Guest guest Posted August 9, 2011 Report Share Posted August 9, 2011 Firstly i'd like to thank Sally, Trish and for replying to my post last week. Sorry I didn't reply sooner. I started 50mcg l-T4 on Saturday. Since then i've felt a little worse if anything. I think I am catching up from a stressful few weeks leading up to the diagnosis. I suspect my adrenals are shot and I am not sure what to do about it. I always feel like this after any type of stress or activity. My NAX has just arrived, i've been taking as much Vit C, Mg and B vits that I can tolerate for the last couple of weeks. Not sure if it's helping though. I am not sure when and how to start the NAX? For some reason I am scared of taking it! Today I am feeling as bad as I ever have in the last year. I have been in bed most of the time for the last few days, being too exhausted to get up. However I just got up to put a load of washing in the machine and had a funny turn. I am so dizzy and lightheaded, palpitations (120 bpm) but BP was quite high for me (130/85), severe headache (amoung worst i've ever had), breathlessness etc. Can hardly see what I am typing here. I have a routine GP appt tonight to report back about the Endo appointment, if I can get there without collapsing (hubby taking me), sure it won't be any use though. The Endo wouldn't consider that I had any type of adrenal problem, saying that if I did i'd have lost weight not gained it....doubt the GP will be interested either. Any help with what to say to GP later would be much appreciated if any of you see this in the next couple of hours. Many thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2011 Report Share Posted August 9, 2011 My NAX has just arrived, i've been taking as much Vit C, Mg and B vits that I can tolerate for the last couple of weeks. Not sure if it's helping though. I am not sure when and how to start the NAX? For some reason I am scared of taking it! I started 50mcg l-T4 on Saturday. Since then i've felt a little worse ifanything.....I am so dizzy and lightheaded, palpitations (120 bpm) but BP was quite high for me (130/85), severe headache (amoung worst i've ever had), breathlessness etc. Can hardly see what I am typing here. Hello , If it were me, I would stop the Levo immediately and first of all do at least 7 days on NAX, up the Vit C slowly to the max you can tolerate, Mg, and add Co-Q10 (200 mg), Selenium (180 iu) without any thyroid hormone. The effects that you are experiencing are very likely down to your weak adrenals – weak adrenals cannot support thyroid hormone. You first need to condition your adrenals before putting thyroid hormone into your system. Start with one NAX with your breakfast. Nothing to be scared of.... honestly. If for any reason you do not tolerate the NAX, then you'll have to find an adrenal support that you will tolerate, but most people feel very well on NAX. After about a week on adrenal support I would re-start the Levothyroxine, yet not go in with 50 mcg , but half of that.... splitting the pill might be difficult, so perhaps your GP can prescribe the 25 mcg strength.... just tell him about your side effects and ask for another script – you can use the 50's maybe in a few weeks time. Don't bother to tell him about the adrenal side of things, he won't understand anyway.... Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2011 Report Share Posted August 9, 2011 If you feel your adrenals are shot, you should not be starting on any thyroid hormone replacement until you have boosted your 'shot' adrenals. Is it possible that you can get the 24 hour salivary adrenal profile done through Genova Diagnostics? Check out our FILES section from the Hone page of this forum web site, and open the FOLDER entitled 'Discounts on Tests and Supplements' and then open the Genova File and you can order the test from there following the specific instructions there in order to claim your TPA discount. You could start by ordering Nutri Adrenal Extra from Nutri Ltd - check out the File there and claim 33% discount. You should supplement with NAE for at least 7 days before starting L-thyroxine. Start by taking one tablet with breakfast for 10 to 14 days and then add another NAE with y our lunch, and after another 10 to 14 days, add another tablet with your lunch. You can take up to 6 NAE daily, but if you still have symptoms, this is the time to decide whether you need something stronger such as Isocort or even a course of HC to properly boost your adrenals. Please don't be afraid of taking NAX (NAE). This is made up of nothing other than the vitamins and minerals your adrenals need to boost them. I would be more afraid of what might happen if you don't boost your adrenals. If this was me, I would stop the L-thyroxine for the moment until further investigations had taken place. Ask your GP to test your levels of ferritin, vitamin B12, vitamin D3, magnesium, folate, copper and zinc, because if any of these are low in the reference range, no amount of thyroid hormone is going to be properly utilised in your cells. Luv - Sheila Firstly i'd like to thank Sally, Trish and for replying to my post last week. Sorry I didn't reply sooner. I started 50mcg l-T4 on Saturday. Since then i've felt a little worse if anything. I think I am catching up from a stressful few weeks leading up to the diagnosis. I suspect my adrenals are shot and I am not sure what to do about it. I always feel like this after any type of stress or activity. My NAX has just arrived, i've been taking as much Vit C, Mg and B vits that I can tolerate for the last couple of weeks. Not sure if it's helping though. I am not sure when and how to start the NAX? For some reason I am scared of taking it! Today I am feeling as bad as I ever have in the last year. I have been in bed most of the time for the last few days, being too exhausted to get up. However I just got up to put a load of washing in the machine and had a funny turn. I am so dizzy and lightheaded, palpitations (120 bpm) but BP was quite high for me (130/85), severe headache (amoung worst i've ever had), breathlessness etc. Can hardly see what I am typing here. I have a routine GP appt tonight to report back about the Endo appointment, if I can get there without collapsing (hubby taking me), sure it won't be any use though. The Endo wouldn't consider that I had any type of adrenal problem, saying that if I did i'd have lost weight not gained it....doubt the GP will be interested either. Any help with what to say to GP later would be much appreciated if any of you see this in the next couple of hours. Many thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2011 Report Share Posted August 12, 2011 Thanks and Sheila. I have eased back off the thyroxine, gradually starting NAX. I went back to the GP For a check over and apart from being a bit tachy i'm ok. Temps fine etc. She offered to do 24 hour urine cortisol and 24h catecholamines because she and the cardiologist think I am having inappropriate adrenal surges. So I will stay off the NAX now until that is done at the beginning of next week. As we know the urine tests aren't ever so much help, but I can't afford to do the salivary ones with Genova at the moment. She said if these results were remotely doubtful she'd write to my endo asking for the syncathen test. Peace of mind that there is nothing extreme going on will hopefully help me calm down and focus on what I can do myself for my adrenals. I think I have got myself into a real tizz about everything which isn't going to be helping my adrenals calm down and heal. I'm also getting Coeliac antibodies done, liver function, U+E's and a couple of other things I can't remember just now. This is a new GP that i'm seeing because my other one has just gone on maternity leave. She seemed thorough and open minded so I am hopeful to get a better relationship going with this one. Maybe later on, if all else fails she may consider NDT or T3, i'll work on her. x > > Firstly i'd like to thank Sally, Trish and for replying to my post last week. Sorry I didn't reply sooner. > > I started 50mcg l-T4 on Saturday. Since then i've felt a little worse if anything. I think I am catching up from a stressful few weeks leading up to the diagnosis. Quote Link to comment Share on other sites More sharing options...
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