Guest guest Posted November 24, 2010 Report Share Posted November 24, 2010 On Wed, 24 Nov 2010 23:14:36 -0000, you wrote: >Had follow up blood test start of Nov TSH 0.1, FT3 5.8, FT4 27.8 & soon had terrible headaches every day, nausea, uncontrollable temperature either freezing cold or boiling hot and having very poor sleep so I have stopped taking the T4 on Sunday as I think I may have a coversion problem & may be T4 toxic?? Welcome to the world of reverse T3, you are about to end up learning more than most of the NHS do which is a very sad commentary on medical training, T4 can convert in 2 directions, T3 or an inactive mirror image called " reverse T3 " . If your FT4 has normal ranges then that 27 is well over half range and a marker that you will be producing a lot of reverse T3, although this is inactive it ends up blocking the T3 receptors leaving you resistant to thyroid hormone. The solution is to eliminate T4 from your body by taking a full replacement dose of T3 which suppresses TSH and turns off your own thyroid, About 12 weeks after starting this the receptor blockage clears and you end up feeling a lot better. To be able to do this you need enough cortisol, you are supplementing but 10mg is not much and you may need to increase it, temperature stability is the way to monitor dosage You also need enough iron, have you had a minimum of a ferritin test and preferably a full iron panel? http://thyroid-rt3.com/ talks all about it Nick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2010 Report Share Posted November 25, 2010 Hello puddinanpie, I think your symptoms and results say it all. You are suffering with low adrenal reserve and Reverse T3. Please read Nick's web site to acquaint yourself with the details and copy whatever is necessary to show to your GP http://thyroid-rt3.com/. Thank goodness you have an understanding GP who is prepared to listen to you - they are very few and far between when it comes to adrenal and thyroid problems. Like you, I was also diagnosed with having a prolapsed disk when I suffered such debilitating pain but after getting on to the thyroid hormone replacement my body needed (not T4) the pain miraculously disappeared and 7 years later has not been back once. You need to stop taking thyroxine (T4) completely and start taking some form of T3 (but not the natural) gradually raising the dose sufficiently so it knocks the Reverse T3 on the head and the correct T3 (the active thyroid hormone) starts to get into the cells again. If you have any questions about any of the things Nick has written in his web site, just shout. I have sent to you a list of doctors and you can see the one in Birmingham. Not sure whether any of these will take account of the Adrenal Stress Profile, but you can try. Most doctors know nothing about low adrenal reserve, only about 's or Cushing's. When you do show this to doctors in the NHS, take with you a copy of the attached to show that this laboratory is highly rated. Luv - Sheila Started taking 50 micro of Levothyroxine as per GP then increasing to 75 after 4 weeks then to 100 after 5 weeks. Was taking 10mg of cortef & told GP why I was doing this. Started to see some small improvement in my energy levels & felt quite excited at the prospect of being 'normal'but that soon plateaud & then I started with small headaches. Had follow up blood test start of Nov TSH 0.1, FT3 5.8, FT4 27.8 & soon had terrible headaches every day, nausea, uncontrollable temperature either freezing cold or boiling hot and having very poor sleep so I have stopped taking the T4 on Sunday as I think I may have a coversion problem & may be T4 toxic?? These symptoms are slowly subsiding now. I have an appt with my GP to discuss this soon & want to be clear in my mind about a way forward. My Gp is actually quite supportive & will look at any info I give him including reading Dr P's book. He will also refer me to another endo if I wish as he knows I am concerned about my ASI. Do you know of any that recognise the ASI test within the South Staffs/ West Mids area. Someone mentioned an endo at City hospital in B'ham that may have this understanding - have you heard of anyone there? 1 of 1 File(s) Genova Quality Assurance.pdf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2010 Report Share Posted November 29, 2010 Hi, I went to the doctors in April with extreme tiredness and had my thyroid tested my TSH was 4.3 and the doctor said this was on the high side. I was also diagnosed with a B12 deficiency and was put on medication for this. The doctor wanted to see if this would help before doing anything about the thyroid. I was tested again in August by another doctor who said my thyroid was normal. Went back to the original doc at the end of october with tiredness and various other symptons. Thyroid was tested again and came back at TSH 4.5, I was told again this was on the high side but to come back in a month for another test. I had this done last week and phoned for the results today because the doctor's hadn't phoned me. The receptionist told me they came back as normal and my TSH is 4.8 I'm still constantly exhausted and have various other symptoms which I've found out are common with an underactive thyroid. I can't understand if my TSH is rising why is it now normal. Is this the only thing that relates to the thyroid? I've been reading up on it and keep coming across T3 & T4 levels but finding it quite hard to understand. Can anyone explain it in a straight forward way??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2011 Report Share Posted February 12, 2011 First, I would get the results of your reference range for each of the tests done from your GPO together as we need to know exactly where in the range your T4 and T3 levels lie. We also need to know what your free T4 result was, again, with the reference range. TSH is too high, and without the fT3 reference range, the fT3 looks too low. Your doctor cannot withhold these results from you. When you get them, post them here and we will help with the interpretation. Did you take your T3 medication on the morning you had your blood drawn, because if you did, this would have shown your fT3 was 'normal' simply because T3 has a very short half-life and it peaks in the blood between 2 to 4 hours after taking it. Whenever you have your blood drawn for a thyroid function test, it is best not to take any thyroid hormone on that day. I am not sure about your loose stools being a result of hypothyroidism, this usually applies to those suffering with hyPERThyroidism, but as you say you have other symptoms plus weight loss and anxiety, this could be that you are suffering with low adrenal reserve (adrenal fatigue). Check out the FILES section accessible from the Home Page of this forum thyroid treatment and on the list that opens, scroll down to 'Medical Questionnaires' and answer the questions in the Adrenal Questionnaire and see how you score. You may need to get the 24 hour salivary adrenal profile done through Genova Diagnostics and you will find details of how to get a discount as a TPA member in the FOLDER 'Discounts on Tests and Supplements'. You should also ask your GP to test your levels of ferritin, vitamin B12, vitamin D3, magnesium, folate, copper and zinc to see whether any of these are low in the reference range. If any are, your thyroid hormone will not be getting properly absorbed at cellular level and your symptoms may be caused through thyroid toxicity. Whatever is found to be low would need to be supplemented. Again, when you get these results, post them here with the reference range for each test. Luv - Sheila Hi everyone haven't posted in awhile as my daughter is still very poorly and I've been caring for her. About 5 weeks ago i started to have really bad loose stools and cramps thought it was a bug, 5 weeks later I'm still loose I've had a test and nothing shown up, i had a thyroid test at the same time including a T3 which they actually did!.My GP has informed me I'm slightly more under active than before and T3 is normal.I have been taking half a 25mcg T3 tablet and 1 adrenal extra for about a year, i know this is probably wrong but because i was OK on this i just carried on as my daughters health just took up all my brain power.I thought i was over active as my current symptoms are shaking hands loose stools a bit of weight loss anxiety.I would be so grateful if someone could read my results for me the GP wants to put me back on Levo but it really didn't suit me but i need to get some strength back to care for my family.I'm due to speak to Dr P on the 23rd.Warm Regards . Serum free triiodothyronie -3.8 Serum TSH - 4.36. ,___ Quote Link to comment Share on other sites More sharing options...
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