Guest guest Posted June 20, 1999 Report Share Posted June 20, 1999 That is what it says. I have addressed one of the articles about that statement. He is just told what to say. He gives the exact same quote to everyone. I have his email somewhere, I will try to find it. He monitors so if you would like to say something to him I am sure he is listening. He is just like the others, in fear of his job and saying what he is ordered to say. Any rational thinking individual would be able to see right through it. If I find his email I will post it. Thanks Deanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 1999 Report Share Posted June 20, 1999 That is what it says. I have addressed one of the articles about that statement. He is just told what to say. He gives the exact same quote to everyone. I have his email somewhere, I will try to find it. He monitors so if you would like to say something to him I am sure he is listening. He is just like the others, in fear of his job and saying what he is ordered to say. Any rational thinking individual would be able to see right through it. If I find his email I will post it. Thanks Deanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2000 Report Share Posted January 31, 2000 Pam.. my brother has CP.. he is severa though..I would be glad to talk with her.. although I am not a parent to a child with CP.I do have some idea on some things.. plus I beleive there is a CP list like this at www.onelist.com Hope this help.. mom to 6(DS) and Dayton 19months(DS) Question? >From: Pam Houser <phouser@...> > >Hello Everyone, > >I have a friend who has a daughter with Cerebral Palsy and was wondering >if anyone knows of a one list like this one for parents of children with >CP.. I know he struggles with some issues and would like advice and >comments of other parents. I hope someone can help. Thanks alot. > >Pam mother to Hannah and identical twins. > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2000 Report Share Posted January 31, 2000 Pam: I don't know of a specific CP list, but check out www.specialchild.com. There are bulletin boards there and lots of people w/kids w/CP post there and maybe they could help! Judi-Mom to Sam and , 3, Identical Twins --- Pam Houser <phouser@...> wrote: > Hello Everyone, > > I have a friend who has a daughter with Cerebral > Palsy and was wondering > if anyone knows of a one list like this one for > parents of children with > CP.. I know he struggles with some issues and would > like advice and > comments of other parents. I hope someone can help. > Thanks alot. > > Pam mother to Hannah and identical twins. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2000 Report Share Posted February 1, 2000 pam ...another site is parentsplace.com they have boards where you can ask specific questions under CP and other parents respond. --- Judi Grossman <judig2@...> wrote: > Pam: I don't know of a specific CP list, but check > out www.specialchild.com. There are bulletin boards > there and lots of people w/kids w/CP post there and > maybe they could help! > Judi-Mom to Sam and , 3, Identical Twins > > --- Pam Houser <phouser@...> wrote: > > Hello Everyone, > > > > I have a friend who has a daughter with Cerebral > > Palsy and was wondering > > if anyone knows of a one list like this one for > > parents of children with > > CP.. I know he struggles with some issues and > would > > like advice and > > comments of other parents. I hope someone can > help. > > Thanks alot. > > > > Pam mother to Hannah and identical twins. > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 When I read " bang on the wall 2 times when entering a room " It realy hit home. Rose used to do that all the time when entering her room or going down the hall to her room. She would also hit toys, the table before sitting down of if she bumped into something. I wondered what it was all about. Kat >From: " W. Birkhan " <wb4@...> >Reply-egroups >egroups >Subject: Re: Question? >Date: Wed, 26 Apr 2000 14:57:58 EDT > >J., > > Aggressive reactions can come from not being able to do a compulsion, >this >would be ocd. Say, bang on the wall 2 times when entering a room " to make >it >safe " , or punching someone when ever they see a friend 'so that nothing bad >happens to them'. Aggressive thoughts are common in ocd. Aggression is not >a >symptom of ocd, though. > > If I look at this from a childhood behaviour prospective, aggression can >be treated without medication. If its related to the ocd, then perhaps a >medication (SSRI) could help take off some of the stress and the anger >would >not be so strong. > >If this doesnt answer your question, can you give more specific details? > >wendy in canada wb4@... >.............................. > >From: JVaszil@... > >Reply-egroups > >egroups > >Subject: Question? > >Date: Wed, 26 Apr 2000 12:42:09 -0400 > > > > > >Is aggression a symptom of ocd in young children (5-7 yrs old)? If so, > >does medication and or CBT help? > > > >J. > >________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 J., Aggressive reactions can come from not being able to do a compulsion, this would be ocd. Say, bang on the wall 2 times when entering a room " to make it safe " , or punching someone when ever they see a friend 'so that nothing bad happens to them'. Aggressive thoughts are common in ocd. Aggression is not a symptom of ocd, though. If I look at this from a childhood behaviour prospective, aggression can be treated without medication. If its related to the ocd, then perhaps a medication (SSRI) could help take off some of the stress and the anger would not be so strong. If this doesnt answer your question, can you give more specific details? wendy in canada wb4@... ............................... >From: JVaszil@... >Reply-egroups >egroups >Subject: Question? >Date: Wed, 26 Apr 2000 12:42:09 -0400 > > >Is aggression a symptom of ocd in young children (5-7 yrs old)? If so, >does medication and or CBT help? > >J. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 HI J: When my OCDer was 7 with early onset OCD I did not realize there was anything troubling him. We only figured it out when he was 10 and extremely symptomatic. Aggression, particularly in response to OCD meltdowns or when our beloved OCDers are inadvertently or forcibly prevented from using rituals to temporarily decrease their anxiety, is a common response in children and adolescents. I am not sure how common it is in 5-7 year olds. I know from personal experience that it was common for our then-10 year old. What helped was E & RP to address the OCD symptoms and a professional parenting plan to set consistent limits and reward good behaviors. I imagine this would work even better with a young child than it did for our then-pre-teen. Take care, aloha, Kathy (H) kathyh@... At 12:42 PM 04/26/2000 -0400, you wrote: > >Is aggression a symptom of ocd in young children (5-7 yrs old)? If so, does >medication and or CBT help? > >J. > > >------------------------------------------------------------------------ >SHOPPING for DEALS? The merchants at BuyItOnline.com are offering up >to 30% OFF great gear, wear, gadgets and more, now through April 15, >2000. Real stores. Real Deals. Real Easy. Go get something great! >1/3025/3/_/531051/_/956767334/ >------------------------------------------------------------------------ > >You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. The Archives, Files, and Features List for the may be accessed by going to , enter your email address and password, then point and click. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 : I liked your explanation of agression with our OCDers. It made so much sense. Anger and aggression as a response to prevention of rituals, but not as a symptom. Thanks for expressing it so simply. Jule Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2000 Report Share Posted April 26, 2000 Hi J, I wholeheartedly agree with what Kathy H. has written. In our experience, our daughter's " temper tantrums, " were what first led us to seek professional help. She was four years old and her preschool teacher told us that her temper tantrums (actually meltdowns) were inappropriate for her age. The full-blown OCD symptoms didn't come out until age five, and that's when she was diagnosed. With treatment (E & RP, CBT, meds, parenting plan) the meltdowns have all but disappeared and are much, much milder when they do occur. Hope this helps, Lesli Kathy Hammes wrote: > > HI J: > > When my OCDer was 7 with early onset OCD I did not realize there was > anything troubling him. We only figured it out when he was 10 and > extremely symptomatic. Aggression, particularly in response to OCD > meltdowns or when our beloved OCDers are inadvertently or forcibly > prevented from using rituals to temporarily decrease their anxiety, is a > common response in children and adolescents. I am not sure how common it > is in 5-7 year olds. I know from personal experience that it was common > for our then-10 year old. > > What helped was E & RP to address the OCD symptoms and a professional > parenting plan to set consistent limits and reward good behaviors. I > imagine this would work even better with a young child than it did for our > then-pre-teen. > > Take care, aloha, Kathy (H) > kathyh@... > > At 12:42 PM 04/26/2000 -0400, you wrote: > > > >Is aggression a symptom of ocd in young children (5-7 yrs old)? If so, does > >medication and or CBT help? > > > >J. > > > > > >------------------------------------------------------------------------ > >SHOPPING for DEALS? The merchants at BuyItOnline.com are offering up > >to 30% OFF great gear, wear, gadgets and more, now through April 15, > >2000. Real stores. Real Deals. Real Easy. Go get something great! > >1/3025/3/_/531051/_/956767334/ > >------------------------------------------------------------------------ > > > >You may subscribe to the OCD-L by emailing listserv@... . In > the body of your message write: subscribe OCD-L your name. The Archives, > Files, and Features List for the may be accessed by > going to , enter your email address and password, > then point and click. Subscription issues, problems, or suggestions may > be addressed to Louis Harkins, list owner, at harkins@... . > > > > ------------------------------------------------------------------------ > Double your manufacturer's warranty on all computers, > home appliances, and electronics AND win up to $500 > towards your purchase! > 1/3749/3/_/531051/_/956775617/ > ------------------------------------------------------------------------ > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. The Archives, Files, and Features List for the may be accessed by going to , enter your email address and password, then point and click. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2000 Report Share Posted November 16, 2000 I benefit from it Liz. Inspires me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2001 Report Share Posted February 23, 2001 Narcisist is a person who " loves himself " , named after the person who feel in love with his own reflection. This " self centered, immature, love " excludes all others. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2002 Report Share Posted May 7, 2002 Um, the last I had heard anything about her was with the Bodylogix company. I have no idea. http://www.bodylogix.com/home.cfm > Does anyone know if Meredith Brown still personal training? If yes, > where and how can I get in contact with her. A training session with > her inspiration would be a great mothers day gift for my wife! > > Hope you can help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 CONGRATULATIONS!!! I WOULD LOVE TO SEE HER PICTURE!!! HEATHER, ARE WE STAYING NO ATTACHMENTS??? YOU CAN SEND IT PRIVATE TO ME ) HOW IS MOTHER AND BABY DOING??? HOW'S GRANDMA DOING??? SUCH A BEAUTIFUL NAME ) ((( HAPPY CONGRATULATING HUGS ))) HELEN > Does the list allow pictures to be posted? I'd like to share a picture of > my new granddaughter born last night. Her name is Shaylee Lynn-Ann..let me > know. Terri > {\o/} {\o/} {\o/} {\o/} {\o/} {\o/} {\o/} */*\* */*\* */*\* */*\* */*\* */*\* */*\* RAINBOW ANGELS TO PROTECT YOU ALL WEEK !! <center> Signature Creations by <A HREF= " http://www.wtv-zone.com/pandy/ " > PANDORASBOX8 </A> </center> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2002 Report Share Posted June 16, 2002 Does the list allow pictures to be posted? I'd like to share a picture of my new granddaughter born last night. Her name is Shaylee Lynn-Ann..let me know. Terri searching for Deborah dob 1/14/57 in nna, Fl Relinquished in Chicago, 1961 new info: Adoption finalized in Kings Co. NY --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Good morning everyone, Can anyone tell me where I could find information on infusion rates and subsequent side affect? was infused yesterday and was infused more than 1/2 of the time at 200 /min. She tolerated the infusion with no problem , however woke up at 2:30 am very ill. I asked her nurse, (whom is wonderful don't get me wrong), about the rate, and she explained that the rate only affects how they feel during the infusion, and if they tolerate the higher rate during the infusion then it shouldn't be a problem. If this is the case than I will accept that, however if this is not the case than I need to know, and I would like to be able to print something out and show it to her. Any information would be appreciated. Thanks again Sharon s mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Hi Sharon and Ursula~~ Lacey also uses Gammar PIV by Aventis and it only comes in a 5% solution. I know because we were hoping to decrease the amount of overall fluid she gets because of her lungs, so I called the company. The nurses reconstitute this by adding the diluent, so I wondered if they could make it into a 10% solution, but the company said they don't recommend it. I know other brands do come in 5% and 10%, but this one doesn't~~ Belinda Lacey's mom, (15, CdLS, IgG deficiency) Pittsburg, CA <A HREF= " http://www.cdls-support.org/family/aug2001/index.html " >CdLS OSG: Featured Family of August 2001</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 I should have added too that the bottles Lacey gets each have 100cc's in them and each bottle contains 5gms of IVIG. She gets 4 bottles which is 20gms altogether. I know they also come in 1gm, 2.5gm, and 10gm, so maybe the other ones get diluted differently~~ Belinda Lacey's mom, (15, CdLS, IgG deficiency) Pittsburg, CA <A HREF= " http://www.cdls-support.org/family/aug2001/index.html " >CdLS OSG: Featured Family of August 2001</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Sharon - how much was in the bottle to be infused? The volume and concentration have alot to do with how the rate affects a patient. Was it 5 or 10% solution? Ursula Holleman mom to (10 yrs old) and Macey (7 yr. old with CVID, asthma, sinus disease, GERD, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation's 2003 National Conference http://www.execinc.com/idf/ Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Ursulla I am afraid I don't know. She hung small bottles individually, and went through 7 bottles total. Normally she will mix all the bottles in one bag, however yesterday she did not have time and hung them individually. Thanks Sharon s mom Re: Question? Sharon - how much was in the bottle to be infused? The volume and concentration have alot to do with how the rate affects a patient. Was it 5 or 10% solution? Ursula Holleman mom to (10 yrs old) and Macey (7 yr. old with CVID, asthma, sinus disease, GERD, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation's 2003 National Conference http://www.execinc.com/idf/ Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Since most small bottles have 150 ml in them then I will assume this much. That would be 1050 cc's total. At 200 cc's per hour then it would have taken 5 hrs total to infuse. Is that about how long you were there? If this is so then that is a shorter amount of time then we take. Macey gets her infusions at 4 hrs length. The volume of fluid affects the rate also. If we infuse 150 cc bottle (a more concentrated amount) at 37 ccs and hour (a total of 4 hrs) then this is the same as infusing a larger volume of IVIG at a higher rate. This may sound confusing but what I am trying to show is that even though the 37 seems like a slower rate it is in fact equal to a rate of 200 if the volume of fluid is not the same. When people on the list quote infusion rates they really should also include the concentration (5 or 10%) and also the volume infusing. Ursula Holleman mom to (10 yrs old) and Macey (7 yr. old with CVID, asthma, sinus disease, GERD, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation's 2003 National Conference http://www.execinc.com/idf/ Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Ursula, The entire infusion took less that 3 hours!!! I am going to call her nurse and ask about the concentration , I really need to understand this as is so very ill today. Her nurse is a very loving, kind caring person, so it surprised me when she jacked the rate up . The fact that she explained that the rate ONLY determines side effects during the infusion concerns me. had no complaints at all during the infusion. Thank you so much for explaining the concentrations, that is so helpful to me. Now I can ask the right questions. Gratefully, Sharon s mom Re: Question? inertia) http://members.cox.net/maceyh Immune Deficiency Foundation's 2003 National Conference http://www.execinc.com/idf/ Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Belinda, Thank you for that information.!! Ursula does that make sense??? I am trying to grasp this , and I am a little slow today so please bear with me. So to finish 7 bottles in less than 3 hours, does that seen correct???? I wish she had a pump so I could get a handle on the rate. This has me very concerned. Any help would be appreciated. Sharon s mom 11 igg def [ Re: Question? Hi Sharon and Ursula~~ Lacey also uses Gammar PIV by Aventis and it only comes in a 5% solution. I know because we were hoping to decrease the amount of overall fluid she gets because of her lungs, so I called the company. The nurses reconstitute this by adding the diluent, so I wondered if they could make it into a 10% solution, but the company said they don't recommend it. I know other brands do come in 5% and 10%, but this one doesn't~~ Belinda Lacey's mom, (15, CdLS, IgG deficiency) Pittsburg, CA <A HREF= " http://www.cdls-support.org/family/aug2001/index.html " >CdLS OSG: Featured Family of August 2001</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 From: Beth, Mom to Wade,16(CVID,etc.) Sharon, I thought they had agreed to bringing a pump in for 's infusions. Did they only do it for the second infusion? I would scream about that for sure. Please let me know if you want me to make a phone call. Beth >From: " Sharon Grubb " <SGrubb@...> >Reply- >< > >Subject: RE: Question? >Date: Thu, 20 Mar 2003 15:38:56 -0500 > >Belinda, > >Thank you for that information.!! Ursula does that make sense??? I am >trying to grasp this , and I am a little slow today so please bear with >me. So to finish 7 bottles in less than 3 hours, does that seen >correct???? I wish she had a pump so I could get a handle on the rate. >This has me very concerned. Any help would be appreciated. > >Sharon >s mom 11 igg def > >[ > Re: Question? > > > >Hi Sharon and Ursula~~ > >Lacey also uses Gammar PIV by Aventis and it only comes in a 5% solution. I >know because we were hoping to decrease the amount of overall fluid she >gets >because of her lungs, so I called the company. The nurses reconstitute this >by adding the diluent, so I wondered if they could make it into a 10% >solution, but the company said they don't recommend it. I know other brands >do come in 5% and 10%, but this one doesn't~~ > >Belinda >Lacey's mom, (15, CdLS, IgG deficiency) >Pittsburg, CA ><A HREF= " http://www.cdls-support.org/family/aug2001/index.html " >CdLS OSG: >Featured Family of August 2001</A> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2003 Report Share Posted May 10, 2003 They are great Peace Pat Quote Link to comment Share on other sites More sharing options...
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