hypothyroidism

[Guest guest]

In a message dated 3/20/05 1:01:52 PM, thewhiningpplz@... writes:

Well she has been on low salt diet with me.

My iodine levels are low also im not taking that crap i did for 2 days an it made me feel weird

Thanks mark

Again I dont know what a low iodine level means if your thyroid tests are all normal.

May your pressure be low!

Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHACHBPR

Charter member of American Society of Hypertension(ASH) and the International Society for Hypertension in Blacks (ISHIB).

Clinical Professor of Medicine and Epidemiology

Director, Hypertension Diagnosis and Treatment Center

Board Certified in Internal Medicine, Geriatrics and Hypertension

Published over 220 scientific papers, book chapters and 220 abstracts

in the area of high blood pressure epidemiology, physiology, endocrinology, measurement, treatment and how to detect curable causes.

Listed in Best Doctors in America

Specializing in Difficult to Control High Blood Pressure and the

History and Physiology of High Blood pressure in the African Diaspora

Member of the Board of Directors, ISHIB

[Guest guest]

No Im sorry she feels goog on the thyroid meds it just the iodine thats bugging her

Thanks Mark

Re: Hypothyroidism

Throid hormone will lower the TSH and this is one way to tell if she it taking it and it is doing its job.But if she feels worse then I would look for other explanations and talk with your Dr. In a message dated 3/20/05 12:08:04 AM, thewhiningpplz@... writes:

ok well whatshould she do the iodine is just to much it make her feel like crap so i told her to stop it and stay with the armor 75 mlg (just increast) i dont know why the dr wants her on it but im thinkin not to feel bad ya think?she just had the othe thyroid test done on friday i do not have the #s yet ill let u guys know when i get them but the nurse said it was lower after taking the armor????Thanks Much MarkMay your pressure be low!Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHACHBPRCharter member of American Society of Hypertension(ASH) and the International Society for Hypertension in Blacks (ISHIB).Clinical Professor of Medicine and EpidemiologyDirector, Hypertension Diagnosis and Treatment CenterBoard Certified in Internal Medicine, Geriatrics and HypertensionPublished over 220 scientific papers, book chapters and 220 abstractsin the area of high blood pressure epidemiology, physiology, endocrinology, measurement, treatment and how to detect curable causes.Listed in Best Doctors in AmericaSpecializing in Difficult to Control High Blood Pressure and theHistory and Physiology of High Blood pressure in the African DiasporaMember of the Board of Directors, ISHIB

[Guest guest]

Well she has been on low salt diet with me.

My iodine levels are low also im not taking that crap i did for 2 days an it made me feel weird

Thanks mark

Re: Hypothyroidism

In a message dated 3/20/05 12:49:57 PM, thewhiningpplz@... writes:

No Im sorry she feels goog on the thyroid meds it just the iodine thats bugging herThanks Markknow of no reason to take Iodine if she lives in US and eats most foods.May your pressure be low!Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHACHBPRCharter member of American Society of Hypertension(ASH) and the International Society for Hypertension in Blacks (ISHIB).Clinical Professor of Medicine and EpidemiologyDirector, Hypertension Diagnosis and Treatment CenterBoard Certified in Internal Medicine, Geriatrics and HypertensionPublished over 220 scientific papers, book chapters and 220 abstractsin the area of high blood pressure epidemiology, physiology, endocrinology, measurement, treatment and how to detect curable causes.Listed in Best Doctors in AmericaSpecializing in Difficult to Control High Blood Pressure and theHistory and Physiology of High Blood pressure in the African DiasporaMember of the Board of Directors, ISHIB

[Guest guest]

I do not know why some doctors think they can take a person off thyroid meds

once they are on them. I had this same problem with my son when he was younger.

The meds leveled out his thyroid and then when they tested and saw his thyroid

was leveled they took him off the meds! We went back and forth with this until

finally a different doctor saw him and said, " Once a person has a thyroid

problem they ALWAYS have a thyroid problem! " Of course the levels look better

with meds! That is the whole point of taking meds! LOL I don't understand why

some doctors are confused with this.

As for the different levels....I have heard this same thing, but I have not

found anything that would support it. I spoke with Dr. Leshin about it years ago

and he had never heard of it before. So...if you do find something that supports

that, please let us all know! It would be great to have a paper on it.

Kristy

www.imdsa.com Hi,

I remember that someone was talking about new numbers for Hyperthyroid

testing and that our kids need to have a different number then the rest of the

population. I check Len's site and a few others and could not find an article

that I can give my sons doctor.

He started his meds 3 1/2 weeks ago and is slower then when we started them

(if you can imagine that). His retests and antibody for thyroid testing said

that the pills are helping but this is weird. His doctor was wondering if we

should stop the meds. I told him lets wait until we get allergy testing

done. He had his sleep study Saturday and they told us preliminary that it was

not anything to be concerned about.

I plan to take him off his vitamins and soy milk. These were started in

March and are the only 2 things that changed in his diet this year. Yes, I know

soy can affect the TSH but will not affect the other numbers which show he has

Hypo.

BTW he has had a million blood tests since March....... ..mostly

immunological but your standard ones that would show lymphoma and such.

Jeannette

[Guest guest]

Charlie got stuck for a blood draw just yesterday, semiannual visit with

pediatric endocrinologist at CHOP satellite office. Hope to get numbers

next week, and hope he's euthroid on his current dose of 37.5 mcg

levothyroxine.

Here's what may be a useful link on lab values,

http://thyroid.about.com/cs/newsinfo/l/bltest_values.htm

And, as noted there, American Association of Clinical Endocrinologists

revised some of the numbers in 2003, range for TSH changed from 0.4-6.0

to 0.3-3.0. But I do not know, and would be suspect, of anything that

says people with Ds should use different lab values than everyone else.

Also, think good endocrinologist would look at numbers in combination

and in context. Charlie's endo always wants at least two numbers and

pays close attention to his growth, weight, other symptoms, and general

health.

HTH, Bob

[Guest guest]

OH another thing too. I personally have

hypothyroidism. I can tell you there was a huge

difference in me going from the generic to synthroid.

I know they are suppose to be the same but HUGE

difference in me.

B

--- angel2cook@... wrote:

> Hi,

> I remember that someone was talking about new

> numbers for Hyperthyroid

> testing and that our kids need to have a different

> number then the rest of the

> population. I check Len's site and a few others and

> could not find an article

> that I can give my sons doctor.

> He started his meds 3 1/2 weeks ago and is slower

> then when we started them

> (if you can imagine that). His retests and antibody

> for thyroid testing said

> that the pills are helping but this is weird. His

> doctor was wondering if we

> should stop the meds. I told him lets wait until we

> get allergy testing

> done. He had his sleep study Saturday and they told

> us preliminary that it was

> not anything to be concerned about.

> I plan to take him off his vitamins and soy milk.

> These were started in

> March and are the only 2 things that changed in his

> diet this year. Yes, I know

> soy can affect the TSH but will not affect the other

> numbers which show he has

> Hypo.

> BTW he has had a million blood tests since

> March.........mostly

> immunological but your standard ones that would show

> lymphoma and such.

> Jeannette

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

> Click reply to all for messages to go to the list.

> Just hit reply for messages to go to the sender of

> the message.

>

[Guest guest]

Her is a link of a discussion on another site of Amiodarone and thyroid sm.

http://www.icdsupportgroup.org/board/viewtopic.php?p=30098#30098

Janne wrote:

>

> Thanks for the replies! My biggest concern at the moment is if and how

> a doubled dose may affect my way towards hypothyroidism... Last

> bloodwork showed a TSH > 3 (3.58 excactly, up from 1.18 before amio),

> and by then I had been using this med for two months only.

>

> BTW, anyone else with hypoT as a side effect of amiodarone?

>

> Thanks,

> Janne

>

>

> >

> > From: Janne <ystano (DOT) com>

> > Subject: Accident

> > @groups .com

> > Date: Saturday, January 17, 2009, 5:53 AM

> >

> > This morning I took a double dose of my meds by a mistake. I took the

> > ordinary dose, 400mg amiodarone plus 50mg metoprolol, at 7:30 am and

> > the same at 10:30 am lokal time. Never done such a thing before, I

> > just hope my head isn't failing too...

> >

> > I have called the Er to be safe and are waiting for a doc to call me

> > back. Anyone (awake) that's had a similar experience?

> >

> > Janne - Norway

> >

>

>

[Guest guest]

Guin,

Thank you for posting the link. As a result I have joined that group

also :-) Really scared me to read this in one of the postings, in

contrast to my cardio naming amio a " candy " :

" my dr told me in time this drug would kill me but my heart will first! "

!!!

Janne

> > >

> > > From: Janne <ystano (DOT) com>

> > > Subject: Accident

> > > @groups .com

> > > Date: Saturday, January 17, 2009, 5:53 AM

> > >

> > > This morning I took a double dose of my meds by a mistake. I

took the

> > > ordinary dose, 400mg amiodarone plus 50mg metoprolol, at 7:30 am and

> > > the same at 10:30 am lokal time. Never done such a thing before, I

> > > just hope my head isn't failing too...

> > >

> > > I have called the Er to be safe and are waiting for a doc to call me

> > > back. Anyone (awake) that's had a similar experience?

> > >

> > > Janne - Norway

> > >

> >

> >

>

[Guest guest]

Yes, I felt that was very insensitive and scary too!

~guin

Janne wrote:

>

> Guin,

>

> Thank you for posting the link. As a result I have joined that group

> also :-) Really scared me to read this in one of the postings, in

> contrast to my cardio naming amio a " candy " :

>

> " my dr told me in time this drug would kill me but my heart will first! "

>

> !!!

>

> Janne

>

>

> > > >

> > > > From: Janne <ystano (DOT) com>

> > > > Subject: Accident

> > > > @groups .com

> > > > Date: Saturday, January 17, 2009, 5:53 AM

> > > >

> > > > This morning I took a double dose of my meds by a mistake. I

> took the

> > > > ordinary dose, 400mg amiodarone plus 50mg metoprolol, at 7:30 am and

> > > > the same at 10:30 am lokal time. Never done such a thing before, I

> > > > just hope my head isn't failing too...

> > > >

> > > > I have called the Er to be safe and are waiting for a doc to call me

> > > > back. Anyone (awake) that's had a similar experience?

> > > >

> > > > Janne - Norway

> > > >

> > >

> > >

> >

>

>

[Guest guest]

my wife has hypothyroidism- had a partial throidectomy some thirty years ago and

was ok until a couple of years ago.

health went down and diagnosed with hypothyroidism

prescribed levothyroxine but could not tolerate it- was in an awful mess.

referred to Endo, who was useless, said she would have to cope with side

effects, would not consider anything else.

unable to find NHS doctor in South of England who would prescribe dessicated

thyroxine, and as pensioners cannot afford to go private/ private prescriptions.

after research, took it on ourlves to self medicate with Nutrimeds Porcine

Gland.

immediate relief from levothyroxine side effects and have gradually increased

Nutrimeds up to 5 tablets a day over many months

wife is feeling pretty good- GP still does blood tests for us- T4 is 14.9 but

TSH has only come down from 66.8 to 42.5

need help/suggestions as to where to go from here?

martin

[Guest guest]

Hi

Obviously, your wife is still suffering with symptoms of

hypothyroidism but we need to know why, and I would suggest that the only way

is with various tests of her vitamins, minerals, adrenals etc. The most obvious

reason is that her thyroid hormone replacement isn't sufficient, and Nutri Meds

contains natural thyroid extract but although they say it contains 130mgs of

" raw thyroid tissue " - this does not show how much T4 or the active

T3 it contains and as it is not standardised to USP specifications required by

the brands of NDT Armour Thyroid, Erfa Thyroid, Nature Throid or Westhroid, she

might not be getting sufficient, as her high TSH is showing.

If this was me, I would be tempted to try the Canadian licensed

Erfa 'Thyroid' which you can buy from www.valuepharmaceuticals.com

.. 500 tablets of the 1 grain tablets (60mgs) cost about £90 and is about the

cheapest and best you can buy. Also, you can take Erfa 'Thyroid' sublingually. Most

of our members taking NDT find Erfa works best for them, but others like the

other brands. Nutri Meds whole thyroid is considered a nutritional supplement

and not a thyroid hormone replacement. Your wife should also be taking 200mcgs

Selenium daily with food and 1/2000mgs Vitamin C, plus a good B complex.

She should know also that there are MANY reasons and many medical

conditions associated with thyroid disease that stop any thyroid hormone from

getting into the cells, where it does its work. I mention these over and over

and over again - ad nauseum - people must be bored with the same old, same old

but as each new member joins us, they need to know.

The main condition responsible for stopping thyroid hormone from

working, is, as mentioned above, quite simply, whatever thyroid hormone they

are taking is too low because the doctor or consultant refuses to increase it,

because the serum thyroid function test results appear OK. Sometimes, the dose

is too high, yet patients still don't feel well. They continue to suffer. Some

reasons for this are:

They may be suffering with low adrenal reserve. The production of

T4, its conversion to T3, and the receptor uptake requires a normal amount of

adrenal hormones, notably, of course, cortisone. (Excess cortisone can shut

production down, however.) This is what happens if the adrenals are not

responding properly, and provision of cortisone usually switches it on

again. But sometimes it doesn’t. If the illness has been

going on for a long time, the enzyme seems to fail. This conversion

failure (inexplicably denied by many endocrinologists) means the thyroxine

builds up, unconverted. So it doesn’t work, and T4 toxicosis

results. This makes the patient feel quite unwell, toxic, often with

palpitations and chest pain. If provision of adrenal support doesn’t

remedy the situation, the final solution is the use of the active thyroid

hormone, already converted, T3 - either synthetic or natural.

Your wife could get the 24 hour salivary adrenal profile tested to

see where her cortisol and DHEA levels lie. Go to our Files section which is

accessible from the Home Page of this forum web site www.tpa-uk.org.uk

and click on FILES. On the page that opens, click on 'Discounts on Tests and

Supplements' and on the page that opens there, click on 'Genova Diagnostics'

and follow the instructions for ordering. You must tell them that TPA is your

medical practitioner in order to be able to order the test and get the discount

that TPA members are offered. The results will be sent to you, but you can then

post these onto the forum so we can help with their interpretation. If her

adrenals need supplements, we can help with these, and again, TPA members can

get 33% discount on the required supplements.

Then, we have systemic candidiasis. This is where candida

albicans, a yeast, which causes skin infections almost anywhere in the body,

invades the lining of the lower part of the small intestine and the large

intestine. Here, the candida sets up residence in the warmth and the

dark, and demands to be fed. Loving sugars and starches, candida can make

you suffer terrible sweet cravings. Candida can produce toxins which can

cause very many symptoms of exhaustion, headache, general illness, and which

interfere with the uptake of thyroid and adrenal treatment. Sometimes the

levels - which we usually test for - can be very high, and make successful

treatment difficult to achieve until adequately treated.

Then there is receptor resistance which could be a culprit. Being

hypothyroid for some considerable time may mean the biochemical mechanisms

which permit the binding of T3 to the receptors, is downgraded - so the T3

won’t go in. With slow build up of T3, with full adrenal support

and adequate vitamins and minerals, the receptors do come on line again.

But this can be quite a slow process, and care has to be taken to build the

dose up gradually.

And then there are Food allergies. The most common food allergy is

allergy to gluten, the protein fraction of wheat. The antibody generated by the

body, by a process of molecular mimicry, cross reacts with the thyroperoxidase

enzyme, (which makes thyroxine) and shuts it down. So allergy to bread

can make you hypothyroid. There may be other food allergies with this kind of

effect, but information on these is scanty. Certainly allergic response

to certain foods can affect adrenal function and imperil thyroid production and

uptake.

Then we have hormone imbalances. The whole of the endocrine system

is linked; each part of it needs the other parts to be operating normally to

work properly. An example of this we have seen already, with

cortisone. But another example is the operation of sex hormones.

The imbalance that occurs at the menopause with progesterone running down, and

a relative dominance of oestrogen is a further case in point – oestrogen

dominance downgrades production, transportation and uptake of thyroid

hormones. This is why hypothyroidism may first appear at the menopause;

the symptoms ascribed to this alone, which is then treated – often with

extra oestrogen, making the whole thing worse. Deficiency in progesterone

most especially needs to be dealt with, since it reverses oestrogen dominance,

improves many menopausal symptoms like sweats and mood swings, and reverses

osteoporosis. Happily natural progesterone cream is easily obtained: when

used it has the added benefit of helping to stabilise adrenal function.

Then, we must never forget the possibility of mercury poisoning

(through amalgam fillings) - low levels of iron, transferrin saturation %, ferritin,

vitamin B12, vitamin D3, magnesium, folate, copper and zinc - all of which, if

low, stop the thyroid hormone from being utilised by the cells - these have to

be treated.

As Dr Peatfield says " When you have been quite unwell for a

long time, all these problems have to be dealt with; and since each may affect

the other, it all has to be done rather carefully.

Contrary to cherished beliefs by much of the medical

establishment, the correction of a thyroid deficiency state has a number of

complexities and variables, which make the treatment usually quite specific for

each person. The balancing of these variables is as much up to you as to

me – which is why a check of morning, day and evening temperatures and

pulse rates, together with symptoms, good and bad, can be so helpful.

For many of you, the outstanding problem is not that the diagnosis

has not been made – although, extraordinarily, this is disgracefully

common – but that is has, and the thyroxine treatment doesn’t

work. The dose has been altered up and down, and clinical improvement is

variable and doesn’t last, in spite of blood tests, which say you are perfectly

all right (and therefore you are actually depressed and need this fine

antidepressant).

The above problems must be eliminated if thyroid hormone isn't

working for you

I have sent you a list of doctors recommended by our members, and

you will see that there are quite a few in the London area.

When you get the above blood results back from your wife's doctor,

ask for the reference range for each test too and post them on the forum and

again, we will help with their interpretation. Unfortunately, lots of doctors

believe that if blood results appear anywhere within the reference range, this

means the results are 'normal' but we need to know whether they are at the

bottom, the top or the middle of the range.

Hope this helps.

Luv - Sheila

my wife has hypothyroidism- had a partial

throidectomy some thirty years ago and was ok until a couple of years ago.

health went down and diagnosed with hypothyroidism

prescribed levothyroxine but could not tolerate it- was in an awful mess.

referred to Endo, who was useless, said she would have to cope with side

effects, would not consider anything else.

unable to find NHS doctor in South of England who would prescribe dessicated

thyroxine, and as pensioners cannot afford to go private/ private

prescriptions.

after research, took it on ourlves to self medicate with Nutrimeds Porcine

Gland.

immediate relief from levothyroxine side effects and have gradually increased

Nutrimeds up to 5 tablets a day over many months

wife is feeling pretty good- GP still does blood tests for us- T4 is 14.9 but

TSH has only come down from 66.8 to 42.5

need help/suggestions as to where to go from here?

martin

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