RE: Re: Help with T3 question

[Guest guest]

Hi and Thanks to , , Sheila and Lynn,

Your replies were very much appreciated. I

have applied to join the adrenal group as you suggested as I do need to

know more about how the adrenals work, especially if I have to take HC

eventually.

Sheila, thanks for the attachment and I will be sending my second

diary to Dr.P in a couple of weeks so I will increase the NAX to 6 to see how

that goes but I have a feeling it may have to be the HC as I only had a very

small improvement and that disappeared as soon as I added the T3. I am still

taking the Levo as I did get some benefit from that as my hair improved and the

brain fog almost disappeared. I think Dr.P was trying to add the T3 to the Levo

as I seemed to have a problem with conversion that may have been caused by my

poor adrenal function. I have stopped the T3 temporarily but when I start again

I will take it slower as you suggested.

Yes , my GP is not helping me at all

and I was just going to sack him but I am trying to pluck up the courage and

energy to show him my Genova results and ask for the STIM

test that Lynn suggested just to make sure that I am not heading for s.

Luckily my partner is very supportive and will come with me as I am exhausted

and wimpy at the moment. I will sack him eventually but I don’t really

want him to get away with fobbing me off and just maybe he will think twice

about the way he treats his thyroid patients if I can get him to listen.

A friend has suggested another GP in my

area who seems to actually listen to her patients so I will try and move to her

after I have made my point with my GP. Whatever happens I don’t want to

stay with him because of his patronising manner and total lack of thyroid knowledge.

He said there had never been a case of anyone having muscle and joint pains

with hypothyroidism!!

Thanks again for all your help,

Val

From:

thyroid treatment [mailto:thyroid treatment ]

On Behalf Of Lynn D

Sent: 09 November 2010 23:46

To:

thyroid treatment

Subject: Re: Help

with T3 question

Hello

With adrenal results that low; I would actually push for a referral to an endo

for a STIM test for 's and hypopit. I didn't and now I am in a right

pickle with not knowing whether I need it for life or not.

[Guest guest]

Hi Val - in case your uneducated GP tries to tell you that

Genova Diagnostics are not recognised as a good laboratory, be read for him.

Copy out the attached form and show him that. His remark about there having

never been a case of anyone having muscle and joint pains with hypothyroidism needs

to be challenged. Ask him to show you the research that proves this - he will

not be able to do so. Again, be one jump ahead of him and print out the

information here (from one of the top Medical Journals) http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1281637/

.. Show him also this Abstract from PubMed http://www.ncbi.nlm.nih.gov/pubmed/3436793

.. Read also http://www.thyroid-info.com/articles/muscle-joint-pain.htm

.. I would be very tempted to write him a letter enclosing all this information

and tell him that it is in response to his incorrect information he gave to

you. I would also send a copy to the Head of Practice and make sure that this

was shown on the bottom of the letter to the GP. I would ask also for it to be

placed into your medical notes.

Good luck with this. Oh, how much I would enjoy being with you

when you next see him.

luv - Sheila

A friend

has suggested another GP in my area who seems to actually listen to her

patients so I will try and move to her after I have made my point with my GP.

Whatever happens I don’t want to stay with him because of his patronising

manner and total lack of thyroid knowledge. He said there had never been a case

of anyone having muscle and joint pains with hypothyroidism!!

Thanks

again for all your help,

Val

From:

thyroid treatment

[mailto:thyroid treatment ] On Behalf Of Lynn D

Sent: 09 November 2010 23:46

thyroid treatment

Subject: Re: Help with T3 question

Hello

With adrenal results that low; I would actually push for a referral to an endo

for a STIM test for 's and hypopit. I didn't and now I am in a right

pickle with not knowing whether I need it for life or not.

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Genova Quality Assurance.pdf

[Guest guest]

Hi Sheila,

Thank you so much for this information. My

partner Mark (he is coming to see you next week) is helping to put the letter together

and to include the scientific proof because my GP is likely to be patronising

and dismissive. Do you think I should ask for a short synacthen test, would

that show where my level of cortisol lies to back up the Genova test or will it

only tell me that I do not have s.

I want to be really well prepared because

I know what a slippery character he is.

Please could you send me a list of endos

for my area that are likely to prescribe T3. I do not mind buying it myself but

a good endo and a change of GP may be all that I need, especially if I have to

go on to HC. I think he will be out of his depth and try to refer me.

I have now increased my Nax to 5 and will

soon increase to 6.

My diary to Dr. P goes back next week so I

think that is all I can do for now apart from ordering some HC just in case I

have to stick with self treating under the care of Dr. P.

Thanks again as I feel I am moving forward

now with all the good advice from you and others on the forum.

Love,

Val

From:

thyroid treatment

[mailto:thyroid treatment ]

On Behalf Of Sheila

Sent: 11 November 2010 12:02

thyroid treatment

Subject: RE: Re:

Help with T3 question [1 Attachment]

Hi Val - in case your uneducated GP

tries to tell you that Genova Diagnostics are not recognised as a good

laboratory, be read for him. Copy out the attached form and show him that. His

remark about there having never been a case of anyone having muscle and joint

pains with hypothyroidism needs to be challenged. Ask him to show you the

research that proves this - he will not be able to do so. Again, be one jump

ahead of him and print out the information here (from one of the top Medical

Journals) http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1281637/

.. Show him also this Abstract from

PubMed http://www.ncbi.nlm.nih.gov/pubmed/3436793

.. Read also http://www.thyroid-info.com/articles/muscle-joint-pain.htm

.. I would be very tempted to write him a letter enclosing all this information

and tell him that it is in response to his incorrect information he gave to

you. I would also send a copy to the Head of Practice and make sure that this

was shown on the bottom of the letter to the GP. I would ask also for it to be

placed into your medical notes.

Good luck with this. Oh, how much I

would enjoy being with you when you next see him.

luv - Sheila

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[Guest guest]

Hi Val - I think you should ask for the short synacthen test.

You could be suffering with borderline 's, but it is well to keep in

mind that this test is ONLY to test for 's or Cushing's. The SST test

must be done as near to 9.00a.m. as possible.

I think your GP might actually learn a thing or two about the

functioning of the thyroid gland if he reads those papers. It really makes you

worry though about how many patronizing idiots like him are out there leaving their

patients to suffer so unnecessarily. I am finding more and more, that this lack

of thorough training about the greater thyroid system at medical school is

causing actual harm to patients - and those in authority don't seem to care.

I have sent a copy of my doctors list to you privately.

Luv - Sheila

Hi Sheila,

Thank you

so much for this information. My partner Mark (he is coming to see you next

week) is helping to put the letter together and to include the scientific proof

because my GP is likely to be patronising and dismissive. Do you think I should

ask for a short synacthen test, would that show where my level of cortisol lies

to back up the Genova test or will it only tell me that I do not have 's.

Recent Activity:

·

New Members 7

·

New Links 9

·

New Files 9

Visit Your Group

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to: Text-Only, Daily Digest • Unsubscribe • Terms

of Use

..

No virus found in this message.

Checked by AVG - www.avg.com

Version: 10.0.1153 / Virus Database: 424/3253 - Release Date: 11/12/10