Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 HI LILIAN How about this plan, why do we not accept these drugs that we know are not going to help us and then send them all to our local MP'S in disgust, as nobody is going to get better on them only worse plus many other drugs. Its time we all put our foot down to the wrong diagnoses that we are getting when Doctors get such high wages. You are lucky you got ten minutes before he was ushering you out. I have established that they do this when things get a bit complicated for them. I hope one day that the Charities will get the funding to help us, as one has to look back at the TB in this country as it was Charities that treated the sick. Did you go back and see that GP who told you that you were wasting his time. I WOULD NOT. I wish that Internet and TPA were around when I was forced to have antidepresants, antisychotic drugs etc and the damage it caused. I am standing my ground in refusing them now, no matter what happens, as it helps to know I am not the only one, and as a group we can show that we are not mental and need those types of drugs. Kathleen > > After the 10 minutes was up he went to the door, opened it, and told me he > had wasted enough time and needed to see the next patient. > > Lilian > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 So he could be hysterical too then.... > Although this is not to do with thyroid, its the fact that you mention that you can only be hysterical if you have a womb. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 How about, all people who are diagnosed with M.E. should be in a mental hospital since they are mad. Well youre a crackpot taking pigs thyroid it isnt stable and its old fashioned and it doesnt work. same doc both quotes. How about 'You can't expect to do everything as you are getting older' (I was 38 at the time).Or how about 'You are a liar, you do not have thyroid symptoms'. "Why do you think that being in your fifties and overweight is unusual". Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 What like the Indian guy father of two who just had a hysterectomy!!!!! I think all men long to have a uterus that is there problem! . Personally I think its underlying sexism, that if a man goes to see a specialist he gets treated differently. I don't think its the specialists per se, I think its the system.After all you can only be hysterical if you have a womb - right? They think we are laying it on thick. > The endocrinologist said to me: "Maybe you are imagining everything?". Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 Because if you did this then the doctors could say that its your own fault for not taking the medicines as prescribed. Glynis > HI LILIAN > How about this plan, why do we not accept these drugs that we know are not going to help us and then send them all to our local MP'S in disgust, as nobody is going to get better on them only worse plus many other drugs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 HI I do believe that this needs another view presented. Physicians, if they truly do know what is going on are not in any position to do anything about it without risking a trip to the GMC. And the rest are kept in the dark by medical associations that do not want physicians to know about post thyroid functions and the mimics of hypothyroidism that they occasionally cause by their deficiencies. So given that they are also human and do get frustrated with their inability to properly care for the victims, who happen to be mostly women (9:1), you can see that as humans they can say the wrong things. I have been studying this issue for the best part of eight years. And I can say with no doubt that medical practice ignores the medical science that pertains to your symptoms and it has been doing so for many decades. As early as 1947 medical practice was warned that levothyroxine did not mitigate the symptoms of hypothyroidism in all patients. In 1960-1, Dr. Marshall Goldberg empirically found euthyroid (your thyroid is OK) hypometabolism (but you are dragging anyway). Circa 1970, Drs. Refetoff and Braverman and their respective staffs discovered peripheral hormone reception and peripheral metabolism. When these functions are deficient, you do have the symptoms of hypothyroidism. Drs. Baisier, Hertoghe, and Eeckhaut studied the failures of endocrinology, ie. those treated with levothyroxine sodium and found that they did indeed have the same symptoms and, in a followup study, they could be treated with desiccated thyroid successfully. Additionally, we know that T3 is required for proper function of the nuclei and mitochondria of the body's cells. The experiences of those on TPA registry for patient counterexamples declare that the dictates from endocrinology are not reliable, i.e., they don't fit everyone. If there were medical justice, then this would not be a problem. If there were medical justice then this would not have been a problem for long. However, medicine is notorious for the saving the faces of the masters of medicine when they are wrong. It cause them much less pain if the patients just keep on suffering. So much for medical ethics of putting the patients well fare first and foremost, keeping up with medical science, and being honest in all professional relationships. Have a great day, > > > > After all you can only be hysterical if you have a womb - right? > > Glynis > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2011 Report Share Posted August 2, 2011 "What like the Indian guy father of two who just had a hysterectomy! !!!! I think all men long to have a uterus that is there problem! ."So not penis envy then LOL!Sue x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2011 Report Share Posted August 3, 2011 Sorry I don't believe there are any doctors who give a damn out there!! If there were and they all got together then they could change things, they could follow the NHS protocols if they wanted to, they just can't be bothered. Its just an excuse to say, 'My hands are tied' when they know they are leaving their patients in misery, pain and illness. PLUS its no excuse for the way they talk to us!! My endo thought he was above me till I had a go and reminded him that I've got a dgree too!! Glynis > HI > > I do believe that this needs another view presented. Physicians, if they truly do know what is going on are not in any position to do anything about it without risking a trip to the GMC. > > So given that they are also human and do get frustrated with their inability to properly care for the victims, who happen to be mostly women (9:1), you can see that as humans they can say the wrong things. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2011 Report Share Posted August 3, 2011 I tend to agree with this comment, however until I recently moved I discovered a fab GP, part-time who told me 'I came back after we medics got this incredible pay rise and my wife and I wanted an extension on the house'. (laughed, very funny). However he seemed 'free-er' than others I'd met and was happy to listen and act accordingly, agreed for me to try any meds I wanted and to send me to anyone I wanted to see. I was stunned the first time. He told me 'This is a reciprocal arrangement, we work together and I AM here to try to help you. Appointments took way longer than ascribed. He was a real pet. THEN I moved and had to register somewhere else and boy what a difference. The new one, seemed to be listening as I described nasty symptoms the meds were giving me then he looked at his watch mid-sentence and said you probably just had a migraine. At this point he stood up and apparantly it was all over. Seems to me in the main, now they have a nice fat salary its a case of go to work, stick to the script, go home, play golf ! I dont see doctors as healers any more, just prescription fillers and accountants ! AS McIntyre said, GP's are just people who get a lot money to send you to see other people who know lots of stuff ! Amen to that....... > > Sorry I don't believe there are any doctors who give a damn out there!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2011 Report Share Posted August 3, 2011 MODERATED TO REMOVE MOST OF PREVIOUS MESSAGE: PLEASE REMOVE MOST OF PREVIOUS POST BEFORE POSTING YOUR RESPONSE. THANK YOU. In reflection of my near eight years of studying this hyper mess on hypo, there is one thing that I can claim that I am happy about - I did NOT decide to become a physician. By way of medical councils or boards of medicine and payment mechanisms, physicians professional lives are substantially controlled. Physicians had better limit their ideas to outside efforts and forget applying them to medicine because such ideas are (a) not likely to be accepted because it came from a practicing physician, and ( potentially produces an inquiry from the medical council or board of medicine. The focus point of the anger and frustration that is repeatedly mentioned on these pages is misdirected because physicians are not the independent actors they are claimed to be. Currently, this adrenalin should be aimed at medical associations like the Royal College of Physicians, the British Thyroid Association, the American Association of Clinical Endocrinologists, the American Thyroid Association, etc., and their various slave organizations, as well as medical councils and boards of medicine. They are the ones that can and do transform ambiguity, bad logic, and protocol violations into mass suffering, which is threatened or actually enforced by medical councils or boards of medicine. They are the ones who should hear in quite unmistakable terms just how they vicariously maltreat patients through medical practice guidelines, position papers and council or board judgments. > > Sorry I don't believe there are any doctors who give a damn out there!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2011 Report Share Posted August 4, 2011 You have had a terrible experience of medical practitioners Glynis, but I can assure you that you are so wrong in your belief. I have personally found both horrendous individuals who DARE to call themselves 'doctor' who do NOT give a damn and I have also found wonderful doctors who do. Problem is, there does appear to be insufficient 'good' doctors to get together to change things, and yes, it appears that certain members of the thyroid association not too far from my front door are doing everything they can to try to stop 'good' doctors from daring to diagnose and treat outside of their rigid 'statement' about the diagnosing and treatment of primary hypothyroidism. They are aware that Dr Skinner and other 'good' doctors have a mind of their own and who have stepped outside their recommended protocol are now in the dock, and even if you might be happy to risk your career and livelihood because of your belief, we have to be realistic and realise that most would not. They have given up years of their life to training to become a doctor. I know this should not be an excuse, but facts are facts. Luv - Sheila Sorry I don't believe there are any doctors who give a damn out there!! If there were and they all got together then they could change things, they could follow the NHS protocols if they wanted to, they just can't be bothered. Its just an excuse to say, 'My hands are tied' when they know they are leaving their patients in misery, pain and illness. PLUS its no excuse for the way they talk to us!! My endo thought he was above me till I had a go and reminded him that I've got a dgree too!! Glynis > HI > > I do believe that this needs another view presented. Physicians, if they truly do know what is going on are not in any position to do anything about it without risking a trip to the GMC. > > So given that they are also human and do get frustrated with their inability to properly care for the victims, who happen to be mostly women (9:1), you can see that as humans they can say the wrong things. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.