I have a question

[Guest guest]

Hi Debbie and all! My twins, and Tara{ds} are 13 months, is

now on reg cows milk, and Tara is on reg Soy milk found in the refrig

section right by the milk. Although I have found some info that soy can

be a no-no for the thyroid, I switched her to soy formula at about 10

months to see if it helped with the frequent congestion, it did, so I

had the dr.'s OK to switch her onto soy milk as well. They are both down

to 2 bottles a day, am and pm, and offer water down juice from a cup

during lunch is using a playtex 2 handle cup, Tara has a 2 handle

cup with a straw from evenflow, she's doing ok with it, not as

proffecient as is with his cup! Hope this helps

Gail........Bobby 6, Jillian 3 1/2, and Tara{Ds} 13months

>

> Hi Everyone and thank you for the warm reception.

>

> I was wondering if those of you who already have toddlers w/DS started

> your baby on cows milk at a year or did you stick with formula for

> another 6 months to a year.

> I am asking because we are getting close to the 1 year marker and I

> will be switching , who already feeds himself (I can't even get

> a spoon near him). I have not discussed this with the pediatrician or

> researched this yet. I thought I would take this oppotunity to ask

> you what you did, for those of you who have already " been there and

> done that " or those who have a plan in the works for this. I am

> planning on letting him continue with the bottle for anywhere up to

> 18months to 2 years. I have been told by the audiologist that it

> caould be good for his muscle development. My experience so far has

> been that I " adjust " his age to about half of what he really is and it

> usually is pretty close to where he is a developmentally.

> Keep in mind he has a pretty bad case of reflux and some digestive

> concerns. We are also looking at ear tubes in the next few weeks.

> By the way, I think my mom is the the best and she was in the room

> when the twins were born ( my husband was sick) and she knew the

> second she saw that he had DS. She was uplifting in her

> words and special feelings about babies like . She has been a

> huge source of support and encouragement. Although I know that she

> loves all my children equally, their is a " magic " that brings

> out in people and she is no exception.

>

> Debbie Drap -mother of 6, 5, 4, &

> -DS 10 months

> ----------------------------------------------------------------------

> [ebates.com - up to 25% cash back for shopping online.]

> ----------------------------------------------------------------------

> http://DSyndrome.com/Multiples

[Guest guest]

I ordered some lotion base, can I just add a scent to it, and that is it?

Also does anyone know where I can bye soldium hydroxide(lye) inexpensively? I

am just starting to make soap, any suggestions woul dbe greatly appreciated.

thanks.

[Guest guest]

In a message dated 3/24/01 3:06:12 PM Eastern Standard Time, CHOSEN03@...

writes:

> one sheet has to be wet with water

> and is good for one hand washing. It desolve easily and make suds too.

> Please

>

If anyone knows then please reply to the list, I'm interested also. Sounds

like a neat idea, especially with kids that haven't figured out what a soap

dish is for. Diane

[Guest guest]

> I'd like to know if the fragrance oils from

> www.fragrancefactory.com are any good? I'm planning on

> making some solid perfumes, and their prices seem a

> little too good to be true. Thanks.

Don't let the price throw you off. Some people simply mark up their

oils more than others. Ask for, or buy a small sample before you

purchase a lot. Get a large enough sample to make a small amount of

solid perfume.

Pat.

Peace, Joy, Serenity.

www.houseofscents.com

Cosmeticinfo

[Guest guest]

Mandy, Be very careful baby sitting for vaxxed kids. There are many mothers

who did this are sorry now. A just vaxxed baby can die from SIDS and you

would be charged since you were the last person the baby was with. Debbie are

you on this group? Speak up! It happened to her! Read the stories I have on

my website and you will see this is not a good idea. Plus vaccines shed.

All the best,

" Parents should decide through informed choice, which vaccines if any should

be

given to their children "

<A HREF= " http://www.theforgotten.com/vaccines/ " > Vaccine Information</A>

[Guest guest]

Mandy, I didn't understand your response as it relates to vaccines. You can

be as safety conscience as you want to be but if the child has just been

injected with poison it wouldn't matter! Glad your not doing it any more

anyway!

All the best,

" Parents should decide through informed choice, which vaccines if any should

be

given to their children "

<A HREF= " http://www.theforgotten.com/vaccines/ " > Vaccine Information</A>

[Guest guest]

hi wendy,

thanks for your words of concern. i no longer babysit. when i did, the

youngest i had was a 9 month old and i was very vigilant about making sure

she was okay. safety was one of my foremost concerns when it came to the

kids.

mandi

-- Re: i have a question

Mandy, Be very careful baby sitting for vaxxed kids. There are many mothers

who did this are sorry now. A just vaxxed baby can die from SIDS and you

would be charged since you were the last person the baby was with. Debbie

are

you on this group? Speak up! It happened to her! Read the stories I have on

my website and you will see this is not a good idea. Plus vaccines shed.

All the best,

" Parents should decide through informed choice, which vaccines if any should

be

given to their children "

<A HREF= " http://www.theforgotten.com/vaccines/ " > Vaccine Information</A>

[Guest guest]

The live viruses shed. MMR, Chicken pox. I try my best to not be around the

recently vaxxed! This is a letter I just wrote this doc who had an article

about vaccines but he never answered my question about the MMR. If anyone

wants to write him and ask him go ahead.

>>> <Lovthatlea@...> 02/03/03 07:13PM >>>

I just read your article and I have some questions for you if wouldn't mind

answering them. I know that the polio vaccine at one time had SV40 in it as

well as herpes and epstein barr viruses and others that remained undetected

until the PCR machine was used to see these viruses. What I want to know is

if anyone has checked to see if avian leukemia virus is present in the MMR

since it is made with chicken eggs. If so, is avian leukemia the same

leukemia that presents in humans? Also, if vaccines shed wouldn't it be more

dangerous for the unvaccinated to be around the recently vaccinated instead

of vise versa? Hope these questions are not beyond the scope of your

expertise. If so just disregard.

All the best,

I am not aware of any association between MMR and leukemia. I do not know if

the chick embryos used to manufacture the vaccine are checked for avian

leukemia virus. However, multiple studies have indicated that it is safe to

give MMR to " egg-allergic " patients so it seems likely that very little, if

any, material from the chick embryo is in the final product. There are

multiple forms of leukemia in humans. I am not aware that they are related

to avian leukemia. However, this is outside my area of expertise.

Because patients with leukemia may be immunocompromised i.e. their immune

systems cannot deal with infection appropriately, the MMR is contraindicated

in patients with active leukemia. The 1994 Institute of Medicine report on

MMR vaccine stated that " There is evidence that some everely imunocompromised

children, such as those with severe combined immunodeficiency syndrom,

dysgammaglobulinemia, or leukemia, are susceptible to overwhelming measles

infction and subsequent death, even from attenuated measles vaccine. " MMR

vaccine can be given to patients with HIV who are not severely

immunocompromised.

If you'll pardon my editorial comment, measles is a dangerous disease killing

over 750,000 children worldwide each year. Just over a decade ago in the

U.S, a measles epidemic affected over 50,000 individuals, killing over 130,

most of them children. Although the number of measles cases in the U.S. is

currently at a record low, many of the cases occurring have been imported

from other countries. I will try and obtain some further information

regarding avain

leukemia.

Sincerely,

Sanford Kimmel, M.D.

Sanford R. Kimmel, M.D.

Professor

Department of Family Medicine

Medical College of Ohio

1015 Garden Lake Parkway

Toledo, Ohio 43614

Phone: 419-383-5525

Fax: 419-382-7876

email: skimmel@...

I appreciate your information. I had no idea it was only 130 kids/adults died

from measles. That seems like such a small amount of people to make a vaccine

that the entire world must take. Wonder if those that died were

immumocompromised to begin with? Looking back at old medical books this

disease did not scare the doctors of that time period. My friend has a book

written in the 40's called Mr. Wiggles or something like that in which the

children get measles and its treated as something to have a party over.

However, I can easily see it as a disease that might disseminate entire

populations of starving and sick children, but then a simple cold could do

the same thing. I am finding that the medical community is demonizing common

childhood diseases like chicken pox with an almost religious fervor. It seems

that almost no attempt is being made to make sure vaccines are safe. I found

this on the FDA website on how contamination occurs in vaccines and it

literally has scared me to death since I have vaccinated my children.

II. POTENTIAL SOURCES OF VIRUS CONTAMINATION

Viral contamination of biotechnology products may arise from the original

source of the cell lines or from adventitious introduction of virus during

production processes.

A. Viruses That Could Occur in the Master Cell Bank (MCB)

Cells may have latent or persistent virus infection (e.g., herpesvirus) or

endogenous retrovirus which may be transmitted vertically from one cell

generation to the next, since the viral genome persists within the cell. Such

viruses may be constitutively expressed or may unexpectedly become expressed

as an infectious virus. Viruses can be introduced into the MCB by several

routes such as: (1) derivation of cell lines from infected animals; (2) use

of virus to establish the cell line; (3) use of contaminated biological

reagents such as animal serum components; (4) contamination during cell

handling.

I am grateful to you for your attempt in finding out whether or not avian

leukemia is present in the MMR. Is there a way to have access to the DNA

report on the different leukemias that present in children? That could be

compared to viruses in the vaccines and see for sure if in fact this is what

is happening in our nations children. I noticed that you didn't answer my

last question about shedding vaccines. If you have time would you please

address it?

All the best,

I don't have any information at this time regarding DNA composition of

leukemias. As I indicated, that is outside my area of expertise.

Viral shedding issues must be addressed individually according to each

vaccine. Vaccines consisting of killed viruses (the current influenza) or

antigenic components of viruses (hepatitis do not shed. The predominant

example of viral shedding by a vaccine was the oral polio vaccine which was

shed through the GI tract. Originally this was a good thing because even

unimmunized children might become immunized from contact with the shed virus

promoting the development of herd immunity. However, a small number of

children did develop vaccine associated polio (both vaccinees and vaccine

contacts). This number was probably about 8 children per year in the U.S.

After polio was eradicated in the U.S. and Western Hemisphere, it became

apparent that the risk involved in using the oral polio vaccine in the U.S.

was no longer acceptable and the switch was made to inactivated (killed)

polio vaccine. The varicella vaccine has a very slight risk of spread if

the vaccine recipient develops a rash and a susceptible contact is exposed.

However, that risk is very rare as there have been only three reported cases

of varicella in immunocompetent persons that have been attributed to the

vaccine. This is after approximately 5 years and millions of doses.

Sandy Kimmel, M.D.

So then really the only vaccines you must worry about shedding are the live

viruses like MMR and Chicken pox. Do they shed through the digestive tract as

well?

He never answered.....

" Parents should decide through informed choice, which vaccines if any should

be

given to their children "

<A HREF= " http://www.theforgotten.com/vaccines/ " > Vaccine Information</A>

[Guest guest]

This is really interesting. I should see if our Center For

Independent Living could a workshop like this.

Karol mom to

> This is currently running on our school system's website. I'll

email bamaher

> to see if there is anything we can send to the list.

> Bev

>

>

> `HOME ALONE' WORKSHOP FOR PARENTS OF SPECIAL NEEDS CHILDREN

>

> The Prince County Public Schools Special Education Parent

Resource

> Center will hosa two-part workshop for parents and caregivers of

children

> with mild to moderate disabilities,

> ages 10-15 or older, entitled " Home Alone: Is Your Child with

Special Needs

> Ready? " The

> workshops will be held on Tuesday, February 10, and Tuesday,

February 24,

> from 7:00 to 9:00

> p.m., in Conference Room 32 of Special Education Building 100 at

the School

> Board Administration complex, 14800 Joplin Road, Manassas.

>

> Bagby, mental health counselor with Prince County's

Community

> Services Board, will present this workshop series, which she has

adapted for

> special-needs use, from the Virginia Tech Guide " Strong Families:

Competent

> Kids Youth Book. " Parents and other caregivers will learn to assess

a child'

> s readiness to stay home alone without adult supervision and make

plans to

> remedy identified weaknesses in their child's self-care skills.

> There is no charge to attend the workshops; however, registration is

> required. To register,

> contact the Parent Resource Center at 703-791-8846 (Voice), 703-791-

8847

> (TDD), or

> e-mail bamaher@p... or odellb@p... by 3:00 p.m. on Tuesday, February

> 10.

[Guest guest]

Autism is a Pervasive Developmental Disorder, so PDD can include

autism. PDD-NOS is when a child has some signs of autism, but not

enough to be " officially " autistic. Asperger's shares some symptoms

of autism, but usually does not present a langauge delay, which is

why kids aren't dx'd til they're older. Asperger's also tends to

affect social skills more than any other areas of development, where

as classic autism affects many areas equally, although there still

may be a vast discrepency between one skill area and another.

Asperger's kids can often " fake " their way through many situations,

also leading to later dx. I have a few relatives that were not dx'd

until they were teens or adults.

Hope that helps a little.

Amnesty

>

> Csn anyone tell me the difference between Aspergers & Pdd-Nos??

> Thanks,

> Marie

[Guest guest]

I would love to have all the different criteria in an e mail form for people that call the Hotline with questions!

Can anyone paste it in to an e mail?

Thanks

N

H. Cale

Vice President, Unlocking Autism

770-463-4475-home office

866-366-3361-toll free

www.unlockingautism.org

NanCale@...

[Guest guest]

The DSM-IV criteria for Aspergers Disorder is...

299.80 Asperger's Disorder A. Qualitative impairment in social interaction, as manifested by at least two of the following:

marked impairment in the use of multiple nonverbal behaviors, such as eye-to-eye gaze, facial expression, body postures, and gestures to regulate social interaction failure to develop peer relationships appropriate to developmental level a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g., by a lack of showing, bringing, or pointing out objects of interest to other people) lack of social or emotional reciprocity

B. Restricted, repetitive, and stereotyped patterns of behavior, interests, and activities, as manifested by at least one of the following:

encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus apparently inflexible adherence to specific, nonfunctional routines or rituals stereotyped and repetitive motor mannerisms (e.g., hand or finger flapping or twisting, or complex whole-body movements) persistent preoccupation with parts of objects

C. The disturbance causes clinically significant impairment in social, occupational, or other important areas of functioning. D. There is no clinically significant general delay in language (e.g., single words used by age 2 years, communicative phrases used by age 3 years). E. There is no clinically significant delay in cognitive development or in the development of age-appropriate self-help skills, adaptive behavior (other than in social interaction), and curiosity about the environment in childhood. F. Criteria are not met for another specific pervasive developmental disorder or schizophrenia. This information is taken directly from the DSM-IV, and is for informational purposes only. If you suspect your child has a Pervasive Developmental Disorder, please have him seen by a professional for an appropriate diagnosis.

The DSM-IV criteria for PDD-NOS is...

299.80 Pervasive Developmental Disorder, Not Otherwise Specified This category should be used when there is a severe and pervasive impairment in the development of reciprocal social interaction or verbal and nonverbal communication skills, or when stereotyped behavior, interests, and activities are present, but the criteria are not met for a specific pervasive developmental disorder, schizophrenia, schizotypal personality disorder, or avoidant personality disorder. For example, this category includes "atypical autism" --presentations that do not meet the criteria for autistic disorder because of late age of onset, atypical symptomatology, or subthreshold symptomatology, or all of these. This information is taken directly from the DSM-IV, and is for informational purposes only. If you suspect your child has a Pervasive Developmental Disorder, please have him seen by a professional for an appropriate diagnosis.

[Guest guest]

marieostensson wrote:

> Csn anyone tell me the difference between Aspergers & Pdd-Nos??

>

A person diagnosed with Asperger's doesn't have all the criteria

necessary for an autism diagnosis.

A person diagnosed with PDD doesn't have all the criteria necessary for

an Asperger's diagnosis.

(roughly)

Patty

[Guest guest]

,

Here ya go... I included all of them.

Adrienne

DIAGNOSTIC CRITERIA FOR 299.00 AUTISTIC DISORDER**

*Source: The American Psychiatric Association: Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Washington D.C., American Psychiatric Association, 1994.

A. A total of at least six items from (1), (2), and (3), with at least two from (1), and one each from (2) and (3):

Qualitative impairment in social interaction, as manifested by at least two of the following:

marked impairment in the use of multiple nonverbal behaviors such as eye-to-eye gaze, facial expression, body postures, and gestures to regulate social interaction. failure to develop peer relationships appropriate to developmental level a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g., by a lack of showing, bringing, or pointing out objects of interest) lack of social or emotional reciprocity

Qualitative impairments in communication as manifested by at least one of the following:

delay in, or total lack of, the development of spoken language (not accompanied by an attempt to compensate through alternative modes of communication such as gesture or mime) in individuals with adequate speech, marked impairment in the ability to initiate or sustain a conversation with others stereotyped and repetitive use of language or idiosyncratic language lack of varied, spontaneous make-believe play or social imitative play appropriate to developmental level

Restricted repetitive and stereotyped patterns of behavior, interests, and activities, as manifested by at least one of the following:

encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus

apparently inflexible adherence to specific, nonfunctional routines or rituals

stereotyped and repetitive motor mannerisms (e.g., hand or finger flapping or twisting, or complex whole body movements)

persistent preoccupation with parts of objects

B. Delays or abnormal functioning in at least one of the following areas, with onset prior to age 3 years: (1) social interaction, (2) language as used in social communication, or (3) symbolic or imaginative play.

C. The disturbance is not better accounted for by Rett's Disorder or Childhood Disintegrative Disorder.

299.80 Asperger's Disorder A. Qualitative impairment in social interaction, as manifested by at least two of the following:

marked impairment in the use of multiple nonverbal behaviors, such as eye-to-eye gaze, facial expression, body postures, and gestures to regulate social interaction failure to develop peer relationships appropriate to developmental level a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g., by a lack of showing, bringing, or pointing out objects of interest to other people) lack of social or emotional reciprocity

B. Restricted, repetitive, and stereotyped patterns of behavior, interests, and activities, as manifested by at least one of the following:

encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus apparently inflexible adherence to specific, nonfunctional routines or rituals stereotyped and repetitive motor mannerisms (e.g., hand or finger flapping or twisting, or complex whole-body movements) persistent preoccupation with parts of objects

C. The disturbance causes clinically significant impairment in social, occupational, or other important areas of functioning. D. There is no clinically significant general delay in language (e.g., single words used by age 2 years, communicative phrases used by age 3 years). E. There is no clinically significant delay in cognitive development or in the development of age-appropriate self-help skills, adaptive behavior (other than in social interaction), and curiosity about the environment in childhood. F. Criteria are not met for another specific pervasive developmental disorder or schizophrenia.

299.80 Pervasive Developmental Disorder, Not Otherwise Specified This category should be used when there is a severe and pervasive impairment in the development of reciprocal social interaction or verbal and nonverbal communication skills, or when stereotyped behavior, interests, and activities are present, but the criteria are not met for a specific pervasive developmental disorder, schizophrenia, schizotypal personality disorder, or avoidant personality disorder. For example, this category includes "atypical autism" --presentations that do not meet the criteria for autistic disorder because of late age of onset, atypical symptomatology, or subthreshold symptomatology, or all of these.

299.80 Rett's Disorder A. All of the following:

apparently normal prenatal and perinatal development apparently normal psychomotor development through the first 5 months after birth normal head circumference at birth

B. Onset of all of the following after the period of normal development:

deceleration of head growth between ages 5 and 48 months loss of previously acquired purposeful hand skills between ages 5 and 30 months with the subsequent development of stereotyped hand movements (i.e., hand-wringing or hand washing) loss of social engagement early in the course (although often social interaction develops later) appearance of poorly coordinated gait or trunk movements severely impaired expressive and receptive language development with severe psychomotor retardation

299.10 Childhood Disintegrative Disorder A. Apparently normal development for at least the first 2 years after birth as manifested by the presence of age-appropriate verbal and nonverbal communication, social relationships, play, and adaptive behavior. B. Clinically significant loss of previously acquired skills (before age 10 years) in at least two of the following areas:

expressive or receptive language social skills or adaptive behavior bowel or bladder control play motor skills

C. Abnormalities of functioning in at least two of the following areas:

qualitative impairment in social interaction (e.g., impairment in nonverbal behaviors, failure to develop peer relationships, lack of social or emotional reciprocity) qualitative impairments in communication (e.g., delay or lack of spoken language, inability to initiate or sustain a conversation, stereotyped and repetitive use of language, lack of varied make-believe play) restricted, repetitive, and stereotyped patterns of behavior, interests, and activities, including motor stereotypes and mannerisms

D. The disturbance is not better accounted for by another specific pervasive developmental disorder or by schizophrenia.

[Guest guest]

Cindi- There are a few member links that are included at the end of

digest posts, along with some other text info.

I apologize if you are getting extremely long digests. Our members

have been reminded to remove excess info when replying to posts.

I'll be sending an admin post next.

Colleen

Handcrafted & Decorative Soaps

http://www.countrymeadowcreations.com

[Guest guest]

You might try this link and see what it has to say about groups in your area. http://www.cfids.org/resources/support-groups.asp. Hope you can find something there or other leads to other sites that may have something. Deborahjeana <jeana_1973@...> wrote: does anyone know of any groups out there to help the husbands dealwith this like what yall have here i am really enjoying it and i thinkit would be good for him to have someone bitch at also thatunderstands what he is going

thru this is also so hard on him i feelbad but i dont know how to help him i cant help me thx allWhen life sends you lemons...make lemonade! Deborah

[Guest guest]

thx so much i will have him check it out he defently

needs something to help this is also so hard for him

--- DEBORAH TOME <d.tome@...> wrote:

> You might try this link and see what it has to say

> about groups in your area.

> http://www.cfids.org/resources/support-groups.asp.

> Hope you can find something there or other leads to

> other sites that may have something. Deborah

>

> jeana <jeana_1973@...> wrote: does

> anyone know of any groups out there to help the

> husbands deal

> with this like what yall have here i am really

> enjoying it and i think

> it would be good for him to have someone bitch at

> also that

> understands what he is going thru this is also so

> hard on him i feel

> bad but i dont know how to help him i cant help me

> thx all

>

>

>

>

>

>

> When life sends you lemons...make lemonade!

> Deborah

>

jeana

zephyrhills

freecycle.org

zephyrhills_fl_freecycle

may god bless and keep us all

__________________________________________________

[Guest guest]

thx i sent it to him he is very much in need of

support this isnt what he planed when he got married

lol thx goodness he loves me

--- Don and <handd1@...> wrote:

>

> I don't know if you've gotten replies as I haven't

> read through all of the posts yet, but this group is

> for both ill persons and caregivers. If he doesn't

> feel comfortable being on the same group with you,

> there are many support groups on for

>

caregivers.search?query=caregiver

>

> Hope that helps!

>

> Hugs,

>

>

>

> i have a question

>

>

> does anyone know of any groups out there to help

> the husbands deal

> with this like what yall have here i am really

> enjoying it and i think

> it would be good for him to have someone bitch at

> also that

> understands what he is going thru this is also so

> hard on him i feel

> bad but i dont know how to help him i cant help me

> thx all

>

>

>

>

>

>

>

------------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.394 / Virus Database: 268.8.4/363 -

> Release Date: 6/13/2006

>

jeana

zephyrhills

freecycle.org

zephyrhills_fl_freecycle

may god bless and keep us all

__________________________________________________

[Guest guest]

Deb,

Thanks for the information. I do not vomit, just feel like I am. I notice my stool does change color, I still have gall bladder never had any problem well I hurt over there sometime, but I just thought that was from the liver being enlarged. I am losing weight, I needed to, back to where I was caring too much fluid. I even wore a pair of jeans that I got last December and I got to where I could not where any of my old clothes.

Is the weight loss from the pill I take for fluid retention.

Thank you,

Glenda

[Guest guest]

In a message dated 1/15/2007 5:47:43 PM Eastern Standard Time, dmotley@... writes:

There seems to be some kind of bug going around. I know several people (myself included) with daily nausea, no vomiting, for over a week now – and I’m healthy for the most part right now. It comes and goes throughout the day. Very strange.

I did not think of the bug, because I usally don't get sick with flu bugs.

Glenda

[Guest guest]

Glenda - Honey general testing for certain things may come back normal but by esld there is nothing normal anymore. Nausea is a symptom of chronic HCV in any stage. The liver and all it's function is actually part of the digestive system and processes. The gall bladder if you still have yours actually sits under the liver and is attached to it that's why for a liver transplant it is removed no more gallbladder. You didn't say if you were vomiting or not and early in the mornings and if it's foods after eating

or just bile and acids coming up. I had so much acid it developed into acid reflux disease coming all the way up and I was throwing it up and certain types of foods I could not digest anymore - heavy meals - full meals - fats - to much diary products. I was advised by my Dr's and had to eat light non fat - low or no beef - low sodium about 5 smaller meals during the day and was on rx's for acid reflux and stomach problems. I was also nauseated queasy feeling and if I started throwing up had a rx for suppositories to stop it before I dehydrated and got worse. In esld you are dumping into your stomach what shouldn't be there wasn't processed

correctly by your liver and the foods your eat are not being digested and processed correctly anymore. It turns into more bad stomach acids too. If you are throwing up try not to strain to hard watch for any blood or it getting darker or looking like old blood. With nausea in esld watch for any jaundice signs yellowing of the eyes are easier to tell sometimes than the skin and urine becoming darker with jaundice to much bilirubin is being dumped into your system with your liver not functioning properly. Your liver does so many functions per day and for other systems dr's can't count it all it's over 300 to 400 or more even including digestion and making the enzyme that makes your stools brown. People in esld need to watch for stools becoming lighter in color too and will get to white or clay color. The lighter the color than normal stools the less your liver is functioning and making that enzyme. Good question and discussion for group and this is a learning experience for us all. To many times pt's are not

informed enough by their Dr's and medical staff. Hang In There !!!!!!!!!!! Love Hugs and Prayers. Debglendajohn25@... wrote: Is it normal to be nausea every morning. I ask my TX coordinator what it could be and they don't know said I have

been scooped, scanned and everything when they do the work up for the TX. My meld score is a 16 now, it went back down. What makes your meld go up and down too? Thank you, Glenda ston Pretransplant.

[Guest guest]

There

seems to be some kind of bug going around. I know several people (myself

included) with daily nausea, no vomiting, for over a week now – and I’m

healthy for the most part right now. It comes and goes throughout the

day. Very strange.

De

I have a

question

Is it

normal to be nausea every morning. I ask my TX coordinator what it could

be and they don't know said I have been scooped, scanned and everything when

they do the work up for the TX. My meld score is a 16 now, it went back

down. What makes your meld go up and down too?

Thank

you,

Glenda

ston

Pretransplant.

[Guest guest]

Hi Glenda, I had daily nausea when I was end stage and still do, just not as bad. I kept crackers at my bedside and I keep chewable Pepto Bismol on me at all times.

Your meld score is computed by adding your Creatinine, Bilirubin and your INR( a ratio of your bleeding time or PT)

These labs change frequently with liver disease, so thats why people can go up and down on the list so much.

I have a question

Is it normal to be nausea every morning. I ask my TX coordinator what it could be and they don't know said I have been scooped, scanned and everything when they do the work up for the TX. My meld score is a 16 now, it went back down. What makes your meld go up and down too?

Thank you,

Glenda ston

Pretransplant.

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[Guest guest]

Hi Deb. How are ya?? I'm pullin' for the saints, hon. The Texans are waaaaay bad. The Saints are on a mission. Like the Blues Bros. I have noticed a lighter color ( Man I hate talking about this!!!) in my stool and really didn't think anything about it. You have completely lost my wee bit of a brain thats working, when you wrote, your dumping into stomach things that shouldn't be there... I thought you chewed, THAT went into your stomach, and HD Acid makes the gourmet meal break down and then it goes to the liver for proper distribution of what ever you just delivered to it. Then... the things that aren't doing anybody any good, or... once the vitamins and minerals have been separated, the now unbeneficial "food", poison or stool, is sent down the small intestine,via muscular like contractions of the intestine wall, thus resulting in a hopefully pleasant, exit. Are you saying

that after the liver processes (understandably not as well as it used to)... it (waste) goes BACK into the stomach for a retry?? I'm lost at this point. Am I way off?? Del Deb <posttransplant@...> wrote: Glenda - Honey general testing for certain things may come back normal but by esld there is nothing normal anymore. Nausea is a symptom of chronic HCV in any stage. The liver and all it's function is actually part of the digestive system and processes. The gall bladder if you still have yours actually sits under the liver and is attached to it that's why for a liver transplant it is removed no more gallbladder. You didn't say if you were vomiting or not and early in the mornings and if it's foods after eating or just bile and acids coming up. I had so much acid it developed into acid reflux disease coming all the way up and I was throwing it up and certain types of foods I could not digest anymore

- heavy meals - full meals - fats - to much diary products. I was advised by my Dr's and had to eat light non fat - low or no beef - low sodium about 5 smaller meals during the day and was on rx's for acid reflux and stomach problems. I was also nauseated queasy feeling and if I started throwing up had a rx for suppositories to stop it before I dehydrated and got worse. In esld you are dumping into your stomach what shouldn't be there wasn't processed correctly by your liver and the foods your eat are not being digested and processed correctly anymore. It turns into more bad stomach acids too. If you are throwing up try not to strain to hard watch for any blood or it getting darker or looking like old blood. With nausea in esld watch for any jaundice signs yellowing of the eyes are easier to tell sometimes than the skin and urine becoming darker with jaundice to much bilirubin is being dumped into your system with your liver not functioning properly. Your liver does so many functions per day and for other systems dr's can't count it all it's over 300 to 400 or more even including digestion and making the enzyme that makes your stools

brown. People in esld need to watch for stools becoming lighter in color too and will get to white or clay color. The lighter the color than normal stools the less your liver is functioning and making that enzyme. Good question and discussion for group and this is a learning experience for us all. To many times pt's are not informed enough by their Dr's and medical staff. Hang In There !!!!!!!!!!! Love Hugs and Prayers. Debglendajohn25aol wrote: Is it normal to be nausea every morning. I ask my TX coordinator what it could be and they don't know said I have been scooped, scanned and everything when they do the work up for the TX. My meld score is a 16 now, it went back down. What makes your meld go up and down too? Thank you, Glenda ston Pretransplant.

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[Guest guest]

I don't feel the acid in my stomach, I take meds for that in the morning. I call my transplant coordinator