Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Thanks, ! sma@... wrote: > Lori, > > I REALLY appreciate your approach to SMA and the changes it brings. > > There are lots of things I wish: > I wish that SMA only stood for something like " see more amusing things. " > I wish that the space shuttle never blew up. > I wish that 911 never happened. > > Guess what... we live in a world where lots of stuff happens that nobody > wants. You cannot polish fecal matter, it only smears. > > There are also a lot of wonderful things to appreciate. Even if there is > no magic pill to cure it SMA... the only thing it limits is our physical > ability. What we do with everything else is our choice. > > > > Stapp sma@... > gathering people in Texas to form branches of " Families of SMA " > > Group Email Addresses > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2011 Report Share Posted September 3, 2011 Hi , I am sorry to hear what you are going through and wish you the best. I am not really sure what your post has to do with iodine, however. I know you wrote you wish you could paint your breast with iodine. But other than that, please try to keep your posts about iodine; Earlier I posted a link to Dr. Derry's book about Breast Cancer and Iodine, I hope you saw that and get his book. He is a brilliant doctor and I know his book will give you much important information about iodine and how it helps in preventing and healing breast cancer. Kind regards, Kathleen I wish... First of all, I want to thank those of you who visited my blog for the kind words. Babz, it's really not difficult once you find a template that you like. I just used a "free blog server" site and away it went. "Play with it ~ you'll be amazed by how easy it really is! Now, about my wish. I wish M.D.s didn't distrust alternative therapies so much. I REALLY like my surgeon, and the plastic surgeon who did my TRAM flap reconstruction. But they were both quite obviously appalled when I told them that I would refuse radiation in favor of alternative/nutrition based treatments. I haven't even told them that I've also decided against chemo yet... Now, I'm having problems with my reconstructed breast. I had my mastectomy on 8/10, so it's been almost a month. Shortly after the surgery (while I was still in the hospital), my plastic surgeon noted that a small area of tissue was dying, right along the suture line across the center of the 'new' breast. He informed me that some tissue necropsy is normal and no reason for alarm. In fact, when forming the new breast, he routinely uses a little more fat/muscle/tissue that will ultimately be needed, with the intent of removing any excess in follow up care (lipo or surgery 6 mo. to a year post-surgery). Unfortunately, the fact that the dying tissue was right along the suture line weakened the area and one side of the 'scar' (not yet healed) split open. I now have about a 2 1/2 to 3 inch diameter, gaping wound on the breast. Per Dr.'s orders, I put a moisture holding pad over the wound, followed by a gauze pad and a surgical dressing, twice a day. The problem is, the wound is getting bigger ~ not smaller. The breast is swelling and feels engorged. I am now experiencing a considerable amount of pain that was not there the first couple of weeks. Crap. I thought I was going to get better. NOT worse! :-( I've been seeing the Plastic Surgeon once a week or bi-weekly since the surgery. He hasn't been concerned about the healing process thus far. I called the PS, late Friday afternoon. I know. Stupid timing on my part. I live an hour from the hospital and I knew there was no way he'd be able to see me on Friday. Who knows? Maybe that's WHY I waited until late, Friday afternoon to call. On a Holiday weekend. Way to go Nanc! Anyway ~ He told be to limit all activity and not use my left arm (the side of the mastectomy) for anything over the weekend. If the breast swells more or the wound develops a yellow or greenish discharge (it's more of a brownish color now), or the skin around it gets "angry-red" looking, or I should spike a fever, I should get my butt in to Urgent Care this weekend. If none of the above happen, he wants to see me first thing Tuesday morning. Did I mention the hour drive??? Well, the skin around the gaping hole IS red. But I don't know if it's "angry" red. It's always been "kind of" red. At least since the surgery. Somedays I think it looks a little worse ~ some days a little better. I don't know if the swelling is worse or not. I don't know how it COULD get any worse. I look like an engorged, nursing mother of six-month-old-triplets who are an hour late for their feeding! The breast is round and hard. I did find that cupping my hand under the breast and 'lifting it' a little seemed to help. At least a little bit. I'm wondering if the shear weight of the engorged breast is compressing the blood/lymphatic fluid flow to and from the breast. All I know is that supporting it did seem to soften the breast a bit and the pain was reduced noticeably. I actually got down on my hands and knees (actually just one hand because I can't put any weight on my left arm) for a few minutes, in the living room and may repeat that every so often throughout the night. In the meantime, I am checking my temperature at both dressing changes (am and pm) and keeping a close eye on things. About three months ago, I was in Intensive Care for three days and almost died from Septic Shock. I became septic from a PICC Line that had been placed in my right arm so that I could receive at home, antibiotic infusions while I was recovering from surgery (actually THREE surgeries) on my elbow (shattered in a fall last spring). But that's a whole 'nother story! My point being that I am a bit paranoid about the thought of developing another infection! My "WISH" is that I could paint my breast with Iodine. But if I end up in urgent care this weekend, or if the stain still shows up on Tuesday morning, I think my plastic surgeon would kill me! He has already said that he doesn't think that this is a good time for me to be changing my diet and nutritional practices. Eating better is fine but NOT adding a "bunch of supplements" that have no scientific proof of their effectiveness. I know that he does not want me to use ANY compression on my chest/torso area (could compromise blood flow to the newly transplanted tissue), or use any hot or cold packs, so I'm pretty sure that he would not be in favor of painting it with Iodine. The truth is, because the TRAM flap surgery is so recent and the breast is obviously not healed yet, I'd be afraid to do anything that the doctor doesn't approve of. (OTHER than refusing radiation & chemo and taking all sorts of "new" nutritional supplements...) I wish that Medical Doctors would have a more open mind to other forms of treatment. I do not doubt for ONE SECOND that all of my doctors are genuinely caring, concerned professionals and want what is best for me. It's just that the only way that they can see any hope for improvement is by following the methods that they learned in med-school and in their on-going hospital practices. I can't imagine them ever saying: "Yes! Go for it! You don't need surgery or chemo or radiation. There's no need for tumor crushing mammograms or cell wall opening core needle biopsies ~ just change the way you eat! Take some supplements! You'll be fine." The healthcare center that I use does have a sparkly new "Breast Cancer Treatment Center" that brings all of the various practitioners and specialists together ~ to make things more convenient for the patient. They will even give you referrals to alternative care practitioners (dieticians/nutritionists, accupuncturists, aromatherapy, etc). They frequently remind me that "I" am in control. I make the decisions. But they still make it quite (subtly?) clear that any other therapy is to be in addition to ~ not instead of ~ traditional treatment and that the 'old way' is the best way and any new fangled therapy better not interfere with the way they were trained to do things and that they really wish that I'd just wait until they've done their jobs and 'fixed' me... I wish that all of you could be past your pain and fear and doubt. I wish you peaceful moments and gentle hugs and happy dreams. I wish all of us good health, good friends and bodies free of cancer! Shepherdess ~ Soapmakerhttp://shepherdsvoice.blogspot.com P.S. I'd be interested to hear from anyone else who had TRAM flap reconstruction after their mastectomy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2011 Report Share Posted September 3, 2011 Hi Kathleen, I do have Dr. Derry's book. Although, I confess that I am only about half-way through it. I apologize if the post was off topic. I guess I was just thinking out loud. I really do wish I could just paint my whole breast with iodine and see if it would help... Shepherdess ~ Soapmaker"Sheep Hugs & Soap Suds" < Click here to visit my online store!Blogs:http://shepherdsvoice.blogspot.comhttp://bluffcountrybackyardchickens.blogspot.com Re: I wish... Hi , I am sorry to hear what you are going through and wish you the best. I am not really sure what your post has to do with iodine, however. I know you wrote you wish you could paint your breast with iodine. But other than that, please try to keep your posts about iodine; Earlier I posted a link to Dr. Derry's book about Breast Cancer and Iodine, I hope you saw that and get his book. He is a brilliant doctor and I know his book will give you much important information about iodine and how it helps in preventing and healing breast cancer. Kind regards, Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2011 Report Share Posted September 3, 2011 Hi , Well, before surgeons operate, I think it is common for them to swab the area with iodine because it is a powerful disinfectant; at least they used to, not sure if they still do. And its YOUR breast, not your doctors; so if it was me, and I wanted to use iodine on my breast, I certainly would. =-) Best, Kathleen Re: I wish... Hi , I am sorry to hear what you are going through and wish you the best. I am not really sure what your post has to do with iodine, however. I know you wrote you wish you could paint your breast with iodine. But other than that, please try to keep your posts about iodine; Earlier I posted a link to Dr. Derry's book about Breast Cancer and Iodine, I hope you saw that and get his book. He is a brilliant doctor and I know his book will give you much important information about iodine and how it helps in preventing and healing breast cancer. Kind regards, Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2011 Report Share Posted September 3, 2011 ,I hope that things move towards healing for you quickly. I work as an acupuncturist specializing in women's health. I have seen women post pregnancy with engorged breasts. Cabbage leaves are used to relieve the swelling. I have no idea if this would work for your situation but wanted to mention it for what it's worth.Blessings,Janet iodine From: kathleenblake@...Date: Sat, 3 Sep 2011 21:22:44 -0700Subject: Re: I wish... Hi , Well, before surgeons operate, I think it is common for them to swab the area with iodine because it is a powerful disinfectant; at least they used to, not sure if they still do. And its YOUR breast, not your doctors; so if it was me, and I wanted to use iodine on my breast, I certainly would. =-) Best, Kathleen Re: I wish... Hi , I am sorry to hear what you are going through and wish you the best. I am not really sure what your post has to do with iodine, however. I know you wrote you wish you could paint your breast with iodine. But other than that, please try to keep your posts about iodine; Earlier I posted a link to Dr. Derry's book about Breast Cancer and Iodine, I hope you saw that and get his book. He is a brilliant doctor and I know his book will give you much important information about iodine and how it helps in preventing and healing breast cancer. Kind regards, Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2011 Report Share Posted September 3, 2011 Good point Kathleen and thank you for the suggestion Janet! Shepherdess ~ Soapmaker"Sheep Hugs & Soap Suds" < Click here to visit my online store!Blogs:http://shepherdsvoice.blogspot.comhttp://bluffcountrybackyardchickens.blogspot.com Re: I wish... Hi , I am sorry to hear what you are going through and wish you the best. I am not really sure what your post has to do with iodine, however. I know you wrote you wish you could paint your breast with iodine. But other than that, please try to keep your posts about iodine; Earlier I posted a link to Dr. Derry's book about Breast Cancer and Iodine, I hope you saw that and get his book. He is a brilliant doctor and I know his book will give you much important information about iodine and how it helps in preventing and healing breast cancer. Kind regards, Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2011 Report Share Posted September 4, 2011 Hi , I'm also very sorry for your suffering. Have you studied the website www.breastcancerchoices.org ? They use iodine protocol to beat BC and their site has a huge amount of information about iodine. Highly recommend. But I guarantee you are severely deficient in iodine for several reasons. Iodine is required for cell apoptosis and cancer is the lack of cell apoptosis-- all people with cancer are deficient in iodine by definition. You've had lots of surgery and antibiotics etc all of which expose you to toxic chemicals that add to your iodine deficiency. We're all deficient in iodine anyway. If you did paint, it would be long gone before Tuesday. If you want to paint, you could paint in an area not involved in the surgery. Paint on the other breast, paint under your arm, whereever you feel comfortable. Dr Derry, whose book Kathleen recommends, says that iodine is so benign to the body that it should be being used in high quantities as an infusion to defeat cancer. Any iodine you can get even close to your wound site will help it heal. You don't say whether your " supplements " include the iodine protocol. I assure you that your healing will be assisted with the iodine supplement. But please visit that website and I think you'll be pleased you did. -- > Hi , > I am sorry to hear what you are going through and wish you the best. I > am not really sure what your post has to do with iodine, however. I > know you wrote you wish you could paint your breast with iodine. But > other than that, please try to keep your posts about iodine; Earlier I > posted a link to Dr. Derry's book about Breast Cancer and > Iodine, I hope you saw that and get his book. He is a brilliant doctor > and I know his book will give you much important information about > iodine and how it helps in preventing and healing breast cancer. Kind > regards, Kathleen > I wish... > > > First of all, I want to thank those of you who visited my blog for the > kind words. Babz, it's really not difficult once you find a template > that you like. I just used a " free blog server " site and away it went. > " Play with it ~ you'll be amazed by how easy it really is! > > Now, about my wish. I wish M.D.s didn't distrust alternative therapies > so much. I REALLY like my surgeon, and the plastic surgeon who did my > TRAM flap reconstruction. But they were both quite obviously appalled > when I told them that I would refuse radiation in favor of > alternative/nutrition based treatments. I haven't even told them that > I've also decided against chemo yet... > > Now, I'm having problems with my reconstructed breast. I had my > mastectomy on 8/10, so it's been almost a month. Shortly after the > surgery (while I was still in the hospital),my plastic surgeon noted > that a small area of tissue was dying, right along the suture line > across the centerof the 'new' breast. He informed me that some tissue > necropsy is normal and no reason for alarm. In fact, when forming the > new breast, he routinely uses a little more fat/muscle/tissue that > will ultimately be needed, with the intent of removing any excess in > follow up care (lipo or surgery 6 mo. toa year post-surgery). > Unfortunately, the fact that the dying tissue was right along the > suture line weakened the area and one side of the 'scar' (not yet > healed) split open. I now have about a 2 1/2 to 3 inch diameter, > gaping wound on the breast. Per Dr.'s orders, I put a moisture holding > pad over the wound, followed by a gauze pad and a surgical dressing, > twice a day. The problem is, the wound is getting bigger ~ not > smaller. The breast is swelling and feels engorged. I am > nowexperiencing a considerable amount of pain that was not there the > first couple of weeks. Crap. I thought I was going to get better. NOT > worse! :-( I've been seeing the Plastic Surgeon once a week or > bi-weekly since the surgery. He hasn't been concerned about the > healing process thus far. > > I called the PS, late Friday afternoon. I know. Stupid timing on my > part. I livean hourfrom the hospital and I knew there was no way he'd > be able to see me on Friday. Who knows? Maybe that's WHY I waited > until late, Friday afternoon to call. On a Holiday weekend. Way to go > Nanc! Anyway ~ He told be to limit all activity and not use my left > arm (the side of the mastectomy) for anything over the weekend. If the > breast swells more or the wound develops a yellow or greenish > discharge (it's more of a brownish color now), or the skin around it > gets " angry- red " looking, or I should spike a fever, I should get my > butt in to Urgent Care this weekend. If none of the above happen, he > wants to see me first thing Tuesday morning. Did I mention the hour > drive??? > > Well, the skin around the gaping hole IS red. But I don't know if it's > " angry " red. It's always been " kind of " red. At least since the > surgery. Somedays I think it looks a little worse ~ some days a little > better. I don't know if the swelling is worse or not. I don't know how > it COULD get any worse. I look like an engorged, nursing mother of > six-month- old-triplets who are an hour late for their feeding! The > breast is round and hard. I did find that cupping my hand under the > breast and 'lifting it' a little seemed to help. At least a little > bit. I'm wondering if the shear weight of the engorged breast is > compressing the blood/lymphatic fluid flow to and from the breast. All > I know is that supporting it did seem to softenthebreast a bit and the > pain was reduced noticeably. I actually got downon my hands and knees > (actually just one hand because I can't put any weight on my left arm) > for a few minutes, in the living room and may repeat that every so > often throughout the night. In the meantime, I am checking my > temperature at both dressing changes (am and pm) and keeping a close > eye on things.About three months ago, I was in Intensive Care for > three days and almost died from Septic Shock. I became septic from a > PICC Line that had been placed in my right arm so that I could receive > at home, antibiotic infusions while I was recovering from surgery > (actually THREE surgeries) on my elbow (shattered in a fall last > spring).But that's a whole 'nother story! My point being that I am a > bit paranoid about the thought of developing another infection! > > My " WISH " is that I could paint my breast with Iodine. But if I end up > in urgent care this weekend, or if the stain still shows up on Tuesday > morning, I think my plastic surgeon would kill me! He has already said > that he doesn't think that this is a good time for me to be changing > my diet and nutritional practices. Eating better is fine but NOT > adding a " bunch of supplements " that have no scientific proof of their > effectiveness. I know that he does not want me to use ANY compression > on my chest/torso area (could compromise blood flow to the newly > transplanted tissue), or use any hot or cold packs, so I'm pretty sure > that he would not be in favor of painting it with Iodine. > > The truth is, because the TRAM flap surgery is so recent and the > breast is obviously not healed yet, I'd be afraid to do anything that > the doctor doesn't approve of. (OTHER than refusing radiation & chemo > and taking all sorts of " new " nutritional supplements...) > > I wish that Medical Doctors would have a more open mind to other forms > of treatment. I do not doubt for ONE SECOND that all of my doctors are > genuinely caring, concerned professionalsand want what is best for me. > It's just that the only way that they can see any hope for improvement > is by following the methods that they learned in med- school and in > their on-going hospital practices. I can't imagine them ever saying: > " Yes! Go for it! You don't need surgery or chemo or radiation. There's > no need for tumor crushing mammograms or cell wall opening core needle > biopsies ~ just change the way you eat! Take some supplements! You'll > be fine. " The healthcare center that I use does have a sparkly new > " Breast Cancer Treatment Center " that brings all of the various > practitioners and specialists together ~ to make things more > convenient for the patient. They will even give you referrals to > alternative care practitioners (dieticians/nutritionists, > accupuncturists, aromatherapy, etc). They frequently remind me that > " I " am in control. I make the decisions. But they still make it quite > (subtly?) clear that any other therapy is to be in addition to ~ not > instead of ~ traditional treatment and that the 'old way' is the best > way and any new fangled therapy better not interfere with the way they > were trained to do things and that they really wish that I'd just wait > until they've done their jobs and 'fixed' me... > > I wish that all of you could be past your pain and fear and doubt. I > wish you peaceful moments and gentle hugs and happy dreams. I wish all > of us good health, good friends and bodies free of cancer! > > > Shepherdess ~ Soapmaker > http://shepherdsvoice.blogspot.com > > P.S. I'd be interested to hear from anyone else who had TRAM flap > reconstruction after their mastectomy. > > > > > > > > No virus found in this message. > Checked by AVG - www.avg.com > Version: 10.0.1392 / Virus Database: 1520/3875 - Release Date: > 09/03/11 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2011 Report Share Posted September 4, 2011 , I posted another suggestion on the Iodine OT group. Hugs. Deidre > > First of all, I want to thank those of you who visited my blog for the kind words. Babz, it's really not difficult once you find a template that you like. I just used a " free blog server " site and away it went. " Play with it ~ you'll be amazed by how easy it really is! > > Now, about my wish. I wish M.D.s didn't distrust alternative therapies so much. I REALLY like my surgeon, and the plastic surgeon who did my TRAM flap reconstruction. But they were both quite obviously appalled when I told them that I would refuse radiation in favor of alternative/nutrition based treatments. I haven't even told them that I've also decided against chemo yet... > > Now, I'm having problems with my reconstructed breast. I had my mastectomy on 8/10, so it's been almost a month. Shortly after the surgery (while I was still in the hospital), my plastic surgeon noted that a small area of tissue was dying, right along the suture line across the center of the 'new' breast. He informed me that some tissue necropsy is normal and no reason for alarm. In fact, when forming the new breast, he routinely uses a little more fat/muscle/tissue that will ultimately be needed, with the intent of removing any excess in follow up care (lipo or surgery 6 mo. to a year post-surgery). Unfortunately, the fact that the dying tissue was right along the suture line weakened the area and one side of the 'scar' (not yet healed) split open. I now have about a 2 1/2 to 3 inch diameter, gaping wound on the breast. Per Dr.'s orders, I put a moisture holding pad over the wound, followed by a gauze pad and a surgical dressing, twice a day. The problem is, the wound is getting bigger ~ not smaller. The breast is swelling and feels engorged. I am now experiencing a considerable amount of pain that was not there the first couple of weeks. Crap. I thought I was going to get better. NOT worse! :-( I've been seeing the Plastic Surgeon once a week or bi-weekly since the surgery. He hasn't been concerned about the healing process thus far. > > I called the PS, late Friday afternoon. I know. Stupid timing on my part. I live an hour from the hospital and I knew there was no way he'd be able to see me on Friday. Who knows? Maybe that's WHY I waited until late, Friday afternoon to call. On a Holiday weekend. Way to go Nanc! Anyway ~ He told be to limit all activity and not use my left arm (the side of the mastectomy) for anything over the weekend. If the breast swells more or the wound develops a yellow or greenish discharge (it's more of a brownish color now), or the skin around it gets " angry-red " looking, or I should spike a fever, I should get my butt in to Urgent Care this weekend. If none of the above happen, he wants to see me first thing Tuesday morning. Did I mention the hour drive??? > > Well, the skin around the gaping hole IS red. But I don't know if it's " angry " red. It's always been " kind of " red. At least since the surgery. Somedays I think it looks a little worse ~ some days a little better. I don't know if the swelling is worse or not. I don't know how it COULD get any worse. I look like an engorged, nursing mother of six-month-old-triplets who are an hour late for their feeding! The breast is round and hard. I did find that cupping my hand under the breast and 'lifting it' a little seemed to help. At least a little bit. I'm wondering if the shear weight of the engorged breast is compressing the blood/lymphatic fluid flow to and from the breast. All I know is that supporting it did seem to soften the breast a bit and the pain was reduced noticeably. I actually got down on my hands and knees (actually just one hand because I can't put any weight on my left arm) for a few minutes, in the living room and may repeat that every so often throughout the night. In the meantime, I am checking my temperature at both dressing changes (am and pm) and keeping a close eye on things. About three months ago, I was in Intensive Care for three days and almost died from Septic Shock. I became septic from a PICC Line that had been placed in my right arm so that I could receive at home, antibiotic infusions while I was recovering from surgery (actually THREE surgeries) on my elbow (shattered in a fall last spring). But that's a whole 'nother story! My point being that I am a bit paranoid about the thought of developing another infection! > > My " WISH " is that I could paint my breast with Iodine. But if I end up in urgent care this weekend, or if the stain still shows up on Tuesday morning, I think my plastic surgeon would kill me! He has already said that he doesn't think that this is a good time for me to be changing my diet and nutritional practices. Eating better is fine but NOT adding a " bunch of supplements " that have no scientific proof of their effectiveness. I know that he does not want me to use ANY compression on my chest/torso area (could compromise blood flow to the newly transplanted tissue), or use any hot or cold packs, so I'm pretty sure that he would not be in favor of painting it with Iodine. > > The truth is, because the TRAM flap surgery is so recent and the breast is obviously not healed yet, I'd be afraid to do anything that the doctor doesn't approve of. (OTHER than refusing radiation & chemo and taking all sorts of " new " nutritional supplements...) > > I wish that Medical Doctors would have a more open mind to other forms of treatment. I do not doubt for ONE SECOND that all of my doctors are genuinely caring, concerned professionals and want what is best for me. It's just that the only way that they can see any hope for improvement is by following the methods that they learned in med-school and in their on-going hospital practices. I can't imagine them ever saying: " Yes! Go for it! You don't need surgery or chemo or radiation. There's no need for tumor crushing mammograms or cell wall opening core needle biopsies ~ just change the way you eat! Take some supplements! You'll be fine. " The healthcare center that I use does have a sparkly new " Breast Cancer Treatment Center " that brings all of the various practitioners and specialists together ~ to make things more convenient for the patient. They will even give you referrals to alternative care practitioners (dieticians/nutritionists, accupuncturists, aromatherapy, etc). They frequently remind me that " I " am in control. I make the decisions. But they still make it quite (subtly?) clear that any other therapy is to be in addition to ~ not instead of ~ traditional treatment and that the 'old way' is the best way and any new fangled therapy better not interfere with the way they were trained to do things and that they really wish that I'd just wait until they've done their jobs and 'fixed' me... > > I wish that all of you could be past your pain and fear and doubt. I wish you peaceful moments and gentle hugs and happy dreams. I wish all of us good health, good friends and bodies free of cancer! > > > Shepherdess ~ Soapmaker > http://shepherdsvoice.blogspot.com > > P.S. I'd be interested to hear from anyone else who had TRAM flap reconstruction after their mastectomy. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2011 Report Share Posted September 4, 2011 Hi ,I have a few thoughts, but they're not related to iodine. Would you mind if I email you directly so as not to offend anybody in this iodine- specific group?Take care, Sent via BlackBerry from T-MobileFrom: " Krohn" <nkmajik@...>Sender: iodine Date: Sun, 4 Sep 2011 00:11:44 -0500<iodine >Reply iodine Subject: Re: I wish...Good point Kathleen and thank you for the suggestion Janet! Shepherdess ~ Soapmaker"Sheep Hugs & Soap Suds" < Click here to visit my online store!Blogs:http://shepherdsvoice.blogspot.comhttp://bluffcountrybackyardchickens.blogspot.com----- Original Message ----- From: Janet A iodine Sent: Saturday, September 03, 2011 11:30 PMSubject: RE: I wish... ,I hope that things move towards healing for you quickly. I work as an acupuncturist specializing in women's health. I have seen women post pregnancy with engorged breasts. Cabbage leaves are used to relieve the swelling. I have no idea if this would work for your situation but wanted to mention it for what it's worth.Blessings,Janet iodine From: kathleenblake@...Date: Sat, 3 Sep 2011 21:22:44 -0700Subject: Re: I wish... Hi , Well, before surgeons operate, I think it is common for them to swab the area with iodine because it is a powerful disinfectant; at least they used to, not sure if they still do. And its YOUR breast, not your doctors; so if it was me, and I wanted to use iodine on my breast, I certainly would. =-) Best, Kathleen Re: I wish... Hi , I am sorry to hear what you are going through and wish you the best. I am not really sure what your post has to do with iodine, however. I know you wrote you wish you could paint your breast with iodine. But other than that, please try to keep your posts about iodine; Earlier I posted a link to Dr. Derry's book about Breast Cancer and Iodine, I hope you saw that and get his book. He is a brilliant doctor and I know his book will give you much important information about iodine and how it helps in preventing and healing breast cancer. Kind regards, Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2011 Report Share Posted September 4, 2011 Hi , Actually it is not a matter of offending anyone here when one posts topics that are off topic. The reason is that this group has over 5000 members and many new folks join daily; they join because of their interest in Iodine and if the posts are veering too far from the subject of the group, it can be confusing to them and we lose many that could be helped by iodine. We all enjoying exploring other topics, that is why created the Iodine Off Topic Group so we could all share other topics there. Kind regards, Kathleen Re: I wish... Hi , I am sorry to hear what you are going through and wish you the best. I am not really sure what your post has to do with iodine, however. I know you wrote you wish you could paint your breast with iodine. But other than that, please try to keep your posts about iodine; Earlier I posted a link to Dr. Derry's book about Breast Cancer and Iodine, I hope you saw that and get his book. He is a brilliant doctor and I know his book will give you much important information about iodine and how it helps in preventing and healing breast cancer. Kind regards, Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2011 Report Share Posted September 4, 2011 That's all I meant by my email, Kathleen. I wasn't being mean in any way. I'm sorry if you took it that way. I'm not a member of your other group, though, so emailing directly was the only way I knew to share...Take care, Sent via BlackBerry from T-MobileFrom: "Kathleen Blake" <kathleenblake@...>Sender: iodine Date: Sun, 4 Sep 2011 10:31:48 -0700<iodine >Reply iodine Subject: Re: I wish...Hi , Actually it is not a matter of offending anyone here when one posts topics that are off topic. The reason is that this group has over 5000 members and many new folks join daily; they join because of their interest in Iodine and if the posts are veering too far from the subject of the group, it can be confusing to them and we lose many that could be helped by iodine. We all enjoying exploring other topics, that is why created the Iodine Off Topic Group so we could all share other topics there. Kind regards, Kathleen Re: I wish... Hi , I am sorry to hear what you are going through and wish you the best. I am not really sure what your post has to do with iodine, however. I know you wrote you wish you could paint your breast with iodine. But other than that, please try to keep your posts about iodine; Earlier I posted a link to Dr. Derry's book about Breast Cancer and Iodine, I hope you saw that and get his book. He is a brilliant doctor and I know his book will give you much important information about iodine and how it helps in preventing and healing breast cancer. Kind regards, Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2011 Report Share Posted September 4, 2011 Hi , I didn’t think you were being mean at all! I just wanted to make sure you knew that we don’t get offended when messages go off topic. And wanted to let you know where you could continue your discussion. You are welcome to join our off topic group if you like. Sorry if I did not communicate this well. Please accept my apology. Here is the link if you would like to join our Off Topic Group IodineOT/ Best, Kathleen Re: I wish... Hi , I am sorry to hear what you are going through and wish you the best. I am not really sure what your post has to do with iodine, however. I know you wrote you wish you could paint your breast with iodine. But other than that, please try to keep your posts about iodine; Earlier I posted a link to Dr. Derry's book about Breast Cancer and Iodine, I hope you saw that and get his book. He is a brilliant doctor and I know his book will give you much important information about iodine and how it helps in preventing and healing breast cancer. Kind regards, Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2011 Report Share Posted September 4, 2011 I tried to reply to this, off list, but not sure if it went through. Yes. Please do contact me offline ! I also just joined the Off Topic group... (who wants to go to bed but doesn't want to change the disgusting dressing on my breast before I go...) Don't worry. I'll change it. Re: I wish... Hi ,I have a few thoughts, but they're not related to iodine. Would you mind if I email you directly so as not to offend anybody in this iodine- specific group?Take care, Sent via BlackBerry from T-Mobile Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2011 Report Share Posted September 4, 2011 Hi !I wish you recovery soon. I know you are in a lot of pain now, but I hope the time passquickly for you.My best wish,Miriam From: Krohn <nkmajik@...>To: iodine Sent: Sunday, 4 September 2011 6:42 AMSubject: I wish... First of all, I want to thank those of you who visited my blog for the kind words. Babz, it's really not difficult once you find a template that you like. I just used a "free blog server" site and away it went. "Play with it ~ you'll be amazed by how easy it really is! Now, about my wish. I wish M.D.s didn't distrust alternative therapies so much. I REALLY like my surgeon, and the plastic surgeon who did my TRAM flap reconstruction. But they were both quite obviously appalled when I told them that I would refuse radiation in favor of alternative/nutrition based treatments. I haven't even told them that I've also decided against chemo yet... Now, I'm having problems with my reconstructed breast. I had my mastectomy on 8/10, so it's been almost a month. Shortly after the surgery (while I was still in the hospital), my plastic surgeon noted that a small area of tissue was dying, right along the suture line across the center of the 'new' breast. He informed me that some tissue necropsy is normal and no reason for alarm. In fact, when forming the new breast, he routinely uses a little more fat/muscle/tissue that will ultimately be needed, with the intent of removing any excess in follow up care (lipo or surgery 6 mo. to a year post-surgery). Unfortunately, the fact that the dying tissue was right along the suture line weakened the area and one side of the 'scar' (not yet healed) split open. I now have about a 2 1/2 to 3 inch diameter, gaping wound on the breast. Per Dr.'s orders, I put a moisture holding pad over the wound, followed by a gauze pad and a surgical dressing, twice a day. The problem is, the wound is getting bigger ~ not smaller. The breast is swelling and feels engorged. I am now experiencing a considerable amount of pain that was not there the first couple of weeks. Crap. I thought I was going to get better. NOT worse! :-( I've been seeing the Plastic Surgeon once a week or bi-weekly since the surgery. He hasn't been concerned about the healing process thus far. I called the PS, late Friday afternoon. I know. Stupid timing on my part. I live an hour from the hospital and I knew there was no way he'd be able to see me on Friday. Who knows? Maybe that's WHY I waited until late, Friday afternoon to call. On a Holiday weekend. Way to go Nanc! Anyway ~ He told be to limit all activity and not use my left arm (the side of the mastectomy) for anything over the weekend. If the breast swells more or the wound develops a yellow or greenish discharge (it's more of a brownish color now), or the skin around it gets "angry-red" looking, or I should spike a fever, I should get my butt in to Urgent Care this weekend. If none of the above happen, he wants to see me first thing Tuesday morning. Did I mention the hour drive??? Well, the skin around the gaping hole IS red. But I don't know if it's "angry" red. It's always been "kind of" red. At least since the surgery. Somedays I think it looks a little worse ~ some days a little better. I don't know if the swelling is worse or not. I don't know how it COULD get any worse. I look like an engorged, nursing mother of six-month-old-triplets who are an hour late for their feeding! The breast is round and hard. I did find that cupping my hand under the breast and 'lifting it' a little seemed to help. At least a little bit. I'm wondering if the shear weight of the engorged breast is compressing the blood/lymphatic fluid flow to and from the breast. All I know is that supporting it did seem to soften the breast a bit and the pain was reduced noticeably. I actually got down on my hands and knees (actually just one hand because I can't put any weight on my left arm) for a few minutes, in the living room and may repeat that every so often throughout the night. In the meantime, I am checking my temperature at both dressing changes (am and pm) and keeping a close eye on things. About three months ago, I was in Intensive Care for three days and almost died from Septic Shock. I became septic from a PICC Line that had been placed in my right arm so that I could receive at home, antibiotic infusions while I was recovering from surgery (actually THREE surgeries) on my elbow (shattered in a fall last spring). But that's a whole 'nother story! My point being that I am a bit paranoid about the thought of developing another infection! My "WISH" is that I could paint my breast with Iodine. But if I end up in urgent care this weekend, or if the stain still shows up on Tuesday morning, I think my plastic surgeon would kill me! He has already said that he doesn't think that this is a good time for me to be changing my diet and nutritional practices. Eating better is fine but NOT adding a "bunch of supplements" that have no scientific proof of their effectiveness. I know that he does not want me to use ANY compression on my chest/torso area (could compromise blood flow to the newly transplanted tissue), or use any hot or cold packs, so I'm pretty sure that he would not be in favor of painting it with Iodine. The truth is, because the TRAM flap surgery is so recent and the breast is obviously not healed yet, I'd be afraid to do anything that the doctor doesn't approve of. (OTHER than refusing radiation & chemo and taking all sorts of "new" nutritional supplements...) I wish that Medical Doctors would have a more open mind to other forms of treatment. I do not doubt for ONE SECOND that all of my doctors are genuinely caring, concerned professionals and want what is best for me. It's just that the only way that they can see any hope for improvement is by following the methods that they learned in med-school and in their on-going hospital practices. I can't imagine them ever saying: "Yes! Go for it! You don't need surgery or chemo or radiation. There's no need for tumor crushing mammograms or cell wall opening core needle biopsies ~ just change the way you eat! Take some supplements! You'll be fine." The healthcare center that I use does have a sparkly new "Breast Cancer Treatment Center" that brings all of the various practitioners and specialists together ~ to make things more convenient for the patient. They will even give you referrals to alternative care practitioners (dieticians/nutritionists, accupuncturists, aromatherapy, etc). They frequently remind me that "I" am in control. I make the decisions. But they still make it quite (subtly?) clear that any other therapy is to be in addition to ~ not instead of ~ traditional treatment and that the 'old way' is the best way and any new fangled therapy better not interfere with the way they were trained to do things and that they really wish that I'd just wait until they've done their jobs and 'fixed' me... I wish that all of you could be past your pain and fear and doubt. I wish you peaceful moments and gentle hugs and happy dreams. I wish all of us good health, good friends and bodies free of cancer! Shepherdess ~ Soapmakerhttp://shepherdsvoice.blogspot.com P.S. I'd be interested to hear from anyone else who had TRAM flap reconstruction after their mastectomy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2011 Report Share Posted September 5, 2011  Thank you so much Miriam. If I can make it through today, I'll at least avoid a trip to Urgent Care. I'm scheduled to see my Dr. at 8:30 tomorrow morning... I wish... First of all, I want to thank those of you who visited my blog for the kind words. Babz, it's really not difficult once you find a template that you like. I just used a "free blog server" site and away it went. "Play with it ~ you'll be amazed by how easy it really is! Now, about my wish. I wish M.D.s didn't distrust alternative therapies so much. I REALLY like my surgeon, and the plastic surgeon who did my TRAM flap reconstruction. But they were both quite obviously appalled when I told them that I would refuse radiation in favor of alternative/nutrition based treatments. I haven't even told them that I've also decided against chemo yet... Now, I'm having problems with my reconstructed breast. I had my mastectomy on 8/10, so it's been almost a month. Shortly after the surgery (while I was still in the hospital), my plastic surgeon noted that a small area of tissue was dying, right along the suture line across the center of the 'new' breast. He informed me that some tissue necropsy is normal and no reason for alarm. In fact, when forming the new breast, he routinely uses a little more fat/muscle/tissue that will ultimately be needed, with the intent of removing any excess in follow up care (lipo or surgery 6 mo. to a year post-surgery). Unfortunately, the fact that the dying tissue was right along the suture line weakened the area and one side of the 'scar' (not yet healed) split open. I now have about a 2 1/2 to 3 inch diameter, gaping wound on the breast. Per Dr.'s orders, I put a moisture holding pad over the wound, followed by a gauze pad and a surgical dressing, twice a day. The problem is, the wound is getting bigger ~ not smaller. The breast is swelling and feels engorged. I am now experiencing a considerable amount of pain that was not there the first couple of weeks. Crap. I thought I was going to get better. NOT worse! :-( I've been seeing the Plastic Surgeon once a week or bi-weekly since the surgery. He hasn't been concerned about the healing process thus far. I called the PS, late Friday afternoon. I know. Stupid timing on my part. I live an hour from the hospital and I knew there was no way he'd be able to see me on Friday. Who knows? Maybe that's WHY I waited until late, Friday afternoon to call. On a Holiday weekend. Way to go Nanc! Anyway ~ He told be to limit all activity and not use my left arm (the side of the mastectomy) for anything over the weekend. If the breast swells more or the wound develops a yellow or greenish discharge (it's more of a brownish color now), or the skin around it gets "angry-red" looking, or I should spike a fever, I should get my butt in to Urgent Care this weekend. If none of the above happen, he wants to see me first thing Tuesday morning. Did I mention the hour drive??? Well, the skin around the gaping hole IS red. But I don't know if it's "angry" red. It's always been "kind of" red. At least since the surgery. Somedays I think it looks a little worse ~ some days a little better. I don't know if the swelling is worse or not. I don't know how it COULD get any worse. I look like an engorged, nursing mother of six-month-old-triplets who are an hour late for their feeding! The breast is round and hard. I did find that cupping my hand under the breast and 'lifting it' a little seemed to help. At least a little bit. I'm wondering if the shear weight of the engorged breast is compressing the blood/lymphatic fluid flow to and from the breast. All I know is that supporting it did seem to soften the breast a bit and the pain was reduced noticeably. I actually got down on my hands and knees (actually just one hand because I can't put any weight on my left arm) for a few minutes, in the living room and may repeat that every so often throughout the night. In the meantime, I am checking my temperature at both dressing changes (am and pm) and keeping a close eye on things. About three months ago, I was in Intensive Care for three days and almost died from Septic Shock. I became septic from a PICC Line that had been placed in my right arm so that I could receive at home, antibiotic infusions while I was recovering from surgery (actually THREE surgeries) on my elbow (shattered in a fall last spring). But that's a whole 'nother story! My point being that I am a bit paranoid about the thought of developing another infection! My "WISH" is that I could paint my breast with Iodine. But if I end up in urgent care this weekend, or if the stain still shows up on Tuesday morning, I think my plastic surgeon would kill me! He has already said that he doesn't think that this is a good time for me to be changing my diet and nutritional practices. Eating better is fine but NOT adding a "bunch of supplements" that have no scientific proof of their effectiveness. I know that he does not want me to use ANY compression on my chest/torso area (could compromise blood flow to the newly transplanted tissue), or use any hot or cold packs, so I'm pretty sure that he would not be in favor of painting it with Iodine. The truth is, because the TRAM flap surgery is so recent and the breast is obviously not healed yet, I'd be afraid to do anything that the doctor doesn't approve of. (OTHER than refusing radiation & chemo and taking all sorts of "new" nutritional supplements...) I wish that Medical Doctors would have a more open mind to other forms of treatment. I do not doubt for ONE SECOND that all of my doctors are genuinely caring, concerned professionals and want what is best for me. It's just that the only way that they can see any hope for improvement is by following the methods that they learned in med-school and in their on-going hospital practices. I can't imagine them ever saying: "Yes! Go for it! You don't need surgery or chemo or radiation. There's no need for tumor crushing mammograms or cell wall opening core needle biopsies ~ just change the way you eat! Take some supplements! You'll be fine." The healthcare center that I use does have a sparkly new "Breast Cancer Treatment Center" that brings all of the various practitioners and specialists together ~ to make things more convenient for the patient. They will even give you referrals to alternative care practitioners (dieticians/nutritionists, accupuncturists, aromatherapy, etc). They frequently remind me that "I" am in control. I make the decisions. But they still make it quite (subtly?) clear that any other therapy is to be in addition to ~ not instead of ~ traditional treatment and that the 'old way' is the best way and any new fangled therapy better not interfere with the way they were trained to do things and that they really wish that I'd just wait until they've done their jobs and 'fixed' me... I wish that all of you could be past your pain and fear and doubt. I wish you peaceful moments and gentle hugs and happy dreams. I wish all of us good health, good friends and bodies free of cancer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2011 Report Share Posted September 5, 2011 Dear , There is a story about a Southern civil war officer whose arm was wounded during the civil war. The doctors wrote his arm off and thought it would need amputating or at least be useless/decorative. Luckily for this guy his very dovoted wife went with him everywhere and, on the advice of a doctor, she applied iodine to the wounded arm many times a day in a last ditch attempt to stave off the worst. This guy recovered the use of his arm. I can't remember his name, but you can look him up on wikipedia. Unfortunately he also went on to found the Klu Klux Klan, which is not so nice. But the point is the iodine managed to turn around a pretty hopeless situation. Good luck with your appointment tomorrow. If you don't like what your doctor says to you tomorrow you are still free to do what you like. Don't let him push you around too much. MacG. From: Krohn <nkmajik@...>iodine Sent: Mon, 5 September, 2011 14:45:22Subject: Re: I wish...  Thank you so much Miriam. If I can make it through today, I'll at least avoid a trip to Urgent Care. I'm scheduled to see my Dr. at 8:30 tomorrow morning... I wish... First of all, I want to thank those of you who visited my blog for the kind words. Babz, it's really not difficult once you find a template that you like. I just used a "free blog server" site and away it went. "Play with it ~ you'll be amazed by how easy it really is! Now, about my wish. I wish M.D.s didn't distrust alternative therapies so much. I REALLY like my surgeon, and the plastic surgeon who did my TRAM flap reconstruction. But they were both quite obviously appalled when I told them that I would refuse radiation in favor of alternative/nutrition based treatments. I haven't even told them that I've also decided against chemo yet... Now, I'm having problems with my reconstructed breast. I had my mastectomy on 8/10, so it's been almost a month. Shortly after the surgery (while I was still in the hospital), my plastic surgeon noted that a small area of tissue was dying, right along the suture line across the center of the 'new' breast. He informed me that some tissue necropsy is normal and no reason for alarm. In fact, when forming the new breast, he routinely uses a little more fat/muscle/tissue that will ultimately be needed, with the intent of removing any excess in follow up care (lipo or surgery 6 mo. to a year post-surgery). Unfortunately, the fact that the dying tissue was right along the suture line weakened the area and one side of the 'scar' (not yet healed) split open. I now have about a 2 1/2 to 3 inch diameter, gaping wound on the breast. Per Dr.'s orders, I put a moisture holding pad over the wound, followed by a gauze pad and a surgical dressing, twice a day. The problem is, the wound is getting bigger ~ not smaller. The breast is swelling and feels engorged. I am now experiencing a considerable amount of pain that was not there the first couple of weeks. Crap. I thought I was going to get better. NOT worse! :-( I've been seeing the Plastic Surgeon once a week or bi-weekly since the surgery. He hasn't been concerned about the healing process thus far. I called the PS, late Friday afternoon. I know. Stupid timing on my part. I live an hour from the hospital and I knew there was no way he'd be able to see me on Friday. Who knows? Maybe that's WHY I waited until late, Friday afternoon to call. On a Holiday weekend. Way to go Nanc! Anyway ~ He told be to limit all activity and not use my left arm (the side of the mastectomy) for anything over the weekend. If the breast swells more or the wound develops a yellow or greenish discharge (it's more of a brownish color now), or the skin around it gets "angry-red" looking, or I should spike a fever, I should get my butt in to Urgent Care this weekend. If none of the above happen, he wants to see me first thing Tuesday morning. Did I mention the hour drive??? Well, the skin around the gaping hole IS red. But I don't know if it's "angry" red. It's always been "kind of" red. At least since the surgery. Somedays I think it looks a little worse ~ some days a little better. I don't know if the swelling is worse or not. I don't know how it COULD get any worse. I look like an engorged, nursing mother of six-month-old-triplets who are an hour late for their feeding! The breast is round and hard. I did find that cupping my hand under the breast and 'lifting it' a little seemed to help. At least a little bit. I'm wondering if the shear weight of the engorged breast is compressing the blood/lymphatic fluid flow to and from the breast. All I know is that supporting it did seem to soften the breast a bit and the pain was reduced noticeably. I actually got down on my hands and knees (actually just one hand because I can't put any weight on my left arm) for a few minutes, in the living room and may repeat that every so often throughout the night. In the meantime, I am checking my temperature at both dressing changes (am and pm) and keeping a close eye on things. About three months ago, I was in Intensive Care for three days and almost died from Septic Shock. I became septic from a PICC Line that had been placed in my right arm so that I could receive at home, antibiotic infusions while I was recovering from surgery (actually THREE surgeries) on my elbow (shattered in a fall last spring). But that's a whole 'nother story! My point being that I am a bit paranoid about the thought of developing another infection! My "WISH" is that I could paint my breast with Iodine. But if I end up in urgent care this weekend, or if the stain still shows up on Tuesday morning, I think my plastic surgeon would kill me! He has already said that he doesn't think that this is a good time for me to be changing my diet and nutritional practices. Eating better is fine but NOT adding a "bunch of supplements" that have no scientific proof of their effectiveness. I know that he does not want me to use ANY compression on my chest/torso area (could compromise blood flow to the newly transplanted tissue), or use any hot or cold packs, so I'm pretty sure that he would not be in favor of painting it with Iodine. The truth is, because the TRAM flap surgery is so recent and the breast is obviously not healed yet, I'd be afraid to do anything that the doctor doesn't approve of. (OTHER than refusing radiation & chemo and taking all sorts of "new" nutritional supplements...) I wish that Medical Doctors would have a more open mind to other forms of treatment. I do not doubt for ONE SECOND that all of my doctors are genuinely caring, concerned professionals and want what is best for me. It's just that the only way that they can see any hope for improvement is by following the methods that they learned in med-school and in their on-going hospital practices. I can't imagine them ever saying: "Yes! Go for it! You don't need surgery or chemo or radiation. There's no need for tumor crushing mammograms or cell wall opening core needle biopsies ~ just change the way you eat! Take some supplements! You'll be fine." The healthcare center that I use does have a sparkly new "Breast Cancer Treatment Center" that brings all of the various practitioners and specialists together ~ to make things more convenient for the patient. They will even give you referrals to alternative care practitioners (dieticians/nutritionists, accupuncturists, aromatherapy, etc). They frequently remind me that "I" am in control. I make the decisions. But they still make it quite (subtly?) clear that any other therapy is to be in addition to ~ not instead of ~ traditional treatment and that the 'old way' is the best way and any new fangled therapy better not interfere with the way they were trained to do things and that they really wish that I'd just wait until they've done their jobs and 'fixed' me... I wish that all of you could be past your pain and fear and doubt. I wish you peaceful moments and gentle hugs and happy dreams. I wish all of us good health, good friends and bodies free of cancer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2011 Report Share Posted September 5, 2011  Thank you and to the others who contacted me, off list, with information that may be helpful to my situation. I did go ahead and "paint" the painful breast and open wound with iodine last night and am "cautiously optomistic" that it at the very least does not look worse and may even show a slight improvement. In order to be sure that I'm not just seeing what I want to see, I took photos of the breast (up close and GROSS!) yesterday and this morning. I will continue to document progress with my camera. I have made up an online album in which I am storing the photos. If anyone would like to see them (warning! they are very graphic and not pleasant to look at. There is certainly nothing sexual about them anyway!) I would value the opinions or experiences of anyone who may have experienced or witnessed such an injury and treatment with Iodine. The album is private so anyone who would be interested in viewing it please contact me nkmajik@... and I will send you the link to view it. I also wanted to metion that I still only have my "Detoxadine" Nascent Atomic Iodine. I have ordered Iodoral (sp) for my oral use but thought the Detoxadine would be a good, cowardly way, to try painting on the breast because it is not as powerful as Lugol's. I mostly concentrated on painting the breast tissue itself and just did a few gentle taps with the Qtip soaked in Iodine over the actual open wound. Thank you again for all of your support, advice and well wishes! Shepherdess ~ Soapmakerhttp://shepherdsvoice.blogspot.com Re: I wish... Hi ! I wish you recovery soon. I know you are in a lot of pain now, but I hope the time pass quickly for you. My best wish, Miriam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2011 Report Share Posted September 5, 2011 Wow , that's a great story of iodine's efficacy. I use and study light therapy and will add that, prior to antibiodics, sunlight was used to heal wounds. Janet iodine From: s.macgilxrist@...Date: Mon, 5 Sep 2011 14:36:33 +0100Subject: Re: I wish... Dear , There is a story about a Southern civil war officer whose arm was wounded during the civil war. The doctors wrote his arm off and thought it would need amputating or at least be useless/decorative. Luckily for this guy his very dovoted wife went with him everywhere and, on the advice of a doctor, she applied iodine to the wounded arm many times a day in a last ditch attempt to stave off the worst. This guy recovered the use of his arm. I can't remember his name, but you can look him up on wikipedia. Unfortunately he also went on to found the Klu Klux Klan, which is not so nice. But the point is the iodine managed to turn around a pretty hopeless situation. Good luck with your appointment tomorrow. If you don't like what your doctor says to you tomorrow you are still free to do what you like. Don't let him push you around too much. MacG.From: Krohn <nkmajik@...>iodine Sent: Mon, 5 September, 2011 14:45:22Subject: Re: I wish...  Thank you so much Miriam. If I can make it through today, I'll at least avoid a trip to Urgent Care. I'm scheduled to see my Dr. at 8:30 tomorrow morning... I wish... First of all, I want to thank those of you who visited my blog for the kind words. Babz, it's really not difficult once you find a template that you like. I just used a "free blog server" site and away it went. "Play with it ~ you'll be amazed by how easy it really is! Now, about my wish. I wish M.D.s didn't distrust alternative therapies so much. I REALLY like my surgeon, and the plastic surgeon who did my TRAM flap reconstruction. But they were both quite obviously appalled when I told them that I would refuse radiation in favor of alternative/nutrition based treatments. I haven't even told them that I've also decided against chemo yet... Now, I'm having problems with my reconstructed breast. I had my mastectomy on 8/10, so it's been almost a month. Shortly after the surgery (while I was still in the hospital), my plastic surgeon noted that a small area of tissue was dying, right along the suture line across the center of the 'new' breast. He informed me that some tissue necropsy is normal and no reason for alarm. In fact, when forming the new breast, he routinely uses a little more fat/muscle/tissue that will ultimately be needed, with the intent of removing any excess in follow up care (lipo or surgery 6 mo. to a year post-surgery). Unfortunately, the fact that the dying tissue was right along the suture line weakened the area and one side of the 'scar' (not yet healed) split open. I now have about a 2 1/2 to 3inch diameter, gaping wound on the breast. Per Dr.'s orders, I put a moisture holding pad over the wound, followed by a gauze pad and a surgical dressing, twice a day. The problem is, the wound is getting bigger ~ not smaller. The breast is swelling and feels engorged. I am now experiencing a considerable amount of pain that was not there the first couple of weeks. Crap. I thought I was going to get better. NOT worse! :-( I've been seeing the Plastic Surgeon once a week or bi-weekly since the surgery. He hasn't been concerned about the healing process thus far. I called the PS, late Friday afternoon. I know. Stupid timing on my part. I live an hour from the hospital and I knew there was no way he'd be able to see me on Friday. Who knows? Maybe that's WHY I waited until late, Friday afternoon to call. On a Holiday weekend. Way to go Nanc! Anyway ~ He told be to limit all activity and not use my left arm (the side of the mastectomy) for anything over the weekend. If the breast swells more or the wound develops a yellow or greenish discharge (it's more of a brownish color now), or the skin around it gets "angry-red" looking, or I should spike a fever, I should get my butt in to Urgent Care this weekend. If none of the above happen, he wants to see me first thing Tuesday morning. Did I mention the hour drive??? Well, the skin around the gaping hole IS red. But I don't know if it's "angry" red. It's always been "kind of" red. At least since the surgery. Somedays I think it looks a little worse ~ some days a little better. I don't know if the swelling is worse or not. I don't know how it COULD get any worse. I look like an engorged, nursing mother of six-month-old-triplets who are an hour late for their feeding! The breast is round and hard. I did find that cupping my hand under the breast and 'lifting it' a little seemed to help. At least a little bit. I'm wondering if the shear weight of the engorged breast is compressing the blood/lymphatic fluid flow to and from the breast. All I know is that supporting it did seem to soften the breast a bit and the pain was reduced noticeably. I actually got down on my handsand knees (actually just one hand because I can't put any weight on my left arm) for a few minutes, in the living room and may repeat that every so often throughout the night. In the meantime, I am checking my temperature at both dressing changes (am and pm) and keeping a close eye on things. About three months ago, I was in Intensive Care for three days and almost died from Septic Shock. I became septic from a PICC Line that had been placed in my right arm so that I could receive at home, antibiotic infusions while I was recovering from surgery (actually THREE surgeries) on my elbow (shattered in a fall last spring). But that's a whole 'nother story! My point being that I am a bit paranoid about the thought of developing another infection! My "WISH" is that I could paint my breast with Iodine. But if I end up in urgent care this weekend, or if the stain still shows up on Tuesday morning, I think my plastic surgeon would kill me! He has already said that he doesn't think that this is a good time for me to be changing my diet and nutritional practices. Eating better is fine but NOT adding a "bunch of supplements" that have no scientific proof of their effectiveness. I know that he does not want me to use ANY compression on my chest/torso area (could compromise blood flow to the newly transplanted tissue), or use any hot or cold packs, so I'm pretty sure that he would not be in favor of painting it with Iodine. The truth is, because the TRAM flap surgery is so recent and the breast is obviously not healed yet, I'd be afraid to do anything that the doctor doesn't approve of. (OTHER than refusing radiation & chemo and taking all sorts of "new" nutritional supplements...) I wish that Medical Doctors would have a more open mind to other forms of treatment. I do not doubt for ONE SECOND that all of my doctors are genuinely caring, concerned professionals and want what is best for me. It's just that the only way that they can see any hope for improvement is by following the methods that they learned in med-school and in their on-going hospital practices. I can't imagine them ever saying: "Yes! Go for it! You don't need surgery or chemo or radiation. There's no need for tumor crushing mammograms or cell wall opening core needle biopsies ~ just change the way you eat! Take some supplements! You'll be fine." The healthcare center that I use does have a sparkly new "Breast Cancer Treatment Center" that brings all of the various practitioners and specialists together ~ to make things more convenient for thepatient. They will even give you referrals to alternative care practitioners (dieticians/nutritionists, accupuncturists, aromatherapy, etc). They frequently remind me that "I" am in control. I make the decisions. But they still make it quite (subtly?) clear that any other therapy is to be in addition to ~ not instead of ~ traditional treatment and that the 'old way' is the best way and any new fangled therapy better not interfere with the way they were trained to do things and that they really wish that I'd just wait until they've done their jobs and 'fixed' me... I wish that all of you could be past your pain and fear and doubt. I wish you peaceful moments and gentle hugs and happy dreams. I wish all of us good health, good friends and bodies free of cancer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2011 Report Share Posted September 5, 2011 I think the guy's name was Forrest, as in Gump! MacGilchrist From: Janet A <seaofqi@...>iodine Sent: Mon, 5 September, 2011 18:51:50Subject: RE: I wish... Wow , that's a great story of iodine's efficacy. I use and study light therapy and will add that, prior to antibiodics, sunlight was used to heal wounds. Janet iodine From: s.macgilxrist@...Date: Mon, 5 Sep 2011 14:36:33 +0100Subject: Re: I wish... Dear , There is a story about a Southern civil war officer whose arm was wounded during the civil war. The doctors wrote his arm off and thought it would need amputating or at least be useless/decorative. Luckily for this guy his very dovoted wife went with him everywhere and, on the advice of a doctor, she applied iodine to the wounded arm many times a day in a last ditch attempt to stave off the worst. This guy recovered the use of his arm. I can't remember his name, but you can look him up on wikipedia. Unfortunately he also went on to found the Klu Klux Klan, which is not so nice. But the point is the iodine managed to turn around a pretty hopeless situation. Good luck with your appointment tomorrow. If you don't like what your doctor says to you tomorrow you are still free to do what you like. Don't let him push you around too much. MacG. From: Krohn <nkmajik@...>iodine Sent: Mon, 5 September, 2011 14:45:22Subject: Re: I wish...  Thank you so much Miriam. If I can make it through today, I'll at least avoid a trip to Urgent Care. I'm scheduled to see my Dr. at 8:30 tomorrow morning... I wish... First of all, I want to thank those of you who visited my blog for the kind words. Babz, it's really not difficult once you find a template that you like. I just used a "free blog server" site and away it went. "Play with it ~ you'll be amazed by how easy it really is! Now, about my wish. I wish M.D.s didn't distrust alternative therapies so much. I REALLY like my surgeon, and the plastic surgeon who did my TRAM flap reconstruction. But they were both quite obviously appalled when I told them that I would refuse radiation in favor of alternative/nutrition based treatments. I haven't even told them that I've also decided against chemo yet... Now, I'm having problems with my reconstructed breast. I had my mastectomy on 8/10, so it's been almost a month. Shortly after the surgery (while I was still in the hospital), my plastic surgeon noted that a small area of tissue was dying, right along the suture line across the center of the 'new' breast. He informed me that some tissue necropsy is normal and no reason for alarm. In fact, when forming the new breast, he routinely uses a little more fat/muscle/tissue that will ultimately be needed, with the intent of removing any excess in follow up care (lipo or surgery 6 mo. to a year post-surgery). Unfortunately, the fact that the dying tissue was right along the suture line weakened the area and one side of the 'scar' (not yet healed) split open. I now have about a 2 1/2 to 3 inch diameter, gaping wound on the breast. Per Dr.'s orders, I put a moisture holding pad over the wound, followed by a gauze pad and a surgical dressing, twice a day. The problem is, the wound is getting bigger ~ not smaller. The breast is swelling and feels engorged. I am now experiencing a considerable amount of pain that was not there the first couple of weeks. Crap. I thought I was going to get better. NOT worse! :-( I've been seeing the Plastic Surgeon once a week or bi-weekly since the surgery. He hasn't been concerned about the healing process thus far. I called the PS, late Friday afternoon. I know. Stupid timing on my part. I live an hour from the hospital and I knew there was no way he'd be able to see me on Friday. Who knows? Maybe that's WHY I waited until late, Friday afternoon to call. On a Holiday weekend. Way to go Nanc! Anyway ~ He told be to limit all activity and not use my left arm (the side of the mastectomy) for anything over the weekend. If the breast swells more or the wound develops a yellow or greenish discharge (it's more of a brownish color now), or the skin around it gets "angry-red" looking, or I should spike a fever, I should get my butt in to Urgent Care this weekend. If none of the above happen, he wants to see me first thing Tuesday morning. Did I mention the hour drive??? Well, the skin around the gaping hole IS red. But I don't know if it's "angry" red. It's always been "kind of" red. At least since the surgery. Somedays I think it looks a little worse ~ some days a little better. I don't know if the swelling is worse or not. I don't know how it COULD get any worse. I look like an engorged, nursing mother of six-month-old-triplets who are an hour late for their feeding! The breast is round and hard. I did find that cupping my hand under the breast and 'lifting it' a little seemed to help. At least a little bit. I'm wondering if the shear weight of the engorged breast is compressing the blood/lymphatic fluid flow to and from the breast. All I know is that supporting it did seem to soften the breast a bit and the pain was reduced noticeably. I actually got down on my hands and knees (actually just one hand because I can't put any weight on my left arm) for a few minutes, in the living room and may repeat that every so often throughout the night. In the meantime, I am checking my temperature at both dressing changes (am and pm) and keeping a close eye on things. About three months ago, I was in Intensive Care for three days and almost died from Septic Shock. I became septic from a PICC Line that had been placed in my right arm so that I could receive at home, antibiotic infusions while I was recovering from surgery (actually THREE surgeries) on my elbow (shattered in a fall last spring). But that's a whole 'nother story! My point being that I am a bit paranoid about the thought of developing another infection! My "WISH" is that I could paint my breast with Iodine. But if I end up in urgent care this weekend, or if the stain still shows up on Tuesday morning, I think my plastic surgeon would kill me! He has already said that he doesn't think that this is a good time for me to be changing my diet and nutritional practices. Eating better is fine but NOT adding a "bunch of supplements" that have no scientific proof of their effectiveness. I know that he does not want me to use ANY compression on my chest/torso area (could compromise blood flow to the newly transplanted tissue), or use any hot or cold packs, so I'm pretty sure that he would not be in favor of painting it with Iodine. The truth is, because the TRAM flap surgery is so recent and the breast is obviously not healed yet, I'd be afraid to do anything that the doctor doesn't approve of. (OTHER than refusing radiation & chemo and taking all sorts of "new" nutritional supplements...) I wish that Medical Doctors would have a more open mind to other forms of treatment. I do not doubt for ONE SECOND that all of my doctors are genuinely caring, concerned professionals and want what is best for me. It's just that the only way that they can see any hope for improvement is by following the methods that they learned in med-school and in their on-going hospital practices. I can't imagine them ever saying: "Yes! Go for it! You don't need surgery or chemo or radiation. There's no need for tumor crushing mammograms or cell wall opening core needle biopsies ~ just change the way you eat! Take some supplements! You'll be fine." The healthcare center that I use does have a sparkly new "Breast Cancer Treatment Center" that brings all of the various practitioners and specialists together ~ to make things more convenient for the patient. They will even give you referrals to alternative care practitioners (dieticians/nutritionists, accupuncturists, aromatherapy, etc). They frequently remind me that "I" am in control. I make the decisions. But they still make it quite (subtly?) clear that any other therapy is to be in addition to ~ not instead of ~ traditional treatment and that the 'old way' is the best way and any new fangled therapy better not interfere with the way they were trained to do things and that they really wish that I'd just wait until they've done their jobs and 'fixed' me... I wish that all of you could be past your pain and fear and doubt. I wish you peaceful moments and gentle hugs and happy dreams. I wish all of us good health, good friends and bodies free of cancer! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2011 Report Share Posted September 5, 2011 I'm glad to hear you painted!!!!! Good for you It will help. None of us can tell you what to do but we sure can share your joy that you decided to go with it. It WILL NOT hurt you. --V On 5 Sep 2011 at 9:59, Krohn wrote: > > > > > Thank you and to the others who contacted me, off list, with > information that may be helpful to my situation. I did go ahead and > " paint " the painful breast and open wound with iodine last night and > am " cautiously optomistic " that it at the very least does not look > worse and may even show a slight improvement. In order to be sure that > I'm not just seeing what I want to see, I took photos of the breast > (up close and GROSS!) yesterday and this morning. I will continue to > document progress with my camera. I have made up an online album in > which I am storing the photos. If anyone would like to see them > (warning! they are very graphic and not pleasant to look at. There is > certainly nothing sexual about them anyway!) I would value the > opinions or experiences of anyone who may have experienced or > witnessed such an injury and treatment with Iodine. The album is > private so anyone who would be interested in viewing it please contact > me nkmajik@... and I will send you the link to view it. > > I also wanted to metion that I still only have my " Detoxadine " Nascent > Atomic Iodine. I have ordered Iodoral (sp) for my oral use but thought > the Detoxadine would be a good, cowardly way, to try painting on the > breast because it is not as powerful as Lugol's. I mostly concentrated > on painting the breast tissue itself and just did a few gentle taps > with the Qtip soaked in Iodine over the actual open wound. > > Thank you again for allof your support, advice and well wishes! > > > Shepherdess ~ Soapmaker > http://shepherdsvoice.blogspot.com Quote Link to comment Share on other sites More sharing options...
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