Guest guest Posted August 11, 2011 Report Share Posted August 11, 2011 Have you not been under a endocrinologist ? If you haven't then insist that you are referred to one. I'd expect your TSH to be lower on this sort of dose and would want a really good explanation if it wasn't. It is possible that your pituitary isn't working particularly well and only an endocrinologist could assess this correctly. DO you still have symptoms? If you do then all the more reason to go ahead and insist on a referral. If your GP won't then change GP. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 > > > DO you still have symptoms? If you do then all the more reason to go ahead and insist on a referral. If your GP won't then change GP. moderated to remove most of old message..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 When adding lyothyronine to your levothyroxine, you should drop the levothyroxine dose by 50mcgs. Remember to take your T3 in split doses, probably starting with 2 doses, half one hour before breakfast and the other late afternoon. As the dose of T3 increases you may wish to take it in 3 or four split doses so stop it peaking in the blood shortly after taking it. T3 can make a difference quite quickly, but you need to be absolutely sure that you have good levels of ferritin, vitamin B12, vitamin D3, folate, magnesium, copper and zinc, so ask your GP to test these. Once you get the results, post them here on the forum and we can help with their interpretation, so long as you post the reference range for each of the tests done of course. Luv - Sheila have been back to gp today to find my tsh levels are at 8.5 even though for the past 5 years have been taking levothyroxin, at 275mcg now, i have just been given liothyronine 20mcg to take along side the 275mcg of levothyroxin. having lost all faith in my gp does anyone know if this will work and how long does it take to make any differance? i still can't get my head around how it all works!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 thanks for the advice sheila, i was told to take it at the same time as my 275mcg of levothyroxin and she didnt reduce my does on the levothyroxin, i was not sure if she was very sure of what she was doing.last year i had very low ferritin levels and took ferritin for 6 months but have not been checked since, she has no explanation as to why i had become very aneamic, had various gastric tests but they were fine, i have trouble with digestion but she does not know why, nor does the gatric consultant so i was dischaeged from them and told to take gaviscon!! i have been monitering my body temp which always reads about 36.4 a little lower on waking but she ignored any theory about the body temp. many thanks for any advice .laura > > When adding lyothyronine to your levothyroxine, you should drop the > levothyroxine dose by 50mcgs. Remember to take your T3 in split doses, > probably starting with 2 doses, half one hour before breakfast and the other > late afternoon. As the dose of T3 increases you may wish to take it in 3 or > four split doses so stop it peaking in the blood shortly after taking it. T3 > can make a difference quite quickly, but you need to be absolutely sure that > you have good levels of ferritin, vitamin B12, vitamin D3, folate, > magnesium, copper and zinc, so ask your GP to test these. Once you get the > results, post them here on the forum and we can help with their > interpretation, so long as you post the reference range for each of the > tests done of course. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 Grrr! - you need a referral to an endocrinologist. Write and ask your GP for this as she is not a specialist in thyroid disease and her lack of knowledge could actually cause you harm. Tell her that you will not take her recommended dosing therapy unless this has been sanctioned by a specialist in this field. Luv - Sheila thanks for the advice sheila, i was told to take it at the same time as my 275mcg of levothyroxin and she didnt reduce my does on the levothyroxin, i was not sure if she was very sure of what she was doing.last year i had very low ferritin levels and took ferritin for 6 months but have not been checked since, she has no explanation as to why i had become very aneamic, had various gastric tests but they were fine, i have trouble with digestion but she does not know why, nor does the gatric consultant so i was dischaeged from them and told to take gaviscon!! i have been monitering my body temp which always reads about 36.4 a little lower on waking but she ignored any theory about the body temp. many thanks for any advice .laura > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 I would tell her you understand the Levothyroxine has to be reduced when you take liothyronine instead and that the advice in the British National Formulary states that dosage of T3 is: " By mouth, initially 10–20 micrograms daily gradually increased to 60 micrograms daily in 2–3 divided doses; elderly smaller initial doses; child, adult dose reduced in proportion to body-weight " Ask her how and when she proposes to increase your dose and how is she going to monitor it.. If she looks slightly confused at all, ask for a referral to an expert of your choice. . > > Grrr! - you need a referral to an endocrinologist. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 Hi again, If you had very low iron levels once then it may still be low. You really need the complete iron panel done: serum iron, serum ferritin, transferrin saturation, complete blood count (CBC). Also B12, folate. Your previous low iron level could be related to the poor response of thyroid hormone or it could be thyroid hormone that is limiting iron absorption. It very much sounds like you have a really useless doctor. It also bothers me that you could still have a high TSH on so much T4. I think you absolutely need to see a good endo and maybe change GP also. If you have a major issue with a nutrient then it may be that thyroid hormone will work better once this is resolved. What is clear is that your GP is very unlikely to find the answer or the balance of T4/T3 that will work. Whoever, you are working with then they ought to be monitoring your nutrients and get them into the upper half of the reference range AND get your FT3 and FT4 up to decent levels and find out why your TSH has remained so high. This is out of your GPs league. Your symptoms suggest that your thyroid hormones aren't getting through to the tissues of your body correctly and that your adrenals aren't working right because of this. You just need to be working with someone competent. Hopefully, then things will improve a lot. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 Hi , T3 is the active hormone, T4 is a hormone that has to convert to T3 to work. if their is a reason that this is not happening then the T3 needs to be added. non converters often get a reverseT3 problem as the T4 hormone just stays in the body going no where, building up and not doing anything. angel. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.