Carole

[Guest guest]

Hi ! Carole ,

Nice to hear from you . Glad your Grandson is doing well with his

medication (Concerta ).I've heard good results . I would not change

anything unless you start seeing some changes . That is wonderful .

Do not be a stranger as we could learn from you . The Secretin

Therapy was tried on one of my friends son , then the Cod Liver Oil

and Urocholine Protocol . Her son is being seen by the The Tx. Ctr.

for Autism Research and Treatment . Thanks for asking about my son.As

for my son the only thing I've done is changed his diet, ex.

no sugar and watching out for dairy products which have made a

difference . He is on a Multi-vitamin/Multi-Mineral Formula , a

Dietary Supplement , No Preservatives , No Artificial

Sweeteners,Colors or Flavors. His Ped. doctor and Ped. neurologist

wanted to concentrate first on his sleep pattern . Prescribed

Trazadone , has helped in sleep . This I hope will be removed down

the road . Last year was on several neurological drugs and I

just decided no more , it was not helping him at all , it just

stirred his aggressive behaviors more and he was always lethargic .

Was not social , would not speak , and would not eat very well . He

was starting to look like bones . To top it off , I did not know

about him having the dual diagnosis. I've been Bless to have finally

found answers for . As I'm still learning . My next step after

my sons new treatment of Olive Leaf Extract and Flax Seed Oil

Treatment. Then I would like to start on the Anti-Candida Immune

System-Boosting Diet on him, as I've been reading recent research

links autism and other neurological illness to immunological

deficiencies . I shall see if its for . So far we've had

wonderful results, now we can concentrate on other areas . Like

writing , reading , self-help living skills, and etc. We're working

on toilet training this summer. a little thrown off at this point

with family in and out for vacation . I shall stop yaking away . Many

prayers your way for you and your family .

Irma , 12,DS/ASD.

P.S. Went this route because I do not understand how to work the

digest . Another goal to learn how to use and understand

computer .

Non-text portions of this message have been removed]

[Guest guest]

Hi Carole,

Thanks! Eh, I understand conference would not be a place to

socialize too much at, due to the ongoing discussions with great

speakers and then the booths with lots of great tools/stuff to buy

and then its trying to use the restroom to beat the crowd so that

you could get back to your seat and not miss anything going on.

Still what a joy to make time to attend and learn fabulous

information and get to meet others.

What awesome news with you being a bus aide and on teh same bus with

. What a smile to my face hearing how happy is about

this. Hope all goes well for at school. Glad to hear about

your daughter doing well and having lots of support from you.

Which book did she purchase if you do not mind me asking?

is expressing emotions? You know on that do2learn site there

is this real neat info on the expressions.

http://www.dotolearn.com/games/facialespressions/index.htm

This is another challenge that I've been trying to teach so

that he could also express his feelings and I guess its working

because I accidently bump into him and he said " ouch, it hurts. "

These days he has been surprising a lot of us. Its been brag week,

just to know I went through one of those spells on his first day

back to school and what a turn around. Thank God!

Thanks for asking he is doing great!

Socializing, staying in groups, working, exercising, becoming more

verbal, was able to tolerate his first fire drill was great with the

routine and stayed in line, great on their first trip to Target no

meltdown-stayed with group, great with restroom routine, sleeping at

nights. Oh, the list goes on. Its only week 2 and normally this

transition would take over a year when attending a different school.

At home and our outings its just a relief to know he is himself and

actually behaving like a neurotypical person. But, then what is

normal? At the High school I see all these young kids acting out

wild and the way they dress. Well, this world belongs to all. : )

Many hugs and you enjoy your first day at work. What precious time

with . : )

Oh! Hugs to as she is doing wonderful with as I gather.

Just lovely and thanks for sharing this, brings me joy to hear when

one of our cyber-child is coming along.

Irma,15,DS/ASD

[Guest guest]

In a message dated 9/23/2003 10:57:58 AM Eastern Daylight Time,

carolelinda2003@... writes:

> s bus we got so tired of the complaints.My friend actually said to me

> well he will be good on the bus with you on there and i quickly told her if

> he is " bad " it is because his needs are not being met .Don t think i will be

> talking to her for a while.

Hi Carole,

I doubt your friend has a clue. I would explain it to her before I wrote off

a friendship. If other people understand our children's needs it does make

life easier. Zeb is in a regular classroom with his typical peers. The teachers

resent the fact that he is there, tough. I am certain that this happens with

many students in inclusive programs but as parents we rarely hear about it. The

teacher made a very grave professional error with the wrong parent to mess

with.

Charlyne

Mom to Zeb 10 DS/OCD ?

[Guest guest]

Hi Carole,

I hate the constant battle with the school but that's how change is made.

Charlyne

Mom to Zeb 10 DS/OCD ?

[Guest guest]

Anita wrote:

I also have scoliosis and wonder about the connection with Achalasia.

I did some looking into scoliosis and here is what I found.

The reported frequency of scoliosis depends on who does the reporting

and what their criteria are. I have seen 0.5% to 30%. It was reported

that for boys and girls the rate is about equal, though girls tend to

have larger curves. however it is also reported that it is much more

common and worse in females than males (age matters). Generally

scoliosis is a curve grater than 10 degrees. It is reported that curves

smaller than that are very common. There are different kinds of

scoliosis from different causes. The most common is Idiopathic (cause

unknown). There are also Neuromuscular types which can be caused by

neuromuscular diseases such as cerebral palsy, myelomeningocoele and

muscular dystrophy. Some argue that idiopathic scoliosis may be caused

by a yet unknown neuromuscular problem, however others doubt that.

Achalasia is much more rare than scoliosis, even if you go with the the

0.5% frequency, so there has to be more going on with achalasia than

just having scoliosis, and especially just a slight curve. That does

not rule out a connection though. There could be some rare thing that

connects only a small portions of scoliosis cases and relates to

achalasia, but it does mean that even if you have scoliosis you are

unlikely to get achalasia.

The frequency of achalasia in males and females is reported to be

equal. Scoliosis is reported to be more common in females and female

cases tend to be worse than for male. Again, there could be some

special cause of scoliosis that is equal in females and males but this

seems to argue against scoliosis in general being a connection to

achalasia.

The main nerve to the esophagus is the vagus nerve. This nerve is

outside the spine and should not be bothered by a curve of the spine.

There may be other spinal nerves that have some effect on the esophagus

but consider that people brake their backs causing lots of nerve damage

but this is not likely to cause of achalasia. You could at the same

time, such as in car accident, brake your back and damage the vagus

nerve, just as you could also at the same time damage many things, but

it would be the damage to the vagus nerve that would cause achalasia.

Achalasia is a neuromuscular problem. I have not found anything to

indicate that there is some unknown neuromuscular problem that can

cause both. There are some known ones but we should know if we have

them. If there is some such cause, then it would not be the curves in

the spine that cause achalasia, but whatever causes the neuromuscular

problems that curve the spine would also cause the neuromuscular

problems of achalasia, either together or one or the other. There is a

theory that a problem in an area where the brain and spine meet could

explain some of the idiopathic scoliosis. A problem in the area could

cause a lot of problems, perhaps even achalasia. Just a theory though.

notan

[Guest guest]

Hope the move goes well, and that your new home brings you everything you wish for.

Lilian