seems that they've been there maybe all along but have been > overlooked due to an extremely high pain tolerance,Lack of > cooperation in administering testing/getting blood,and of course lack > of communication.Its been a long hard road,but we are hanging in > there. Shes a great kid and has made a ton of progress over the > years.She does things that in the beginning they said she'd never > do.Ihave never met anyone with a daughter thats autistic. Id love to > talk with someone else with a girl. Hope to hear from someone > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2001 Report Share Posted October 14, 2001 Hi and welcome to our group. I would be interested to hear what other medical problems your daughter is having. My daugher is 8 years old and has come a long way, she is considered high fucntioning and mild at this point in time. She has also been diagnosed with precocoious puberty and a cyst on the pineal gland. She has several cafe au lait spots as well. She just barely misses fitting into several syndromes and I am sure that one day there will be more diagnosis for her. She is currently taking 25mgs of Zoloft and this has evened out her mood swings and aggression. I look forward to hearing from you again and hope you find our group a great support network! Lyn > I just got a computer and stumbled across this website. Wow I had no > idea what i've been missing. Ihave an 11 year old duaughter that is > autistic. She is 1 of 5 children. All the rest are boys. Can you > believe that? Statistically speaking what are the chances of that? > Slim to nill,huh? She is recently having a lot of medical problems to > boot.It seems that they've been there maybe all along but have been > overlooked due to an extremely high pain tolerance,Lack of > cooperation in administering testing/getting blood,and of course lack > of communication.Its been a long hard road,but we are hanging in > there. Shes a great kid and has made a ton of progress over the > years.She does things that in the beginning they said she'd never > do.Ihave never met anyone with a daughter thats autistic. Id love to > talk with someone else with a girl. Hope to hear from someone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 Welcome to the group , my daughter is 16. I have never met an autistic girl in person but this list of great parents is really great and I have learned alot from them. Sincerely,Donna ( mom to 16 and 9 ) Introduce myself > I just got a computer and stumbled across this website. Wow I had no > idea what i've been missing. Ihave an 11 year old duaughter that is > autistic. She is 1 of 5 children. All the rest are boys. Can you > believe that? Statistically speaking what are the chances of that? > Slim to nill,huh? She is recently having a lot of medical problems to > boot.It seems that they've been there maybe all along but have been > overlooked due to an extremely high pain tolerance,Lack of > cooperation in administering testing/getting blood,and of course lack > of communication.Its been a long hard road,but we are hanging in > there. Shes a great kid and has made a ton of progress over the > years.She does things that in the beginning they said she'd never > do.Ihave never met anyone with a daughter thats autistic. Id love to > talk with someone else with a girl. Hope to hear from someone > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 Hi , I am very glad you join us. Sometimes I really don't have much to type either until the a certain topic come up that seems to hit home. So it is ok to lurk in the background. Take Care and Best Wishes Beverly Weakley Monitor Introduce myself > Hello, > > I am one of the members who has been lurking in the background for > awhile and I decided I better come out introduce myself. My name > is and my daughters name is and she is 4. has > been diagnosed as high functioning ppd-nos. She has made wonderful > progress through out local shool district. I cannot say enough about > them. is postively the light of my life. I cannot remember > what life was like without her. She is our only child so you can > image she is quite spoiled. Is anyone one this list from the St. > Louis area? > > > Take care, > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2002 Report Share Posted January 8, 2002 , I am not exactly in the St. Louis area but I do live in south-central Missouri and have a daughter who lives in Affton. Have you ever gone to the National Autism Symposium? Tamara --- thebobbs2000 <thebobbs2000@...> wrote: > Hello, > > I am one of the members who has been lurking in the > background for > awhile and I decided I better come out introduce > myself. My name > is and my daughters name is and she is > 4. has > been diagnosed as high functioning ppd-nos. She has > made wonderful > progress through out local shool district. I cannot > say enough about > them. is postively the light of my life. I > cannot remember > what life was like without her. She is our only > child so you can > image she is quite spoiled. Is anyone one this list > from the St. > Louis area? > > > Take care, > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2002 Report Share Posted September 9, 2002 > Hi. Although I am not a parent of an Autistic child. I work as a > paraeducator in a classroom with 2 autistic young girls. One of them is 10 years old and the other is 9. I spend most of my day with the 9 year old. This is a setting for multiply handicapped children so there are some other issues also, behavior, mental retardation, and som physical disabilities also. The 10 yr old is in full puberty (she is a young woman ) and we expect the same for the younger one this school year. > I would be very interested in hearing how the school handles puberty with the girls. My 10 yr. old daughter is autistic, highly verbal, but mentally handicapped. She's showing signs of puberty and I'm trying to explain it to her, but can't be sure how much she understands. I've been looking for resource material for myself and to use with her, but so far only one book has been suggested and at $25 plus shipping, it's out of my price range right now. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2002 Report Share Posted September 11, 2002 Hi. Your letter touched me in that I, too, have a seven year old daughter who is dx'd with autism and mental retardation. She is non verbal and low functioning and I, too, am dreading puberty and mensruation. Not only would she not be able to tell if a touch were inappropriate, she would not be able to talk about it. I have not sent her to public school at this time because of my many fears for her safety and well-being and have opted to home school her up to now. I love homeschooling and she has come leaps and bounds with our tailor made programs. I don't know how she will ever tolerate the mess and stress of menses. She is not independantly potty trained yet!!! She does use it on a schedule but that is the only way she is okay. I don't know how other parents muster up the courage to let them go to school. Any advice would be greatly appreciated. (By the way, I love this group, and read all the posts.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2002 Report Share Posted September 11, 2002 My daughter is 7.5 years old with autism and mental retardation. I live in absolute dread of her going through puberty and that's only made worse with the thought of her being in school. She is SO " touchy feely " , always grabbing your hand and smacking it into her face, climbing all over you like you're a tree. I can just imagine her being in the wrong place at the wrong time. She wouldn't even know if someone were taking advantage of her. If she is still in school when she hits puberty I want a full time aide that NEVER leaves her side. na Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2002 Report Share Posted September 11, 2002 >>She is non verbal and low > functioning and I, too, am dreading puberty and mensruation. Not only would > she not be able to tell if a touch were inappropriate, she would not be able > to talk about it.<< My daughter is now verbal, BUT she has major articulation issues and cannot be understood by many. Oh, I do not even want to think about menstruation! This girl is SO finicky about so much. I can just see her springing a gasket, or worse, thinking she's dying because of the blood. She simply would not understand what it is or why it's happening. And same here about touching. My daughter thinks ALL touching is okay no mater how much we try to explain good touch from bad. I worry so that she will be a big target for someone. >>I have not sent her to public school at this time because > of my many fears for her safety and well-being and have opted to home school > her up to now. I love homeschooling and she has come leaps and bounds with > our tailor made programs.<< I tried home schooling for one and a half years, but I have other children with autism and special needs and it was just too much. I know I will be bringing her home next year because I don't like the teacher for third grade, and I know I will bring her home for middle school and beyond. I feel fairly okay about the class she's in now as she's been there for two years already and her little sister is in the class this year too. Just curious, what curriculum do you use? >>She is not independantly potty trained yet!!! She does > use it on a schedule but that is the only way she is okay.<< My daughter has been in diapers up until two weeks ago. I finally took the leap, put her in underpants and we have her on a schedule too. She still has accidents, but not as many as her 9 year old autistic brother who I took out of diapers at the same time. They are both still in them overnight though. >>I don't know how > other parents muster up the courage to let them go to school. Any advice > would be greatly appreciated. (By the way, I love this group, and read all > the posts.)<< I live in a really small town and I'm very familiar with that particular school and the teacher. Is it perfect? No! Does it come remotely close to what I would like for my daughter? No! But right now we are simply in survival mode as life is just too stressful. Next year will be different when I bring at least my one daughter home. So I am trying to make the most out of this year by getting things together and trying to psych myself up. Nice meeting you! I read here a lot too, but don't get the chance to post much. na Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 Hi na, I am sad, but relieved to hear from other parents with the same issues. It's disheartening that we don't have some somlutions and guides to help us deal with hte every day stresses of raising special needs kids. That's why i love this group. I can read and see that i am not alone. I too have another child with needs and am very busy every day. We are receiving home based wrap-a-around services at this time. That entitiles us to a behavior specialist, 2 TSS's and a case manager and also a mobile therapist. Lots of people coming and going. I find this to be an excellent program, but it is very time consuming and invasive. In addition to all that, I am home schooling both of my children. I also have a four year old with ADD and have started his education already. I am using an ABA based program with lots of floor and TEACCH and a little Son-Rise. I taught my daughter PECS and did actually buy the CD and the training video from Mayer-. PECS really opened the door to communication for her. She uses them in emergency situations, basically. She did use PECS on an ongoing basis in the beginning. Pecs is cumbersome and time consuming, so we recently introduced sign language to her homeschooling schedule. She likes signing because it is easily available and instant communication, much like speech. She has actually learned to speak about twenty words through the two programs. We also found , through our BSC, an evaluation which is an excellent tool called the ABLLS which assesses her basic language and learning skills and now have implemented a new language based program. This program is ABA based and is called " teaching verbal behavior to children with autism and related disabilities " . She has come furthest and fastest with this language rich program. This is, by far, the most effective tool we have seen for an education plan. Please feel free to contact me at any time. I am home bound with my two angels, and would welcome any adult conversation. God bless the parents and children affected by autism and related disabilities, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 Hi na, I am sad, but relieved to hear from other parents with the same issues. It's disheartening that we don't have some somlutions and guides to help us deal with hte every day stresses of raising special needs kids. That's why i love this group. I can read and see that i am not alone. I too have another child with needs and am very busy every day. We are receiving home based wrap-a-around services at this time. That entitiles us to a behavior specialist, 2 TSS's and a case manager and also a mobile therapist. Lots of people coming and going. I find this to be an excellent program, but it is very time consuming and invasive. In addition to all that, I am home schooling both of my children. I also have a four year old with ADD and have started his education already. I am using an ABA based program with lots of floor and TEACCH and a little Son-Rise. I taught my daughter PECS and did actually buy the CD and the training video from Mayer-. PECS really opened the door to communication for her. She uses them in emergency situations, basically. She did use PECS on an ongoing basis in the beginning. Pecs is cumbersome and time consuming, so we recently introduced sign language to her homeschooling schedule. She likes signing because it is easily available and instant communication, much like speech. She has actually learned to speak about twenty words through the two programs. We also found , through our BSC, an evaluation which is an excellent tool called the ABLLS which assesses her basic language and learning skills and now have implemented a new language based program. This program is ABA based and is called " teaching verbal behavior to children with autism and related disabilities " . She has come furthest and fastest with this language rich program. This is, by far, the most effective tool we have seen for an education plan. Please feel free to contact me at any time. I am home bound with my two angels, and would welcome any adult conversation. God bless the parents and children affected by autism and related disabilities, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 , Glad your daughter is progressing well. There is a site - VerbalBehavior Good luck Mona Re: Re: Introduce myself Hi na, I am sad, but relieved to hear from other parents with the same issues. It's disheartening that we don't have some somlutions and guides to help us deal with hte every day stresses of raising special needs kids. That's why i love this group. I can read and see that i am not alone. I too have another child with needs and am very busy every day. We are receiving home based wrap-a-around services at this time. That entitiles us to a behavior specialist, 2 TSS's and a case manager and also a mobile therapist. Lots of people coming and going. I find this to be an excellent program, but it is very time consuming and invasive. In addition to all that, I am home schooling both of my children. I also have a four year old with ADD and have started his education already. I am using an ABA based program with lots of floor and TEACCH and a little Son-Rise. I taught my daughter PECS and did actually buy the CD and the training video from Mayer-. PECS really opened the door to communication for her. She uses them in emergency situations, basically. She did use PECS on an ongoing basis in the beginning. Pecs is cumbersome and time consuming, so we recently introduced sign language to her homeschooling schedule. She likes signing because it is easily available and instant communication, much like speech. She has actually learned to speak about twenty words through the two programs. We also found , through our BSC, an evaluation which is an excellent tool called the ABLLS which assesses her basic language and learning skills and now have implemented a new language based program. This program is ABA based and is called " teaching verbal behavior to children with autism and related disabilities " . She has come furthest and fastest with this language rich program. This is, by far, the most effective tool we have seen for an education plan. Please feel free to contact me at any time. I am home bound with my two angels, and would welcome any adult conversation. God bless the parents and children affected by autism and related disabilities, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 Dear Please do not be offended by our venting. I am aware that there are more caring, good teachers than there are the opposite. My daughter's BSC is a teacher in a neighboring state and i would be happy to have my daughter in her classroom. That is not possible at this time. I investigated the schools in my neighborhood and found them to be less than I wanted for my daughter, however, there are students in those classes. My feeling is that there are many good teachers who would benefit from a refresher course in the new programs and therapies that are proven successful with children with autism. That should be the responsibility of the school. And there are many goo dteachers who do not need them because they already are using them. I just believe that an " autistic support " classroom should be knowledgeable in ABA, AVB, PECS, communication therapy and not necessarily traditional speech therapy,TEACCH, Floor, etc. These are proven effective with children on the Spectrum. Thank you for a touching letter. I, as a parent, appreciate teachers like you who are caring and aware of our feelings and our children's feelings. Thanks again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2002 Report Share Posted September 12, 2002 KUDOS!!! To you and your classroom. I will high five all over my house when my daughter independently uses the potty so I do know how rewarding the " little " gains are. She is actually saying and understanding about twenty five words now because we are using the AVB program in our homeschooling. So I am well aware of how good that feels. Great work to all your staff and you for good work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 .... Your program is very eclectic much like my son's using alot of the same educational theories. Hopefully you can get the district to agree to your proposed program.. if you need help let me know.. I would be glad to help out in any way I can. God Bless you and your family... Peace to the Kids... E. , Sr. Lil Mikey's Daddy Dir, The office of advocacy for Autistic Children Reg U.S. Civil Rights Lobbyist Peaceforkids2002@... call anytime 808-845-7841 .. our mission in life is to help our angels. >From: mtsiberio@... >Reply-Autism_in_Girls >Autism_in_Girls >Subject: Re: Re: Introduce myself >Date: Thu, 12 Sep 2002 08:24:02 EDT > >Hi na, > I am sad, but relieved to hear from other parents with the same >issues. It's disheartening that we don't have some somlutions and guides >to >help us deal with hte every day stresses of raising special needs kids. >That's why i love this group. I can read and see that i am not alone. I >too >have another child with needs and am very busy every day. > We are receiving home based wrap-a-around services at this time. That >entitiles us to a behavior specialist, 2 TSS's and a case manager and also >a >mobile therapist. Lots of people coming and going. I find this to be an >excellent program, but it is very time consuming and invasive. In addition >to all that, I am home schooling both of my children. I also have a four >year >old with ADD and have started his education already. > I am using an ABA based program with lots of floor and TEACCH and >a >little Son-Rise. I taught my daughter PECS and did actually buy the CD and >the training video from Mayer-. PECS really opened the door to >communication for her. She uses them in emergency situations, basically. >She did use PECS on an ongoing basis in the beginning. Pecs is cumbersome >and time consuming, so we recently introduced sign language to her >homeschooling schedule. She likes signing because it is easily available >and >instant communication, much like speech. She has actually learned to speak >about twenty words through the two programs. > We also found , through our BSC, an evaluation which is an excellent >tool called the ABLLS which assesses her basic language and learning skills >and now have implemented a new language based program. This program is >ABA >based and is called " teaching verbal behavior to children with autism and >related disabilities " . She has come furthest and fastest with this language >rich program. This is, by far, the most effective tool we have seen for an >education plan. > Please feel free to contact me at any time. I am home bound with my >two >angels, and would welcome any adult conversation. > God bless the parents and >children >affected by autism and related disabilities, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 I am a strong Christian and believe that the Lord > created our bodies in His image and that we need to take care of them!! > > jen c I'm with you on that one! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2006 Report Share Posted August 6, 2006 well done which drilling firm is offering that cupidstunt1975 <cupidstunt1975@...> wrote: Hi all, im a new member here, so thought i'd say a quick hello. Im a very new member of the offshore medic world - so new that i havent yet done my medics course or safety course, however, my RGN background, and experience of A+E, Coronary care, and Primary care has managed to get me a job with a Drilling firm, with all courses paid for, which was a nice surprise when i interviewed last week and a long term rolling contract...i just have to work my 3 months notice after i put my resignation in tomorrow from the NHS (yippee!) then i'll be getting my courses done, and hopefully be out on the rigs by December, which does make me feel slight apprehension, but i assume everyone feels this way before their first trip, dont they? The Offshore world is abit of a family tradition, my Father, who if any of you work on the Captain FPSO in the North Sea, might know, though he's not a medic. Gaunt 32 Cowie Crescent St Fergus head AB42-3EZ MOB: 07952166518 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 Hi racheal, my name is john walsh and i am currently a medic in the armed forces waiting to break through into the offshore medic industry.I wish you all the best of luck on your first trip and let me know how you got on. >From: Gaunt <rachelgaunt1@...> >Reply- > >Subject: Re: Introduce myself >Date: Sun, 6 Aug 2006 17:24:38 +0100 (BST) > >well done > which drilling firm is offering that > >cupidstunt1975 <cupidstunt1975@...> wrote: > Hi all, im a new member here, so thought i'd say a quick hello. >Im a >very new member of the offshore medic world - so new that i havent yet >done my medics course or safety course, however, my RGN background, >and experience of A+E, Coronary care, and Primary care has managed to >get me a job with a Drilling firm, with all courses paid for, which >was a nice surprise when i interviewed last week and a long term >rolling contract...i just have to work my 3 months notice after i put >my resignation in tomorrow from the NHS (yippee!) then i'll be getting >my courses done, and hopefully be out on the rigs by December, which >does make me feel slight apprehension, but i assume everyone feels >this way before their first trip, dont they? > >The Offshore world is abit of a family tradition, my Father, who if >any of you work on the Captain FPSO in the North Sea, might know, >though he's not a medic. > > > > > > > Gaunt > 32 Cowie Crescent > St Fergus > head > AB42-3EZ > MOB: 07952166518 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 Hi Guys I think there is some misunderstanding here. I actually replied to an e-mail sent in by cupidstunt 1975.They posted the original message re:Nurse with no Offshore Medics course and Drilling company willing to pay for all the qualifications.I wished him/her well and asked him/her which drilling firm was offering this first time job experience with no experience/offshore qualification and paying for it. I am an BSc/RGN/Offshore medic with 3 years offshore experience and work for Universal Sodexho as an Offshore Medic and it wasn't me who posted the original message. Sorry if there is some misunderstanding here Hope you are all well out there john walsh <rambomcwalsh@...> wrote: Hi racheal, my name is john walsh and i am currently a medic in the armed forces waiting to break through into the offshore medic industry.I wish you all the best of luck on your first trip and let me know how you got on. >From: Gaunt <rachelgaunt1@...> >Reply- > >Subject: Re: Introduce myself >Date: Sun, 6 Aug 2006 17:24:38 +0100 (BST) > >well done > which drilling firm is offering that > >cupidstunt1975 <cupidstunt1975@...> wrote: > Hi all, im a new member here, so thought i'd say a quick hello. >Im a >very new member of the offshore medic world - so new that i havent yet >done my medics course or safety course, however, my RGN background, >and experience of A+E, Coronary care, and Primary care has managed to >get me a job with a Drilling firm, with all courses paid for, which >was a nice surprise when i interviewed last week and a long term >rolling contract...i just have to work my 3 months notice after i put >my resignation in tomorrow from the NHS (yippee!) then i'll be getting >my courses done, and hopefully be out on the rigs by December, which >does make me feel slight apprehension, but i assume everyone feels >this way before their first trip, dont they? > >The Offshore world is abit of a family tradition, my Father, who if >any of you work on the Captain FPSO in the North Sea, might know, >though he's not a medic. > > > > > > > Gaunt > 32 Cowie Crescent > St Fergus > head > AB42-3EZ > MOB: 07952166518 > > > Quote Link to comment Share on other sites More sharing options...
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