Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 I have a doctors appointment with my General Practitioner tomorrow to see if he will refer Ami (12) for an assessment for OCD. Recent group mails, and other things have made me wonder if her ?OCD is too mild to put her through the anxiety of an assessment. She wants to see NO doctors AT ALL!! It is likely to be bad for our relationship, which is going through a good phase at the moment...... Her symptoms/history are: Family history of manic depression and alcoholism Middle child with brothers 13, and 11 Lives with single mom. Doesn't want to visit father with new wife and baby. Has not had her periods yet, but other physical changes taking place gradually Compulsions: Opening and closing cupboards and drawers 3 time. Opening and closing curtains at night Frequent hand and face washing - both are really dry and rough to touch Wiping herself after the toilet for 10-20 minutes, which on occasions has made her bleed Has to carry " wad " of tissue at all times (used to wipe her privates frequently, infront of brothers - anywhere anytime - doesn't now!) Obsessions: Fear, esp at night of being harmed. Doesn't sleep well. Once she has a " demand " she will NOT let go, with constant requests That her private parts are " wet " Other: Defiant, rude, uninhibited bad behaviour at times Refuses to accept any consequences Apart from relatively rare occasions when Ami has made herself bleed, I don't think any of the above are really disabling. Personally I have trouble with the defiant behaviour - occasionally extreme. I hoped that IF she had OCD, treatment may help with the bad behaviour. Again the group has concerned me with talk of SSRI's actually making bad behaviour WORSE!! Please advise me on whether I should push this issue tomorrow, and get her referred for an assessment............. Thanks ! Alice UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 At 12:52 PM +0000 11/26/2001, Alice wrote: > >I have a doctors appointment with my General Practitioner tomorrow to see if > >he will refer Ami (12) for an assessment for OCD. > >Recent group mails, and other things have made me wonder if her ?OCD is too > >mild to put her through the anxiety of an assessment. Hi Alice, ly, the symptoms you describe don't sound all that mild to me. Dr.s and therapists have a particular set of criteria needed for a diagnosis of OCD. From what you have described, Ami meets those criteria several times over. I would actually argue that all of these symptoms combined ARE disabling. While I know that Ami has made it very clear that she doesn't think these behaviors are a problem and she strenuously objects to treatment, surely she does not enjoy feeling so anxious and afraid or enjoy having to do all these rituals. I hope that I haven't sounded harsh as that's not my intent at all. I know that it's sometimes difficult to persuade adolescents that they need treatment but it seems to me that she really does need it. She would be a much happier person if she didn't feel so anxious and so controlled by OCD. I really encourage you to insist that she get treatment. Even though she will not be happy about it initially, I think she will eventually appreciate it. Please use us for support and let us know how the appointment goes tomorrow. Wishing you Peace and Strength. Kathy -- Kathy Mac, LICSW email: macdonald@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 kathy what is an assessment foe ocd, please tell me what they do, i dont think my daughter has ever had one, i was wondering if theres any kind of test that could be done for ocd patty in calif. Re: Advice Please! At 12:52 PM +0000 11/26/2001, Alice wrote: > >I have a doctors appointment with my General Practitioner tomorrow to see if > >he will refer Ami (12) for an assessment for OCD. > >Recent group mails, and other things have made me wonder if her ?OCD is too > >mild to put her through the anxiety of an assessment. Hi Alice, ly, the symptoms you describe don't sound all that mild to me. Dr.s and therapists have a particular set of criteria needed for a diagnosis of OCD. From what you have described, Ami meets those criteria several times over. I would actually argue that all of these symptoms combined ARE disabling. While I know that Ami has made it very clear that she doesn't think these behaviors are a problem and she strenuously objects to treatment, surely she does not enjoy feeling so anxious and afraid or enjoy having to do all these rituals. I hope that I haven't sounded harsh as that's not my intent at all. I know that it's sometimes difficult to persuade adolescents that they need treatment but it seems to me that she really does need it. She would be a much happier person if she didn't feel so anxious and so controlled by OCD. I really encourage you to insist that she get treatment. Even though she will not be happy about it initially, I think she will eventually appreciate it. Please use us for support and let us know how the appointment goes tomorrow. Wishing you Peace and Strength. Kathy -- Kathy Mac, LICSW email: macdonald@... You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may subscribe to the OCD Kids Support Group at OCDKidsSupportGroup-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Joye, Kathy Mac, Jule Monnens, Gail Pesses, Kathy , Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 At 7:47 AM -0800 11/26/2001, patricia manzanares wrote: > >kathy what is an assessment foe ocd, please tell me what they do, i dont >think my daughter has ever had one, i was wondering if theres any kind of >test that could be done for ocd patty in calif. Hi Patty, No, there is no OCD " test " . When a therapist or a Dr. diagnose OCD they are supposed to go by the criteria set forth in the DSM IV (Diagnostic and Statistics IV) To do an assessment for OCD the therapist or Dr. would ask you and Shauna questions a number of questions including some about obsessions and compulsions. I believe that it is possible to locate the DSM IV online. You could find it and look up OCD to see the criteria. This is also true for other mental illnesses/neurobiological disorders. Kathy -- Kathy Mac, LICSW email: macdonald@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 Alice, I would definately go ahead and have her assessed. When my son was 14, I also saw OCD behaviors but he did not want to go to a doc. In fact, he refused to go. I was in denial and didn't push the issue - even tho I saw the signs, I didn't WANT him to have OCD, so I got some books and tried to help him myself. His symptoms continued to get worse until they were badly interfering with his (and my) life. I was too close to the issue to be any geniune help to him. The symptoms worsened to the point that he actually wanted some help. They were making his life truly miserable. So 2 yrs later we finally sought treatment. The SSRI that he was started on (Luvox) is the one he is still on and I see definate improvement. It was slow going, but as we were told by the doc, the symptoms didn't start overnite and they won't go away overnite. His symptoms progressed to the point that I had to withdraw him from public high school (excessive absences) which could have been avoided had we started treatment earlier before the symptoms became overwhelming. He also is a " washer " . He would wash his hands for an hour and a half after urinating (it's now down to a 5 minute wash), and going to the pot (forgive my bluntness) required anywhere from 5 to 7 hours each time. The washing, drip drying, and just standing there waiting to start because of the agony of the stress he knew he was fixing to endure took up much of his time and mine before we sought professional help (he can now do this in one hour Hoorah!). He got to the point that he would purposefully hold back his bodily urges because of the stress it caused, sometimes going 17 hours w/o urinating and 5 days w/o the other. I waited MUCH to long to seek help - I too was worried about damaging our good relationship and it would have been extremely difficult to get him to get help. But once I told our family doctor that I thot had OCD ( was not with me at this appointment), the doctor told me that he was already suspicious of it. The family doc prescribed a low dose of Luvox (50mg), and then we then went on to a Psych. doc. The assessment we had was not difficult or painful. He asked some questions and I shared symptoms (The doc took us both back which was a relief to who did not want to go alone). That was about it - this doc works regularly with OCD patients and is very educated about OCD. He also gradually upped his dose of Luvox and is currently monitoring it. The relief that help was on the way was tremendous and it encouraged us both to know we were not fighting this alone anymore. From experience, I recommend the sooner the better even tho it is very difficult and emotionally painful. Thinking of you, Sharon, single mother of one son - 16 y/o who also does not want to see his dad at this point. ps also has counting rituals - particularly when he is washing. (3 seems to be a " magic number " of some sort). >From: " Alice " <aj@...> >Reply- >< > >Subject: Re: Advice Please! >Date: Mon, 26 Nov 2001 12:52:46 -0000 > >I have a doctors appointment with my General Practitioner tomorrow to see >if >he will refer Ami (12) for an assessment for OCD. >Recent group mails, and other things have made me wonder if her ?OCD is too >mild to put her through the anxiety of an assessment. She wants to see NO >doctors AT ALL!! It is likely to be bad for our relationship, which is >going through a good phase at the moment...... > >Her symptoms/history are: > >Family history of manic depression and alcoholism >Middle child with brothers 13, and 11 >Lives with single mom. Doesn't want to visit father with new wife and >baby. >Has not had her periods yet, but other physical changes taking place >gradually > >Compulsions: >Opening and closing cupboards and drawers 3 time. >Opening and closing curtains at night >Frequent hand and face washing - both are really dry and rough to touch >Wiping herself after the toilet for 10-20 minutes, which on occasions has >made her bleed >Has to carry " wad " of tissue at all times (used to wipe her privates >frequently, infront of brothers - anywhere anytime - doesn't now!) > >Obsessions: >Fear, esp at night of being harmed. Doesn't sleep well. >Once she has a " demand " she will NOT let go, with constant requests >That her private parts are " wet " > >Other: >Defiant, rude, uninhibited bad behaviour at times >Refuses to accept any consequences > >Apart from relatively rare occasions when Ami has made herself bleed, I >don't think any of the above are really disabling. Personally I have >trouble with the defiant behaviour - occasionally extreme. I hoped that IF >she had OCD, treatment may help with the bad behaviour. Again the group >has >concerned me with talk of SSRI's actually making bad behaviour WORSE!! > >Please advise me on whether I should push this issue tomorrow, and get her >referred for an assessment............. > >Thanks ! >Alice UK > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 Patty, I took some psychology classes (i'm slowly trying to major in it) and have done extensive reading about OCD while trying to help my son. The DSM-IV is the diagnostic tool psychiatrists use to make a diagnosis (hope I said all that right). One of the books I purchased lists the criteria for OCD. The book is Obsessive-Compulsive Disorders by Fred Penzel, Ph.D. I'm going to type the list but it is quite long: " Obsessive-Compulsive Disorder (code 300.3) A. " Obsessions " as defined by: l. Recurrent and persistent thoughts, impulses or images that are experienced, at some time during the disturbance, as intrusive and inappropriate and that cause marked anxiety or distress 2. the thoughts, impulses or images are not simply excessive worries about real-life problems. 3. the person attempts to ignore or suppress such thoughts, impulses or images, or to neutralize them with some other thought or action. 4. the person recognizes that the obsessional thoughts, impulses, or images are a product of his or her own mind (not imposed from without as in thought insertion) " Compulsions " as defined by: l. Repetitive behaviors (e.g., hand washing, ordering, checking) or mental acts (e.g., praying, counting, repeating words silently) that the person feels driven to perform in response to an obsession, or according to rules that must be applied rigidly 2. the behaviors or mental acts are aimed at preventing or reducing distress or preventing some dreaded event or situation; however, these behaviors or mental acts either are not connected in a realistic way with what they are designed to neutralize or prevent, or are clearly excessive. B. At some point during the course of the disorder, the person has recognized that the obsessions or compulsion are excessive or unreasonable. Note: This does not apply to children. C. The obsessions or compusions cause marked distress, are time consuming (take more than one hour a day), or significantly interfere with the person's normal routine, occupation (or academic) functioning, or usual social activities or relationships. D. If another Axis disorder is present, the content of the obsessions or compulsions is not restricted to it (e.g., preoccupation with food in the presence of an Eating Disorder; hair pulling in the presence of Trichotillomania; concern with appearance in the presence of Body Dysmortphic Disorder; preoccupation with drugs in the presence of a Substance Use disorder; preoccupation with having a serious illness in the presence of Hypochondriasis; preoccupation with sexual urges of fantasies in the presence of a Paraphilia; or guilty ruminations in the presence of Major Depressive Disorder). E. The disturbance is not due to the direct physiological effects of a substance (e.g., a drug of abuse, a medication) or a general medical condition. Specify if: With poor insight: if, for most of the time during the current episode the person does not recognize that the obsessions and compulsions are excessive or unreasonable. " I have several other books if you need any further info or would like reading recommendations. The book I got this from is excellent. Sharon >From: Kathy Mac <macdonald@...> >Reply- > >Subject: Re: Advice Please! >Date: Mon, 26 Nov 2001 17:25:33 -0500 > >At 7:47 AM -0800 11/26/2001, patricia manzanares wrote: > > > >kathy what is an assessment foe ocd, please tell me what they do, i dont > >think my daughter has ever had one, i was wondering if theres any kind of > >test that could be done for ocd patty in calif. > >Hi Patty, > >No, there is no OCD " test " . When a therapist or a Dr. diagnose OCD they >are supposed to go by the criteria set forth in the DSM IV (Diagnostic and >Statistics IV) To do an assessment for OCD the therapist or Dr. >would ask you and Shauna questions a number of questions including some >about obsessions and compulsions. I believe that it is possible to locate >the DSM IV online. You could find it and look up OCD to see the criteria. >This is also true for other mental illnesses/neurobiological disorders. > >Kathy > >-- >Kathy Mac, LICSW >email: macdonald@... > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 I have a question too everyone, to all those who have children with ocd now that the medicine has taken affect and things are much better, i need to know how often do your children have ocd thoughts or experiences now that the meds are taken affect? can anyone answer this for me/ please reply back love patty in calif. Re: Advice Please! >Date: Mon, 26 Nov 2001 12:52:46 -0000 > >I have a doctors appointment with my General Practitioner tomorrow to see >if >he will refer Ami (12) for an assessment for OCD. >Recent group mails, and other things have made me wonder if her ?OCD is too >mild to put her through the anxiety of an assessment. She wants to see NO >doctors AT ALL!! It is likely to be bad for our relationship, which is >going through a good phase at the moment...... > >Her symptoms/history are: > >Family history of manic depression and alcoholism >Middle child with brothers 13, and 11 >Lives with single mom. Doesn't want to visit father with new wife and >baby. >Has not had her periods yet, but other physical changes taking place >gradually > >Compulsions: >Opening and closing cupboards and drawers 3 time. >Opening and closing curtains at night >Frequent hand and face washing - both are really dry and rough to touch >Wiping herself after the toilet for 10-20 minutes, which on occasions has >made her bleed >Has to carry " wad " of tissue at all times (used to wipe her privates >frequently, infront of brothers - anywhere anytime - doesn't now!) > >Obsessions: >Fear, esp at night of being harmed. Doesn't sleep well. >Once she has a " demand " she will NOT let go, with constant requests >That her private parts are " wet " > >Other: >Defiant, rude, uninhibited bad behaviour at times >Refuses to accept any consequences > >Apart from relatively rare occasions when Ami has made herself bleed, I >don't think any of the above are really disabling. Personally I have >trouble with the defiant behaviour - occasionally extreme. I hoped that IF >she had OCD, treatment may help with the bad behaviour. Again the group >has >concerned me with talk of SSRI's actually making bad behaviour WORSE!! > >Please advise me on whether I should push this issue tomorrow, and get her >referred for an assessment............. > >Thanks ! >Alice UK > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may subscribe to the OCD Kids Support Group at OCDKidsSupportGroup-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Joye, Kathy Mac, Jule Monnens, Gail Pesses, Kathy , Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 Hi Patty, once Kel was on the right med for her (trial-and-error process that took over a year) at the right dose, she began having periods of time, hours together in some cases, when she was symptom-free. Previous to meds she was having ocd thoughts, anxiety, and doing compulsions pretty much constantly. The symptoms that were left were less intense, and easier for her to ignore or attack through erp. Rituals got shorter and easier to blow off, and she began being able to distract herself from the obsessions through activity. Evening was and is still her hardest time, mainly because she's getting tired and running out of steam. But still these days (on meds) she goes upstairs and, without any obvious rituals, is asleep within 10 or 15 minutes. Unmedicated, following her OCD onset she would be awake for hours until she finally could fall into an exhausted sleep. So, my daughter still has thoughts and does compulsions daily, but they are far less intense and constant than when she was unmedicated. For her, it is the difference between being able to have a normal life, with some OCD that is bothersome, vs having OCD be nearly her whole life, with bits of normality here and there. Hope this helps, Kathy R. in Indiana ----- Original Message ----- From: " patricia manzanares " <pattymanzanares@...> > I have a question too everyone, to all those who have children with ocd now that the medicine has taken affect and things are much better, i need to know how often do your children have ocd thoughts or experiences now that the meds are taken affect? can anyone answer this for me/ please reply back Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 My daughter, , has little things on her meds DAILY...like clothing, contamination, eating off of certain color dishes (oh! why did I buy that colorful Feistaware?????) She will sometimes have bad episodes here and there but for the most part, the meds help her get over " it " quicker whatever the episode involves. The meds sort of light the way for her to " see " the OC(even in her 4 year old way) and begin to learn to help her control it. If we didn't have meds she would not be able to function except in a severe state of anxiety (I can't imagine being a young child and having fear as a first memory). As an adult with OCD and working on it for two years (came on in my late teens...living in denial until age 30!) taking my meds does the same...I can recognize it easier...go out of my house- although it is not comfortable I can make an attempt to deal with the anxiety triggers....crowds, contamination, etc. OC is such a monster and with our genetic influences meds and therapy are very helpful...I am here to enjoy my life, not live in perpetual anxiety and fear. It can only get better! Amy in Colorado At 08:27 AM 11/27/01 -0800, you wrote: > I have a question too everyone, to all those who have children with ocd now that the medicine has taken affect and things are much better, i need to know how often do your children have ocd thoughts or experiences now that the meds are taken affect? can anyone answer this for me/ please reply back love patty in calif. > > Re: Advice Please! >>Date: Mon, 26 Nov 2001 12:52:46 -0000 >> >>I have a doctors appointment with my General Practitioner tomorrow to see >>if >>he will refer Ami (12) for an assessment for OCD. >>Recent group mails, and other things have made me wonder if her ?OCD is too >>mild to put her through the anxiety of an assessment. She wants to see NO >>doctors AT ALL!! It is likely to be bad for our relationship, which is >>going through a good phase at the moment...... >> >>Her symptoms/history are: >> >>Family history of manic depression and alcoholism >>Middle child with brothers 13, and 11 >>Lives with single mom. Doesn't want to visit father with new wife and >>baby. >>Has not had her periods yet, but other physical changes taking place >>gradually >> >>Compulsions: >>Opening and closing cupboards and drawers 3 time. >>Opening and closing curtains at night >>Frequent hand and face washing - both are really dry and rough to touch >>Wiping herself after the toilet for 10-20 minutes, which on occasions has >>made her bleed >>Has to carry " wad " of tissue at all times (used to wipe her privates >>frequently, infront of brothers - anywhere anytime - doesn't now!) >> >>Obsessions: >>Fear, esp at night of being harmed. Doesn't sleep well. >>Once she has a " demand " she will NOT let go, with constant requests >>That her private parts are " wet " >> >>Other: >>Defiant, rude, uninhibited bad behaviour at times >>Refuses to accept any consequences >> >>Apart from relatively rare occasions when Ami has made herself bleed, I >>don't think any of the above are really disabling. Personally I have >>trouble with the defiant behaviour - occasionally extreme. I hoped that IF >>she had OCD, treatment may help with the bad behaviour. Again the group >>has >>concerned me with talk of SSRI's actually making bad behaviour WORSE!! >> >>Please advise me on whether I should push this issue tomorrow, and get her >>referred for an assessment............. >> >>Thanks ! >>Alice UK >> >> > > >_________________________________________________________________ >Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp > > > >You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may subscribe to the OCD Kids Support Group at OCDKidsSupportGroup-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Joye, Kathy Mac, Jule Monnens, Gail Pesses, Kathy , Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 Kathy, I agree. My son's OCD had become his whole life before meds with just a very small amount of regular life mixed in. Don't feel like we've had any sort of " normal " life for years. With meds his symptoms also are taking up less time even tho they still control much of our lives (he's been on Luvox for 10 months, but we are still trying to regulate the dosage). ( is 16 y/o). Without meds, he probably would have ended up in the hospital as his OCD was diagnosed as severe OCD when I finally got help and the doctor mentioned taking him out of the environment, but he didn't push it. Sharon >From: " Kathy " <klr@...> >Reply- >< > >Subject: Re: Advice Please! >Date: Tue, 27 Nov 2001 12:25:53 -0500 > >Hi Patty, once Kel was on the right med for her (trial-and-error process >that took over a year) at the right dose, she began having periods of time, >hours together in some cases, when she was symptom-free. Previous to meds >she was having ocd thoughts, anxiety, and doing compulsions pretty much >constantly. The symptoms that were left were less intense, and easier for >her to ignore or attack through erp. Rituals got shorter and easier to >blow >off, and she began being able to distract herself from the obsessions >through activity. Evening was and is still her hardest time, mainly >because she's getting tired and running out of steam. But still these days >(on meds) she goes upstairs and, without any obvious rituals, is asleep >within 10 or 15 minutes. Unmedicated, following her OCD onset she would be >awake for hours until she finally could fall into an exhausted sleep. So, >my daughter still has thoughts and does compulsions daily, but they are far >less intense and constant than when she was unmedicated. For her, it is >the >difference between being able to have a normal life, with some OCD that is >bothersome, vs having OCD be nearly her whole life, with bits of normality >here and there. > >Hope this helps, >Kathy R. in Indiana > >----- Original Message ----- >From: " patricia manzanares " <pattymanzanares@...> > > > I have a question too everyone, to all those who have children with ocd >now that the medicine has taken affect and things are much better, i need >to >know how often do your children have ocd thoughts or experiences now that >the meds are taken affect? can anyone answer this for me/ please reply >back > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 Amy, I wasn't aware that you also had OCD. How miserable for you to have to deal with it not only for yourself but for your daughter. I have seen my son suffer so much and his life change so much that I feel greatly for what you have to go thru on a daily basis. Your personal experience can be such a great help to the rest of us. Thanks so much for sharing that. - My son would be totally eaten alive by the anxiety by now if it were not for the meds. Sharon >From: Amy Stoll <astoll@...> >Reply- > >Subject: Re: Advice Please! >Date: Tue, 27 Nov 2001 10:38:23 -0700 > >My daughter, , has little things on her meds DAILY...like clothing, >contamination, eating off of certain color dishes (oh! why did I buy that >colorful Feistaware?????) She will sometimes have bad episodes here and >there but for the most part, the meds help her get over " it " quicker >whatever the episode involves. The meds sort of light the way for her to > " see " the OC(even in her 4 year old way) and begin to learn to help her >control it. If we didn't have meds she would not be able to function >except in a severe state of anxiety (I can't imagine being a young child >and having fear as a first memory). As an adult with OCD and working on it >for two years (came on in my late teens...living in denial until age 30!) >taking my meds does the same...I can recognize it easier...go out of my >house- although it is not comfortable I can make an attempt to deal with >the anxiety triggers....crowds, contamination, etc. OC is such a monster >and with our genetic influences meds and therapy are very helpful...I am >here to enjoy my life, not live in perpetual anxiety and fear. It can only >get better! Amy in Colorado At 08:27 AM 11/27/01 -0800, you wrote: > > I have a question too everyone, to all those who have children with ocd >now that the medicine has taken affect and things are much better, i need >to know how often do your children have ocd thoughts or experiences now >that the meds are taken affect? can anyone answer this for me/ please >reply back love patty in calif. > > > > Re: Advice Please! > >>Date: Mon, 26 Nov 2001 12:52:46 -0000 > >> > >>I have a doctors appointment with my General Practitioner tomorrow to >see > >>if > >>he will refer Ami (12) for an assessment for OCD. > >>Recent group mails, and other things have made me wonder if her ?OCD is >too > >>mild to put her through the anxiety of an assessment. She wants to see >NO > >>doctors AT ALL!! It is likely to be bad for our relationship, which is > >>going through a good phase at the moment...... > >> > >>Her symptoms/history are: > >> > >>Family history of manic depression and alcoholism > >>Middle child with brothers 13, and 11 > >>Lives with single mom. Doesn't want to visit father with new wife and > >>baby. > >>Has not had her periods yet, but other physical changes taking place > >>gradually > >> > >>Compulsions: > >>Opening and closing cupboards and drawers 3 time. > >>Opening and closing curtains at night > >>Frequent hand and face washing - both are really dry and rough to touch > >>Wiping herself after the toilet for 10-20 minutes, which on occasions >has > >>made her bleed > >>Has to carry " wad " of tissue at all times (used to wipe her privates > >>frequently, infront of brothers - anywhere anytime - doesn't now!) > >> > >>Obsessions: > >>Fear, esp at night of being harmed. Doesn't sleep well. > >>Once she has a " demand " she will NOT let go, with constant requests > >>That her private parts are " wet " > >> > >>Other: > >>Defiant, rude, uninhibited bad behaviour at times > >>Refuses to accept any consequences > >> > >>Apart from relatively rare occasions when Ami has made herself bleed, I > >>don't think any of the above are really disabling. Personally I have > >>trouble with the defiant behaviour - occasionally extreme. I hoped that >IF > >>she had OCD, treatment may help with the bad behaviour. Again the group > >>has > >>concerned me with talk of SSRI's actually making bad behaviour WORSE!! > >> > >>Please advise me on whether I should push this issue tomorrow, and get >her > >>referred for an assessment............. > >> > >>Thanks ! > >>Alice UK > >> > >> > > > > > >_________________________________________________________________ > >Get your FREE download of MSN Explorer at >http://explorer.msn.com/intl.asp > > > > > > > >You may subscribe to the Parents of Adults with OCD List at >parentsofadultswithOCD-subscribe . You may subscribe to >the OCD and Homeschooling List at >ocdandhomeschooling-subscribe . You may subscribe to the >OCD Kids Support Group at OCDKidsSupportGroup-subscribe . >You may change your subscription format or access the files, bookmarks, and >archives for our list at . >Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and >Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, > Joye, Kathy Mac, Jule Monnens, Gail Pesses, Kathy , >Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions >may be addressed to Louis Harkins, list owner, at lharkins@... . > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 my daughter dosent like me to ask cause she says it gets her thinking about it and it might start up, so i have a hard time telling and now when i do tell its in her eyes and its about twice a week if that. and if its more she hides it well cause shes not talking about it patty in calif, Re: Advice Please! Hi Patty, once Kel was on the right med for her (trial-and-error process that took over a year) at the right dose, she began having periods of time, hours together in some cases, when she was symptom-free. Previous to meds she was having ocd thoughts, anxiety, and doing compulsions pretty much constantly. The symptoms that were left were less intense, and easier for her to ignore or attack through erp. Rituals got shorter and easier to blow off, and she began being able to distract herself from the obsessions through activity. Evening was and is still her hardest time, mainly because she's getting tired and running out of steam. But still these days (on meds) she goes upstairs and, without any obvious rituals, is asleep within 10 or 15 minutes. Unmedicated, following her OCD onset she would be awake for hours until she finally could fall into an exhausted sleep. So, my daughter still has thoughts and does compulsions daily, but they are far less intense and constant than when she was unmedicated. For her, it is the difference between being able to have a normal life, with some OCD that is bothersome, vs having OCD be nearly her whole life, with bits of normality here and there. Hope this helps, Kathy R. in Indiana ----- Original Message ----- From: " patricia manzanares " <pattymanzanares@...> > I have a question too everyone, to all those who have children with ocd now that the medicine has taken affect and things are much better, i need to know how often do your children have ocd thoughts or experiences now that the meds are taken affect? can anyone answer this for me/ please reply back You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may subscribe to the OCD Kids Support Group at OCDKidsSupportGroup-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Joye, Kathy Mac, Jule Monnens, Gail Pesses, Kathy , Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 Hi Kathy, thanks for your reply back, if you dont mind me asking, what kind of thoughts does your daughter get? and what does she do to act out? my daughter gets sexual thoughts mostly with little kids and thoughts of harming me or others, which is scarrry, for example if she was holding a little girl on her lap, her ocd would fire up and she would think their privates were touching and her mind wopuld tell her she touched the little girl sexually, but my daughter says she dosent know if she did or not. weird ha, so of course she is not around any children and hasent been for the past year. does your daughter ever experience not knowing if she touched or not , ill tell you my daughters mind really scares her and it goes on and on. please email me back ok patty in calif. Re: Advice Please! Hi Patty, once Kel was on the right med for her (trial-and-error process that took over a year) at the right dose, she began having periods of time, hours together in some cases, when she was symptom-free. Previous to meds she was having ocd thoughts, anxiety, and doing compulsions pretty much constantly. The symptoms that were left were less intense, and easier for her to ignore or attack through erp. Rituals got shorter and easier to blow off, and she began being able to distract herself from the obsessions through activity. Evening was and is still her hardest time, mainly because she's getting tired and running out of steam. But still these days (on meds) she goes upstairs and, without any obvious rituals, is asleep within 10 or 15 minutes. Unmedicated, following her OCD onset she would be awake for hours until she finally could fall into an exhausted sleep. So, my daughter still has thoughts and does compulsions daily, but they are far less intense and constant than when she was unmedicated. For her, it is the difference between being able to have a normal life, with some OCD that is bothersome, vs having OCD be nearly her whole life, with bits of normality here and there. Hope this helps, Kathy R. in Indiana ----- Original Message ----- From: " patricia manzanares " <pattymanzanares@...> > I have a question too everyone, to all those who have children with ocd now that the medicine has taken affect and things are much better, i need to know how often do your children have ocd thoughts or experiences now that the meds are taken affect? can anyone answer this for me/ please reply back You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may subscribe to the OCD Kids Support Group at OCDKidsSupportGroup-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Joye, Kathy Mac, Jule Monnens, Gail Pesses, Kathy , Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at lharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Dear Alice, I don't want to alarm you, but when first showed symptoms of OCD at age eight, he too washed his hands until they were rough and cracked, he wiped until he bled, he used a more than one roll of toilet paper a day. At this time he was still attending school on a regular basis, getting good grades. But since we did not know what was wrong we did not get him appropriate treatment and gradually his OCD became worse with the added problems that come with severe depression. (And he spent over two years living in our bathroom!) If you have read my earlier letter of today you know how I feel about getting appropriate treatment for our kids as soon as possible! Things may get a lot worse, especially if your child does not have the skills to constantly work on the OCD. So I would not put it off and I would not listen to her wishes to not see anyone. (That's a very typical reaction to the thought of dealing with the OCD.) Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2001 Report Share Posted December 1, 2001 Hi Patty, my daughter's obsessions are along the same line as your daughter's. Almost anything you can think of that society, a teacher or a mom might tell her is a no-no, is just the thing that OCD will then torment her with--maybe you *did* do it, or will do it, etc. She worries for ex. that she might have seen someone's privates--also worries that she *wants* to see someone's privates, and is therefore bad. She has compulsions to raise her hand in class, and announce that she used to wear diapers, or that she's wearing them now, at almost 8 years old--the shame. The erp for these sexual themed thoughts is not much different than for ocd around other topics. Avoiding the triggers makes the ocd stronger, confronting (in a step-wise fashion) diminishes it. I mentioned before that your daughter might sit in a car in the parking lot of a playground where children are, and acclimate to the anxiety this causes her, as a first step toward eradicating the " I might abuse a child " obsession. Most of our kids are tormented with not knowing for sure if they did something or not--or know something for sure or not--it is a core symptom of ocd, which is also called the doubting disease. People with ocd can never get that comfortable feeling of knowing for sure that they would not do or did not do a certain repugnant thing that ocd causes them to obsess about. Recovery from ocd involves getting comfortable with the not knowing for sure. Take care, Kathy R. in Indiana ----- Original Message ----- From: " patricia manzanares " <pattymanzanares@...> > Hi Kathy, thanks for your reply back, if you dont mind me asking, what kind of thoughts does your daughter get? and what does she do to act out? my daughter gets sexual thoughts mostly with little kids and thoughts of harming me or others, which is scarrry, > for example if she was holding a little girl on her lap, her ocd would fire up and she would think their privates were touching and her mind wopuld tell her she touched the little girl sexually, but my daughter says she dosent know if she did or not. weird ha, so of course she is not around any children and hasent been for the past year. does your daughter ever experience not knowing if she touched or not , ill tell you my daughters mind really scares her and it goes on and on. please email me back ok patty in calif. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Kathy, thanks for your reply, you know ,like my daughter is very smart and it seems to me like she does things in a sneaky way so it can look like an accident, like she can touch little kids in a way that the child wont realixe their being touched and thats why she is not around little children. but it scares me then when her ocds kicks in she is saying i dont know if i really touched them, sometimes its so confuseing to me. I have a niece and nephew whos 3 and 5 yrs old and i havent seen them for 7 months now and its driveing me nuts, i love those kids. and when im around the family its really hard to watch my girl 100percent. I am so close to my family , that its really hurting me to nmot be around them cause of this. It probably sounds selfish of me i know , but my daughter isnt working on her ocd homework eaither and its makeing me a little angry. please reply back, your great kathy thank you Patty in calif Re: Advice Please! Hi Patty, my daughter's obsessions are along the same line as your daughter's. Almost anything you can think of that society, a teacher or a mom might tell her is a no-no, is just the thing that OCD will then torment her with--maybe you *did* do it, or will do it, etc. She worries for ex. that she might have seen someone's privates--also worries that she *wants* to see someone's privates, and is therefore bad. She has compulsions to raise her hand in class, and announce that she used to wear diapers, or that she's wearing them now, at almost 8 years old--the shame. The erp for these sexual themed thoughts is not much different than for ocd around other topics. Avoiding the triggers makes the ocd stronger, confronting (in a step-wise fashion) diminishes it. I mentioned before that your daughter might sit in a car in the parking lot of a playground where children are, and acclimate to the anxiety this causes her, as a first step toward eradicating the " I might abuse a child " obsession. Most of our kids are tormented with not knowing for sure if they did something or not--or know something for sure or not--it is a core symptom of ocd, which is also called the doubting disease. People with ocd can never get that comfortable feeling of knowing for sure that they would not do or did not do a certain repugnant thing that ocd causes them to obsess about. Recovery from ocd involves getting comfortable with the not knowing for sure. Take care, Kathy R. in Indiana ----- Original Message ----- From: " patricia manzanares " <pattymanzanares@...> > Hi Kathy, thanks for your reply back, if you dont mind me asking, what kind of thoughts does your daughter get? and what does she do to act out? my daughter gets sexual thoughts mostly with little kids and thoughts of harming me or others, which is scarrry, > for example if she was holding a little girl on her lap, her ocd would fire up and she would think their privates were touching and her mind wopuld tell her she touched the little girl sexually, but my daughter says she dosent know if she did or not. weird ha, so of course she is not around any children and hasent been for the past year. does your daughter ever experience not knowing if she touched or not , ill tell you my daughters mind really scares her and it goes on and on. please email me back ok patty in calif. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD-subscribe . You may subscribe to the OCD and Homeschooling List at ocdandhomeschooling-subscribe . You may subscribe to the OCD Kids Support Group at OCDKidsSupportGroup-subscribe . You may change your subscription format or access the files, bookmarks, and archives for our list at . Our list advisors are Tamar Chansky, Ph.D., Aureen Pinto Wagner, Ph.D., and Dan Geller, M.D. Our list moderators are Birkhan, Kathy Hammes, Joye, Kathy Mac, Jule Monnens, Gail Pesses, Kathy , Vivian Stembridge, and Jackie Stout. Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... or louisharkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Patty, what does your daughter's therapist say about how she is progressing in her therapy? If you are not happy with your daughter's progress, then it may be time to find her another therapist. It's tempting but not very effective to blame the ocder for disappointing therapy results--the therapist may even be the one doing the finger-pointing. It's the therapist's job to motivate your daughter and get results. If your daughter doesn't have a therapist, I would make finding one the top priority. Meanwhile, offer a prize or a reward--something she very much wants--as incentive for standing up to OCD. Start with something you know she can probably do with about medium effort. Many times kids are just scared to try, and are amazed at how easy it can be to resist OCD once they actually try it. Kathy R. in Indiana ----- Original Message ----- From: " patricia manzanares " <pattymanzanares@...> > Kathy, thanks for your reply, you know ,like my daughter is very smart and it seems to me like she does things in a sneaky way so it can look like an accident, like she can touch little kids in a way that the child wont realixe their being touched and thats why she is not around little children. but it scares me then when her ocds kicks in she is saying i dont know if i really touched them, sometimes its so confuseing to me. I have a niece and nephew whos 3 and 5 yrs old and i havent seen them for 7 months now and its driveing me nuts, i love those kids. and when im around the family its really hard to watch my girl 100percent. I am so close to my family , that its really hurting me to nmot be around them cause of this. It probably sounds selfish of me i know , but my daughter isnt working on her ocd homework eaither and its makeing me a little angry. please reply back, your great kathy thank you Patty in calif Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Kathy R., I also agree with offering a prize or reward as incentive for standing up to OCD. My son was struggling to give up decontamination rituals and then he hit on this idea. At first I was very doubtful and I felt like if he could give up rituals for a reward, he should just be able to give them up for the feeling of accomplishment itself. Guess it doesn't work that way w/OCD! So far the reward experiment has worked beautifully. He still has a very long way to go and the expense to me has been great, but he has been able to give up several rituals this way. And, so far, what he has given up has stayed gone. It may not work for all kids, but it is working here so far. >From: " Kathy " <klr@...> >Reply- >< > >Subject: Re: Advice Please! >Date: Sun, 2 Dec 2001 14:59:07 -0500 > >Patty, what does your daughter's therapist say about how she is progressing >in her therapy? If you are not happy with your daughter's progress, then >it >may be time to find her another therapist. It's tempting but not very >effective to blame the ocder for disappointing therapy results--the >therapist may even be the one doing the finger-pointing. It's the >therapist's job to motivate your daughter and get results. > >If your daughter doesn't have a therapist, I would make finding one the top >priority. Meanwhile, offer a prize or a reward--something she very much >wants--as incentive for standing up to OCD. Start with something you know >she can probably do with about medium effort. Many times kids are just >scared to try, and are amazed at how easy it can be to resist OCD once they >actually try it. > >Kathy R. in Indiana > >----- Original Message ----- >From: " patricia manzanares " <pattymanzanares@...> > > > Kathy, thanks for your reply, you know ,like my daughter is very smart >and it seems to me like she does things in a sneaky way so it can look like >an accident, like she can touch little kids in a way that the child wont >realixe their being touched and thats why she is not around little >children. >but it scares me then when her ocds kicks in she is saying i dont know if i >really touched them, sometimes its so confuseing to me. I have a niece and >nephew whos 3 and 5 yrs old and i havent seen them for 7 months now and its >driveing me nuts, i love those kids. and when im around the family its >really hard to watch my girl 100percent. I am so close to my family , that >its really hurting me to nmot be around them cause of this. It probably >sounds selfish of me i know , but my daughter isnt working on her ocd >homework eaither and its makeing me a little angry. please reply back, your >great kathy thank you Patty in calif > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 Hi Sharon, thanks for posting. The decision to put your child on meds is so difficult, and sometimes it seems we on the list gripe about their side effects, the length of time they can take to work, etc.--very normal and human I think, but this must be frightening to those who are just in the process of considering meds for their child. There are some wonderful success stories on this list that are due to SSRIs, or that got started thanks to SSRIs, and I think it's important to point that out from time to time as well. Kathy r. in Indiana ----- Original Message ----- From: " Sharon " <se_evans5@...> > I agree. My son's OCD had become his whole life before meds with just a > very small amount of regular life mixed in. Don't feel like we've had any > sort of " normal " life for years. With meds his symptoms also are taking up > less time even tho they still control much of our lives (he's been on Luvox > for 10 months, but we are still trying to regulate the dosage). ( is 16 > y/o). Without meds, he probably would have ended up in the hospital as his > OCD was diagnosed as severe OCD when I finally got help and the doctor > mentioned taking him out of the environment, but he didn't push it. > Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 ----- Original Message ----- From: " Sharon " <se_evans5@...> > hit on this idea. At first I was very doubtful and I felt like if he could > give up rituals for a reward, he should just be able to give them up for the > feeling of accomplishment itself. Guess it doesn't work that way w/OCD! Hi Sharon, of course my hope in the long run is that my daughter will realize that lowered OCD symptoms is reward enough for her efforts at erp...but even now, at 44 when I have been working particularly hard or having to deal with some difficult thing, I reward myself, maybe buy I book I've been wanting to read or set a breakfast date with a friend. Having something pleasant to look forward to has gotten me through a lot of rough times! Take care, Kathy R. in Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2001 Report Share Posted December 2, 2001 HI Patty: OCD is a treatable disorder but generally not curable. That means that the symptoms go more into the background of a sufferer's life. People learn to recognize their OCD symptoms and how to manage them to minimize the disruption to their lives. IN a few lucky cases it seems the symptoms do go away, but this appears to be rather uncommon. The severity of OCD symptoms can be measured by the Children's Yale-Brown Obsessive Compulsive Scale (CY-BOCS) which gives an indication of how effective treatment is. Once symptoms are reduced measurably it is possible for sufferers to cope with their symptoms without having serious disruptions to major areas of life, e.g. getting an education, socializing, working, participating in community endeavors, etc. Hope this helps, take care, aloha, kathy (h) kathyh@... > I have a question too everyone, to all those who have children with ocd now that the medicine has taken affect and things are much better, i need to know how often do your children have ocd thoughts or experiences now that the meds are taken affect? can anyone answer this for me/ please reply back love patty in calif. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 Hi Di What great news about Sam and all those wonderful improvements. Hope the cold goes soon. has had a cold for the last 2 weeks but I've been pressing on with the DMPS. Its triggered his asthma a little so I'm sticking at the current dose untril thats resolved. My thinking was that he picks up so many bugs from school, I could be constantly stopping and starting the DMPS. Once the mercury is out, his immune system should improve. Don't know if that is the right approach, but its our current one!! Keep up with the updates Tina harebigears <harebigears@...> wrote: Hi everyone, just needing some advice on a couple of things.First FYI our son, Sam is 10 yo, classed as severely autistic with some speech (single words). Been on biomedical interventions for about 5 years, ABA 6 years, now full-time in special needs school (Sam very happy with his school LOL!!! when I think of all those years battling with LEA and mainstream schools etc!).Sam is what is classed as a HARD NUT TO CRACK!Sam has been on TD DMPS since Jan 5th (under guidance of Dr Usman amd Dr Heard in UK), now upto 30 drops (target 38 drops). Touch wood, but he is doing so well, more improvement with this than any other intervention, I feel nervous about saying this though as I know we are heading for 2-3 months when the famous stim hell starts (although I suspect we have been in stim hell for years so maybe I am not noticing it!!).We had annual review at school last week, they are very pleased with Sam's progress, his mood is much more stable, more focused, more understanding, less anxious, very happy, initiating interaction with other children, the school do not know about chelation only that we give Sam some supplements so an unbiased view point.Anyway I have stopped the DMPS for last couple of days as Sam has cold and cough, is this what others are doing? I did not want to challenge his immune system too much. When I put some olbas oil on his duvet the other night he rolled up his pyjama sleeves! He thought it was the DMPS, is this an indication that it makes him feel better? I don't know but he is not usually so keen to have supplements etc!!Yesterday I said to him 'what day is it today', he said 'monday' then I said 'what day is it tomorrow' and he said 'tuesday'. I nearly fell off the chair, this is not what Sam does!! Only really responds to rote learned questions like what is your name etc, he has not been taught this so I think exciting stuff.Sam is on folinic acid 800mcg (I picked this up at Dr Usmans) twice a day with B12 injections 3 times a week ( I also think they have made quite a difference). I have nearly run out of folinic acid (kirkmans) and rang nutricentre to order they sent me folinic acid 400mg with B12 - they do not do folinic acid on its own. Can I ask where others on this list get theres from,Sorry this is so long, god, talk about parent going on about their little darling!! what a bore! thanks for listening!many thanks, Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 Great news for Sam improvements! It seem like you start to crack the " HARD NUT TO CRACK " … Thank you for reporting. For the folinic: http://www.metabolics.co.uk/ Go to vitamins, then folic acid, then folinic acid… Liora > > Hi everyone, just needing some advice on a couple of things. > First FYI our son, Sam is 10 yo, classed as severely autistic with > some speech (single words). Been on biomedical interventions for > about 5 years, ABA 6 years, now full-time in special needs school > (Sam very happy with his school LOL!!! when I think of all those > years battling with LEA and mainstream schools etc!). > Sam is what is classed as a HARD NUT TO CRACK! > Sam has been on TD DMPS since Jan 5th (under guidance of Dr Usman amd > Dr Heard in UK), now upto 30 drops (target 38 drops). Touch wood, > but he is doing so well, more improvement with this than any other > intervention, I feel nervous about saying this though as I know we > are heading for 2-3 months when the famous stim hell starts (although > I suspect we have been in stim hell for years so maybe I am not > noticing it!!). > We had annual review at school last week, they are very pleased with > Sam's progress, his mood is much more stable, more focused, more > understanding, less anxious, very happy, initiating interaction with > other children, the school do not know about chelation only that we > give Sam some supplements so an unbiased view point. > Anyway I have stopped the DMPS for last couple of days as Sam has > cold and cough, is this what others are doing? I did not want to > challenge his immune system too much. When I put some olbas oil on > his duvet the other night he rolled up his pyjama sleeves! He > thought it was the DMPS, is this an indication that it makes him feel > better? I don't know but he is not usually so keen to have > supplements etc!! > Yesterday I said to him 'what day is it today', he said 'monday' then > I said 'what day is it tomorrow' and he said 'tuesday'. I nearly > fell off the chair, this is not what Sam does!! Only really responds > to rote learned questions like what is your name etc, he has not been > taught this so I think exciting stuff. > Sam is on folinic acid 800mcg (I picked this up at Dr Usmans) twice a > day with B12 injections 3 times a week ( I also think they have made > quite a difference). I have nearly run out of folinic acid > (kirkmans) and rang nutricentre to order they sent me folinic acid > 400mg with B12 - they do not do folinic acid on its own. Can I ask > where others on this list get theres from, > > Sorry this is so long, god, talk about parent going on about their > little darling!! what a bore! thanks for listening! > > many thanks, Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 Hi Di, Great Sam report, do keep going on, more good stuff coming I'm sure! Another option for folinic is folacal from thorne, 800mcg/cap dissolves in juice/water and is tasteless. We just got a order from Cally with some of this amongst other things and it worked out very cheap. Nutricentre used to carry folacal but stopped for some reason, was expensive anyway from there. Best, Mark > > Hi everyone, just needing some advice on a couple of things. > First FYI our son, Sam is 10 yo, classed as severely autistic with > some speech (single words). Been on biomedical interventions for > about 5 years, ABA 6 years, now full-time in special needs school > (Sam very happy with his school LOL!!! when I think of all those > years battling with LEA and mainstream schools etc!). > Sam is what is classed as a HARD NUT TO CRACK! > Sam has been on TD DMPS since Jan 5th (under guidance of Dr Usman amd > Dr Heard in UK), now upto 30 drops (target 38 drops). Touch wood, > but he is doing so well, more improvement with this than any other > intervention, I feel nervous about saying this though as I know we > are heading for 2-3 months when the famous stim hell starts (although > I suspect we have been in stim hell for years so maybe I am not > noticing it!!). > We had annual review at school last week, they are very pleased with > Sam's progress, his mood is much more stable, more focused, more > understanding, less anxious, very happy, initiating interaction with > other children, the school do not know about chelation only that we > give Sam some supplements so an unbiased view point. > Anyway I have stopped the DMPS for last couple of days as Sam has > cold and cough, is this what others are doing? I did not want to > challenge his immune system too much. When I put some olbas oil on > his duvet the other night he rolled up his pyjama sleeves! He > thought it was the DMPS, is this an indication that it makes him feel > better? I don't know but he is not usually so keen to have > supplements etc!! > Yesterday I said to him 'what day is it today', he said 'monday' then > I said 'what day is it tomorrow' and he said 'tuesday'. I nearly > fell off the chair, this is not what Sam does!! Only really responds > to rote learned questions like what is your name etc, he has not been > taught this so I think exciting stuff. > Sam is on folinic acid 800mcg (I picked this up at Dr Usmans) twice a > day with B12 injections 3 times a week ( I also think they have made > quite a difference). I have nearly run out of folinic acid > (kirkmans) and rang nutricentre to order they sent me folinic acid > 400mg with B12 - they do not do folinic acid on its own. Can I ask > where others on this list get theres from, > > Sorry this is so long, god, talk about parent going on about their > little darling!! what a bore! thanks for listening! > > many thanks, Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 Hi Di, Great news about Sam. We too use folinic acid from metabolics as we can no longer get hold of the folacol by Thorne which we were using previously! advice please! Hi everyone, just needing some advice on a couple of things.First FYI our son, Sam is 10 yo, classed as severely autistic with some speech (single words). Been on biomedical interventions for about 5 years, ABA 6 years, now full-time in special needs school (Sam very happy with his school LOL!!! when I think of all those years battling with LEA and mainstream schools etc!).Sam is what is classed as a HARD NUT TO CRACK!Sam has been on TD DMPS since Jan 5th (under guidance of Dr Usman amd Dr Heard in UK), now upto 30 drops (target 38 drops). Touch wood, but he is doing so well, more improvement with this than any other intervention, I feel nervous about saying this though as I know we are heading for 2-3 months when the famous stim hell starts (although I suspect we have been in stim hell for years so maybe I am not noticing it!!).We had annual review at school last week, they are very pleased with Sam's progress, his mood is much more stable, more focused, more understanding, less anxious, very happy, initiating interaction with other children, the school do not know about chelation only that we give Sam some supplements so an unbiased view point.Anyway I have stopped the DMPS for last couple of days as Sam has cold and cough, is this what others are doing? I did not want to challenge his immune system too much. When I put some olbas oil on his duvet the other night he rolled up his pyjama sleeves! He thought it was the DMPS, is this an indication that it makes him feel better? I don't know but he is not usually so keen to have supplements etc!!Yesterday I said to him 'what day is it today', he said 'monday' then I said 'what day is it tomorrow' and he said 'tuesday'. I nearly fell off the chair, this is not what Sam does!! Only really responds to rote learned questions like what is your name etc, he has not been taught this so I think exciting stuff.Sam is on folinic acid 800mcg (I picked this up at Dr Usmans) twice a day with B12 injections 3 times a week ( I also think they have made quite a difference). I have nearly run out of folinic acid (kirkmans) and rang nutricentre to order they sent me folinic acid 400mg with B12 - they do not do folinic acid on its own. Can I ask where others on this list get theres from,Sorry this is so long, god, talk about parent going on about their little darling!! what a bore! thanks for listening!many thanks, Di Quote Link to comment Share on other sites More sharing options...
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