Guest guest Posted September 28, 2011 Report Share Posted September 28, 2011 Hello, I am new to this forum. I have many symptoms of low thyroid and low adrenals (low body temp, cold, fatique, slow achilles reflex), but all my blood tests are normal according to my endo. I am concerned that my ACTH is 5 (< 47) and free T4 is bordeline low (10). I am also coeliac. My ferritin is 30 (13-300). ACTH 5ng/L (<47) Short Synachten test: basal cortisol rose from 313nmol/L to 676nmol/L TSH 2.08 (0.35-5.5) freeT3 4.1 (3.5-6.5) free T4 10.8 (9-23) serum sodium 140 (135-145) serum potassium 4.1 (3.5-5) RBC 4.61 (4.1-5.1) Red blood cells distribut. width 13.2 B12 423 (190-910) folate 15 (3-99999) serum ferritin 30.9 (13-300) negative for thyroid and adrenal antibodies. All other tests are really normal. Am I being hypochondriac? Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 Hi Caroline, Well they look alright to me, but that's a lot of T3 just to be achieving those results... something else going on there..... how do you feel? Have you looked at everything else? D3, B12,Calcium, Magnesium, Copper, zinc? x > > > > Can someone give me some advise on my test results. I have been on 150 mcg T3 for several years. My iron results are fine and these thyroid look fine but should the t3 be higher? > > > > ENDOCRINOLOGY > > THYROID STIMULATING HORMONE *0.01 mIU/L 0.27 - 4.2 > > FREE THYROXINE *2.0 pmol/l 12.0 - 22.0 > > FREE T3 5.5 pmol/L 3.1 - 6.8 > > > > Thanks > > Caroline > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 caroline, it depends on whether you took your T3 on the morning you had your blood drawn for the test. It is about where it should be if you didn't take any T3, but if you did take T3, I would have expected your free T3 result to be higher. The main thing is how do you feel. Do you have symptoms of either hypERThyroidism or hypOThyroidism? Luv - Sheila Can someone give me some advise on my test results. I have been on 150 mcg T3 for several years. My iron results are fine and these thyroid look fine but should the t3 be higher? > > ENDOCRINOLOGY > THYROID STIMULATING HORMONE *0.01 mIU/L 0.27 - 4.2 > FREE THYROXINE *2.0 pmol/l 12.0 - 22.0 > FREE T3 5.5 pmol/L 3.1 - 6.8 > .._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 Hi I still get a lot of neck and shoulder pain, but it is periodic. I take 5000 d3, stopped for the summer but started again on advice from Shelia. My phosphate level is low but all the other tests I had were ok. Thanks Caroline > > Hi Caroline, > > Well they look alright to me, but that's a lot of T3 just to be achieving those results... > > something else going on there..... how do you feel? > > Have you looked at everything else? D3, B12,Calcium, Magnesium, Copper, zinc? > > x > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 Hi Shelia I didn't take t3 that morning, but because of the amount I take and how long I have bdeen taking it I expected my t3 to be at the top of the range or over. I still have some hypo symptoms, tiredness, lethergy and pain. I also saw Dr P not long before the tests and he says I'm definately not hyper. I am just so fed up, I have planned to do a dog show this weekend, but the last few weeks I have been so bad I'm not even sure I will be able to go. Three weeks with no training it probably isin't worth going. It seems like the last 25 years have just been hell - sorry I know I'm being stupid as I am a lot better than I was but I can't seem to get rid of this pain. C > > caroline, it depends on whether you took your T3 on the morning you had your > blood drawn for the test. It is about where it should be if you didn't take > any T3, but if you did take T3, I would have expected your free T3 result to > be higher. The main thing is how do you feel. Do you have symptoms of either > hypERThyroidism or hypOThyroidism? > > Luv - Sheila > > > > Can someone give me some advise on my test results. I have been on 150 mcg > T3 for several years. My iron results are fine and these thyroid look fine > but should the t3 be higher? > > > > ENDOCRINOLOGY > > THYROID STIMULATING HORMONE *0.01 mIU/L 0.27 - 4.2 > > FREE THYROXINE *2.0 pmol/l 12.0 - 22.0 > > FREE T3 5.5 pmol/L 3.1 - 6.8 > > > > ._,___ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 Hi CarolineI am commenting because it seems to me that your Thyroid results are not all fine.Free Thyroxine of 2.0 with a reference range of 12 to 22 is not good.I will leave it to others with more knowledge to explain.All the bestPeteD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2011 Report Share Posted October 14, 2011 Hi Caroline The T3 only has a very short half life of 2 days in humans and the effect starts to leave your body about 6 to 8 hours after taking it. Your body uses it up and doesn't store it like thyroxine - which has a long half life and can take up to 6 weeks to leave the body. It does appear as if you have something going alongside your hypothyroidism that needs to be sorted as whatever it is appears to be stopping the thyroid hormone from being properly utilised at the cellular level. Is it possible you could have low adrenal reserve, systemic candidiasis, mercury poisoning caused through amalgam fillings, low levels of iron, ferritin, vitamin B12, vitamin D3, magnesium, folate, copper or zinc. If you have not been tested recently for these, I would get them tested because no amount of thyroid hormone will work if any of these are low in the reference range. We have to go through everything by way of a process of elimination. You should not be suffering in this way Caroline. Luv - Sheila I didn't take t3 that morning, but because of the amount I take and how long I have bdeen taking it I expected my t3 to be at the top of the range or over. I still have some hypo symptoms, tiredness, lethergy and pain. I also saw Dr P not long before the tests and he says I'm definately not hyper. I am just so fed up, I have planned to do a dog show this weekend, but the last few weeks I have been so bad I'm not even sure I will be able to go. Three weeks with no training it probably isin't worth going. It seems like the last 25 years have just been hell - sorry I know I'm being stupid as I am a lot better than I was but I can't seem to get rid of this pain. _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2011 Report Share Posted October 15, 2011 Hi Sorry I forgot to trim some messages yesterday. I get very confused with my bodies reaction to t3 and no one ever believes me. If I take 150mcg at 8am I have no reaction - there have been two occasions when I have doublrd my dose (by accident) and taken 150mcg 8am and then 150mcg 8.30 am. I had no reaction, no raised pulse no symptoms of being hyper. Also there have been times when I have run out, so I will reduce and then stop t3. I have even stopped it to see if I needed it. Two weeks after I stop t3 I start to get symptoms, my temps drop, I go cold and tired and pain gets worse. Recently I reduced by 12.5mcg and again no reaction until two weeks. I don't know whether this matters but it is confusing and it makes me wonder about my blood results? To the other questions I don't have candidiasias but have in the past. I was on pred for low adrenals but have reduced down whilst taking t3 earlier. I have decided to go back on 2.5mg pred for another week and see if this helps - mainly because my hubby Neil has scared me to death a couple of times by accident. Mercury poisoning is possible I have a lot of almagam fillings, but having them removed whilst I am unable to work much is out of the question. Iron & ferritin are fine, have not had d3 or b12 tested but am takeing 5000mg of d3 again. My phospate is low PHOSPHATE *0.76 mmol/L 0.87 - 1.45 but I don't know what to do about this, I started using a magnesium spray but don't do it enough as I am usually using deep relief. I think if I went to my doctor about it he would just laugh. I will try and get some more tests, but it is hard to justify more expense, we have spent thousands and thousands and I know I am a lot better but when I get a bad patch it doesn't feel like it. Caroline > > Hi Caroline > > The T3 only has a very short half life of 2 days in humans and the effect > starts to leave your body about 6 to 8 hours after taking it. Your body uses Is it possible you could have low > adrenal reserve, systemic candidiasis, mercury poisoning caused through > amalgam fillings, low levels of iron, ferritin, vitamin B12, vitamin D3, > magnesium, folate, copper or zinc. If you have not been tested recently for > these, I would get them tested because no amount of thyroid hormone will > work if any of these are low in the reference range. We have to go through > everything by way of a process of elimination. > > You should not be suffering in this way Caroline. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2011 Report Share Posted October 15, 2011 Caroline, is it possible you might be suffering with thyroid hormone resistance. Can you let us know your actual serum thyroid function test results for TSH, free T4 and free T3. If these have not been tested recently, ask your GP to test them. Luv - Sheila · very confused with my bodies reaction to t3 and no one ever believes me. If I take 150mcg at 8am I have no reaction - there have been two occasions when I have doublrd my dose (by accident) and taken 150mcg 8am and then 150mcg 8.30 am. I had no reaction, no raised pulse no symptoms of being hyper. Also there have been times when I have run out, so I will reduce and then stop t3. I have even stopped it to see if I needed it. Two weeks after I stop t3 I start to get symptoms, my temps drop, I go cold and tired and pain gets worse. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2011 Report Share Posted October 15, 2011 Hi Shelia These were taken not long ago THYROID STIMULATING HORMONE *0.01 mIU/L 0.27 - 4.2 FREE THYROXINE *2.0 pmol/l 12.0 - 22.0 FREE T3 5.5 pmol/L 3.1 - 6.8 Dr P did says he thinks I am resistant, I can't take armour as I can't convert and get more headaches. My Doctor won't do any tests as I had some blood tests unexpectedly(not the ones above) my tsh was 0, T4 was 3.03 and t3 was 4.4 this was having taken 150 mcg t3 that morning? my cortisol on that test was 1045 - the lab tested it because they were worried. After that I got a lot of phone calls from my GP trying to scare me into not taking t3 and then got 2 letters one from my doctor one from a consultant. I actually am too scaredy to go back to the surgery because they treat me like an idiot. The test you mentioned earlier, vitamin B12, vitamin D3, magnesium, folate, copper or zinc - where would I get these done? Thanks Caroline > > Caroline, is it possible you might be suffering with thyroid hormone > resistance. Can you let us know your actual serum thyroid function test > results for TSH, free T4 and free T3. If these have not been tested > recently, ask your GP to test them. > > Luv - Sheila > > . very confused with my bodies reaction to t3 and no one ever > believes me. > > If I take 150mcg at 8am I have no reaction - there have been two occasions > when I have doublrd my dose (by accident) and taken 150mcg 8am and then > 150mcg 8.30 am. I had no reaction, no raised pulse no symptoms of being > hyper. Also there have been times when I have run out, so I will reduce and > then stop t3. I have even stopped it to see if I needed it. Two weeks after > I stop t3 I start to get symptoms, my temps drop, I go cold and tired and > pain gets worse. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 I'm sending this again as I can't find a reply - may not have really asked a question. I was dignoised by Dr P in 2006 - he said you have been hypo for years may be primary or secondary to pitutary damage. We tried armour but gave me more migraines so went to t3 this along with pred has made a great difference and i have been 3/4 better for several years. now I am getting a lot of neck pain and I think I am very resistant to t3. Some times this is just around my period but other months - like this one - it last all month. I do not want to get any more tests as I don't think I could cope with any more treatment alone and I was the main bread winner and I've gone from higher rate tax payer to invalidity benefit. Would it be worth me seeing anyone like Dr S or anyone else, who could look at sex hormones and resistance and possibly adrenal? The NHS including DR who does prescribe T3 have all said I don't have a thyroid problem but have fibromyalgia. Sorry this is rambling and I have left previous posts for information. Please any help appreciated I am getting desperate. Thanks Caroline > Hi Shelia > > These were taken not long ago > THYROID STIMULATING HORMONE *0.01 mIU/L 0.27 - 4.2 > FREE THYROXINE *2.0 pmol/l 12.0 - 22.0 > FREE T3 5.5 pmol/L 3.1 - 6.8 > > Dr P did says he thinks I am resistant, I can't take armour as I can't convert and get more headaches. > > My Doctor won't do any tests as I had some blood tests unexpectedly(not the ones above) my tsh was 0, T4 was 3.03 and t3 was 4.4 this was having taken 150 mcg t3 that morning? my cortisol on that test was 1045 - the lab tested it because they were worried. > > After that I got a lot of phone calls from my GP trying to scare me into not taking t3 and then got 2 letters one from my doctor one from a consultant. > > I actually am too scaredy to go back to the surgery because they treat me like an idiot. > > The test you mentioned earlier, vitamin B12, vitamin D3, magnesium, folate, copper or zinc - where would I get these done? > > Thanks > Caroline > > > > > > > Caroline, is it possible you might be suffering with thyroid hormone > > resistance. Can you let us know your actual serum thyroid function test > > results for TSH, free T4 and free T3. If these have not been tested > > recently, ask your GP to test them. > > > > Luv - Sheila > > > > . very confused with my bodies reaction to t3 and no one ever > > believes me. > > > > If I take 150mcg at 8am I have no reaction - there have been two occasions > > when I have doublrd my dose (by accident) and taken 150mcg 8am and then > > 150mcg 8.30 am. I had no reaction, no raised pulse no symptoms of being > > hyper. Also there have been times when I have run out, so I will reduce and > > then stop t3. I have even stopped it to see if I needed it. Two weeks after > > I stop t3 I start to get symptoms, my temps drop, I go cold and tired and > > pain gets worse. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 MODERATED TO REMOVE PREVIOUS MESSAGES. PLEASE CHECK THIS HAS BEEN DONE AND LEAVE JUST A FEW LINES OF WHAT YOU ARE RESPONDING TO BEFORE CLICKING 'SEND. LUV - SHEILA ____________________________ Hi Caroline, Might be worth seeing Mr Skinner, he is under review by the GMC again I hear for some technicality yet again. He is an excellent Doctor whatever you might hear generally though. I have Fibromyalgia as well as under active thyroid, I was diagnosed with Fibro this year after having thyroid since 2004. The neck pain might be the Fibro, I have this too which I didnt have just with the underactive thyroid. I dont know how to deal with this either, more Armour thyroid didnt help. Joanna > I do not want to get any more tests as I don't think I could cope with any more treatment alone and I was the main bread winner and I've gone from higher rate tax payer to invalidity benefit. > Would it be worth me seeing anyone like Dr S or anyone else, who could look at sex hormones and resistance and possibly adrenal? > The NHS including DR who does prescribe T3 have all said I don't have a thyroid problem but have fibromyalgia. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 Have you ever just tried Levothyroxine-only Caroline? This is the usual medication recommended for Primary Hypothyroidism or where there are problems with the pituitary or hypothalamus. Your free T4 is only 2.0 with a reference range of 12.0 to 22.0. This is just a thought, but if you have never been on T4-only, it might be something you might want to try. If your thyroid is not secreting the right level of T4, it cannot convert through the liver/kidneys etc into the active T3 which is essential for every cell in your body and brain to make them function. The thyroid gland only secretes a very small percentage of T3, about 15%. It might be something you wish to discuss with Dr P, or even Dr S if you want to have a consultation with him. Luv - Sheila I'm sending this again as I can't find a reply - may not have really asked a question. I was dignoised by Dr P in 2006 - he said you have been hypo for years may be primary or secondary to pitutary damage. We tried armour but gave me more migraines so went to t3 this along with pred has made a great difference and i have been 3/4 better for several years. now I am getting a lot of neck pain and I think I am very resistant to t3. Some times this is just around my period but other months - like this one - it last all month. > > These were taken not long ago > THYROID STIMULATING HORMONE *0.01 mIU/L 0.27 - 4.2 > FREE THYROXINE *2.0 pmol/l 12.0 - 22.0 > FREE T3 5.5 pmol/L 3.1 - 6.8 > >. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 I can not convert t4 to t3 as per Dr P - T4 products give me severe migraines. I no longer know what to do. I have no money, am never well enough to work for long and do not have the resources to keep trying. I have been like this for over 20 years and I get well for a while then it all goes again. On sunday I went to a dog show, had been looking forward to it for three years. I wasn't prepared becaus I've been in too much pain. I was in agony, had a friend give me a massage and took 20 pain killers that day. All day I'm trying to smile when I just want to cry with the pain. I feel that this is now down to two things: 1) T3 is not getting into my cells 2) my sex hormones but i can't spend hundreds of pounds and then not be able to get treatment, or it not be that? If I had a 70% chance that someone maybe Dr S or someone else could help I would pay the money - if my doctor would allow this. Do you know of a dr who could help? Do you know why T3 is not getting into my cells? Thanks C > > Have you ever just tried Levothyroxine-only Caroline? This is the usual > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 To moderator – I left previous messages as they had not been answered and as I put, I felt that they were needed. Next time I will just repost the message.Sorry Thanks Joanne ____________________________Hi Caroline,Might be worth seeing Mr Skinner, he is under review by the GMC again I hear for some technicality yet again. He is an excellent Doctor whatever you might hear generally though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 Hi Joanna Just a small correction, Dr Skinner is not appearing before the GMC again, this is all part of the on-going procedure. The GMC placed 'conditions' on his practice for 3 years, and last July, he had to attend the Hearing again to decide whether the Panel had decided whether they were going to lift those restrictions or remove his registration. As it was, the Expert Witness for the GMC showed bias against Dr Skinner and let this be known verbally and in writing, so the GMC had to remove him, and look for another 'expert Witness' for the GMC and this is why that Hearing has been delayed until November. One of the conditions placed on Dr Skinner was that all patients must be referred by their GP, and all such referral letters and treatment regimes recommended by Dr S must be sent to the GMC every 6 months for somebody there to go through them to ensure Dr S was not giving his patients inappropriate treatment/medication. You can imagine our utter shock when we learned last July at the GMC Hearing that not one single piece of paper that Dr Sk. had sent to the GMC had been looked at by any member of the GMC staff. He could have been doing terrible things to his patients during the last 3 1/2 years and the GMC wouldn't have even known. The whole affair is ludicrous and the GMC will have some very serious questions to answer in November. I think it will be a very interesting time and I am looking forward to attending this particular session. I hope there are a lot of you who will be attending to show our support of Dr Skinner - this hearing is open to the public. The more we can get, the better. Luv - Sheila Hi Caroline, Might be worth seeing Mr Skinner, he is under review by the GMC again I hear for some technicality yet again. He is an excellent Doctor whatever you might hear generally though. I have Fibromyalgia as well as under active thyroid, I was diagnosed with Fibro this year after having thyroid since 2004. The neck pain might be the Fibro, I have this too which I didnt have just with the underactive thyroid. I dont know how to deal with this either, more Armour thyroid didnt help. Joanna > I do __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 Hi Caroline, then you might be suffering with thyroid hormone resistance. Read what Dr Lowe has to say and see if you identify with this specific problem http://www.drlowe.com/QandA/askdrlowe/resistnc.htm Luv - Sheila Do you know why T3 is not getting into my cells? Thanks C .._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 Hi Shelia Yes I think i said in an earlier email that I was diagnoised resistant to thyroid by Dr P years ago. How does this help? Do I just keep increasing my t3? Dr P does not know what is wrong with me now. Also do you know why this now seems to be related to my cycle? And if Dr S or anyone else could help if it is? Thanks Caroline > > Hi Caroline, then you might be suffering with thyroid hormone resistance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 Hi there, you need to get advice from the FT3 group. and take selenium, this will help with auto-antibodies. look in files for info on taking this product.your best bet is to see if you have RT3. Angel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 Again, it is a case of sending you more links to look through Caroline http://www.hotthyroidology.com/editorial_79.html and here are some case studies http://www.neuroendocrinology.org/thyroid-hormone-resistance.html I do not know what Dr Skinner's protocol is for treating Thyroid Hormone Resistance but it is something you might want to ask him. Either telephone him, or better still, send him a letter setting out your problems and asking if this is something that he could help with. Have you googled 'thyroid hormone resistance menstrual cycle'? Luv - Sheila Hi Shelia Yes I think i said in an earlier email that I was diagnoised resistant to thyroid by Dr P years ago. How does this help? Do I just keep increasing my t3? Dr P does not know what is wrong with me now. Also do you know why this now seems to be related to my cycle? And if Dr S or anyone else could help if it is? Thanks Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2011 Report Share Posted October 18, 2011 Thanks Angel already tried that route with no luck C > > Hi there, you need to get advice from the FT3 group. and take selenium, Quote Link to comment Share on other sites More sharing options...
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