Current results on 50 Levo/ 60T3

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Dose: Levothyroxine 50mcg T3 60mcg a day.

TSH 0.01 (0.10-4.00)

T4 7.6 (11.0-22.0)

T3 6.5 (3.5-6.5)

" Serum TSH level - very low has appt for review with consultant. TSH alone is

usually adequate for monitoring thyroxine replacement. Suppressed TSH suggests

over-replacement with thyroxine and T3. Suggests rx amending, speak to GP after

seeing consultant "

At least this time there is no blurb about osteoporosis.

I have had to go to lengths of ditching NHS consultant and going to a private

one and changing GPs to get these doses on the NHS.

When I went for my bloods, the nurse was quite nice. I said that I wasn't happy

about the lab putting the blurb about over-replacement and osteoporosis. She

said that they are just covering themselves and not everybody is a text-book

case.

At the end of the day, I know I am not over-replaced. Time and time again on TPA

everybody has said that you only need a spot of T3 for the TSH to go very low. I

just wish GPs knew it.

There are no specific symptoms as such I am worried about. I can read and am

well enough to listen to music. I am just having to be careful, not going here

and there all the time, still not fit for work, but overall not bad. A life

worth living and bearable thanks to the T3. I have a feeling in the background

of not being quite right, a bit sluggish and fatigued at times. I still cannot

go through a day without a rest period.

My case is ongoing and that I originally had shingles in Dec 2002 and diagnosed

with ME/CFS.

Even I am at the point when I don't know how well it is possible to be.

I am just wondering if anybody has any thoughts on where to go next with all

this, or what the private consultant might suggest next.

Clearly the GP has been prescribing the above dose. It's a given that the

consultant would provide a letter, to help me to secure my meds.

I was just wondering if there was a certain combination that may give the edge

and make me feel even better.

Over time, I have tried different doses/combinations: Armour, then have had 2

grains of Armour and 2 cytomel. I honestly cannot remember if I am better or a

bit worse than in comparison to 2 Armour and 2 Cytomel. It is hard to remember

specifically.

I know for a fact that 50mcg Levo and 50mcg T3 is insufficient. I have also had

different doses of Levothyroxine on its own. Plus 75mcg Levothyroxine and 20mcg

T3. So in comparison to Levo on its own or a lesser amount of T3, I am a million

times better! I also tried reducing Levothyroxine to 25mcg and 60mcg T3. I had a

week or two of going worse and the consultant said to go back to my 50/60.

What I cannot work out is: On 50/60 combo, is this how it is now, or am I

somehow second best option with doses.

Just wondering any thoughts prior to appointment next week.

Cheers! Fiona