Re: sister has been told no referral

[Guest guest]

Tell us exactly what has happened Carol. You have opened a brand

new message here with no history we can check back on in previous messages. Are

you talking about Pam. Has something happened today that we don't know about.

Did her GP refuse to refer her to Dr B (your endocrinologist) and if so, what

reason have they given. Did Pam write the letter to her GP and ask for it to be

placed into her medical notes and keep a copy herself. She might need to send

this to her PCT. However, bringing us right up to date with all this.

Luv - Sheila

Now what, I do not understand why they will not

refer her. Am not sure what to do now. any ideas? how can they not treat

someone who has has a TSH of 10 this is outrageous.

[Guest guest]

Hi Carol,

You'll get lots of replies to this - be patient - the replies will come.

A TSH of 10 indicates one of two things:

1) hugely hypothyroid - most likely.

2) secondary hypothyroidism - pituitary not producing TSH (extremely unlikely).

I have only one recommendation and that is to change doctor. The doctor that

decides to ignore this and refuse a referral is either deranged or has huge

financial issues that he/she is trying to manage or thinks that the laboratory

that did the test is useless. You decide which is most appropriate.

Don't put up with this. Don't try and stay with the doctor and fight it because

this person is so lacking in IQ and integrity it's not worth your effort. Switch

doctor as soon as possible would be my recommendation.

Take care.

>

> Now what, I do not understand why they will not refer her. Am not sure what to

do

[Guest guest]

This is Pam's (Carol's sis') first post:

thyroid treatment/message/87630

>> Now what, I do not understand why they will not refer her. Am not sure what to do now. any ideas? how can they not treat someone who has has a TSH of 10 this is outrageous.>

[Guest guest]

Hi Sheila

Yes you are correct with who and what, but my mistake, my mother told me they

had refused, but she does not see her GP until tomorrow, she did write a letter

which I faxed to them and she asked for a copy to be put into her notes. We are

trying to get a NHS referral, we do not think they will do a NHS one and we are

prepared for a private one. I know the endo will write to her GP asking if they

can do a nhs referral after that. He did the same for my mother, and he waived

some of his fee, I think he is one in a million and you wouldnt fine better

anywhere. Sorry about opening a new message but didnt want to just join in on my

sisters message. I really didnt thing she would end up the same as me.

Here is hoping tomorrow is a better day.

One question, why would her gp not treat her and insist on another TSH when she

went over the golden 10 and was over 8 at the two previous tests?

Sorry for not adding to Pams post, thought i should make my own.

Carol

x

>

> Tell us exactly what has happened Carol. You have opened a brand new message

> here with no history we can check back on in previous messages. Are you

> talking about Pam. Has something happened today that we don't know about.

> Did her GP refuse to refer her to Dr B (your endocrinologist) and if so,

> what reason have they given. Did Pam write the letter to her GP and ask for

> it to be placed into her medical notes and keep a copy herself. She might

> need to send this to her PCT. However, bringing us right up to date with all

> this.

>

> Luv - Sheila

>

>

>

>

>

> Now what, I do not understand why they will not refer her. Am not sure what

> to do now. any ideas? how can they not treat someone who has has a TSH of 10

> this is outrageous.

>

[Guest guest]

Hi Carol since GP is not up to date print out a few recent studies and give him

something to update him . Teitelbaum recently quoted the HUNT STUDY

which shows women with TSH 1.14-2.52 have 41% risk of heart attack death and

those with a high level TSH 2.5-3.5 have a 69% increased risk . This is

compared to women with a TSH 0.5 -1.4 . Well for somebody over 10!!!!!!!!

Maybe he can work out the risk . There are other good references to speed up the

referral

[Guest guest]

Hi

Carol, it's always best to keep messages in one neat parcel so we can all go

through the history of the topic - the thing is, this topic is about your

sister and it matters not who posts on it, but it does matter that everything

is kept together. What Pam needs to do if she is refused point blank a NHS

referral is to send the following in a letter to her GP pointing out just some

of the problems and conditions that are associated with untreated/under treated

thyroid. Would her GP take full responsibility should she start to suffer with

any of these ? - but wait until she knows 100% that she has been turned down.

I

would keep the letter quite simple. Something on the lines of

Dr

r Dr ****

I

cannot understand how or why you would refuse me a referral to Dr *** whose specialty

is thyroid disease when my TSH level has now reached ****. You are using a

reference interval for TSH that is unmatched by any other country in the world.

WHY? In America, the people are given a diagnosis and treatment started if

their level of TSH is above 3.0. In Germany, Sweden and Belgium, they are

diagnosed and treated if their TSH is greater than 2.5 and in Belgium, it is

recommended this upper level be dropped to 1.5. I am happy to give you the

references to the research papers to show why their TSH reference ranges were

dropped should you require these. I need a second opinion because of all the

terrible symptoms I am suffering which are not being relieved.

I

am sure that you are already aware that some common and often undiagnosed

symptoms and dangerous consequences of low/untreated thyroid include:

serious

mental problems,

seizures,

heart

disease,

diabetes

including misdiagnosis and complications,

constipation

resulting in colon cancer,

all

female problems (due to high amounts of dangerous forms of oestrogen), …including:

tumours,

fibroids,

ovarian

cysts,

PMS,

endometriosis,

breast

cancer,

miscarriage,

heavy

periods and cramps,

bladder

problems leading to infections,

anaemia,

elevated

CPK,

elevated

creatinine,

elevated

transaminases,

hypercapnia,

hyperlipidaemia,

hypoglycaemia,

hyponatraemia,

hypoxia,

leukopaenia

respiratory acidosis and others....

Please

will you reconsider with immediate effect a referral to an endocrinologist of

my choice.

Kind

regards

*******

*********

Hi Sheila

Yes you are correct with who and what, but my mistake, my mother told me they

had refused, but she does not see her GP until tomorrow, she did write a letter

which I faxed to them and she asked for a copy to be put into her notes. We are

trying to get a NHS referral, we do not think they will do a NHS one and we are

prepared for a private one. I know the endo will write to her GP asking if they

can do a nhs referral after that. He did the same for my mother, and he waived

some of his fee, I think he is one in a million and you wouldnt fine better

anywhere. Sorry about opening a new message but didnt want to just join in on

my sisters message. I really didnt thing she would end up the same as me.

Here is hoping tomorrow is a better day.

One question, why would her gp not treat her and insist on another TSH when she

went over the golden 10 and was over 8 at the two previous tests?

Sorry for not adding to Pams post, thought i should make my own.

Carol

x

>

> Tell us exactly what has happened Carol. You have opened a brand new

message

> here with no history we can check back on in previous messages. Are you

> talking about Pam. Has something happened today that we don't know about.

> Did her GP refuse to refer her to Dr B (your endocrinologist) and if so,

> what reason have they given. Did Pam write the letter to her GP and ask

for

> it to be placed into her medical notes and keep a copy herself. She might

> need to send this to her PCT. However, bringing us right up to date with

all

> this.

>

> Luv - Sheila

>

>

>

>

>

> Now what, I do not understand why they will not refer her. Am not sure

what

> to do now. any ideas? how can they not treat someone who has has a TSH of

10

> this is outrageous.

>