Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Dear : Tell him to ask his doctor about LEVSIN for chest pains. You put it under your tongue when needed and it really helped me when I needed it. Chest pains are really scary!!! Good luck, Elena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Hi there, I too often suffer from really bad chest pains once in a while eventhough I have had a myotomy. My doctor figures it's from spasms in my esophagus and there really isn't a lot that can be done about it. When I get the pains they usually last just a couple of minutes and I find that drinking a glass or two of warm water and crunching a few Tums helps. New > I just joined eGroup and am not sure what to do. I tried to log on > to > chat but can't figure it out. I am married (just 1 month) to a man > with achalasia. He was diagnosed about 6 years ago and had > dilitation > at Cleveland Clinic. When I met him 4 years ago he was still having > trouble eating. Although now he is much better he still has severe > chest pain about once a month. We have tried to narrow it down to > foods, stress, etc., but with no luck. I guess my question is What > can I do to help? It keeps us both up endless night after night. Is > there anything to do for the chest pain? What causes it? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 -- Your new husband is lucky to such a supportive spouse! You asked for advice: I'd advise your husband to go back to the Cleveland Clinic and get some suggestions about further treatment. Achalasia doesn't go away by itself, so I think all of us who have it are well advised to NOT try to just tough it out and hope it disappears! Has your husband thought about a myotomy yet? A lot of us on the list have had one, and although it isn't a total cure, it does make life better. Best wishes, Vicki On Mon, 12 Mar 2001, Murray wrote: > I just joined eGroup and am not sure what to do. I tried to log on > to > chat but can't figure it out. I am married (just 1 month) to a man > with achalasia. He was diagnosed about 6 years ago and had > dilitation > at Cleveland Clinic. When I met him 4 years ago he was still having > trouble eating. Although now he is much better he still has severe > chest pain about once a month. We have tried to narrow it down to > foods, stress, etc., but with no luck. I guess my question is What > can I do to help? It keeps us both up endless night after night. Is > there anything to do for the chest pain? What causes it? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 - Does your husband describe his pain as being like a heart attack? Does it start in the center of his chest (sometimes back) and work its way up his throat and jawline? Does it come on without warning - even in the middle of the night? Does it happen independently of when or whether or what he eats? If so, your husband could have a form of achalasia called " vigorous achalasia " . What is happening is that the esophageal muscles are cramping, much like your leg or foot does. There is a medication called Levsin that relieves this within seconds or a couple of minutes at the most. Hope this helps - Carol New > I just joined eGroup and am not sure what to do. I tried to log on > to > chat but can't figure it out. I am married (just 1 month) to a man > with achalasia. He was diagnosed about 6 years ago and had > dilitation > at Cleveland Clinic. When I met him 4 years ago he was still having > trouble eating. Although now he is much better he still has severe > chest pain about once a month. We have tried to narrow it down to > foods, stress, etc., but with no luck. I guess my question is What > can I do to help? It keeps us both up endless night after night. Is > there anything to do for the chest pain? What causes it? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 I can only tell you about my experience with the kind of pain your husband is having. It is quite severe at times mine would come with no warning. At the time I was having them they were called cardiospasms. The pain that I still have occasionally mimics the pain of a heart attack starting in the chest and extending to my left arm. It all seems to be apart of the pattern of Achalasia. At times I was given a muscle relaxant, but it did not work for me. How long does his pain last? Perhaps if it lasts for several hours his Dr. could give him a pain med. to relieve the symptons. There are several other meds. that can be given and disolved under the tounge that may help as well. Ed FItzgerald --- Murray <brhoads30@...> wrote: > I just joined eGroup and am not sure what to do. I > tried to log on > to > chat but can't figure it out. I am married (just 1 > month) to a man > with achalasia. He was diagnosed about 6 years ago > and had > dilitation > at Cleveland Clinic. When I met him 4 years ago he > was still having > trouble eating. Although now he is much better he > still has severe > chest pain about once a month. We have tried to > narrow it down to > foods, stress, etc., but with no luck. I guess my > question is What > can I do to help? It keeps us both up endless night > after night. Is > there anything to do for the chest pain? What causes > it? > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 Hello, . As already said, vigorous achalasia could be the problem. I also get pain if I eat something rough. The hulls in pop corn will cause me a lot of pain. It take some time after eating before there is any pain. It may be a half hour or more before the pain. Generally, a drink will stop the pain, but often, it will come back as the drink passes and leaves the pop corn hulls again with out anything to buffer them. Jerry At 07:07 PM 3/12/2001 +0000, Murray wrote: > Although now he is much better he still has severe >chest pain about once a month. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 - your MD is right about cause of pains, which define the condition known as " vigorous achalasia " . However, he's wrong about there not being anything to do for them. There is a prescription medication called Levsin that can relieve the pains within seconds, minutes at the most. You might want to ask him/her about this. Take care - Carol New > > > > I just joined eGroup and am not sure what to do. I tried to log on > > to > > chat but can't figure it out. I am married (just 1 month) to a man > > with achalasia. He was diagnosed about 6 years ago and had > > dilitation > > at Cleveland Clinic. When I met him 4 years ago he was still having > > trouble eating. Although now he is much better he still has severe > > chest pain about once a month. We have tried to narrow it down to > > foods, stress, etc., but with no luck. I guess my question is What > > can I do to help? It keeps us both up endless night after night. Is > > there anything to do for the chest pain? What causes it? > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 Add me to the group of bad chest pains...my doctor gave me nitroglycerin, which helped at first, but the last two or three chest pains I had (maybe one a month) seem to be withstanding the meds...time to increase dosage maybe?? Street wrote: Hi there,I too often suffer from really bad chest pains once in a while eventhough Ihave had a myotomy. My doctor figures it's from spasms in my esophagus andthere really isn't a lot that can be done about it. When I get the painsthey usually last just a couple of minutes and I find that drinking a glassor two of warm water and crunching a few Tums helps. New I just joined eGroup and am not sure what to do. I tried to log ontochat but can't figure it out. I am married (just 1 month) to a manwith achalasia. He was diagnosed about 6 years ago and haddilitationat Cleveland Clinic. When I met him 4 years ago he was still havingtrouble eating. Although now he is much better he still has severechest pain about once a month. We have tried to narrow it down tofoods, stress, etc., but with no luck. I guess my question is Whatcan I do to help? It keeps us both up endless night after night. Isthere anything to do for the chest pain? What causes it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 - my first MD prescribed nitro for me - didn't do a thing (except give me a headache). It wasn't until I switched docs that I found out about Levsin. It's the only thing that reliably works on the pains as far as I'm concerned. Take care - Carol New I just joined eGroup and am not sure what to do. I tried to log ontochat but can't figure it out. I am married (just 1 month) to a manwith achalasia. He was diagnosed about 6 years ago and haddilitationat Cleveland Clinic. When I met him 4 years ago he was still havingtrouble eating. Although now he is much better he still has severechest pain about once a month. We have tried to narrow it down tofoods, stress, etc., but with no luck. I guess my question is Whatcan I do to help? It keeps us both up endless night after night. Isthere anything to do for the chest pain? What causes it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 Carol, I will absolutely ask about that! If there's something out there that takes away the pains that wake me up in the middle of the night then sign me up! Thanks, New > > > > > > > I just joined eGroup and am not sure what to do. I tried to log on > > > to > > > chat but can't figure it out. I am married (just 1 month) to a man > > > with achalasia. He was diagnosed about 6 years ago and had > > > dilitation > > > at Cleveland Clinic. When I met him 4 years ago he was still having > > > trouble eating. Although now he is much better he still has severe > > > chest pain about once a month. We have tried to narrow it down to > > > foods, stress, etc., but with no luck. I guess my question is What > > > can I do to help? It keeps us both up endless night after night. Is > > > there anything to do for the chest pain? What causes it? > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 Hi Carol - Thanks for the info, I will ask my doctor about the levsin next time I go...As for the headache from the nitro, it comes on for about a minute and then lets up, but that one minute seems like the worst minute of my life!! Is levsin taken the same way as the nitro, under the tongue? Thanks! Carol Haggas wrote: - my first MD prescribed nitro for me - didn't do a thing (except give me a headache). It wasn't until I switched docs that I found out about Levsin. It's the only thing that reliably works on the pains as far as I'm concerned. Take care - Carol NewI just joined eGroup and am not sure what to do. I tried to log ontochat but can't figure it out. I am married (just 1 month) to a manwith achalasia. He was diagnosed about 6 years ago and haddilitationat Cleveland Clinic. When I met him 4 years ago he was still havingtrouble eating. Although now he is much better he still has severechest pain about once a month. We have tried to narrow it down tofoods, stress, etc., but with no luck. I guess my question is Whatcan I do to help? It keeps us both up endless night after night. Isthere anything to do for the chest pain? What causes it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 - that's the recommended way, but I found that I needed faster relief than that, so I started just swallowing it with water like any other pill. I find it works better for me that way. Take care - Carol New I just joined eGroup and am not sure what to do. I tried to log ontochat but can't figure it out. I am married (just 1 month) to a manwith achalasia. He was diagnosed about 6 years ago and haddilitationat Cleveland Clinic. When I met him 4 years ago he was still havingtrouble eating. Although now he is much better he still has severechest pain about once a month. We have tried to narrow it down tofoods, stress, etc., but with no luck. I guess my question is Whatcan I do to help? It keeps us both up endless night after night. Isthere anything to do for the chest pain? What causes it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2002 Report Share Posted January 12, 2002 , Even if you have trouble losing the weight you will feel so much better with eating right and exercising. Also, what a great example for your kids. I am proud of you for trying even though it will be difficult, a lot of folks would not even try. 260/187/140 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 Welcome ... and I am glad you are not listening to the one endocrinologist.... I believe it will be a hard battle but I do not believe it is impossible!!!! We are here for you. BTW... where do you live? Near some mountains? bloomingpansy wrote: > I have just started on my path to a healthier lifestyle and am > encouraged by the support you have shown to one another on this > board. > > Here is my background: > I am 38, married for 14 happy years to a wonderful, supportive man, > two daughters who are 8 and 12 (actually 9 and 13 next month) and I > am a licensed day care provider who watches 6 schoolage kids daily. > > I have polycystic ovarian disease, which makes weight loss difficult > because of the body mechanics. Weight loss is very difficult in the > best conditions, but toss in a hormonal problem and well, you can > guess the rest. I have had one endcrinologist tell me that I probably > won't lose any weight, but to go ahead and try anyways (??!!). > > I have done a lot of research on various diets and eating programs, > the medical community has been no help at all (cut out fat, exercise > for 60 min. daily, blah blah blah). So from all the background I have > collected and phone calls made and lurking on boards, I have decided > to start the McDougall program, since I am practically a veg. anyways > (don't like meat, never have, never will...texture thing). > > I weigh 220 to start, the heaviest I have ever been. Prior to the > polycystic thing going out of control I weighed 104 and had 11% body > fat and some ripped arms and shoulders. It is really weird to look at > the old pixs and look in the mirror...I have to stop beating myself > up about it. My daughters cannot believe I used to look that way, I > can't either for that matter. > > However, this is not about looks, it is truly a health issue. I want > my life back!!!!!! I am tired of taking meds 5x a day, tired of being > tired, tired of a battered immune system, tired of constant cramps, > tired of lossing hair on my head and growing it on my face, tired of > acne (which bypassed my during my teenage years), tired of all the > polycystic BS!!!! > > I want a change. I want my life back. I want to be able to pack a bag > and my girls and go to the mountains overnight for fun, without > having to worry about meds, or pain or fatigue or anything else. > > Sorry about the whining, I did not realize I had soooo much anger > until I started venting... > > Good luck to all of you and if any of you need support, I will give > it to you unconditionally. > > > > (PS I have also given up my main addiction...cola slurpees...I live > less than a block from 7-11...maybe I just like the brain freeze ) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2002 Report Share Posted January 15, 2002 Another ! I'm glad you already have a unique nickname. You make #3 on this list. > > loves it when I cook. It always ends up saving us money, and much better > > than cardboard pizza, the pizza that you buy from a store. Another pizza lover! We have it every Friday. I make my own whole wheat crust, use fat free soy cheese (dairy problem), and plenty of veggie and vegetarian toppings, all fat free. I should go, > > thanks for letting me rattle on.... Rattle as much as you like. We don't bite . . . hard. Sue in NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2002 Report Share Posted January 15, 2002 Okay.. your post slipped right by me.... Welcome . Sue in NJ wrote: > Another ! I'm glad you already have a unique nickname. You make #3 on > this list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 Welcome to our group. You’ll find that this is a wonderful caring group of people with a wealth of knowledge. The best thing to do to get started, is to go back and start reading the past posts. There are also some personal stories in the member files, along with a list of surgeons, and a database filled with information. We have all been there, and hopefully finding this group will help you to feel less scared and alone with this disease. Take care. It would also be a good idea to let us know your name and where you are from because there may be others in the group who can help you with finding experienced doctors and and surgeons. Take Care, Sandi in No CA Holt- New I am a new member and i am wanting to get all the knowledge i can get..please help,,scared, sick and wanting knowledge.. Groups Links · To visit your group on the web, go to: achalasia/ · Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2004 Report Share Posted January 26, 2004 > I am a new member and i am wanting to get all the knowledge i can > get..please help,,scared, sick and wanting knowledge.. What kind of knowledge do you need - where are you in the progress of this disease? I've had it for 35 years, and have been through several stages. It's uncomfortable at times, embarrassing at times, and frustrating. Inconvenient always, but not usually life threatening. Ask me something! a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 zoieck - welcome to the group, though I'm sorry you have achalasia. I highly recommend going to the website here & reading all you can about the disease. Post any questions you have and we would be more than happy to answer. Have you had any procedures done on your esophagus yet? Where are you located & are you happy with your doctor? We are here for you! Cindi in PA ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Hi! I am 21 years old, and was officially diagnosed with achalasia in January of this year. I had been having symptoms since last summer. Achalasia is not very common at all, as I am sure you have found out by reading even a few things in this site. Where are you located? There are people in this group all over the place, and they are soooo helpful! Any question you ever have regarding A will be answered by at least one person, and in most situations, more than one person! There are a few different “treatments” or “fixes” for A, depending on many different things, which your doctor/surgeon/GI will help you decide which is the best choice for you. What kinds of testing/treatments have you gone through, if any, and how have they helped or not helped you? Your information may help somebody else around here, too!! Chilliwack, BC new Hello everyone. I am new to this group. I would like more info on achalasia. I am almost 21 and have had achalasia for little over 2 years. Please sends me messages. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Hi again zoieck Here is a link someone posted the day before you, that may help. There is lots of information out there! http://www.intelihealth.com/IH/ihtIH? Chilliwack, BC new Hello everyone. I am new to this group. I would like more info on achalasia. I am almost 21 and have had achalasia for little over 2 years. Please sends me messages. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 <<<Unfortunately I am having a lot of pressure off the GP and health visitor>>> Welcome to the group and good for you in learning and accepting the truth about vaccines. I'd say start learning how to take care of yourselves without a GP (except for those stitches and broken bones that come with six kids), until that time get a new GP (I know, easier said then done but start looking) and what is a 'health visitor'? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 welcome, jane, and i second anna's words about learning how to take care of yourselves without a GP. also, you do know that you can decline the services offered by a health visitor? furthermore, you may want to point out to both HV and GP that vaccinations are NOT mandatory in the UK and therefore you see their 'trying to convince you to have them' as harrassment, that might shut them up. :-) claudia also from the UK --- DrCrandall <drcrandall@...> wrote: > <<<Unfortunately I am having a lot of pressure > off the GP and > health visitor>>> > > > > Welcome to the group and good for you in learning > and accepting the truth about vaccines. I'd say > start learning how to take care of yourselves > without a GP (except for those stitches and broken > bones that come with six kids), until that time > get a new GP (I know, easier said then done but > start looking) and what is a 'health visitor'? > > > > > > > > [Non-text portions of this message have been > removed] > > ===== http://www.himalayasalt.co.uk http://www.he-ed.org.uk " We shall no longer hang on to the tails of public opinion or to a non- existent authority on matters utterly unknown and strange. We shall gradually become experts ourselves in the mastery of the knowledge of the Future. " Wilhelm Reich ___________________________________________________________ ALL-NEW Messenger - all new features - even more fun! http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 > > I have six children, I have always gone along with vaccinations, > believing I was doing the the right thing. It was only when the > controversary over the MMR came out that I started to have serious > doubts over all > vaccinations. My six year old has not had a pre school booster, my > three year old has not had the MMR, my nine month old has had no > vaccinations at all. UNfortunately I am having a lot of pressure > off the GP and > health visitor over this decision. > I have read lots on vaccinations, the more I read the more convinced > that I am doing the right thing. > > jane Hey Jane, yes you are doing the right thing by not butchuring your kids dont ever doubt you are not doing the right thing vince Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2004 Report Share Posted November 19, 2004 > > Welcome to the group and good for you in learning > and accepting the truth about vaccines. I'd say > start learning how to take care of yourselves > without a GP (except for those stitches and broken > bones that come with six kids), until that time > get a new GP (I know, easier said then done but > start looking) and what is a 'health visitor'? I don't visit gp very often, my 3 year old daughter was born with spina bifida, she has constant bladder infections, so my only contact usually is taking her samples in, and getting anitbiotics. I have started to have issues on antibiotics, wondering if they are really necessary.. I have took her off them, changed her diet, at the moment she is fine with no infection. a health visitor usually has contact with children under five, weighing the baby and giving advice, not always welcome though!! > > jane > > > > > > Quote Link to comment Share on other sites More sharing options...
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