my thyroid

[Guest guest]

hi guys im new to this forum but was recommended by a friend. ive had an under

active thyroid for 10 years since a partial removal and have taken 50mg thyroxin

ever since up till october last year. I did a very high alttitude trek in the

himalayas and became very ill. since then my blood tests are coming back normal

( i dont know wot the results were) but i feel lowsy! the doctors are telling me

i have stress and axiety problems, but i dont think i have and im pilling the

weight on and my get up and go has got up and gone! Any ideas anyone? x

[Guest guest]

Hi Sharon,

Can you get hold of the test results please, along with the reference

ranges..... You are entitled to these and your idea of 'normal' may not concur

with what some snotty little lab assistant thinks is 'normal'. ALWAYS

insist on knowing the numbers.....

The extreme trekking might have been the final nail in the coffin for already

stressed adrenals, which could have propping you up. Not running on adrenalin

now are you? Tired and wired? it feels horrible - like a sense of impending

doom....

If so, worth checking out the adrenal status with a saliva test... (Genova do

one) and supporting them if you need to.

Here is the link to adrenals in the files

thyroid treatment/files/ADRENALS/

x

>

> hi guys im new to this forum but was recommended by a friend. ive had an under

active thyroid for 10 years since a partial removal and have taken 50mg thyroxin

ever since up till october last year. I did a very high alttitude trek in the

himalayas and became very ill.

[Guest guest]

Hello Sharon and welcome to our forum where I hope you will get

the help and support you need. Please telephone your GP and ask the

receptionist or whoever you talk to, to put your last blood results, together

with the reference range for each test, including your thyroid function test

results into an envelope and you will call in to pick these up. You don't have

to tell them why you need these results, just tell them that you are keeping a

diary regarding your health and need them. No doctor/nurse or anybody can withhold

any information that is in your medical notes under the Data Protection Act.

Once you have got these, post them onto the forum so we can help

with interpretation. It is a fact that a lot of doctors will tell you that your

results are 'normal' if they appear ANYWHERE within the reference range, but we

need to know whether they are at the bottom, the middle or the top of the

range.

Also, ask your GP to test to see whether you have antibodies to

your thyroid. These tests are called TPO and TgAb. You need BOTH of these

tests. You should also ask for your levels of SPEC IFIC minerals and vitamins

to be tested to see whether these are low too. These are iron, transferrin

saturation%, ferritin, vitamin B12, vitamin D3, magnesium, folate, copper and

zinc. Should any of these be found to be low, they need supplementing to bring

up your levels, otherwise, no amount of thyroid hormone can be properly

utilised at the cellular level. We would need to know what those results are

too.

You don't tell us how much thyroxine you are taking and whether

you are taking 200mcgs Selenium daily with food, high doses vitamin C 1/2000mgs

daily.

Give us a bit more detail about yourself.

Luv - Sheila

hi guys im new to this forum but was

recommended by a friend. ive had an under active thyroid for 10 years since a

partial removal and have taken 50mg thyroxin ever since up till october last

year. I did a very high alttitude trek in the himalayas and became very ill.

since then my blood tests are coming back normal ( i dont know wot the results

were) but i feel lowsy! the doctors are telling me i have stress and axiety

problems, but i dont think i have and im pilling the weight on and my get up

and go has got up and gone! Any ideas anyone? x

[Guest guest]

Hi there Sheila and thanks for the reply:-) im not taking any thyroxin at the

moment or any other medication as the doctor said all results were normal for

thyroid but after reading your forum i think it might be time for another visit.

would like to go to him with some advice so can you tell me all the specific

tests i might need. I am getting fed up with being fobbed off at the docs as

they keep telling me its all in my head.thanx for any reply x

******* Message from Moderator *******

Sharon, Please can you remove most of the old message before you click

'send/reply' - this is to make it easier for people who receive individual and

digest emails - otherwise they have to scroll for ages to get to the bottom of

the message

Many thanks!

********

>

> Hello Sharon and welcome to our forum where I hope you will get the help and

> support you need. Please telephone your GP and ask the receptionist or

[Guest guest]

Hi , you seem to be under medicated, how much of the actual thyroid has been removed? if 1/2 of it , then maybe you need more medicine. if less then maybe it is fine, but how is your adrenals?after trekking i would be about dead i think. i would get the salivery test done ASAP. details in the files. angel.

[Guest guest]

Sharon

You might find the best course of action to take initially is to

send a letter to your doctor detailing all your requests and reasons why and

asking him to place your letter of requests into your medical notes (keep a

copy for yourself in case you need it at a later date).

First, tell the doctor that you are no longer prepared to put up

with your symptoms without thoroughly investigating the cause, and that you

would like him/her to work with you to find the cause as your suffering is

physical and not 'all in your head' as it appears they believe.

First, list every single one of your symptoms and signs (signs

are those that you can actually see). Check these against those listed in our

web site under 'Hypothyroidism' www.tpa-uk.org.uk

Second, take your basal temperature before getting out of bed in

a morning for four or five mornings. If these are below 97.8 degrees F (36.6

degrees C, or less) - list these too.

Third, list any family members who have a thyroid or autoimmune

disease.

Fourth, ask here for a FULL thyroid function blood test to

include TSH, free T4, free T3 and tests to see if you have antibodies to your

thyroid. These are called TPO and Tg Ab. (you need both). Ask also that the

following specific vitamins and minerals be tested to see if any of them are

low in the reference range: Iron, transferrin saturation%, ferritin, vitamin

B12, vitamin D3, magnesium,. folate, copper and zinc. If any of these are low,

the thyroid hormone cannot be fully utilised at the cellular level so these

MUST be supplemented as a priority. (In case your GP tries to tell you that

there is no connection, copy off the information at the end of this message,

print it out and enclose it with your letter to show just some of the

research/studies done to show of the connection)(**** see below). Ask that

you be given access to all your thyroid and other tests done together with the

reference range for all the tests.

Next, ask for a second opinion from an endocrinologist

specialising in thyroid disease, rather than one specialising in diabetes (most

do specialise in diabetes). I have a list of doctors recommended by our members

if this would help you.

Again, ask that your letter and enclose be placed into your

medical notes and ask for an appropriate appointment to go and get the specific

blood tests done.

putting pen to paper to a doctor usually ensures that the doctor

will take action, if he does not, then send a copy of the same letter asking

for a response to your requests to the Head of Practice, and if necessary, to

your local Primary Care Trust.

Meanwhile, before spending unnecessary money on a private test

to check out your cortisol and DHEA status, go to our FILES section, accessible

form the Home Page of this forum, and scroll down the list of FOLDERS, to the

one entitled 'Medical Questionnaires' Complete those 3 questionnaires and let

us know how you score. If necessary, you may need to contact Genova to get the

24 hour salivary adrenal profile testing kit to see where your cortisol and

DHEA levels are at 4 specific times during the day. It sounds like this could

be part of your problem.

Good luck.

Luv - Sheila

(****) Low

iron/ferritin:

Iron deficiency is shown to significantly reduce T4 to T3 conversion, increase

reverse T3 levels, and block the thermogenic (metabolism boosting) properties

of thyroid hormone (1-4). Thus, iron deficiency, as indicated by an iron

saturation below 25 or a ferritin below 70, will result in diminished

intracellular T3 levels. Additionally, T4 should not be considered adequate

thyroid replacement if iron deficiency is present (1-4)).

1.

Dillman E, Gale C, Green W, et al. Hypothermia in iron

deficiency due to altered triiodithyroidine metabolism. Regulatory, Integrative

and Comparative Physiology 1980;239(5):377-R381.

2.

SM, PE, Lukaski HC. In vitro hepatic

thyroid hormone deiodination in iron-deficient rats: effect of dietary fat.

Life Sci 1993;53(8):603-9.

3.

Zimmermann MB, Köhrle J. The Impact of Iron and Selenium

Deficiencies on Iodine and Thyroid Metabolism: Biochemistry and Relevance to

Public Health. Thyroid 2002;12(10): 867-78.

4.

Beard J, tobin B, Green W. Evidence for Thyroid Hormone

Deficiency in Iron-Deficient Anemic Rats. J. Nutr. 1989;119:772-778.

Low vitamin B12: http://www.ncbi.nlm.nih.gov/pubmed/18655403

Low vitamin D3: http://www.eje-online.org/cgi/content/abstract/113/3/329

and http://www.goodhormonehealth.com/VitaminD.pdf

Low magnesium: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC292768/pdf/jcinvest00264-0105.pdf

Low folate: http://www.clinchem.org/cgi/content/full/47/9/1738

and http://www.liebertonline.com/doi/abs/10.1089/thy.1999.9.1163

Low  copper http://www.ithyroid.com/copper.htm

http://www.drlwilson.com/articles/copper_toxicity_syndrome.htm

http://www.ithyroid.com/copper.htm

http://www.rjpbcs.com/pdf/2011_2(2)/68.pdf

http://ajplegacy.physiology.org/content/171/3/652.extract

Low zinc:http://www.istanbul.edu.tr/ffdbiyo/current4/07%20Iham%20AM%C4%B0R.pdf

and http://articles.webraydian.com/article1648-Role_of_Zinc_and_Copper_in_Effective_Thyroid_Function.html

Ferritin levels for women need to be between 100

and 130 (for men around between 150 and 170)

Vitamin D3 levels need to be about 50.

Magnesium levels need to be at the top of the

range..

Hi there Sheila and thanks for the reply:-) im not taking any thyroxin at

the moment or any other medication as the doctor said all results were normal

for thyroid but after reading your forum i think it might be time for another

visit.

would like to go to him with some advice so can you tell me all the specific

tests i might need. I am getting fed up with being fobbed off at the docs as

they keep telling me its all in my head.thanx for any reply x