information for my database

[Guest guest]

1. Your name – Leal

2. Your e-mail address: @...

3. Your hometown: San , California.

4. The date you were diagnosed: Nov. 25, 2003

5. The date you started Gleevec: Nov. 26, 2003

6. The date you reached Zero (CCR): February 2004

7. The date you reached PCRU. January 2005

8. Age at diagnosis:22

9. Your Doctor's name: Dr Malone

10. Where you receive treatment: Stanford Medical Center

11. Clinical Trial:

12: Zero Club number:

13. A brief history/bio of yourself and CML:

I was Diagnosed in November 2003, after doing some blood work for

not feeling good and having a hard time breathing. Was hospitalized

with WBC 343,000. I was on 600mg Hydroxurea and 800 Gleevec while

in Hospital. I was released 9 days later after WBC dropped to

181,000 dropped the Hydroxyurea and lowered Gleevec to 600mg. After

February 2004 Gleevec came down to 400mg and have been on that dose

ever since.

> >

> > I am 23yrs old, dx with CML April 2006 just a few days after my

> > son's first birthday. I have had to deal with a lot of medical

> > issues since he was born. I got DVTs in both legs while I was

> > pregnant, but they weren't discovered untill I was in lobor. I

had

> > to take blood thiners and was on pain killers for a little over

> six

> > months. I'm free of blood clots (for now...)and I was able to

> enjoy

> > Thanksgiving and Christmas that year drug free! But now I am

> trying

> > to deal with CML. I feel tired all of the time! I think it's a

> > little from the Gleevec(400mg)I take and a little from the

> > depression I feel. Well I'm not sure if it's depression as much

as

> > it's frustration. I think I have bad blood or something. I want

to

> > beat this, but I am afraid that something else life threatening

> will

> > happen to me! I just want to focus on my son. I lost most of his

> > first year because I was over medicated, and so I have been

lying

> to

> > my family and doctor about my pain as to avoid the same thing

from

> > happening. I try to take over the counter drugs for pain...it

> helps

> > but the pain comes back before I can take another dose. My

doctor

> > says that I feel tired because I am a mother of a (almost)2yr

old.

> > But my husband helps out all of the time, so I don't think

that's

> > it. I am sorry about the " complaining " I just feel I have to be

> > brave for my family so this was all kind of built up for the

past

> 7

> > months.

> > Thank you for your time and for listening.

> >

> > in Reno, NV

> >

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