Sleep Problems

[Guest guest]

On or around Saturday, November 01, 2003 9:32 AM [GMT+1=CET],

Sheila <squirrel.studio@...> sprinkled letters onto the

page, saying:

> I began taking 1 and 1/2 grains of natural Melatonin half an hour

> before bedtime and notice that although it claims NOT to be a

> sedative - I was feeling quite dozey very soon. I have been taking

> this every night now for about 9 months and I have never had such

> wonderful nights sleep. I also wake extremely refreshed. If I wake

> during the night - usually to visit the loo - I find I immediately

> fall asleep again.

>

> I buy this from PharmWest at a cost of £9.40 for 60 tablets (3mg),

> That gives me 120 nights sleep. I could not live without Melatonin.

> It is wonderful.

Hi,

I have the same effects with amitriptyline and clonazepam (free on the NHS

). These days I'm so fatigued I only take clonazepam for RLS. I hit the

pillow and I'm out. OK - it's only for a few hours but the sleep is Good and

Refreshing...!!

Take your last drink before 9pm and you shouldn't even need to go to the loo

thru' the night!!

Hi ma!!!

Kezzi. . . 3rd day of Samento drops and bouncing round like Tigger ^^^^^ !

[Guest guest]

Hi Sheila,

You have my sympathy. I think I " know " you from other message

boards, but I usually keep my head well below the parapet & hang

about only to learn. Sad but true. :-(

BTW, Melatonin worked for me.

Sue

Re: Sleep problems

> " ...I have never had such wonderful nights sleep. I also wake

extremely

> refreshed... " " It is wonderful. "

>

> Sheila ,

>

> GO BACK TO SLEEP!!!!!! and stop SPAMMING this group!

>

> Nelly

[Guest guest]

I take Inositol. It puts me to sleep. I'm not sure it takes away the

constant waking, but I feel much more refreshed in the morning than

when not taking it.

anne

> I began taking 1 and 1/2 grains of natural Melatonin half an hour

before bedtime and notice that although it claims NOT to be a

sedative - I was feeling quite dozey very soon. I have been taking

this every night now for about 9 months and I have never had such

wonderful nights sleep. I also wake extremely refreshed. If I wake

during the night - usually to visit the loo - I find I immediately

fall asleep again.

>

> I buy this from PharmWest at a cost of £9.40 for 60 tablets (3mg),

That gives me 120 nights sleep. I could not live without Melatonin.

It is wonderful.

>

>

[Guest guest]

In a message dated 2/16/2004 2:26:59 AM Central Standard Time,

moobabies@... writes:

I have a rule..If I don't sleep for 2

nights on the 3rd night I use drugs! I made that rule after I went

5 days straight without any sleep...6th night I used drugs and slept

3 whole wonderful hours. I could actually Think again.

_______________________________________

Jo,

Have you ever had a sleep study? I am the same exact way, and all they

told me was that I had delta wave intrusions in my sleep. So basically she said

that I hurt when I'm asleep and it keeps me from going into the deep levels of

sleep. But to me that doesn't explain Why I don't go to sleep. Also do you

get a day or so about every 2 or 3 months where you want to sleep all the time

and nap during the day for most of the day?

I am very curious about sleep disorders and all that stuff and how people

are affected. I had a pt who had narcolepsy once. He went to sleep when he

got excited. He said it was no fun because like when you went fishing, if you

caught a big fish, you fall asleep. I wanted so bad to ask him if it affected

his sex life...LOL, But never got the nerve.

What do you take? I am on halcion right now with elavil 2 hrs before my

bedtime. It seems to help. Oh, And another question...Do you dream? One doc

told me if you didn't dream when you did sleep that it was very abnormal.

in Bama

VBG 1982 (lost from 433lbs to 270's)

VBG -RNY1996 revision(Lost from 343 to 299)

RNY-DS revision Dec 2002 -down 122 lbs (377.7 to 255.6 and still going)

Homepage address- http://hometown.aol.com/mdl1031/myhomepage/profile.html

Many thanks to Dr. K willing to take on a 3rd timer....LOL

[Guest guest]

In a message dated 2/16/2004 10:59:27 PM Central Standard Time,

moobabies@... writes:

I have both insomnia problems....falling asleep...and Staying

asleep. The older I get the more it kicks my butt.

Jo

______________________________

You have my sympathy...I was a zombie and cried all the time when i went to

my new PCP the first time 3 yrs ago. I had been awake for 72 hrs with like a 30

minute " nap " here and there(maybe 3 times) I was miserable, tired and was

very high strung to say the least. He gave me ambien, and it worked well until

about 3 months ago when it quit. I was getting weird again from lack of sleep

and then we started the halcion and it helps although it takes a long time.

in Bama

VBG 1982 (lost from 433lbs to 270's)

VBG -RNY1996 revision(Lost from 343 to 299)

RNY-DS revision Dec 2002 -down 122 lbs (377.7 to 255.6 and still going)

Homepage address- http://hometown.aol.com/mdl1031/myhomepage/profile.html

Many thanks to Dr. K willing to take on a 3rd timer....LOL

[Guest guest]

In a message dated 2/16/2004 10:59:27 PM Central Standard Time,

moobabies@... writes:

I have both insomnia problems....falling asleep...and Staying

asleep. The older I get the more it kicks my butt.

Jo

______________________________

You have my sympathy...I was a zombie and cried all the time when i went to

my new PCP the first time 3 yrs ago. I had been awake for 72 hrs with like a 30

minute " nap " here and there(maybe 3 times) I was miserable, tired and was

very high strung to say the least. He gave me ambien, and it worked well until

about 3 months ago when it quit. I was getting weird again from lack of sleep

and then we started the halcion and it helps although it takes a long time.

in Bama

VBG 1982 (lost from 433lbs to 270's)

VBG -RNY1996 revision(Lost from 343 to 299)

RNY-DS revision Dec 2002 -down 122 lbs (377.7 to 255.6 and still going)

Homepage address- http://hometown.aol.com/mdl1031/myhomepage/profile.html

Many thanks to Dr. K willing to take on a 3rd timer....LOL

[Guest guest]

=======================================

Mel:

I've Never had a sleep study...I can guarentee you that If you put

me in a room where I was supposed to sleep, it wasn't my bed and I

was monitored...I wouldn't sleep...after a week I would be a mental

zombie but still awake.

I've had the problem since birth....my mom said I never slept...and

when I did 15 min. was the max.....now.. if I sleep 4 hours I

consider that a good night...When I do sleep I always " surface "

awake throughout the night...if I wake up without several " memories "

through the night it feels really weird, kinda scary to me....I am

always sleep deprived on some level.

I rarely dream...I don't sleep deep enough most of the time.

Although I love visitors, I dread it overnight because I

feel " trapped " and can't roam the house freely.

I rarely mention any of this to a Doctor because it is NORMAL to

me. I've never known anything different. Sometimes I'm sooo tired

I can't keep my eyes open...but the brain doesn't fall asleep.

I have both insomnia problems....falling asleep...and Staying

asleep. The older I get the more it kicks my butt.

Jo

[Guest guest]

Jo,

I can so relate to this - staying with anyone or having anyone stay

at our house is hard. I ALMOST hate vacations. Hotels - blech! I

cannot stand to have hubby and kids asleep and I have to lay in the

hotel bed - still - so as to not wake them! UGH! Our best vacations

are when we get a condo so I can roam when I need to.

Do you nap? Naps save me!

I was a good sleeper until I had kids.

hugs, cindy lee

> Although I love visitors, I dread it overnight because I

> feel " trapped " and can't roam the house freely.

>

>

> Jo

[Guest guest]

> Do you nap? Naps save me!

>

> hugs, cindy lee

Nap??? Napping is sleeping....which I don't do well....lol....I

only nap when I'm sick or on drugs, like after surgery.

Jo

[Guest guest]

> Do you nap? Naps save me!

>

> hugs, cindy lee

Nap??? Napping is sleeping....which I don't do well....lol....I

only nap when I'm sick or on drugs, like after surgery.

Jo

[Guest guest]

I'm feeling sad my mama jo has these problems - she is always so

helpful to everyone else.... get some meds mama - please! Hey -

maybe thats why you get so grouchy (grin) sometimes - just kidding

>

> Kim

Nah, no ADHD...It's just me....I'm really not complaining, just

explaining. It also isn't " torture " , at least not to me, because I

know no other way....but...lol...it can make me grouchy! But only

because I care.

Which reminds me...I need to call our Ann from Santee...As Amy

knows, Ann was in the " CAN " talking (she didn't know I was in there)

and she said she wasn't taking her suppliments. WELL y'all know how

well that set with me. I scolded her, then preceded to tattle tale

on her to Her Doctor Z. I asked him to " talk to her " , which he

did. Then A couple days later I had dinner with her and she still

wasn't taking them...excuses, excuses...I told her she wasn't going

to like it one bit when I inserted them up her butt. When we went

our own way she was headed to Walmarta to buy some. But I haven't

called and found out if she is taking them or not....

are you out there...If she still isn't taking them I want your

help in holding her down while I insert them.

Jo

[Guest guest]

Hi Jo!

I've been reading this thread with interest because I seem to have

your problem, maybe not as extreme. But, contrary to what you

think, I'll bet you do dream. It takes me hours sometimes to fall

asleep but even if I'm asleep for only 10 minutes, I almost always

dream. Is that a deep sleep? Couldn't possibly be. But, it

happens all the time. I'm convinced it's the only reason I can

function on so little sleep. What humans really need isn't the rest

so much as the dreaming. In fact, if we don't dream, we

hallucinate. In other words, our bodies will make us dream whether

we want to or not. So, you may not remember it, but I'll bet you

anything you Are dreaming.

You have my sympathies, my friend! I know your pain.

Hugs!

Tracey

> =======================================

> Mel:

>

> I've had the problem since birth....my mom said I never

slept...and

> when I did 15 min. was the max.....now.. if I sleep 4 hours I

> consider that a good night...When I do sleep I always " surface "

> awake throughout the night...if I wake up without

several " memories "

> through the night it feels really weird, kinda scary to me....I am

> always sleep deprived on some level.

>

> I rarely dream...I don't sleep deep enough most of the time.

> Although I love visitors, I dread it overnight because I

> feel " trapped " and can't roam the house freely.

>

> Jo

[Guest guest]

Hi Jo!

I've been reading this thread with interest because I seem to have

your problem, maybe not as extreme. But, contrary to what you

think, I'll bet you do dream. It takes me hours sometimes to fall

asleep but even if I'm asleep for only 10 minutes, I almost always

dream. Is that a deep sleep? Couldn't possibly be. But, it

happens all the time. I'm convinced it's the only reason I can

function on so little sleep. What humans really need isn't the rest

so much as the dreaming. In fact, if we don't dream, we

hallucinate. In other words, our bodies will make us dream whether

we want to or not. So, you may not remember it, but I'll bet you

anything you Are dreaming.

You have my sympathies, my friend! I know your pain.

Hugs!

Tracey

> =======================================

> Mel:

>

> I've had the problem since birth....my mom said I never

slept...and

> when I did 15 min. was the max.....now.. if I sleep 4 hours I

> consider that a good night...When I do sleep I always " surface "

> awake throughout the night...if I wake up without

several " memories "

> through the night it feels really weird, kinda scary to me....I am

> always sleep deprived on some level.

>

> I rarely dream...I don't sleep deep enough most of the time.

> Although I love visitors, I dread it overnight because I

> feel " trapped " and can't roam the house freely.

>

> Jo

[Guest guest]

So, you may not remember it, but I'll bet you

> anything you Are dreaming.

>

> Hugs!

> Tracey

=================

I'm sure your probably right...

Jo

Can you use " I'm sure " and " probably " in the same sentence? lol

geeze

[Guest guest]

In a message dated 10/10/2004 9:15:46 PM US Eastern Standard Time,

mgturchi@... writes:

Hello Krystal -

I don't know if you would be interested in this or not but I am a

massage therapist and use therapeutic grade essential oils on my

son. They help him sleep, cope, stay very heathly and enjoy life.

Please e-mail me privately for info.

Mom to 10 with (his words) Up Syndrome

[Guest guest]

Sam has never had any sleep problems after IVIG.

It could be that there is enough renewed energy that she simply does not require

the sleep. Does she take a nap during the day? If so, you could try letting

her stay awake more during the day to see if that helps.

Sometimes drinking warm milk helps. Make sure that her midnight activities are

very low stimulation.

Good luck. I know that's got to be frustrating and exhausting for the adults.

God bless,

Wenoka

Sleep Problems

Has anyone ever noticed sleep problems with their child after IVIG?

Noelle(age 5) has been waking up and playing for 4-5 hours every night around

midnight since her infusion on Fri. She is not having any symptoms of getting

sick she's just wide awake and cannot sleep. Any suggestions?

Thanks,

Sara

[Guest guest]

Sam has never had any sleep problems after IVIG.

It could be that there is enough renewed energy that she simply does not require

the sleep. Does she take a nap during the day? If so, you could try letting

her stay awake more during the day to see if that helps.

Sometimes drinking warm milk helps. Make sure that her midnight activities are

very low stimulation.

Good luck. I know that's got to be frustrating and exhausting for the adults.

God bless,

Wenoka

Sleep Problems

Has anyone ever noticed sleep problems with their child after IVIG?

Noelle(age 5) has been waking up and playing for 4-5 hours every night around

midnight since her infusion on Fri. She is not having any symptoms of getting

sick she's just wide awake and cannot sleep. Any suggestions?

Thanks,

Sara

[Guest guest]

From Dale, Mom to Katy, CVID, age 20

Is she getting Benadryl with her IVIG? Sometimes Benadryl will produce

a pop in energy and wakefulness when it wears off -- especially when

they've slept a lot during the IV. If you are using Benadryl -- talk

to the doctor and see if they can decrease the dose or try a different

pre-medication.

One thing we did notice is a LOT of energy about 3 days post IVIG. She

didn't want to go to bed at night, didn't want to slow down and she

would just be hyper because she felt good for the first time in a month!

In His service,

Dale

Sara Drews wrote:

>Has anyone ever noticed sleep problems with their child after IVIG? Noelle(age

5) has been waking up and playing for 4-5 hours every night around midnight

since her infusion on Fri. She is not having any symptoms of getting sick she's

just wide awake and cannot sleep. Any suggestions?

>

>

[Guest guest]

Rebekah is less sleepy for several days after her infusion! She sleeps at

night, but has trouble getting to sleep at her regular time or she gets up

mighty early. She seems to have a BURST of energy for a few days. Its hard

as her mom to go from droopy, sleepy and undemanding child to super charged

child who wants to dance and twirl all night.

Pam

wife to (17 years)

mother to , 10, Hannah, 8, Rebekah, 5, and Leah, 3

Rebekah has CVID and ??

Sleep Problems

Has anyone ever noticed sleep problems with their child after IVIG?

Noelle(age 5) has been waking up and playing for 4-5 hours every night

around midnight since her infusion on Fri. She is not having any symptoms

of getting sick she's just wide awake and cannot sleep. Any suggestions?

Thanks,

Sara

[Guest guest]

I am the same, I sleep until 5am, get up for an hour, back to bed until 7.30, wake up eat, back to bed sleep until noon, eat, sleepy again until 2 pm, then get a couple of hours respite, , I wish that I knew what is wrong, it is dreadful, I get shaky in the legs if I do more than ten minutes of anything I cannot stay wake after dinner either, sleep until 11pm. back to bed sleep until 5am again

Sugar level is 78, so it is not diabetes. I do get sudden drops in blood sugar, but that's not it I think

Anne

[Guest guest]

Hi Lee,

Sleep Apnea??? Narcolepsy??? Medication??? Fibromyalgia??? Lupus SLE ??? Stress??? Just a few thoughts... Have ya seen the Dr.??? Keep us posted...

((( Love and Hugs )))

Helen

I have been having sleep problems for a couple of weeks. I can't sleep solidly. I toss and turn and wake up often. I can't figure out what it is. It's not the weather. I don't use caffeine after noon. I am getting exercise. Any ideas?Lee

[Guest guest]

Hi I have not been online for a long time but sleep is a huge issue for me. I dont know what your med condition is but I have several autoimmune probs, and have had sleep issues for over 5 years and take 2 benzo's for it(temazepam and clonazepam), It can be hard to get docs to give youo anything at all for it and at first they will make you try the non narcotic drugs which actually kept me more awake. finally they will go to these if you keep on them if the others dont work it is stressful because when I dont get sleep everything is crazy and I really cant do anything

good luck and sorry youre having so much trouble

Colleen

[Guest guest]

I'm sure pain and stress contribute and I don't want to take nightly

drugs for sleep. The docs gave me valium but I hate taking any daily

drugs. Fortunately, I don't have sleep apnea.

Lee

> Sleep Apnea??? Narcolepsy??? Medication??? Fibromyalgia???

Lupus SLE

> ??? Stress??? Just a few thoughts... Have ya seen the Dr.???

[Guest guest]

Lynnelle wrote:

> There is a book called 'The Habit Change Workbook' by

> Dr. Claiborn which talks about Cognitive

> Behavior Therapy (CBT) for sleep problems.

>

> I've heard it works better than pills for anyone with

> sleep problems.

>

>

ooo, thanks! I hadn't heard of it.

Dina

[Guest guest]

Lynnelle wrote:

> There is a book called 'The Habit Change Workbook' by

> Dr. Claiborn which talks about Cognitive

> Behavior Therapy (CBT) for sleep problems.

>

> I've heard it works better than pills for anyone with

> sleep problems.

>

>

ooo, thanks! I hadn't heard of it.

Dina