Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 I am new to this message board, however I am not completely new to CML nor Gleevec. I was diagnosed in January of 2005, about two weeks before our third child was born. I showed no symptoms at the time and it was discovered with a routine CBC for a physical. After a visit with several oncologists, I found one with experience with CML and I begain a dose of 600 mg of Gleevec daily. I then went for further testing at MD in Houston (Giles) and now return their annually, although they prefer you to go every six months or so. After my visit to MD , we increased the dosage to 800 mg until my one year anniversary and have lowered to dosage to 400 mg after that point. My last PCR showed .05%, down from the 99.1% that I had originally at diagnosis. I work full time, am a father to three wonderful children and am active in the community. I even coach a few sports teams (football, basketballa and baseball)although my energy is nowhere where it used to be. However, I, like many of you, experience a myriad of side effects with Gleevec and am starting to research a request to change to Sprycel. If you had trouble with Gleevec and switched to Sprycel, I would like to hear from you. How has the transition been? How have the side effects been in comparison? Also, if you would like to email any specific data on things I have done to cope with the side effects of Gleevec, I would be glad to hear from you and will respond accordingly. With warm regards, Matt Quote Link to comment Share on other sites More sharing options...
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