thyroid

[Guest guest]

Vicki and all,

Just a few thoughts on the issue; Our 14 year old was falling asleep

midday, gaining weight on minimal calories, cold extremities, poor

perfusion etc and she could not get tested either. She was

symptomatic for at least 2 years before testing was available. I

think a mom bringing it up put off her doc-arrogance is a tricky

business! Even though values were low, it was not deemed treatable.

It took another 6 months for her blood work to evidence failure.

Cutler had picked this up on a hair test long before her blood work

showed it. I regret not hearing his warning and demanding treatment

or treating it myself! as thyroid function is so important to a

developing brain. You can self order meds from these or other on-line

pharmacies:

http://www.eshoprx.com/index.aspx

http://www.brandmeds.com/pricelist.html

We use Armour Thyroid a T3, T4 product. I've not found it on-line-

maybe someone who has better searching skills than mine could hunt it

up. The active T3 form, thyroxine sodium[generic] also known as

synthroid, levothroid is available on these sites and others.

Reading up on treatment-PDR is a good reference for dosage-; playing

dumb with a doc on `what would be the ideal dosage for someone x's

weight and age if thyroid was a problem?', asking the same of a

researcher or on-line, seeking knowledge on hyper symptoms so you

would clue in if signs of overdose appear etc. You'd have to be

careful of what is in the tablets also if you have a sensitive

child. To me, it's much like the little game we are all playing with

chelation. In our state, it is illegal for a doc to chelate, so I

just keep that info out of the discussion with the great guy who

helps facilitate much of our testing[even though ordered by md is

only sometimes paid for by insurance]. Whatever it takes to get our

children well again!

[Guest guest]

My sister had thyroid disease and they decided to nuke hers. She always says I

should have mine checked too. I'm wondering if I should have them check when

they take blood for my liver test next. I don't want to give blood more than I

*have* to! hehe

When you said you are hungry all the time, is it now because of the medicine

and you weren't before? Were you underweight before or now?

PurplGurl3@... wrote:

Just thought I'd share, in case my experience is helpful to anybody at

any point...

For years I've attributed lots of things to SMA. I'm tired a lot. I get

cold easily. I can't lose weight. I just figured those and other things

were loosely related to SMA and didn't give them much thought. Until I

found out about a month ago that I have an underactive

thyroid--hypothyroidism. I've been taking a pill to regulate it, and

I'm definitely seeing changes lately. I have more energy than ever. I'm

hungry all the time, so my metabolism is definitely speeding up. It's

hard to say about the cold thing, since the weather's been so warm

lately. But wow, who knew these things were actually fixable? No doctor

had ever suggested testing my thyroid before, I only did it because of

a friend's recommendation. Crazy!

I don't know if that might relate to anybody else now or in the future,

but I thought it wouldn't hurt to share.

-e

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[Guest guest]

Re: Thyroid

My sister had thyroid disease and they decided to nuke hers. She

always says I

should have mine checked too. I'm wondering if I should have them check

when

they take blood for my liver test next. I don't want to give blood more

than I

*have* to! hehe

When you said you are hungry all the time, is it now because of the

medicine

and you weren't before? Were you underweight before or now?

It can't hurt to have it checked. Well, it can, if needles hate you as

much as they hate me, but if they're taking blood anyway... My

grandparents both have thyroid issues, and I think my grandma's got bad

enough that they had to do surgery, but my grandpa just takes a pill

every day.

I wish being underweight were my problem! Sorry, I didn't explain well.

According to the charts I don't think I'm necessarily overweight, but

when you take into account the lack of muscle mass, I definitely feel

like I weigh more than I should. I don't eat very much at all, but I'm

still kind of heavy. Even when I've been super sick and spent weeks

unable to keep food down, I've never been able to lose weight. Now I

finally know that inability to lose weight is a common symptom of

hypothyroidism. Since I've been taking the pill, I feel hungry a lot

more often, which tells me that my metabolism is finally speeding up.

Of course if my eating habits increase with my appetite, I'm not going

to lose weight. But I'm not changing my eating patterns drastically, so

I'm crossing my fingers that I'll lose a little. We'll see!

-e

PurplGurl3@... wrote:

Just thought I'd share, in case my experience is helpful to anybody

at

any point...

For years I've attributed lots of things to SMA. I'm tired a lot. I get

cold easily. I can't lose weight. I just figured those and other things

were loosely related to SMA and didn't give them much thought. Until I

found out about a month ago that I have an underactive

thyroid--hypothyroidism. I've been taking a pill to regulate it, and

I'm definitely seeing changes lately. I have more energy than ever. I'm

hungry all the time, so my metabolism is definitely speeding up. It's

hard to say about the cold thing, since the weather's been so warm

lately. But wow, who knew these things were actually fixable? No doctor

had ever suggested testing my thyroid before, I only did it because of

a friend's recommendation. Crazy!

I don't know if that might relate to anybody else now or in the future,

but I thought it wouldn't hurt to share.

-e

A FEW RULES

* The list members come from many backgrounds, ages and beliefs So all

members most be tolerant and respectful to all members.

* Some adult language and topics (like sexual health, swearing..) may

occur occasionally in emails. Over use of inappropriate language will

not be allowed. If your under 16 ask your parents/gaurdian before you

join the list.

* No SPAMMING or sending numerous emails unrelated to the topics of

spinal muscular atrophy, health, and the daily issues of the disabled.

Post message:

Subscribe: -subscribe

Unsubscribe: -unsubscribe

List manager: (Sexy Mature Artist) Email: Esma1999@...

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[Guest guest]

Dear Edith,

Not impossible, but seems unlikely.

Funnel over the thyroid for best results.

Ozone always works by proximity.

Best of Health!

Dr. Saul Pressman

thyroid

> Dr Pressman,

>

> Are you aware of ear insufflations affecting the thyroid in any way?

>

> Thanks,

> Edith

>

>

>

[Guest guest]

Graves is one of the causes of HTN you can suspect when the patient

walks in the room. Indeed I just saw a 40ish lady will new onset

systolic HTN due to classical Graves, buggy eyes, fine skin, tremor etc.

A key way to Dx this is to look at the old driver's license to see if

faces have changed. Her's was remarkable. Indeed I suspect if good

Endocrinologists or Internists could scan all Driver's Lic photos or

Passports we could Dx a number of things that have been missed.

Would be interested in facial photos of both of you years before, at

the time of and after the treatment of the thryoid problems.

Other causes of HTN we can Dx (or at least be suspicious of across

the room) are hypothryoidism, Cushing's, Neurofibratosis (von

Recklinghausens Syndrome), Acromegaly, 's Syndrome all of which

are mentioned in my difficult HTN paper as I recall.

Guess we should be collecting facial photos of all people on our

sites but many might object to this. Or at least have one set early

on for me to look at. We could put a black bar across the eyes to

make it difficult to be recognized.

Could also think about Facebook I suppose but I don't know how to do

this.

CE Grim MD

On Aug 18, 2008, at 2:17 PM, Valarie wrote:

> , I spent nine years, wrapping my elbows with cream and

> bandages

> every night, and wearing long silk underwear year-round. Only when

> my TSH

> got to 78 and I'd gained 55 lbs was I given T4. My weight has never

> normalized and my T3 remains low. Then, I spent 14 years with high

> calcium

> until I got so ill something had to give. Since those times, I have

> taken

> it upon myself to study, study, study. I'm tired of incompetence and

> outright idiots.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of mmcandmcc

>

> I had a similar experience with Thyroid troubles. Because you know

> you're not crazy, you'll keep searching and you will find the answers

> even if it takes a long time. When I went hyperthyroid I went to the

> doc with 190/126, lost 20 lbs in one month and could not sleep. She

> told me I had too many kids, too much stress and needed

> antidepresents and beta blockers. Oh and get more exercise, although

> at the time I was running 20 - 30 miles per week. Three doctors

> later I went to my midwife in dispair who listend to my symptoms and

> said I likely had a thyroid problem and told me to see and Endo. I

> had graves!

>

> Keep searching. I've had a lot of luck with alternative medicine on

> some things and no luck on others.

>

>

>

>

[Guest guest]

Sorry o HAD MY Gallbladder btrmovrf not my thyroid correcyion mike---

In Stimulator , " Mike " <mike2boys@...> wrote:

>

> I just had my throid removed last year after ultrasound showen it was

> bad infected. easy simple surgery dont remeber much mike group

owner

>

[Guest guest]

and look at my typos lol mike

> >

> > I just had my throid removed last year after ultrasound showen it

was

> > bad infected. easy simple surgery dont remeber much mike group

> owner

> >

>

[Guest guest]

I'm using the Canadian brand, Erfa. This is actually rather easy to

obtain, as long as you have a script for any brand of desicated thyroid

medication. And the price was very reasonable.

Amy

jessie70 wrote:

>

>

> Amy, which brand of dessicated thryoid do you use? Thanks, Jess

> Re: Question On Brands of DHEA

>

> Interesting. My story is similar but in reverse. I began on Enbrel,

> then to Humira because of severe pain. After a couple years I found

> desicated thyroid hormone, after which the pain just became - absent.

>

> I tested strongly for RA, but for the past 5 yrs, since I raised my ft3

> to top of lab range, I haven't needed to use DMARDs. Swear to God, I

> now have no pain, whatsoever.

>

> There are some pubmed studies to support this. I read one on

> testosterone for men. In one group I belong to, a woman had a wonderful

> reduction in RA after beginning a mixture of hormones that included dhea.

>

> I presume that not everyone with RA would have this benefit. But I do

> wonder if there could be a lot of people who could be helped. It took a

> long time for me to find help, because mainstream doctors rely on TSH

> test, which is not a reliable indicator of adequate thyroid hormone for

> all people. This is a subject I could go on & on & on & on.... you get

> the idea.

>

> Amy

>

> Ann wrote:

> >

> >

> > I used to take 250 mg of DHEA. At very high doses it 's definitely

> > effective for arthritis, at least for me. I had rheumatoid

> > arthritis. But like I said before, it was produced by GEN Lab

> > (GEN lab is no longer allowed to produce DHEA.)

> > Now I'm on prescriptions instead. .. Humira. Very expensive stuff.

> >

> > Ann

> >

>

>

[Guest guest]

I also live in Canada, but have had a problem finding dissicated thyroid that

does not have corn or cornstarch in it as a filler [i am allergit to corn]. Does

this Erfa have corn/cornstarch in it? I usually either have to have a

compounding pharmacy make it up for me or get Nature-Thyroid from the

International Womens Pharmacy in the States.

blessings

Shan

> > >

> > >

> > > I used to take 250 mg of DHEA. At very high doses it 's definitely

> > > effective for arthritis, at least for me. I had rheumatoid

> > > arthritis. But like I said before, it was produced by GEN Lab

> > > (GEN lab is no longer allowed to produce DHEA.)

> > > Now I'm on prescriptions instead. .. Humira. Very expensive stuff.

> > >

> > > Ann

> > >

> >

> >

[Guest guest]

That's a shame. Don't know why manufacturers can't use starch from rice.

Yes, Erfa does use corn starch.

Amy

Shan wrote:

>

>

> I also live in Canada, but have had a problem finding dissicated

> thyroid that does not have corn or cornstarch in it as a filler [i am

> allergit to corn]. Does this Erfa have corn/cornstarch in it? I

> usually either have to have a compounding pharmacy make it up for me

> or get Nature-Thyroid from the International Womens Pharmacy in the

> States.

> blessings

> Shan

>

[Guest guest]

Many people like Nature-Throid. Hopefully it's return to regular stock

in January will make things easier for all of us.

Shan wrote:

>

>

> I also live in Canada, but have had a problem finding dissicated

> thyroid that does not have corn or cornstarch in it as a filler [i am

> allergit to corn]. Does this Erfa have corn/cornstarch in it? I

> usually either have to have a compounding pharmacy make it up for me

> or get Nature-Thyroid from the International Womens Pharmacy in the

> States.

> blessings

> Shan

>

[Guest guest]

At the moment the International Womens Pharmacy will only ship a month's worth

at a time - and the added cost of shipping each month is ridiculous so I am

waiting until they will ship a year's worth or more as it used to . There seem

to be a lot of extra costs at the Canadian border as well as hassels when

getting prescription medications from the States, for some strange reason.....

blessings

Shan

> >

> >

> > I also live in Canada, but have had a problem finding dissicated

> > thyroid that does not have corn or cornstarch in it as a filler [i am

> > allergit to corn]. Does this Erfa have corn/cornstarch in it? I

> > usually either have to have a compounding pharmacy make it up for me

> > or get Nature-Thyroid from the International Womens Pharmacy in the

> > States.

> > blessings

> > Shan

> >

>

>

>

[Guest guest]

If WIP were smart, they would capture the opportunity brought by the

drought to win some customers. Perhaps another pharmacy exists that will

provide service to you & others. In my limited experience, compounders

always charge a lot. Although it should be the easiest, it's much

harder to get pure.

My most recent ft3 test from Erfa came back low. I don't know if the

cause is Erfa, or something else.

Shan wrote:

>

>

> At the moment the International Womens Pharmacy will only ship a

> month's worth at a time - and the added cost of shipping each month is

> ridiculous so I am waiting until they will ship a year's worth or more

> as it used to . There seem to be a lot of extra costs at the Canadian

> border as well as hassels when getting prescription medications from

> the States, for some strange reason.....

> blessings

> Shan

>

>

> > >

> > >

> > > I also live in Canada, but have had a problem finding dissicated

> > > thyroid that does not have corn or cornstarch in it as a filler [i am

> > > allergit to corn]. Does this Erfa have corn/cornstarch in it? I

> > > usually either have to have a compounding pharmacy make it up for me

> > > or get Nature-Thyroid from the International Womens Pharmacy in the

> > > States.

> > > blessings

> > > Shan

> > >

> >

> >

> >

[Guest guest]

So you need to be adding iodine to your diet if your body absorbs it

that fast!

G

" It came to me that every time I lose a dog they take a piece of my

heart with them. And every new dog who comes into my life gifts me

with a piece of their heart. If I live long enough, all the

components of my heart will be dog, and I will become as generous and

loving as they are. " ~Cheryl Zuccaro

On Sep 14, 2010, at 5:36 PM, Kathe Farrell wrote:

Hi Bev.

Just wanted to jump in here and mention that I put some tincture of

iodine

(2.5%) on my arm. It disappeared within 4 hours !

Kathe

[Guest guest]

Right

It was the 24 hour test minus 20. Love the paragraph about dogs.

________________________________

From: <seraphimtoo@...>

kombucha tea

Sent: Tue, September 14, 2010 7:51:34 PM

Subject: Re: thyroid

So you need to be adding iodine to your diet if your body absorbs it

that fast!

G

" It came to me that every time I lose a dog they take a piece of my

heart with them. And every new dog who comes into my life gifts me

with a piece of their heart. If I live long enough, all the

components of my heart will be dog, and I will become as generous and

loving as they are. " ~Cheryl Zuccaro

On Sep 14, 2010, at 5:36 PM, Kathe Farrell wrote:

Hi Bev.

Just wanted to jump in here and mention that I put some tincture of

iodine

(2.5%) on my arm. It disappeared within 4 hours !

Kathe

[Guest guest]

Seawead, but must make sure it is tested, having a good source is important.

lov

Jahjet

>

> Hi Bev.

>

> Just wanted to jump in here and mention that I put some tincture of

> iodine

> (2.5%) on my arm. It disappeared within 4 hours !

> Kathe

>

>

>

>

>

>

>

[Guest guest]

Seawead, but must make sure it is tested, having a good source is important.

lov

Jahjet

>

> Hi Bev.

>

> Just wanted to jump in here and mention that I put some tincture of

> iodine

> (2.5%) on my arm. It disappeared within 4 hours !

> Kathe

>

>

>

>

>

>

>

[Guest guest]

I figured that was the test you were talking about. Seaweed really is

a great source and tasty too!

Thanks, I saw the quote and it has and always seems to ring true for

me and haven't changed it since.

G

" It came to me that every time I lose a dog they take a piece of my

heart with them. And every new dog who comes into my life gifts me

with a piece of their heart. If I live long enough, all the

components of my heart will be dog, and I will become as generous and

loving as they are. " ~Cheryl Zuccaro

On Sep 14, 2010, at 9:43 PM, Kathe Farrell wrote:

Right

It was the 24 hour test minus 20. Love the paragraph about dogs.

[Guest guest]

What is that? A test? How do you do that?

>

> Hi Bev.

>

> Just wanted to jump in here and mention that I put some tincture of iodine

> (2.5%) on my arm. It disappeared within 4 hours !

> Kathe

>

>

>

>

>

> ________________________________

> From: yoganandaom <OM@...>

> kombucha tea

> Sent: Tue, September 14, 2010 12:23:59 PM

> Subject: Re: New Member

>

>

> Hi Jerri,

>

> Welcome to the Original Kombucha list!

>

> The issue you describe sounds like it could be low thyroid hormone

> production...also called Hypothyroidism. I made a website about it here

>

> http://users.bestweb.net/~om/thyroid/

>

> I know you will find what you need, just keep searching until you do. Be well!

>

> Peace, Love and Harmony,

> Bev

>

>

>

>

[Guest guest]

I believe Kombu is the best for iodine. You can get it in a powder, and in

capsules.

> >

> > Hi Bev.

> >

> > Just wanted to jump in here and mention that I put some tincture of

> > iodine

> > (2.5%) on my arm. It disappeared within 4 hours !

> > Kathe

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi!

Just swab a patch of the liquid on the skin. If the tincture is not visible

after 24 hours then it means it was needed and absorbed into the body.

Kathe

________________________________

From: tamaratornado <tamaratornado@...>

kombucha tea

Sent: Wed, September 15, 2010 6:00:29 AM

Subject: Re: thyroid

What is that? A test? How do you do that?

>

> Hi Bev.

>

> Just wanted to jump in here and mention that I put some tincture of iodine

> (2.5%) on my arm. It disappeared within 4 hours !

> Kathe

>

>

>

>

>

> ________________________________

> From: yoganandaom <OM@...>

> kombucha tea

> Sent: Tue, September 14, 2010 12:23:59 PM

> Subject: Re: New Member

>

>

> Hi Jerri,

>

> Welcome to the Original Kombucha list!

>

> The issue you describe sounds like it could be low thyroid hormone

> production...also called Hypothyroidism. I made a website about it here

>

> http://users.bestweb.net/~om/thyroid/

>

> I know you will find what you need, just keep searching until you do. Be well!

>

> Peace, Love and Harmony,

> Bev

>

>

>

>

[Guest guest]

Thanks and Jahjet,

Going to see about getting some Seaweed. Any suggestions on how to know if it

is a good source? I've never tried it before.

Kathe

________________________________

From: <seraphimtoo@...>

kombucha tea

Sent: Wed, September 15, 2010 1:17:33 AM

Subject: Re: thyroid

I figured that was the test you were talking about. Seaweed really is

a great source and tasty too!

Thanks, I saw the quote and it has and always seems to ring true for

me and haven't changed it since.

G

" It came to me that every time I lose a dog they take a piece of my

heart with them. And every new dog who comes into my life gifts me

with a piece of their heart. If I live long enough, all the

components of my heart will be dog, and I will become as generous and

loving as they are. " ~Cheryl Zuccaro

On Sep 14, 2010, at 9:43 PM, Kathe Farrell wrote:

Right

It was the 24 hour test minus 20. Love the paragraph about dogs.

[Guest guest]

Not sure. I buy mine at an asian market in my area and most of the

writing is in Kanji. I pick different kinds of seaweed and see what I

like which is most of it. Its dried of course but it all looks and

tastes good. A tip is that after you soak what you're going to use it

will be more than what you started with. So if your recipe calls for a

cup, that's a cup of soaked not dried. If you're just going to add it

to a salad this isn't really important, and any extra will keep in the

fridge for a couple of days. Just throwing that out there.

G

" It came to me that every time I lose a dog they take a piece of my

heart with them. And every new dog who comes into my life gifts me

with a piece of their heart. If I live long enough, all the

components of my heart will be dog, and I will become as generous and

loving as they are. " ~Cheryl Zuccaro

On Sep 15, 2010, at 7:19 AM, Kathe Farrell wrote:

Thanks and Jahjet,

Going to see about getting some Seaweed. Any suggestions on how to

know if it

is a good source? I've never tried it before.

Kathe

[Guest guest]

My son is in Canada at the moment and he can get me this thyroid medication.

http://www.nationalnutrition.ca/detail.aspx?ID=1228

is this any good?

Many thanks

Helen

[Guest guest]

Hi Helen:

This is not a thyroid medication which contains the hormones T4, T3, T1, T2..

This looks like just a thyroid booster, which really isn't going to boost much.

What is it that you need? Do you need to be on Natural thyroid meds or just an

adrenal glandular or a thyroid glandular?

Cheers,

JOT

> My son is in Canada at the moment and he can get me this thyroid medication.

> http://www.nationalnutrition.ca/detail.aspx?ID=1228

> is this any good?

> Many thanks

> Helen

>