Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi Vicki, Do you have any blood tests prior to your CML diagnosis that would show what a normal white count is for you? I know the normal range is usually between 4 and 11 for most people but there are some people who naturally have a bit higher than that and are perfectly fine. I know someone who has CML and her white count never got below 14 yet she is in CCR and doing great. The white count isn't always indicitive of what is going on with you CML wise, you really need to have a BMB or at least a FISH to know how your CML is doing. Take care, Tracey dx Jan 2002 > > > > Hi there, > > > > Today my primary oncologist told me that my FIST test on Dec 15 is > > ZERO. I am very happy about the news. I was 96% at diagnoised in > Aug > > 12, 06. I started Gleevec on Sept 4, 06. So I am on Gleevec 3.5 > > months (some period was 400mg and some 300mg because of low white > > count). He referred me to see a leukemia specialist when the FISH > was > > done. The specialist doctor said I need to stay 400mg and just > make > > sure the ANC not below 500. So I see both doctors alternatively. > > > > Is it normal to have a quick response to Gleevec? Or I am the > lucky > > one. > > > > Thanks for reading. > > Siu > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Thanks for responding, Tracey: I had BMB to make diagnosis when counts started to rise and got as high as 39K, and it was definitely Philadelphia chromosome positive. I probably had FISH then too, but just didn't get the results from my Dr or if I did I can't remember-- blanked it out or something-- My doctor is looking for me to get below 10 as a good normal level to shoot for, WBC-wise. I know I am just probably feeling depressed because of the shock of the CML diagnosis and all, and it is likely I am progressing just fine treatment-wise. It is just that I hear about people whose counts are totally normal after two months on Gleevec, and I wonder if maybe I should be on a higher dose or something--I guess I feel a bit helpless,in addition to not feeling really that great physically! I have really had a difficult time with absolutely wringing wet (need to change my clothes) type drenching sweats multiple times each day--even though my white counts didn't ever get all that high--and I am still having them! They make me feel exhausted and sick in a weird way. My doc says they are " malignancy related sweats " and that they might not go away for a while--until all my leukemia-related stuff has normalized. So, I take it a day at a time and try to let my dogs and my kids and my sweet husband take my mind off my troubles. Things could be so much worse, and I do recognize that for sure! Vicki > > > > > > Hi there, > > > > > > Today my primary oncologist told me that my FIST test on Dec 15 > is > > > ZERO. I am very happy about the news. I was 96% at diagnoised > in > > Aug > > > 12, 06. I started Gleevec on Sept 4, 06. So I am on Gleevec 3.5 > > > months (some period was 400mg and some 300mg because of low white > > > count). He referred me to see a leukemia specialist when the > FISH > > was > > > done. The specialist doctor said I need to stay 400mg and just > > make > > > sure the ANC not below 500. So I see both doctors alternatively. > > > > > > Is it normal to have a quick response to Gleevec? Or I am the > > lucky > > > one. > > > > > > Thanks for reading. > > > Siu > > > Quote Link to comment Share on other sites More sharing options...
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