dales Purified Thyroxine; who is on it?

[Guest guest]

Hi all,

I am just wondering how many of us here are taking 'purified' thyroxine from dales? I would be very interested in hearing from others.

I have just managed to get a script from a private doc and I want to give it a fair trial but I am not going to spend 4 years waiting for some improvement like I did with the NHS levothyroxine.

I feel if this stuff is going to help any then surely 6-8 weeks is long enough? I always have NT to fall back on but on its own it just isn't doing the job.

Any experiences to share?

Regards Peary

[Guest guest]

Just bumping this up in case some folk missed it...

>

> Regards Peary

>

[Guest guest]

Hi all

Well,it seems I will not be getting to try my purified thyroxine from dales after all.

I am sat here in floods of tears having just been to Boots to collect it.To be told the cost for 84 capsules is £367And thats without Boots handling charge.Needless to say I did not pay for it.

So...another dead end.10 and a half years of this *******hell.No solutions.Just more torment.Don't think I can bounce back from this one.

A very sad Peary

[Guest guest]

I know some of our members are Peary - but can't remember who

they are right now. Anybody taking the dale's pure form of thyroxine,

please let Peary know.

Luv - Sheila

Just bumping this up in case some folk missed it...

>

> Regards Peary

>

[Guest guest]

Peary, if your NHS doctor prescribed dale's Pure

Thyroxine, with an NHS prescription, then you do not have to pay for it. What Boots

are charged they reclaim from the NHS - all of it. You pick it up in the same

way as you pick up your levothyroxine prescription.

Luv - Sheila

Hi all

Well,it seems I will not be getting to try my purified thyroxine from

dales after all.

I am sat here in floods of tears having just been to Boots to collect it.To

be told the cost for 84 capsules is £367And

thats without Boots handling charge.Needless to say I did not pay for it.

So...another dead end.10 and a half years of this *******hell.No

solutions.Just more torment.Don't think I can bounce back from this one.

A very sad Peary

[Guest guest]

Hi Sheila,

No,its a private prescription unfortunately...

I've been forced into a position to consult private doctors as the NHS have done nothing to help me with my TD over a 10 year period.I expected the cost to be high for the purified stuff,perhaps £100 for 84 tabs.But £367? I am unemployed.Its just outrageous.

This dales stuff sure must be good.Of the few I've come across on other forums taking it they all seem to be doing well on it.Pity its unobtainable.

>> Peary, if your NHS doctor prescribed dale's Pure Thyroxine, with an> NHS prescription, then you do not have to pay for it. What Boots are charged> they reclaim from the NHS - all of it. You pick it up in the same way as you> pick up your levothyroxine prescription.> > Luv - Sheila

[Guest guest]

I am on dale Thyroxine. My GP prescribes it to me because I am lactose intolerant. I have been on it for about 5-6 years, beforehand I used to get my Thyroxin from Hungary (where I am from originally) and that thyroxin was lactose-free. When I couldn't get it from Hungary anymore, they tried me on different thyroxins but the normal one gave me upset stomach and diarrhoea, and they do a liquid one, which just tasted rubbish. dale Thyroxin prescription has to be hand-written by my GP, the order is for '84 lactose-free capsules'. If you GP doesn't prescribe it for you, be very firm (I always am) and tell them that the other one is making you sick and you want to try dale. If he is unhelpful, change GPs. I had a few GPs now who prescribed it no

problem.Good luck!Anita.

[Guest guest]

Don't know if it will help anyone reading this thread, but if you were looking for a lactose free thyroid medication, Greater Pharma in Thailand did confirm when I enquired that Thiroyd (that's what they call their generic Armour Thyroid) is indeed lactose free; I'll copy and paste their reply to me below. I have been taking Thiroyd for over 2 years and I am extremely happy with it... plus – it is very cheap and it comes straight to the door (no customs, so far). – Sadly, I never received the promised `list of ingredients' ....

Best wishes

Copy of their reply to my enquiry in 2010:

Thank you for your email.

Please be informed that the Armour Thyroid by Greater Pharma contains a minimal amount of gluten, because the product is made from corn starch but Lactose is not included.

By the way, we are now waiting for the lists of all ingredients from our supplier. We will advise you again then. Please kindly wait.

Should you have any further inquiries, please feel free to contact us again. Best Regards,Support Teamcontact@...http://www.1drugstore-online.comhttp://www.1drug.com

[Guest guest]

Seems they want to keep it secrete . On Janie's site

she states:

THIROYD (yes,

that’s how they spell it) by Greater Pharma Ltd., a

leading Thai Pharmaceutical Manufacturer. An email to a patient by Greater Pharma

states that “thiroyd” at one grain contains T3 at 8.31 microgram;

T4 at 35 microgram, which is 0.013% and 0.058% respectively. Thyroid patient

states: The Thiroyd tablets are white and have a sweet taste

almost like papaya or a similar fruit. They dissolve very well sublingually and

seem to have a very good potency. Entire paper insert with info is

written in English: Greater Pharma Manufacturing Co. Ltd , 55/2

Phutthamonthon, Nakhon, Pathom. Like Thyroid-S, this is ordered

over the net.

****If you can find out what the additional fillers are,

please let me know via the Contact Me form.

Don't know if it will help anyone reading this thread,

but if you were looking for a lactose free thyroid medication, Greater

Pharma in Thailand did confirm when I enquired that Thiroyd (that's what

they call their generic Armour Thyroid) is indeed lactose free; I'll copy and

paste their reply to me below. I have been taking Thiroyd for over 2 years and

I am extremely happy with it... plus – it is very cheap and it comes

straight to the door (no customs, so far). – Sadly, I never received the

promised `list of ingredients' ....

Best wishes

Copy of their reply to my enquiry in 2010:

Thank you for your email.

Please be informed that the Armour Thyroid by Greater

Pharma contains a minimal amount of gluten, because the

product is made from corn starch but Lactose is not included.

By the way, we are now waiting for the lists of all

ingredients from our supplier. We will advise you again then. Please kindly

wait.

Should you have any further inquiries,

please feel free to contact us again.

Best Regards,

Support Team

contact@...

http://www.1drugstore-online.com

http://www.1drug.com

[Guest guest]

Hi Peary,

Why not try NatureThroid? This is hypoallergenic and so although including T3 which your thyroxine doesn’t – this just might be the answer for you. I cannot believe that I feel so well on it after years of changing what I am taking each year or so or more regularly. I am now settled on 2.25 grains & feel better than I have for more years than I can remember. I should add that it took me a few months of it before I was sure that I had done the right thing (wondering if it felt effective enough) so if you try this route be very patient. Inhousepharmacy charges £17.83 for 100 1 grain pills so below the £18 for VAT & RoyalMail charge so this works out quite reasonable, and they break ok (I just use my thumb nails) for my 1/4 grain.

Val

thyroxine fromdales after all.To be told the cost for 84 capsules is £367 [:- & ] And thatswithout Boots handling charge.

[Guest guest]

Hi peary,

I'm just in the process of getting a private prescription for dales

purified thyroxine for my daughter. I've have been quoted £117.76 for 100

tablets or £114.45 for 30 tablets. Thats with the Co-op Pharmacy.

we are just deciding which filler to have Avicel cellulose or Calcium carbonate.

And it takes two working days for them to get it.

Judy

>

>

> Hi all

>

> Well,it seems I will not be getting to try my purified thyroxine from

> dales after all.

>

> I am sat here in floods of tears having just been to Boots to collect

> it.To be told the cost for 84 capsules is £367 [:- & ] And thats

> without Boots handling charge.Needless to say I did not pay for it.

>

> So...another dead end.10 and a half years of this *******hell.No

> solutions.Just more torment.Don't think I can bounce back from this one.

>

> A very sad Peary

>

[Guest guest]

Forgot to say my order is for 25mcg of thyroxine. I don't know if more thyroxine

would cost any more.

Judy

[Guest guest]

I you officially diagnosed hypothyroid by the NHS and couldn't

get better with their synthetic thyroxine. If so, then your doctor should be

giving you a prescription for dale's Pure Thyroxine. I would try give the

Nature Throid (that contains natural T4. T3, T2, T1 and calcitonin) or

'Thiroyd' which contains the same, but neither contain Lactose, a try to see if

that helps. The 'Thiroyd' is very cheap and might be exactly what you need.

The fact remains that if the T4 is not converting into the

active thyroid hormone T3, you are going to feel pretty bad and unable to get

better. Is there any reason why you couldn't give these a go. I mean, have you

tried NDT previously without success?

Luv - Sheila

Hi Sheila,

No,its a private prescription unfortunately...

I've been forced into a position to consult private doctors as the

NHS have done nothing to help me with my TD over a 10 year period.I

expected the cost to be high for the purified stuff,perhaps £100 for 84

tabs.But £367? I am unemployed.Its just outrageous.

This dales stuff sure must be good.Of the few I've come across

on other forums taking it they all seem to be doing well on it.Pity its

unobtainable.

--- In

_

[Guest guest]

I'm not sure Naturethroid is hypoallergenic

Here's a list of contents from Stop the thyroid madness

http://www.stopthethyroidmadness.com/armour-vs-other-brands/

>

> Hi Peary,

>

> Why not try NatureThroid? This is hypoallergenic and so although including T3

which your thyroxine doesn’t †" this just might be the answer for you.

[Guest guest]

Hi,

Thank you to everyone that has responded on this thread.

Here I am again up at stupid o'clock in the morning..just too upset to sleep.

The truth is that over a decade there is not much left that I haven't tried.I honestly feel I have exhausted every possibility.I have spent thousands,seen 4 private doctors, had umpteen blood tests,have tried hormones,vitamins,complimentary therapies.I've cried...alot.I've prayed to God.

I have tried all the desiccated products including Thiroyd,Thyroid-S,Nature-throid,West-throid,Armour,Erfa etc..I had ordered Acella a few weeks back and even that hasn't turned up in the post.

Although I am nowhere near as bad as I was on NHS thyroxine the NT just isn't doing it for me.I still have my hypo symptoms and whenever I try to raise I feel the T3 in it is too much for me.Adding in ordinary T4 doesn't work because it doesn't work on its own and I am intolerant to it.Thats why I wanted to try the dales stuff.

My last blood test results were:

TSH- 6.83 (0.35-4.94)

FT3- 4.69 (2.63-5.70)

FT4- 15.0 (9.0-22.0)

Obviously my TSH is too high but if I were to increase with Armour for instance my TSH would be something like 0.02. My FT4 would be around 12 and FT3 would be normal/high. And I would still feel shit so I now know after many years that this mix isn't right for my physiology.

I know I am converting ok so it seems logical to me that I need to increase my free thyroxine level up to say 22 or perhaps even exceeding it(as per Toft recommends!)but I need a T4 product I can tolerate and that is the problem.My FT4 has never been above 15 since this nightmare began over a decade ago.I think this is the key to me feeling better.I really do and the private doc I've been seeing agrees.

I agree that my NHS GP should prescribe the purified T4 for me but I know they won't.They refused to prescribe Armour and won't acknowledge any writings from private doctors.So what can I do? I want to fight it but like many of you, confrontation makes me ill.I just think that after 10 years of this its time I got well and for my own sanity I need to start thinking about something else other than this illness.

Regards Peary

[Guest guest]

Hi Peary, The only thing that springs to mind is T3 only- have you tried that?- If your have RT3 issues then no amount of thyroid meds that contain T4 will help as the RT3 blocks the receptors. for more info on this see Nick's RT3 pages http://www.thyroid-rt3.com/ you don't need T4- it's a prohormone which has very little if any activity in that form- it has to convert to T3- and some of us can't do that. The problem is that for some of us going by test results is pointless. If you take T3 alone you will have an undetectable TSH, very low T4 and high T3- that's how my results have been for years and I'm well and happy, I'm a patient not a test result! If you can't tolerate it then it indicates that there is something else going on- some folk have to make progress very slowly indeed- often there are no quick fixes as you have already discovered. BUT before you start to go down the T3 alone route it would be sensible to make sure that your adrenals can cope and there are no other factors such as candida, low vits, especially iron zinc and selenium and minerals as these can really make a difference. thyroid treatment From: pearypeary@...Date: Fri, 13 May 2011 03:00:24 +0000Subject: Re: dales Purified Thyroxine; who is on it?

Hi,

Thank you to everyone that has responded on this thread.Although I am nowhere near as bad as I was on NHS thyroxine the NT just isn't doing it for me.I still have my hypo symptoms and whenever I try to raise I feel the T3 in it is too much for me.Adding in ordinary T4 doesn't work because it doesn't work on its own and I am intolerant to it.Thats why I wanted to try the dales stuff.

My last blood test results were:

TSH- 6.83 (0.35-4.94)

FT3- 4.69 (2.63-5.70)

FT4- 15.0 (9.0-22.0)

Obviously my TSH is too high but if I were to increase with Armour for instance my TSH would be something like 0.02. My FT4 would be around 12 and FT3 would be normal/high. And I would still feel shit so I now know after many years that this mix isn't right for my physiology.Regards Peary

[Guest guest]

You know Peary, you really need to write

a letter to your GP and send a copy to the Head of Practice. It is quite

appalling that you should be treated in this way. So you HAVE been officially

diagnosed as suffering with hypothyroidism, otherwise they would not have given

you a prescription for levothyroxine - so because you are unable to tolerate

lactose, or whatever it is in the fillers, your GP has no option but to give

you a prescription for the dale's Pure Thyroxine.

In your letter, list all of your

symptoms and signs. Take your temperature before getting out of bed in a morning

and list these if they are less than 97.8 degrees F (36.6 degrees C).

List the blood tests you now need to be

done which are a full thyroid function test which should include TSH, free T4

and free T3. List all the other minerals and vitamins that specifically need to

be tested to see whether any of these are low in the reference range - these

are: ferritin, vitamin B12, vitamin D3, magnesium, folate, copper and zinc.

Tell your GP at this stage that you are happy and willing to provide citations

to the medical research to show the connection between low levels and hypothyroidism

and how low levels stop the thyroid hormone being fully utilised at the

cellular level. Ask that when these results have been received, you are sent a

copy of them, together with the reference range for each test done. Doctors

cannot withhold these test results, or, indeed, any of the information that is

in your medical notes.

At this point, mention that after you

were prescribed the synthetic levothyroxine-only medication that you found you

could not tolerate it, but that you have now learned that NHS doctors can

prescribe dale's Pure Thyroxine and that you would like a trial of this,

and therefore would she please give you the required prescription for this.

Information as to the correct way a doctor should prescribe this and the

procedure they should follow is in our FILES section under 'Pure T4 and T3 from

dale's' or something similar.

Write that you wish your letter of

request to be placed into your medical notes and that you have sent a copy to

the Head of Practice (keep a copy for yourself in case you need it at a later

date.

Stick it in an envelope and place in it

a stamped addressed envelope for youor GP's reply.

I know you don't like

confrontation, who does? However, you cannot go on the way you are, and this is

your right and entitlement and your GP MUST work with you and take into

consideration any suggestions you make regarding your treatment. See 'Duties of

a Doctor registered with the General Medical Council http://www.gmc-uk.org/guidance/good_medical_practice/duties_of_a_doctor.asp.

It is much less confrontational writing a letter and is much more likely to

produce results - even if you think they will not listen. You should not

believe your doctor will refuse you dale's simply because they refused to

prescribe Armour. They are ALLOWED to refuse you a prescription of Armour

because it still remains UNLICENSED, and it is up to each individual doctor

whether they take the risk to do so or not. Should anything happen to you

whilst they are prescribing Armour and you sue, their medical insurance does

not cover them. This is NOT the case with dale's. You need thyroid

hormone replacement, you cannot tolerate the one and only NHS levothyroxine and

its fillers, so they have to give you a trial of the pure form.

If your letter is ignored, then you can

ask ICAS to take up your case - you will find them extremely helpful.

We keep mentioning this, but when a

person is taking natural desiccated thyroid extract, TSH is quite unnecessary,

for all who are taking either synthetic T3 or NDT, TSH will ALWAYS be

suppressed. This is what is supposed to happen. Thyroid Stimulating Hormone is

ONLY needed when it recognises there is insufficient thyroid hormone being

secreted by your thyroid, so secretes more to tell the thyroid to start pumping

out more hormone. When you are taking all the thyroid hormones your body needs,

there is simply no more need for your pituitary to secrete more TSH - so it

stays suppressed. That's the way it works and what its supposed to do.

Luv - Sheila

Although I am nowhere near as bad as I was on NHS thyroxine the NT

just isn't doing it for me.I still have my hypo symptoms and whenever I try to

raise I feel the T3 in it is too much for me.Adding in ordinary T4 doesn't work

because it doesn't work on its own and I am intolerant to it.Thats why I wanted

to try the dales stuff.

My last blood test results were:

TSH-

6.83 (0.35-4.94)

FT3-

4.69

(2.63-5.70)

FT4- 15.0

(9.0-22.0)

[Guest guest]

have you checked progesterone? if you google that, there's plenty of info:

http://www.thyroid-info.com/articles/thyroid-and-menopause.htm

" Secondly, thyroid hormones have similarities with certain metabolites of

estrogen and progesterone, and receptor sites for thyroid uptake can be blocked

or facilitated by estrogen and progesterone. Imbalances of thyroid hormones T3

and T4, combined with imbalances of estrogen and progesterone, can produce many

different consequences in the areas of mood, temperature regulation, fluid

retention, energy and sleep. It's sometimes very difficult to answer the

question, " Is it my thyroid, or is it menopause? "

ok i know it's a menopause site, but there is plenty of other info on

progesterone and thyroid

>I have exhausted every possibility.I have spent

> thousands,seen 4 private doctors, had umpteen blood tests,have tried

> hormones,vitamins,complimentary therapies.I've cried...alot.I've prayed

> to God.

can you be a bit more specific? Maybe you've not tried something that someone

else has tried? there's plenty of people on this site with different ideas and

experiences, maybe someone can help, but if we don't know what you've tried, we

can't offer suggestions? with you on the praying thing, been that bad too.

i know i keep going on about the hertoghe questionnaire (in the files, medical

questionnaires), but i find it helpful. have you done that, what does it show?

chris

>

>

> Hi,

>

> Thank you to everyone that has responded on this thread.

>

> Here I am again up at stupid o'clock in the morning..just too upset to

> sleep.

[Guest guest]

hi again Peary

just going through some of your old posts to see if there's anything i can think

of to help

you asked last year about natural herpes cures i believe? did you ever pursue

this? i read about herpes a year or two ago, i gather it can cause great

problems.

http://www.zombieinstitute.net/Viruses.htm

did you consider this avenue on a hunch or after research?

also what happened when your saw the internal medical doctor, did they help?

have you done a parasite cleanse? I tried humaworm a couple of times, found it

helpful.

chris

[Guest guest]

Just seen your reply Sheila!

I know you are right.It really isn't fair that everyone around me suffers as a result of this ongoing nightmare.It really has been going on far too long.

I think I just want to protect myself (and everyone else) from more hurt and anger.They really are an awful bunch at my local surgery.But,I have made a decision that I am going to do something about it.

I am either going to allow this private doc who I've been seeing in Edinburgh to write on my behalf or write a letter myself.Not sure what is the best option.In the meantime I am still going to try and access some purified thyroxine from a cheaper source if at all possible because I would be in a more favourable position if i knew it was actually going to help me first!

I will let you know in due course if there are any developments .

Thanks again.

Peary>> You know Peary, you really need to write a letter to your GP and send a copy> to the Head of Practice. It is quite appalling that you should be treated in> this way. So you HAVE been officially diagnosed as suffering with> hypothyroidism, otherwise they would not have given you a prescription for> levothyroxine - so because you are unable to tolerate lactose, or whatever> it is in the fillers, your GP has no option but to give you a prescription> for the dale's Pure Thyroxine. > > At this point, mention that after you were prescribed the synthetic> levothyroxine-only medication that you found you could not tolerate it, but> that you have now learned that NHS doctors can prescribe dale's Pure> Thyroxine and that you would like a trial of this, and therefore would she> please give you the required prescription for this. Information as to the> correct way a doctor should prescribe this and the procedure they should> follow is in our FILES section under 'Pure T4 and T3 from dale's' or> something similar.> > I know you don't like confrontation, who does? However, you cannot go on the> way you are, and this is your right and entitlement and your GP MUST work> with you and take into consideration any suggestions you make regarding your> treatment. See 'Duties of a Doctor registered with the General Medical> Council> <http://www.gmc-uk.org/guidance/good_medical_practice/duties_of_a_doctor.asp>> > If your letter is ignored, then you can ask ICAS to take up your case - you> will find them extremely helpful.>

[Guest guest]

Then put all this into the hands of ICAS who will help you get

all this sorted once and for all. Quite simply, if you have been given a

previous diagnosis by the NHS of hypothyroidism and given a prescription for

levothyroxine, they you should not have to pay for any medication. You have

shown you cannot tolerate the fillers in levothyroxine so your GP (whether he

likes it or not) must give you a NHS prescription for a pure form of thyroxine

and you should not have to pay for it. You should not have to go privately to

get the medication you need. ICAS will do whatever is necessary to get this

case sorted. Whether you ask your private doctor to write a letter or you write

the letter yourself, get the ball rolling Peary. Personally, I would write the

letter myself and not involve others from outside the NHS. Find a

representative from ICAS who will check the letter for you before you send it

and see what happens.

Luv - Sheila

I know you are right.It really isn't fair that everyone around me

suffers as a result of this ongoing nightmare.It really has been going on

far too long.

I think I just want to protect myself (and everyone

else) from more hurt and anger.They really are an awful bunch at my local

surgery.But,I have made a decision that I am going to do something about it.

I am either going to allow this private doc who I've been seeing in

Edinburgh to write on my behalf or write a letter myself.Not sure what is the

best option.In the meantime I am still going to try and access some purified

thyroxine from a cheaper source if at all possible because I would be in a

more favourable position if i knew it was actually going to help me first!

[Guest guest]

HI Peary

I am just starting my second prescription for dales and am feeling much

better. I am like you, unable to take much of anything before I feel ill.

Forgive me if you have tried this but going wheat free has made a big difference

for me, just stopped anything with lactose also. GP prescribed dales

because of this improvement after stopping the wheat. He agreed I could be

lactose intolerant.

I had been tested for coeliac twice to no avail and this put me off the scent.

Many people on this group will tell you of massive improvements after giving up

wheat.

Keep trying hun, lets hope the letter you are getting written from your private

doc will do the trick.

Luv Stephie

>

>

> Hi all,

>

> I am just wondering how many of us here are taking 'purified' thyroxine

> from dales? I would be very interested in hearing from others.

>

[Guest guest]

Thanks for that Steph,

It is really encouraging that you are feeling much better on the dales stuff.

I am already gluten free,and yes I think it has made a difference to my gut/digestive problems.I am also supposed to be trying to go dairy-free as recommended by private doc but that is proving to be far more difficult.

Please keep us updated and yes I'm going to fight to try this purified stuff.

Best wishes

Peary

>> HI Peary> > I am just starting my second prescription for dales and am feeling much better. I am like you, unable to take much of anything before I feel ill. Forgive me if you have tried this but going wheat free has made a big difference for me, just stopped anything with lactose also. GP prescribed dales because of this improvement after stopping the wheat. He agreed I could be lactose intolerant> > Luv Stephie >

[Guest guest]

Yes Peary

I know what you mean about lactose free not as easy! Only just realised it was

in butter Doh!! Will need to find a cream substitute,

strawberries have to have it I reckon. The posh ice cream shop near us will have

to up its choice of sorbets I think. Bought some marg to-day but it tastes

pants! Will have to use it though £1. 70.

Keep fighting

Stephie

>

>

>

> Thanks for that Steph,

>

> It is really encouraging that you are feeling much better on the

> dales stuff.

>

> I am already gluten free,and yes I think it has made a difference to my

> gut/digestive problems.I am also supposed to be trying to go dairy-free

> as recommended by private doc but that is proving to be far more

> difficult.

>

> Please keep us updated and yes I'm going to fight to try this purified

> stuff.

>

>