Re: Fw: Adrenal exhaustion/hyperthyroid - a bit of a mess - where now?

[Guest guest]

Hi Jo,

Have you had a scan that showed toxic multinodular goitre, I'm taking

it you have if you've been told you have it though nothing surprises me anymore.

Reason I ask is....that's not treated with ATD's!

Maybe that's why PTU not working, maybe it's the nodules spitting out

the hormone. I'm pretty sure treatment is surgery or RAI, I'm sure I had

something on that, I'll have a dig around and let you have it.

Just had a quick google :-)

http://www.endocrinesurgery.net.au/toxic-nodule-toxic-goitre/

Antithyroid drugs are of no value as a long term treatment as the thyrotoxicosis

is due to autonomous nodules within the goitre, which will continue to produce

excess hormone once the antithyroid drug is stopped. This means that all

patients will need definitive treatment

Hope that helps a bit.

Love Tess

>

> Ah Tess and

> thanks for the support.

> I am wavering about the thyroidectomy... it's not what I want but if I'm not

responding to PTU (which I am taking every 8 hours 3x daily), or any of the herb

and diet things (which worked before) I don't really see what my choices are...

> I know my endocrine system is shot, but I don't know what to do about it... so

far this year I've had vit D deficiency, hyperthyroidism (graves, toxic

multinodular goitre, or thyrotoxicosis

>

[Guest guest]

Hi Jo, This is a nightmare situation to be in. You have to decide if you can no longer go on as you are. Reading posts from folk in similar positions is seems that those who have a thyroidectomy are more likely to get stabilised than those who have RAI. But you need to be aware that thyroxine is not the answer for everyone and that post Graves your hormonal set point may need higher levels of replacement hormone than folk who have never had this disturbance in their endocrine system. Yes, a lot of the current symptoms will subside, but you may be in for a new set of hypo ones unless you have a doc who is willing to listen to you ,rather than just look at the test results- you always need TSH, FT4 and FT3 AND the ,to have a chance of working out what is going on. You are truly between a rock and a very hard place, good luck with whatever decision that you make. thyroid treatment From: joclayton@...Date: Thu, 25 Nov 2010 10:23:56 +0000Subject: Fw: Adrenal exhaustion/hyperthyroid - a bit of a mess - where now?

Ah Tess and

thanks for the support.

I am wavering about the thyroidectomy... it's not what I want but if I'm not responding to PTU (which I am taking every 8 hours 3x daily), or any of the herb and diet things (which worked before) I don't really see what my choices are...

I know my endocrine system is shot, but I don't know what to do about it... so far this year I've had vit D deficiency, hyperthyroidism (graves, toxic multinodular goitre, or thyrotoxicosis depending on who you talk to), adrenal exhaustion (if you believe that exists), and I'm pretty sure I have a hormonal imbalance too, and I've had PCOS for years and prior to that androgen dominance. But what to do? The endo says that a lot of the problems will subside when I have the thyroidectomy, and all will be well on thyroxine, or, with a partial thyroidectomy, all may just be well. I want to believe the endo, but obviously everyone on this forum knows how difficult that is.

I want to have a baby, and if I can't get my bloods right on PTU when I'm not pregnant I don't see that I have much chance if I can ever get pregnant again, and I don't want to take the risk of getting it wrong.

If there are any alternatives I would really like to know what they are...

jo

xx