Guest guest Posted August 28, 2011 Report Share Posted August 28, 2011 Hi lynz i'm glad you joined honey , these people will help you big time as they are helping me, by the way everyone lynz is a very very close friend of mine and its hard to see her suffer the way i have been doing, she's seeing an endo in september , but she needs the right tools, i can do alot for her but everyone elses expertise is very much valued love sha xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx > > Hi > > This was posted on chat but i think it belongs here. reposted for Lynz > > === > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2011 Report Share Posted August 28, 2011 lol sorry and thank you > > Hi > > This was posted on chat but i think it belongs here. reposted for Lynz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2011 Report Share Posted August 28, 2011 Hi Lynz: There are two good videos up on our blog which may be very helpful: http://thinkthyroid.blogspot.com/ If you get a chance to check them out...give you a laugh too. Cheers, JOT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2011 Report Share Posted August 29, 2011 Hi Lynsey You don't have to keep on suffering like this. I have sent you my list of recommended doctors by our members, pick one you would like to see and ask your GP to refer you to him/her - even if it is way outside of your area. Now is the time to write a letter to your GP sending a copy to the Head of Practice and keeping a copy of your letter yourself. Tell your GP that after all of these years, you are no longer prepared to put up with your many symptoms and signs on the same dose of L-thyroxine that has not been changed in 13 years and that you are now determined to do whatever is possible to find out the true cause of your symptoms and that you would like your doctor to work with you to do whatever is possible to find the cause. First, list all of your symptoms and signs - every single one of them. (Check these Signs'. Signs are things that others can actually see). Next, take your basal temperature in a morning before getting out of bed. List these if they are 97.8 degrees F (36.6 degrees C or less). Next, list every member of your family who has a thyroid or autoimmune disease. Next, list the following full thyroid function tests you need and ask for the results to be made available to you together with the reference range for each test done once these have been returned. These tests must include TSH, free T4, free T3, TPO and Tg Antibodies. Next, list the following specific minerals and vitamins that you need testing to see if any of these are low in the reference range. Tell the doctor that there is much evidence available that shows if any of these are low, thyroid hormone cannot be fully utilised at the cellular level. These are :ferritin, vitamin B12, vitamin D3, magnesium, folate, copper and zinc. (See list of references below that you might wish to print off to show your doctor if he is not aware of the connection between these and low thyroid).Again, ask for sight of these results with the reference range. (A doctor cannot withhold such information that is in your medical case notes - and you do not have to give a reason why you need these results. When you have them, please post them on the forum so that we can help with their interpretation). Next, ask your doctor if you can have a trial of another 25mcgs of levothyroxine or better still, a trial of the active thyroid hormone T3 adding to your T4. Copy off the attached document and enclose it with your letter and ask your doctor to read through the content and give you his comments. Devour the contents of this document too to see if any of the associated conditions it mentions might apply to you. Tell the doctor that you now wish to be referred to an endocrinologist of your choice (you don't have to see the one at your local hospital, especially if their speciality is not thyroid - most endocrinologists have their specialty in diabetes and many know little about thyroid disease and it's associated conditions.) Last, ask your GP if you could make a double appointment with him/her so that you can both discuss this matter and decide on a way forward. Ask for your letter of request to be placed into your medical notes. Send a copy to the Head of Practice, keeping a copy yourself. Meanwhile, I have sent a list of our recommended doctors to you. Keep asking questions Lynsey and we will try to put you on the right road, which I am sure we can. There is light at the end of the tunnel, and yours appears to have been a particularly long and dark one. Luv - Sheila LOW LEVELS OF SPECIFIC MINERALS AND VITAMINS AND THEIR ASSOCIATION WITH HYPOTHYROIDISM Low iron/ferritin: Iron deficiency is shown to significantly reduce T4 to T3 conversion, increase reverse T3 levels, and block the thermogenic (metabolism boosting) properties of thyroid hormone (1-4). Thus, iron deficiency, as indicated by an iron saturation below 25 or a ferritin below 70, will result in diminished intracellular T3 levels. Additionally, T4 should not be considered adequate thyroid replacement if iron deficiency is present (1-4)). 1. Dillman E, Gale C, Green W, et al. Hypothermia in iron deficiency due to altered triiodithyroidine metabolism. Regulatory, Integrative and Comparative Physiology 1980;239(5):377-R381. 2. SM, PE, Lukaski HC. In vitro hepatic thyroid hormone deiodination in iron-deficient rats: effect of dietary fat. Life Sci 1993;53(8):603-9. 3. Zimmermann MB, Köhrle J. The Impact of Iron and Selenium Deficiencies on Iodine and Thyroid Metabolism: Biochemistry and Relevance to Public Health. Thyroid 2002;12(10): 867-78. 4. Beard J, tobin B, Green W. Evidence for Thyroid Hormone Deficiency in Iron-Deficient Anemic Rats. J. Nutr. 1989;119:772-778. Low vitamin B12: http://www.ncbi.nlm.nih.gov/pubmed/18655403 Low vitamin D3: http://www.eje-online.org/cgi/content/abstract/113/3/329 and http://www.goodhormonehealth.com/VitaminD.pdf Low magnesium: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC292768/pdf/jcinvest00264-0105.pdf Low folate: http://www.clinchem.org/cgi/content/full/47/9/1738 and http://www.liebertonline.com/doi/abs/10.1089/thy.1999.9.1163 Low copper http://www.ithyroid.com/copper.htm http://www.drlwilson.com/articles/copper_toxicity_syndrome.htm http://www.ithyroid.com/copper.htm http://www.rjpbcs.com/pdf/2011_2(2)/68.pdf http://ajplegacy.physiology.org/content/171/3/652.extract Low zinc:http://www.istanbul.edu.tr/ffdbiyo/current4/07%20Iham%20AM%C4%B0R.pdf and http://articles.webraydian.com/article1648-Role_of_Zinc_and_Copper_in_Effective_Thyroid_Function.html Ferritin levels for women need to be between 100 AND 130 (for men around between 150 and 170) Vitamin B12 needs to be at the top of the range. D3 levels need to be about 50. Magnesium levels need to be at the top of the range, hi my names lynsey i am now 26 and been suffering since i was 13 they said i was one of the youngest at that time i been on the same meds the whole time too which is 50 mg and i am so poorly i wanna give up, tridness,headache,skin probs,eyes,moods,lack of energy,now v bad back problems,hay fever and the list keeps going. i am working full time but now after four month i have to sleep in my hours lunchbreack i have now stopped riding my dream horse cos im always sleep and knacked. i am due to get married next year i i cant see it happening as i am not gonna be a fat bride please help 1 of 1 File(s) Why thyroid hormone stops working (2).doc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2011 Report Share Posted August 30, 2011 wow videos ar great would someone be so kind and print all this off and all the bits on vit etcs so i can read propberly my eyes feeling like i have glass in them ill pay someone plz plz xxxx good advise i need to get it all printed and write every thing down ahhh help at last xxxx > > Hi Lynsey > > You don't have to keep on suffering like this. I have sent you my list of > recommended doctors by our members, pick one you would like to see and ask > your GP to refer you to him/her - even if it is way outside of your area. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2011 Report Share Posted August 30, 2011 Hi babe i will do all that tomorrow for you xxxxxxxxxxxxxxxxxx > Quote Link to comment Share on other sites More sharing options...
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