Update

[Guest guest]

So went to Doc's this morning, armed with all my info. I'd prepared a letter

but it had only been scanned onto my patient record so she hadn't been able to

read it prior to meeting.

So I had to quickly cover as much ground as possible - said I was cold all the

time, showed her my up and down BBT - all permanently under 36.6c and discussed

the family history, previous tests done, the tiredness etc...

I led into - " i got an introduction to this endo (from Sheila's list) and had

the chance to ask a few questions about the results - he pointed out that low

TSH and lo-ish ft4 could mean... " and she chimed in with me - pituitary issues.

So thankfully a doc that didn't seem to assume that my TSH/FT4 meant an instant

" there's nothing wrong " and someone who knew a bit about pituitary too!

So she's taken bloods to look at LH, FSH, Testosterone, prolactin and FREE t3

:-) however she did say there was a chance the lab would just ignore the request

for FT3. Think she did anti-bodies as well. There were only 3 vials. Oh and

ESR (for inflammatory but i feel that's a bit pointless with my wheat

" intolerance " as it doesn't pinpoint where the inflammation is!

I also explained to her I was keen to know if my T4 was converting to t3 as

explained by Toft and she agreed that Toft was " excellent " in his knowledge of

this area. (just prepping her for a possible dessicated request!)

She seemed very non-judgemental, was happy to listen to what I had to say and is

going to go over the results with me when they arrive.

She did say to my printout of about 20 NHS trusts each with a different Freet4

range (some starting at 9, some 10, some 11 and some 12!) that it's the

equipment that's different that causes these fluctuations. Not sure about that.

But she acutally examined my neck with her hands and did an eye test for " tunnel

vision " - a common pit complaint. I also mentioned that PCOS sometimes goes

hand in hand with pit due to the hormonal imbalances...so she was happy to check

for that, as I confirmed a few of the symptoms there.

Anyhoo....

So she didn't mention anything about the adrenals, even though my temp chart is

up and down like a yo-yo. What should I do there?

I'm fairly sure my pit is messing up thyroid, adrenals and possibly a few girly

hormones but only ever so gently that it's only just presenting a few symptoms

in each area. I'd like to nip this in the bud immediately to improve the

prognosis for future quality of life.

ta and Sheila thank you very much for all your help. Interestingly that Doc

search did point to most of them being diabetic specialists (understandably as

it's rife - but sad they haven't realised yet that thyroid probs are probably

just as rife!) but so was the Doc on your list that I emailed- he's quite senior

in his NHS Trust as a Diabetologist!

take care ya'll