Re: getting put off T3 - any answers

[Guest guest]

Thanks for the name Bob, but I cant find it in BNF, it just tells me its not

there. Will still ask anyway. Thanks again

Carole

>

>

> Hi Carole,

>

> It's in the BNF under ~

>

> Ubidecarenone

>

> Bob

[Guest guest]

nor me - searched bnf online, couldn't see it....

>

> Thanks for the name Bob, but I cant find it in BNF, it just tells me its not

there. Will still ask anyway. Thanks again

> Carole

[Guest guest]

" So dont be fobbed off with that old nut; we cant prescribe it. "

Hi again,

GP went further than that. She said she couldn't go off those blood results that

I had (mitochondrial testing bloods.) Basically if it's nutritional, or

un-licensed they don't prescribe it.

No doubt these things vary between surgeries.

In the grand scheme of things, I will have achieved something if I secure my T3

prescriptions in the long-term, which is more than I would have, where I was

before.

Glad you get this amount of help though, as financially it must mage a huge

difference.

Fiona

[Guest guest]

Hi fiona,

I agree. One step at a time, although it shouldnt be like that we both know.

I have not been a drain on the NHS previously and it has taken me 30years of pain aggro and hassle to get a diagnosis (privately) and then treatment initiall privately. In the meantime I have tried all sorts of stuff acupuncture, herbs, reflexology, Iridology, hair analysis and multiples of supplements, nutritionalist, homeopathy oh golly you name it.

I could have bought my daughter a lovely house with the money I have 'WASTED' and paid off my own mortgage, because I remained undiagnosed and untreated and with a growing list of symptoms, pains and difficulties. Then at one of my appointments for yet another infection, another GP in my surgery saw me (before diagnosis, but I had repeated said I had hypothyroidism and it was in my notes) and demanded I take Statins as my cholesterol was high and rising, (yes because I was hypoT douh! Tehe; also Statins are contraindicated in hypothyroids!!!).

I do not acquiesce so easily normally, but I took them, (you get tired of fighting sometimes!) . I immediately suffered muscle pain and weakness (which remains). They were changed and this time the side effects were worse and I suffered what iI was later told was mild subarachnoid haemorrhage. It didnt feel mild I can assure you. The headaches were excrutiating and since I am used to pains in my head having suffered sevee migraines for 33years you can imagine, these were horrendous.

I had not experienced these terrible headaches previously before taking Statins and the day I stopped taking Statins I stopped experiencing them. The docs all said no it wasnt the drugs, including a neurologist.!!! OK so what was it a coincidence? Hummmm I think not.

When I got my diagnosis and since I had said for 30+ years I was suffering hypothyroidism and no-one listened. The damage and the trauma I suffered I think made my usual GP (who didnt prescribe the Statins) a little concerned. So when I got my diagnosis and my treatment (thanx to Myhill DOCTOR), he agreed to prescribe my treatment and the vitamins she suggested and then a few more I had previously been taking to support my adrenals (hair analysis) and one or two I added!!!! and of course the CoQ10 to TRY to improve the muscle damage I had experienced from the Statins. Bless him. I will be forever grateful. So I took what was offered. It no way compensates for all of the 30+ years lost, but its better than nothing I suppose.

If I stop the CoQ10 for any reason (I get sick of taking pills and stubournly stop them occ), then the muscle pains and weakness get worse. Dr Duane Graveline has written of his experience in several books on the subject. He suffered side effects and he managed to stave the problems for a while, but I think he is now wheelchair bound! So I wont be pleased if that happens. So I dont feel at all guilty for getting this stuff, but I do tell as many people as possible so that they too may try to get the same support. I am sorry you GP is so difficult.

So yes I am lucky.

"So dont be fobbed off with that old nut; we cant prescribe it."Hi again, GP went further than that. She said she couldn't go off those blood results that I had (mitochondrial testing bloods.) Basically if it's nutritional, or un-licensed they don't prescribe it.No doubt these things vary between surgeries.In the grand scheme of things, I will have achieved something if I secure my T3 prescriptions in the long-term, which is more than I would have, where I was before.Glad you get this amount of help though, as financially it must mage a huge difference.Fiona

[Guest guest]

hello fiona

well that's shame you weren't prescribed them ...must have been wishful thinking

on my part!

were the specialist tests you had done (the mitochondrial function test) private

tests? ...could that be why you were not prescribed coq10 ..coq10 specifically

supports our mitochondria ...it would make sense to prescribe it wouldn't it!

trish

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> > but i was referring to getting coq10 prescribed (as opposed to getting t3

prescribed).

> >

> Hello Trish

>

> I'm afraid I don't get any coq10 or any other supplement prescribed by the GP.

I recall speaking to a pharmacist, who said that none of my list of supplements

are black-listed from prescription though. I guess nothing is impossible, but

clearly the GPs don't see the evidence for supplements, and would rather

prescribe medication only. I did ask though.

>

> Fiona

>

[Guest guest]

Yes Trish, the mitochondria tests were private. You know what GPs are like, if

it's not a blood test from them...

Fiona.