Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 Hi , has Hypothyroidism. That is too little Thryoid hormone. He takes thyroid medication and we saw a real improvement in his level of activity and somewhat less constipation when he started it. I know that children with Down Syndrome are more likely to have Thyroid problems. Terry Mom to , 13 yrs., ds/asd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 kristen, good lucl with the new meds and claires thyroid. i will keep you in my prayers,,, tc, leah have a safe and merry xmas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 Sam and Tim have thyroid problems. JJ, , and Essie don't so far. & Garry, parents of (10 ds), (9 ds/g-tube), JJ (7 ds/autism/celiac), (6 ds/ADHD/Celiac), and Esther (3 ds). All adopted. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 I don't know. I only know of children with autism and hyperactive kids. I do know 2 kids with down syndrome- one's in high school. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 so far we've been lucky on that one, nathan's thyroid gets checked yearly with his full fledge ds check up eval etc. pray that with the proper thyroid med things go well. shawna. --- Imaddenmom@... wrote: > Hi , > has Hypothyroidism. That is too little > Thryoid hormone. He takes > thyroid medication and we saw a real improvement in > his level of activity and > somewhat less constipation when he started it. I > know that children with > Down Syndrome are more likely to have Thyroid > problems. > Terry > Mom to , 13 yrs., ds/asd > > > [Non-text portions of this message have been > removed] > > > -------------------------- eGroups Sponsor > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2000 Report Share Posted December 29, 2000 Hi, What's a thyroid? I didn't know people got their full fledge ds check up eval etc. I pray taht the med thing will go well. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Hi , My name is and I'm from Los Angeles, but I now live in Charlotte, North Carolina. I see you are in San Diego. My mother has many relatives living in the Encinitas area and I spent many, many weekends there when I was growing up, plus some of my summer vacations. Do you know that area? Some of my relatives lived on 4th St., which was a real barrio (Mexican slum) back then but I think it's all yuppie condos now. It was at the top of a cliff above the ocean and there was a path we could use to get down to the beach. Sometimes we would go to Moonlight Beach instead, but I preferred the other beach because there were so few people there because of the difficulty in getting down there. But we were daring kids and the danger of falling off the cliff was exciting. We would run down as fast as we could, but we never fell. I also remember 2 apartment buildings shaped like ocean liners. I think they were on 2nd St. Have you seen them? One of my uncles lived in an apartment there for a short time. They were cool to look at. The last time I saw them was about 15 years ago and they looked in good shape. They seemed to have been built quite sturdily, so I imagine they are still there. Anyway, I was just curious if you knew that area and wanted to know which part of San Diego you live in. I used to be quite familiar with parts of San Diego County, but it's been a long time since I spent any time there. I don't have hyperthyroidism, or anything else you mentioned as possible afflictions you have. I have Sarcoidosis, with Recurrent Sarcoid Meningitis, and a 7 year old headache. I also have a virus called HTLV-I which I got from my ex-wife. She got it from a blood transfusion in 1985, during emergency surgery (the blood supply is now fully screened for HTLV-I and HTLV-II). She has all the classic MS symptoms and was originally diagnosed as having MS. But a research doctor confirmed the HTLV-I and it was too late to prevent me from getting it from her. My headache might be caused by the virus, but my doctors don't agree on which of these factors is causing my problems. In addition to these I have a chronic back problem, and I had spinal fusion surgery last year. But that only fixed one of my back problems, but it was the worst of them so I'm not unhappy with the results. , PLEASE get the biopsy done ASAP. I understand the fear and anxiety that illness can cause. When they told me some lumps appeared in a chest x-ray, I immediately thought I had the Big C. But after a biopsy it was proven that Sarcoidosis caused the lymph nodes to become enlarged. So I want you to know that NOT having the biopsy can be WORSE than getting it done. You owe it to your children to take care of yourself, rather than let fear take you over. You will find many people here who will be supportive and WITH you no matter what. You will make friends here with as many people as you want. We have all been through things like what you are going through right now. But the worst thing you can do right now is to not take care of yourself properly. Please do what you need to do and let US listen to you, help you, support you and be your friends. Things are easier together than alone. OK? Everyone, please take good care of yourselves tomorrow. Love and Peace, ie B f_bertaud@... NetZero Platinum No Banner Ads and Unlimited Access Sign Up Today - Only $9.95 per month! http://www.netzero.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 In a message dated 25/06/2006 19:49:29 GMT Daylight Time, dava93@... writes: hope everything is well with you, Tim and Eddy, we had a test done by the NHS which showed nothing abnormal with Dans Thyroid have you ever had any tests done which differ from the NHS one ie better which showed problems with the thyroid. Dave the issue with the NHS tests is them not using the right reference ranges and reporting them all as normal. is good with thyroid stuff if you post your results I am sure she would try to help and make sure they are normal Mandi x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 Amy wrote: I am just wondering what the odds are to have that > and CVID?? Amy, there's a theory out there that CVID (at least one form of it) may be caused by an error in the transription phase of RNA. In other words, not a problem with the DNA -- but in the developmental stage there is a manufacturing error so that the DNA doesn't form correctly. If that's true - then the possibility that it would throw off other areas would certainly exist. There's a lot of kids with just CVID. But there's an awful lot of kids with CVID plus something else. Just on this list there's multiple other diseases represented. There's also the possibility of autoimmune issues causing the thyroid problem. You'll have to ask your doctor about that. I really don't have any expertise on that. I know that doesn't heal anything. I hope you can rejoice that they have made a diagnosis and hopefully can get the treatment regulated and he can feel better soon. In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 hi Amy, From my understanding, it is not unusual for cvid kids to develop 1-2 autoimmune dis in their lifetime (correct me if I am wrong guys)...my daughter has cvid, has been creating antibodies against her thyroid for over a year now.... There is a genetic tendancy toward autoimmune diseases - you have Grave's disease, so combined with cvid, it increases Nick's odds of having it too. Fortunately, it is easily treatable. As for the Hep A - I certainly sympathize - we have concerns other parents will never realize. Hope Nick stays well. (, 17, cvid, jra, migraines) Amy <mom2lilnick@...> wrote: Hi all, I don't post very often but I have a question. My son, Nick, just turned 5 years old and he has CVID. He has been on either IVIG or subQ since he was 18 months old. Several months ago he started sleeping all the time, around 16 hours a day. We were told viruses and then they thought it was his meds.. so they switched them all around. Finally they tested his thyroid and the labs came back showing he has hyperthyroidism. I have Graves Disease so while this was a huge shock, at least I know how to deal with it. I am just wondering what the odds are to have that and CVID?? Hyperthyroidism in kids is rare and then for him to be a boy makes it even that much more rare since there are 7 to 8 girls for every 1 boy dx with it. Also just wanted to throw out there that a child in Nick's class at school has hep A. I called the immuno when the school contacted me and he said Nick is okay because the treatment for Hep A exposure is IVIG. I feel relieved but at the same time I still worry, you know? Thanks for any advice you can offer. Amy, mom to Nick CVID, 5 years old. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 Re: autoimmunity with CVID. yes, this can definitely be a part of it. My son with CVID also has primary hypothyroidism (an autoimmune process), autoimmune enteritis, and ALPS (autoimmune lymphoproliferative syndrome) where his body destroys red and white cells and platelets. His autoimmune diseases have been the most challenging aspect of this for us. More than frequent infections, which for him have never been too serious (yet?). but, the IVIG have helped with flareups but it took about nine months for that to happen. (or - we're just in a good spell right now!) The thing that is hard is never knowing whats next. all the best to everyone, Kate Re: Hyperthyroidism hi Amy, From my understanding, it is not unusual for cvid kids to develop 1-2 autoimmune dis in their lifetime (correct me if I am wrong guys)...my daughter has cvid, has been creating antibodies against her thyroid for over a year now.... There is a genetic tendancy toward autoimmune diseases - you have Grave's disease, so combined with cvid, it increases Nick's odds of having it too. Fortunately, it is easily treatable. As for the Hep A - I certainly sympathize - we have concerns other parents will never realize. Hope Nick stays well. (, 17, cvid, jra, migraines) Amy <mom2lilnick@...> wrote: Hi all, I don't post very often but I have a question. My son, Nick, just turned 5 years old and he has CVID. He has been on either IVIG or subQ since he was 18 months old. Several months ago he started sleeping all the time, around 16 hours a day. We were told viruses and then they thought it was his meds.. so they switched them all around. Finally they tested his thyroid and the labs came back showing he has hyperthyroidism. I have Graves Disease so while this was a huge shock, at least I know how to deal with it. I am just wondering what the odds are to have that and CVID?? Hyperthyroidism in kids is rare and then for him to be a boy makes it even that much more rare since there are 7 to 8 girls for every 1 boy dx with it. Also just wanted to throw out there that a child in Nick's class at school has hep A. I called the immuno when the school contacted me and he said Nick is okay because the treatment for Hep A exposure is IVIG. I feel relieved but at the same time I still worry, you know? Thanks for any advice you can offer. Amy, mom to Nick CVID, 5 years old. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2010 Report Share Posted June 28, 2010 I think this is slightly common in the Down Syndrome world. I would consider contacting the Adult Down Syndrome Clinic in Park Ridge. and hear what the wisdom is there.. 847-318-2303 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2010 Report Share Posted June 28, 2010 Thanks Cindi, we do go there and that is who diagnosed him. She did say it is common in DS but I just thought I would see if anyone had any personal experience with it. Shirley From: Cindi Swanson <cbswanson@...> Subject: Re: Hyperthyroidism IPADDUnite Date: Monday, June 28, 2010, 4:17 PM  I think this is slightly common in the Down Syndrome world. I would consider contacting the Adult Down Syndrome Clinic in Park Ridge. and hear what the wisdom is there.. 847-318-2303 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2010 Report Share Posted June 28, 2010 Sorry, I did not understand correctly, my son has Hypothyroidism (not Hyperthyroidism) it  is a condition in which the body lacks sufficient thyroid hormone. Shirley From: Cindi Swanson <cbswanson@...> Subject: Re: Hyperthyroidism IPADDUnite Date: Monday, June 28, 2010, 4:17 PM  I think this is slightly common in the Down Syndrome world. I would consider contacting the Adult Down Syndrome Clinic in Park Ridge. and hear what the wisdom is there.. 847-318-2303 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2010 Report Share Posted June 28, 2010 Hyperthyroidism mean you are producing to much thyroid hormone. It can cause many differant problems. It is general treated with a radeation treatement and blood tests to check levels. If they go to low you will need to take a suplement that may change over time. My wife had to have it done. She felt so much better after treatment. This was done 12 years before she past. ________________________________ From: Shirley Linden <slpanda2@...> IPADDUnite Sent: Mon, June 28, 2010 8:02:57 PM Subject: Re: Hyperthyroidism  Sorry, I did not understand correctly, my son has Hypothyroidism (not Hyperthyroidism) it  is a condition in which the body lacks sufficient thyroid hormone. Shirley From: Cindi Swanson <cbswanson@...> Subject: Re: Hyperthyroidism IPADDUnite Date: Monday, June 28, 2010, 4:17 PM  I think this is slightly common in the Down Syndrome world. I would consider contacting the Adult Down Syndrome Clinic in Park Ridge. and hear what the wisdom is there.. 847-318-2303 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Synthroid is the most popular med for hypothyroidism, but consider natural thyroid supplements (like Armour's) which work much better than the synthetic brands, especially if it is not a big problem. There are many natural ways of balancing the thyroid, as well as providing support for the adrenals. You must also support the adrenals along with the thyroid. You can always take Synthroid if you aren't successful. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2011 Report Share Posted June 26, 2011 Is the treatment as far as iodine dosage and slowly adding more the same according to body temp the same for hyperthyroidism verses hypothyroidism? Ali Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2011 Report Share Posted June 26, 2011 not at all. even with hypo the temp does not play a role in iodine. you mix thyroid hormones with iodine On Sun, Jun 26, 2011 at 11:40 AM, A. <rubyrain11@...> wrote: Â Is the treatment as far as iodine dosage and slowly adding more the same according to body temp the same for hyperthyroidism verses hypothyroidism?Ali Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2011 Report Share Posted June 26, 2011 Thank you .... that helps. iodine From: ladybugsandbees@...Date: Sun, 26 Jun 2011 15:57:13 -0400Subject: Re: Re: Hyperthyroidism I cannot tell you the dosages but the pharmaceutical equivalent is here: http://www.drugs.com/pro/lithium-carbonate.html L-Carnatine for hyperT is discussed here: http://www.cellhealthmakeover.com/acetyl-l-carnitine.html Buist, ND Re: Hyperthyroidism Would you happen to know about dosage,and types of Lithium- (orotate or aspartate) and l-carnitine?Thanks> >> >> **> >>> >>> >> Is the treatment as far as iodine dosage and slowly adding more the same> >> according to> >> body temp the same for hyperthyroidism verses hypothyroidism?> >>> >> Ali> >>> >>> >> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2011 Report Share Posted June 26, 2011 Yes it definitely would be nice...it seems most folks on this list are hypoT so us hyperT's don't get a lot of info. I'm going to try to figure it out and add lithium and l-carnitine to my Iodine protocol.... 50mg lugols/day with all the companion nutrients. iodine From: zahavi100@...Date: Sun, 26 Jun 2011 20:50:52 +0200Subject: Re: Re: Hyperthyroidism no i do not but the lithium of biotics was mentioned.it would be nice to have a protocol for hyper with iodine On Sun, Jun 26, 2011 at 6:19 PM, kuv1chi1 <4star8@...> wrote: Would you happen to know about dosage,and types of Lithium- (orotate or aspartate) and l-carnitine?Thanks > >> >> **> >>> >>> >> Is the treatment as far as iodine dosage and slowly adding more the same> >> according to> >> body temp the same for hyperthyroidism verses hypothyroidism?> >>> >> Ali> >>> >>> >> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2011 Report Share Posted June 26, 2011 Thank you all so much for the Hyper. Advice.My step mom is working to get herself off of drugs and heal naturally. One person I know who will actually take my advicebecause she is very well educated. (She is a mycologist.)So any advice I can offer her will be well received.Best,AliOn Jun 26, 2011, at 2:23 PM, B wrote: Here is info about lithium. http://mysite.verizon.net/res003jh/lithium-orotate/index.html >Yes it definitely would be nice...it seems most folks on this list are >hypoT so us hyperT's don't get a lot of info. I'm going to try to figure >it out and add lithium and l-carnitine to my Iodine protocol.... 50mg >lugols/day with all the companion nutrients. > > > > >---------- >iodine >From: zahavi100@... >Date: Sun, 26 Jun 2011 20:50:52 +0200 >Subject: Re: Re: Hyperthyroidism > > >no i do not but the lithium of biotics was ><http://mentioned.it/>mentioned.it would be nice to have a protocol for >hyper with iodine > >On Sun, Jun 26, 2011 at 6:19 PM, kuv1chi1 ><<mailto:4star8@...>4star8@...> wrote: > > >Would you happen to know about dosage,and types of Lithium- (orotate or >aspartate) and l-carnitine? > >Thanks > > > > > > > > > >> ** > > >> > > >> > > >> Is the treatment as far as iodine dosage and slowly adding more the same > > >> according to > > >> body temp the same for hyperthyroidism verses hypothyroidism? > > >> > > >> Ali > > >> > > >> > > > > > > > > > > > > > > > > > > > > > > ~~~ There is no way to peace; peace is the way ~~~~ --A.J. Muste Quote Link to comment Share on other sites More sharing options...
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