hair loss

[Guest guest]

hi all, also combing out alot of hair into sink.. told try more panthothenic

acid.. using 1000mg twwoice daily with multiplevitamin.theortically being a

water soluable vitamin, should urinate out the excess....

thanx steve for tip implus and vitamin c, lowered my daily intake but

very surprised at suppliments i take that have added c (ascorbate, ascorbic

acid etc...) as additonal ingrediant and not a multiple vitamin/mineral

suppliments.

ellice

[Guest guest]

My intersist explained to me (yup-I had hair loss as well and still am

" shedding " now & then) that our bodies experience a sort of systemic " shock "

with this disease and funnels energy to where it's needed most....so we end

up like an animal blowing it's coat!

Also, I don't know what meds your on but hair loss is one of the 1st side

effects of the Neurontin/Lamictal Drug Group.

Ann --alias " baldy "

[Guest guest]

>From: SOMISH@...

>

>hi all, also combing out alot of hair into sink.

Hi,

This is serious! Do know why you are losing hair?

Take care,

Christie

..

[Guest guest]

I was losing my hair for a while until I started taking folic acid & now it

is fine. I take 10 mg a day & now you need an Rx for that.

[Guest guest]

hi all, thanx christie, hmmm... seem to go thru cycles of combing out hear in

sink,,,, think part of illness like many have suggested,,, not bald yet..

take care all,ellice

ps will run it by md next week:)

[Guest guest]

Hi, Ruth ø×ýø×ýnnie

I knew thyroid played a part, but here's the curious stuff:

I had known for a long time (before I ever heard of FMS even though I had it) that I was hypothyroid, but my tests were borderline, so it took me 10 years to find a doc to rx it to me. Got rx 12 years ago. Suddenly a warmth spread all over my body from within and I stopped falling asleep on the freeway. Then, my doc left the state & I couldn't get anyone to prescribe it. When I ran out of it I developed cycsts on both lobes. They were drained (chocolate fluid) and then came back and were drained again (clear yellow). Benign. So, now I can get rx. Am on Armour Thyroid now. If I don't take it, I fall asleep...My hair didn't change throughout any of this process. So I guess the loss is due to something else. Or maybe I need the time-release T3 instead, or...

Also, I'm working on my hormones, which are a wreck. I'm severely low on testosterone, so maybe that has something to do with it...

Thanks for your replies,

Ellen K

============ Original replies:

________________________________________________________________________Message: 3 Date: Sat, 24 Jun 2000 13:38:57 EDT From: RGray80533@...Subject: Re: Female hair lossHi Ellen,Think along the lines of Thyroid dysfunction (either high or low) due to the immune overload caused by your CFS.I have the hair loss, but it comes and goes. As my symptoms disappear, the hair loss disappears. A flare comes, I lose hair again until I am through it. antibiotics also do that to me, but I also herx as long as I take the antibiotics, so I am active with my disease then.At one point I tried thyroid replacement and it immediately helped, but since my thyroid was not the problem (CFS is) it soon became apparent. If you can get stable, you should grow your hair back. I have. Mine was mostly a bald spot on the crown. It got really thin there for awhile. Especially before I realized what was going on. Good luck, Ruth

Message: 4 Date: Sat, 24 Jun 2000 13:39:56 EDT From: RGray80533@...Subject: Re: Female hair lossEllen i should have added CFS/FMS/Rickettsia to the list of what has triggered it for me.Ruth________________________________________________________________________________________________________________________________________________Message: 19 Date: Sat, 24 Jun 2000 13:15:47 -0700 (PDT) From: Jennie Floyd <jfloyd123@...>Subject: Re: Female hair lossEllen and Ruth - I also had hair loss and thinning all over. When Iwas diagnosed with Hashimoto's Thyroid disease, webegan treatment with hormones, and I cut my hair shortand started over. I've been on thyroid for about 18months now, and my hair has grown back in thick andhealthy. Unfortunately I have CFIDS/FM and possiblyLupus as well, so the thyroid didn't cure all mysymptoms, but I do still have hair! Best, Jennie

[Guest guest]

In a message dated 9/26/2000 6:11:20 PM Central Daylight Time,

hudecz@... writes:

> I think I will try the inositol also...how much do I take Ruth?

,

I started at 600mg. in the morning. Within two weeks I went to 1200mg in the

morning. This really worked great until my recent small flare. Then I

started taking the 1200mg in the eve. with supper. That really helped me

through the flare. I am still coming out of the flare so I am staying with

the eve dose and feeling really great during the day again. I want to go up

another 600mg, but won't if I don't need it. 1200mg is what is needed to

make the estrogen non-resistant. It has taken 21 days for me to see a

difference in the estrogen department. 600mg started working immediately on

energy level, insulin, and my thyroid. If you go back to my original URLS on

inositol... a drug company (URL was included) is in final stage of FDA

approval for a D-chiro inositol product that will help women with Poly-cystic

ovarian syndrome at the 1200mg level.

Ruth

[Guest guest]

,

Two things. First of all, the progeterone is great for me. I don't do the

cream but take natural progesterone. I convinced my doc that I needed this

bc (this is all my own logic but I think I may be right) since I gained a

bunch of weight with CFS, I now have too much estrogen stored in my fat that

comes back to the liver when I lose weight and so I need to balance it with

progesterone. Word of warning, if I take the pills (low dose 50 mg day 1 -

15, 100 mg days 15 to 28) in the morning, they make me tired.

On the cysteine thing. Didn't we read way back when that Immunocal if done

right will convert to glutathione yes, but then isn't there a cysteine

something or another in that cascade? (Sorry I am not so scientific, I

follow it all then mix it all up in my artist's brain...). I am wondering

then if maybe the IPro really *did* getmy hair to stop falling since that is

when I noticed the improvement.

I am on thyroid and didn't notice an improvement with that...

Just food for thought...

I am going to start taking progesterone cream...anybody tried it? (Snip)

Also maybe I will try cysteine-since hair has a high amount of this in

it...my problem is that is falls out at the roots-I can actually see the

root-the little bit if skin around the tip of the hair--that falls out

too!!!! SO I don;t know if taking cystein would make a difference unless

the hair root also is made up of a lot of cysteine also...thanks again

everybody...I love this list!

[Guest guest]

I have been taking thyroid supplements for more than two years and recently

my hair worsen significantly (again). As well as the nails and I gained some

weight again. But my thyroid test are very good - said my endo dr. this

morning. She thinks these problems are due to my low CMI

Stania

-----Pùvodní zpráva-----

Od: jane_doe_press <jane_doe_press@...>

Komu: egroups <egroups>

Datum: 27. záøí 2000 5:55

Pøedmìt: Re: hair loss

>,

>

>Two things. First of all, the progeterone is great for me. I don't do the

>cream but take natural progesterone. I convinced my doc that I needed this

>bc (this is all my own logic but I think I may be right) since I gained a

>bunch of weight with CFS, I now have too much estrogen stored in my fat

that

>comes back to the liver when I lose weight and so I need to balance it with

>progesterone. Word of warning, if I take the pills (low dose 50 mg day 1 -

>15, 100 mg days 15 to 28) in the morning, they make me tired.

>

>On the cysteine thing. Didn't we read way back when that Immunocal if done

>right will convert to glutathione yes, but then isn't there a cysteine

>something or another in that cascade? (Sorry I am not so scientific, I

>follow it all then mix it all up in my artist's brain...). I am wondering

>then if maybe the IPro really *did* getmy hair to stop falling since that

is

>when I noticed the improvement.

>

>I am on thyroid and didn't notice an improvement with that...

>

>Just food for thought...

>

>

>

>I am going to start taking progesterone cream...anybody tried it? (Snip)

>Also maybe I will try cysteine-since hair has a high amount of this in

>it...my problem is that is falls out at the roots-I can actually see the

>root-the little bit if skin around the tip of the hair--that falls out

>too!!!! SO I don;t know if taking cystein would make a difference unless

>the hair root also is made up of a lot of cysteine also...thanks again

>everybody...I love this list!

>

>

>

>

>

>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

[Guest guest]

> Well, a few weeks ago I posted that I was experiencing severe hair loss. I

> said that I had gone to my doctor for bloodwork and he had found low zinc

> levels by PCR. I have been on zinc picolinate 90 mg. a day for almost four

> weeks and I can definitely say that there is improvement. My hair loss is

> really slowing and has almost comp[letely stopped. It is wonderful to see

> such " cause and effect " with a supplement. Of course hair loss isn't one

> of my most serious symptoms but I am sure that by bringing my zinc levels up

> I am also helping my immune system and probably a myriad of other things that

> I am not aware of. So, to everyone who posted regarding hair loss problems I

> would suggest that you have your zinc levels tested and if low , talk to your

> doctor about supplementing.You have to be careful about supplementing

> minerals though because too much of one can throw you off on another.

> a

>

>

>

>

[Guest guest]

the sicker i got, the more hair that fell out.

there is a study done on isoprinosine which was effective in

restoring hair for some people

hair loss seems to be related to the immune system

immunopro,msm,prescription proxiphen,zinc are some things that may

help. i know immunopro helps. i react badly to msm because maybe it

stimulates TH2. different things for different people.

practically everything seems to regrows some hair

they say hair loss is purely a vanity thing. hair loss can be a

vanity issue for both sexes.

people who go bald are three times more likely

to suffer from heart attacks and maybe strokes. this is pretty

staggering statistic for something considered a vanity issue

to me, having all my hair is one major sign of good health

Fluffy

> Well, a few weeks ago I posted that I was experiencing severe hair

loss. I

> said that I had gone to my doctor for bloodwork and he had found

low zinc

> levels by PCR. I have been on zinc picolinate 90 mg. a day for

almost four

> weeks and I can definitely say that there is improvement. My hair

loss is

> really slowing and has almost comp[letely stopped. It is wonderful

to see

> such " cause and effect " with a supplement. Of course hair loss

isn't one

> of my most serious symptoms but I am sure that by bringing my zinc

levels up

> I am also helping my immune system and probably a myriad of other

things that

> I am not aware of. So, to everyone who posted regarding hair loss

problems I

> would suggest that you have your zinc levels tested and if low ,

talk to your

> doctor about supplementing.You have to be careful about

supplementing

> minerals though because too much of one can throw you off on

another.

> a

>

>

>

>

[Guest guest]

Nothing I have tried has worked. I used to have beautiful hair, but now it is

dry, thin, and lifeless. I've tried vitamins for hair and nails (my nails are

terrible also now), and also amino acids. Tried a high protein diet; no

change. the dermatologist also has no answers. Guess we just have to live

with it. If you find any answers, let mew know..

carol in NY

[Guest guest]

I already take synthroid...but I am doing my yearly thyroid tests done as

soon as i go to the lab . My MD sent me the form to do it.

[Guest guest]

My hair was falling out from too much selenium. I was taking much below the

recommended amounts, but maybe I was getting too much in my foods or

something. Other toxins can make this happen too. My husband's bald spot

went away after he had his fillings out.

Thanks,

Doris

> hi, i wanted to know what you do if your're losing bad really bad and

having

> thinning hair

[Guest guest]

hi,

my hair was much dryer and always thin and not much life till i got on

growth hormone secregatory.That was one of the first things that started

looking better but i still have days where i lose some hair on daily brushing.

also tried alot vitamins, amino acids etc..

somish

[Guest guest]

Have your Thyroid checked!!!!

> Nothing I have tried has worked. I used to have beautiful hair, but

now it is

> dry, thin, and lifeless. I've tried vitamins for hair and nails (my

nails are

> terrible also now), and also amino acids. Tried a high protein

diet; no

> change. the dermatologist also has no answers. Guess we just have

to live

> with it. If you find any answers, let mew know..

> carol in NY

>

>

>

[Guest guest]

I am not so sure about hair loss, but I can say that B complex vitamins

really affected the color of my hair. Less gray when I took it, more whenever

I stopped. Now I am older, I don't know if it has as much effect- but I am

lax in taking it.

Come to think of it, though,now I am a little better-thanks to B12, the loss

has slowed down. I hadn't thought about it till now.

A

[Guest guest]

In a message dated 7/13/02 6:08:10 PM Mountain Daylight Time,

dorisbrown9@... writes:

> My husband's bald spot

> went away after he had his fillings out.

Reeaaaly???? Wow!

[Guest guest]

and adrenal exhaustion. Nil

check

http://www.drrind.com/scorecardmatrix.asp

Re: hair loss

| Have your Thyroid checked!!!!

|

|

|

| > Nothing I have tried has worked. I used to have beautiful hair, but

| now it is

| > dry, thin, and lifeless. I've tried vitamins for hair and nails (my

| nails are

| > terrible also now), and also amino acids. Tried a high protein

| diet; no

| > change. the dermatologist also has no answers. Guess we just have

| to live

| > with it. If you find any answers, let mew know..

| > carol in NY

| >

| >

| >

[Guest guest]

Hi Somish,

Are you a guy or gal?

As I man I would worry about the increased levels of testosterone that could

be increased by taking growth hormones which could cause more hair loss.

A

Re: hair loss

> hi,

> my hair was much dryer and always thin and not much life till i got on

> growth hormone secregatory.That was one of the first things that started

> looking better but i still have days where i lose some hair on daily

brushing.

> also tried alot vitamins, amino acids etc..

> somish

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

We've got a page about medications that cause hair loss here

http://lassesen.com/cfids/alopecia.htm

I was on Trazodone for sleep problems about a year ago and I

experienced substantial hair loss during that time. The hair loss

stopped when I stopped taking Trazodone.

I also experienced hair loss earlier than that and found websites

suggesting that caffeine can cause an inositol deficiency which can

lead to hair loss, among other things. So, I quit coffee and

started taking inositol.

This is the best I can find on the subject (haven't found anything

on Medline)

http://www.positivehealth.com/permit/Articles/Nutrition/cabot37.htm

" Inositol

This vitamin is important in fat metabolism and helps to remove

fats from the liver. Deficiency of inositol can increase hardening

of the arteries, increased blood cholesterol levels and lead to hair

loss, constipation and mood swings. Excessive consumption of

caffeine can reduce the level of inositol in the body. "

We have tended to take biotin while on abx.

" Biotin

Biotin is one of the B vitamins ...Deficiency of this vitamin

is not rare and can cause hair loss, dry flaky skin, rashes and

fatigue. Those with a poor diet, alcoholism or long term antibiotic

use are at risk of deficiency. "

Laurie

[Guest guest]

somish,

Which GH secregatory are you using?

Beck

somish@... wrote:

> hi,

> my hair was much dryer and always thin and not much life till i got on

> growth hormone secregatory.That was one of the first things that started

> looking better but i still have days where i lose some hair on daily brushing.

> also tried alot vitamins, amino acids etc..

> somish

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

I thought somebody determined that the GH secregatory products

weren't all that useful in that they don't help produce more GH,

they just use up more quickly the GH that one is producing normally.

Mike C.

-- In @y..., beckhs <beckhs@a...> wrote:

> somish,

> Which GH secregatory are you using?

> Beck

>

> somish@a... wrote:

>

> > hi,

> > my hair was much dryer and always thin and not much life till

i got on

> > growth hormone secregatory.That was one of the first things that

started

> > looking better but i still have days where i lose some hair on

daily brushing.

> > also tried alot vitamins, amino acids etc..

> > somish

[Guest guest]

Cattttttt@... wrote:

> I already take synthroid...but I am doing my yearly thyroid tests done as

> soon as i go to the lab . My MD sent me the form to do it.

>

Synthroid, being synthetic T4, is seldom enough for people with CFS, it seems.

I had MUCH better results from Armour Thyroid, which has both T3 and T4. Some

of us don't convert T4 to T3 as we

should, and there's also a problem with producing " reverse T3 " that I've heard

about but don't fully understand. Many, many people with CFS, CFIDS, FM, ME,

MCS, and what have you have had the same

experience.

Also, you've probably heard alot about the HPA axis being dysfunctional in

people with CFS. That's hypothalamus -> pituitary -> adrenal axis. From my own

experience and what I've seen on various

groups, our hypothalamus problem can cause the entire endocrine system to be

dysfunctional in weird ways. If your doctor is using the TSH test to titrate

your thyroid dosage, you won't get nearly

enough to help your symptoms. In primary hypothyroidism, where there's a

problem with the thyroid itself, the pituitary keeps raising the Thyroid

Stimulating Hormone trying to get the thyroid to

make more thyroid hormones. In this case, a low TSH reading means you are

taking too much thyroid supplement and need to cut back. But with us, the

problem is " upstream " in the hypothalamus, and

the TSH will read low regardless of how much or how little thyroid you are

taking! So it is important to get your doctor to titrate your dosage by your

SYMPTOMS rather than your blood test. (I

hope this makes sense!)

In addition to the common symptoms of low thyroid that are described everywhere

(dry skin, hair loss, oversensitive to cold, sluggishness, weight gain), you can

add fibromyalgia symptoms (muscle

pain and stiffness, particularly the tender points used for diagnosis, but also

all over). When my FM flares up and I can't identify a known cause (such as a

thunderstorm, caffeine, bad night's

sleep, or overexertion the day before), and it stays flared up for several days

in a row, the first thing I talk to the doc about is adjusting my Armour Thyroid

dose up a bit. He was quite willing

to have me go up by 30 mg increments until I experienced hyperthyroid symptoms

(heart racing or palpitating, oily skin, excessive sweating) and then back down

one increment.

In any event, ask your doctor to try you on Armour Thyroid for a while to see if

you do better. I think there's some stuff on about.com's thyroid section on how

to talk your doctor into it if s/he

is reluctant. There's also lots of good thyroid stuff on Dr. Mercola's website.

Oh, and one last point: many doctors fail to take into account that thyroid

dosing is weight sensitive, i.e. the

recommended dosage is described as a particular range of mg medicine per Kg of

body weight. Someone who weighs 300 lbs needs twice as much as someone weighing

150 lbs, so you can imagine the

results when the doctor follows one dosing regime for everyone and tries to

titrate using the TSH test! (sigh)

Hope this helps.

--

el (andrea@...) Nevada City, CA, USA

" ...wake now! Discover that you are the song

that the morning brings... "

" One is taught by experience to put a premium

on those few people who can appreciate you

for what you are. " - Gail Godwin

[Guest guest]

Thank you so much for the info. I will save your email and read it to my MD.

Carol in NY