Guest guest Posted October 5, 2011 Report Share Posted October 5, 2011 Hi there, sorry to hear that Bernie is still unwell. has she looked at the adrenals, they often play a big part in situations like hers. get the 24 hour test done ASAP details in the files.saying this the best thing to do is get an appointment with Dr P or Dr S. Dr P has many clinics around the country and Dr s is in Birmingham. they will be more knowledgeable than most Dr`sand gives the best chance of recovery. Angel . who has seem both doctors and found then both very helpful. ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2011 Report Share Posted October 5, 2011 Hello, I'm sorry to hear about Bernie feeling so unwell. A diagnosis of ME is often given when doctors can't make head nor tail of a physical condition, but nearly always low thyroid hormone is present with ME. To comment further, however, we would need a potted history of Bernie's symptoms, her basal temperatures and test results, inclusive of reference ranges. Could you please obtain copies of all results and post them on here? Also, have Bernie measure her basal morning and evening temperatures for 5 days, starting from 2nd day of her period or any day if she were already in menopause. With best wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2011 Report Share Posted October 5, 2011 Hi, I would suggest reading what Dr Myhill has to say about Fatigue and following up on everything that seems relevant. Illness is often multi-factorial, and Dr Myhill does recognise the current problems we have in the UK with low thyroid diagnosis and treatment. http://www.drmyhill.co.uk/wiki/Category:Fatigue Miriam > iam bernies husband,iam posting on this website 4 the first time with bernies consent > > 6 years s down the line ..no improvements > any ideas4 a struggling situation ??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2011 Report Share Posted October 5, 2011 Could you give us a complete list of what supplements Bernie is taking from the moment she wakes up to the moment she goes to bed? What amounts these supplements are, example: 400 mgs of magnesium. Is she sleeping at night? Stomach pain? What are her symptoms? Cheers JOT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2011 Report Share Posted October 5, 2011 Hi Mr Bernie > i tend 2 favor a more cyclic phychology prob with physical symptoms aswell my experience is that psychological problems follow physical ones - i've disagreed many times with people, but body over rides mind - sure, you can struggle with it, but what came first the body that or the mind we have today? They are interlinked but it's hard to have any control of your thoughts when you feel dreadful all the time and have hormonal or nutritional balances. Few of us are yogic masters and have much control over our body. and until physical problems are resolved, any psychological help isn't going to be as effective as it could be. think of driving a car with perfect steering - it's easy to go in a straight line, or go left, or go right - but try driving a car with knackered steering , steering that is constantly pulling to the right, iit's a fight to keep the car on the road, let alone straight. the psychological appraoch would be that our thoughts are affecting our mood, physiology etc - maybe. but if your thoughts are very bad, all the time, it's very hard to think rationally or steer that car - its' automatically veering off the road - all we can do is try to fight our steering/thoughts, vs having thoughts/steering that allows us to choose " good thoughts " or " bad thoughts " . I see it as a mix of psychology, nutrition, hormones, circumstances - perhaps a few more or less, but basically one element of that 'psychology' cannot correct nutrition or hormonal issues, nor can 'hormones' correct 'circumstances' of course, though how you feeel affects how you think Perhaps you think before Bernie got ill that she had these traits before (whatever they might be) and they've got worse? if so, could it not be these were hormonal/nutitional too, and that they've just got worse in time (or Bernie's body could cope before, and now cannot), rather than the psychological issues getting worse? you can't seperate body from the mind of course . Perhaps you don't think that at all, not trying to put words into your head.... > any ideas4 a struggling situation ??? Yeah lots, but we need to know symptoms, results, what's been tried etc, what resources do you have available?it's all very well suggesteding tests or new doctors but if you can't afford them, it'll only frustrate you. Bernie has seen various doctors, but we don't know who they are, what the results were, what their speciality was. often doctors say " oh we've tested everything " ; often this is untrue. Come on, everything? I don't think so. Furthermore, they may have tested things but the results have to be tested and considered with in relation to the ideal reference range. Let me give you two examples: the range for testosterone in men is very wide, something like 7-34; i can assure you that there is a vast difference in how people feel when their testosterone is at 8, or 30. Both are 'normal'. Also, consider other tests like IGF-1 which is supposed to reflect the activity of that in the blood. well, it's fine measuring IGF-1, but if you don't measure IGFBP3 too at the same time, it's not much help. IGFBP3 makes the hormone unavailable - my IGF-1 was measured last year, fine, no problems with it, but IGFBP3 was double what it should be, making it unusable. what i'm trying to say is, the right tests have to be ordered, then interpreted correctly, and sometimes you need to order the right combination of tests - eg, sex hormones with sex hormone binding globulin, IGF-1 with IGFBP3, COrtisol with Cortisol binding globulin. Etc. And if you have ten things wrong with your car, and fix one thing, you don't expect it to be right, do you. what resources do you have ? are you in a position to go private? Can i direct you to this questionnare, it may indicate whether there may be a hormonal aspect to Bernie's problems. thyroid treatment/files/MEDICAL%20QUES\ TIONNAIRES/ - see the 'hormone questionnare by dr thierry hertoghe' if you can write more about symptoms, what's been tried, then people can write more to try to help.... Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2011 Report Share Posted October 5, 2011 ok I'm just looking through the archives here, and Bernie posted this: on Thursday March 3rd 2011: thyroid treatment/message/78554 Dear ALL, I am seeing my endocrinologist fro the first time in 3 days time. No doubt she will want to take blood samples from me. I have been taking one and a half tablets of nutri adrenal extra for the past 6 days with totally amazing results ie after being too weak to get up washed and dressed i am now able to leave the house and be a little active. The improvement in such a small space of time has been remarkable. I am wondering if this tablet will effect my blood results and if i should miss one day before my appointment- although this would possibly mean i will struggle with being vocal during my appointment. I have no doubt i would look a lot more ill however which may be a good thing.?? I had a synathacin test approxiamately 3 years ago which came back as subnormal. I would imagine that this endo will want to repeat this . part of me is a bit worried about stopping to take the nutri adreanal extra as scince new year i have been mostly bed bound and sleeping loads day and night with no energy,severe constipation,low mood, dizzyness and noise and light sensitve. My mum has said many times " you should be in hospital as you are so ill " Scince last friday, when i took my first nutri adrenal extra, i feel like i have come to life !! I Would really appreciate peoples thoughts on this matter very much. ==== So Bernie advises that after taking something to support her adrenals, she felt better. And that previously, her synachten test was abnormal. Then, presumably after seeing the said Endo, 6 days later, Bernie advises that she's leaving the site. I would venture that the endo (or others) told her there was nothing wrong with her at all, and it was all in her mind and not to take the Nutri, and not to read internet forums as she's making it worse by focussing on it all the time (I hope I'm wrong in assuming that though) === thyroid treatment/message/78857 Hi all, Just to let you know i will be comming off this site tommorrow. I wish everyone improved health as soon as posssible.Thankyou for all your support. Kindest Regards, Bernie === So, it sounds like Bernie needs some help from a doctor who is prepared to listen to her and get to the bottom of her symptoms, rather than dismiss her as a depressed mother, etc. Whatever Bernie's problems turn out to be, she needs proper assistance by a good doctor Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2011 Report Share Posted October 5, 2011 and this: thyroid treatment/message/77058 was Bernie treated for low testosterone and evaluated for other hormones, like estrogen, progesterone? Low blood pressure is not good, either.... Chris ==== HI aLL , have found some results taken last april. they are as follows TSH 1.4 free thyroxine 13.9 total T3 1.5 CRP 0.7 ( not sure what this is) apparently it is normal upto 5 according to my endocrinologist. my testosterone levels were also found to be low. it has also been found that i ahve a high mean cell haemaglobin of 32.4 ref range (27-32) i think this be due to the fact that my blood pressure is low 95/50 and so the cells are trying to carry more 0xygen and nutrients to make up for fewer cellsbecause of lowered blood volume. also my ESR ethrocyte sedimentation rate is low range is ( 6-12) I can only imagine that this may also be due to a low ciculatoery blood volume. PlEAse please would a few people comment on my thyroid results. having just found this chat room a few weeks ago after 3 years of suffering -i am finally seeing that there is hope that i will get my life back.hopefully the sooner the better me mehubby and youg boys. kindest regards, Bernie === Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2011 Report Share Posted October 5, 2011 did your wife have any problems with childbirth? http://en.wikipedia.org/wiki/Sheehan's_syndrome chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2011 Report Share Posted October 5, 2011 this gentleman is asking about possible reasons why his wife is not doing well. He is not asking for YOUR amateur advice on psychology. Let's give him some help here without the illusion of your possible and incapable mental health knowledge. Thank You. JOT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2011 Report Share Posted October 6, 2011 None of us are medically qualified and we already have a disclaimer stating that. Lilian He is not asking for YOUR amateur advice on psychology. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2011 Report Share Posted October 6, 2011 I think it is only a mark of kindness and concern to offer a link for someone who is feeling so ill and not getting much help from their GP. I dont think that counts as 'advice' as such. No-one has to click on a link after all. If I were this gentleman or his wife I would be glad of ANY suggestions that may subsequently offer a solution. :>) > > > > this gentleman is asking about possible reasons why his wife is not doing well. He is not asking for YOUR amateur advice on psychology. > Let's give him some help here without the illusion of your possible and incapable mental health knowledge. > > Thank You. > > JOT > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2011 Report Share Posted October 6, 2011 i agree with what chris has written regarding body-mind and mind-body... " Can Inflammation in this Organ be at the Root of Your Depression? " http://articles.mercola.com/sites/articles/archive/2011/10/06/can-inflammation-i\ n-this-organ-be-at-the-root-of-your-depression.aspx does bernie have hashimotos and or another autoimmune problem? it is my experience that there are many times when it is impossible to *think* one's way out of a bad mental state ...missing nutrients, enzymes etc are often to blame. how is bernie now? trish > > Hi Mr Bernie > > > > i tend 2 favor a more cyclic phychology prob with physical symptoms aswell > > > my experience is that psychological problems follow physical ones - i've disagreed many times with people, but body over rides mind - sure, you can struggle with it, but what came first the body that or the mind we have today? They are interlinked but it's hard to have any control of your thoughts when you feel dreadful all the time and have hormonal or nutritional balances. Few of us are yogic masters and have much control over our body. and until physical problems are resolved, any psychological help isn't going to be as effective as it Quote Link to comment Share on other sites More sharing options...
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