Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Donna: I am sorry to hear you have insurance issues, but I have seen information on financial assistance and insurance assistance from the following organizations: Leukemia and Lymphoma Society (maximum $500 per year) (_Click here: The Leukemia & Lymphoma Society_ (http://www.lls.org/hm_lls) ) Lance Armstrong Foundation (_Click here: Home - LIVESTRONG - livestrong.org_ (http://www.livestrong.org/site/c.jvKZLbMRIsG/b.594849/k.CC7C/Home.htm) ) Cancercare (_Click here: CancerCare :: Professional Support for People Affected by Cancer_ (http://www.cancercare.org/) ) People with Cancer (_Click here: Financial Resources for People With Cancer - National Cancer Institute_ (http://www.cancer.gov/cancertopics/factsheet/support/financial-assistance) ) Hope this is helpful. With warm regards, Matt ville, FL DX January of 2005 Gleevec Since May 2005 Father of 3 _mtmaynor@..._ (mailto:mtmaynor@...) In a message dated 11/8/2006 3:55:34 P.M. Eastern Standard Time, vettewomanmi@... writes: Hello all, I've been lurking here for about 6months but have never posted, I was dx nov 05 with cml. have been on Gleevec 400mg then 300mg for a yr now, minimal side effects, tired all the time, I too have had such severe spleen pain I ended up in the ER, after CT scans and ultrasounds they were not conclusive but thought I may have had a spleen infarct, my onc says this is common. The worst is last month my insurance changed, apparantly my company chose a different plan, still is HAP but the benefits have changed, they now have a 2,000$ a yr cap on prescription, and well we all know the cost of our golden pill, so now trying to find help with the 2,700$ a month cost. I have filled out all the stuff for Novartis but have not heard back, took my last G yesterday and am a bit scared. If anyone has any ideas please pass them on. Thanks, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Hi everyone! I hope this finds everyone well! I have a quick q if it's ok? My husband has been on Gleevec for 8 days and while his side effects are minimal at this point- he has has quite an increase in pain in his spleen over the week - even with it keeping him awake for the night on Sat. Has anyone experienced this when beginning Gleevec? I am sure it's normal but just curious! I also wanted to say how wonderful this list is- I read it an find encouragement on a daily basis...thanks so much! Shalyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Hello all, I've been lurking here for about 6months but have never posted, I was dx nov 05 with cml. have been on Gleevec 400mg then 300mg for a yr now, minimal side effects, tired all the time, I too have had such severe spleen pain I ended up in the ER, after CT scans and ultrasounds they were not conclusive but thought I may have had a spleen infarct, my onc says this is common. The worst is last month my insurance changed, apparantly my company chose a different plan, still is HAP but the benefits have changed, they now have a 2,000$ a yr cap on prescription, and well we all know the cost of our golden pill, so now trying to find help with the 2,700$ a month cost. I have filled out all the stuff for Novartis but have not heard back, took my last G yesterday and am a bit scared. If anyone has any ideas please pass them on. Thanks, Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 Donna, In addition to this wonderful advice I would encourage you to call your State and Federal Representatives. They may be able to help you and you have a story that they need to hear. Conrad Father of dx 6/01 PCR undetectible on 800mg of Gleevec > > > Donna: > > I am sorry to hear you have insurance issues, but I have seen information on > financial assistance and insurance assistance from the following > organizations: > > Leukemia and Lymphoma Society (maximum $500 per year) > (_Click here: The Leukemia & Lymphoma Society_ (http://www.lls.org/hm_lls) ) > Lance Armstrong Foundation > (_Click here: Home - LIVESTRONG - livestrong.org_ > (http://www.livestrong.org/site/c.jvKZLbMRIsG/b.594849/k.CC7C/Home.ht m) ) > Cancercare > (_Click here: CancerCare :: Professional Support for People Affected by > Cancer_ (http://www.cancercare.org/) ) > > People with Cancer > (_Click here: Financial Resources for People With Cancer - National Cancer > Institute_ > (http://www.cancer.gov/cancertopics/factsheet/support/financial- assistance) ) > > Hope this is helpful. > > > With warm regards, > Matt > ville, FL > DX January of 2005 > Gleevec Since May 2005 > Father of 3 > _mtmaynor@..._ (mailto:mtmaynor@...) > > > > In a message dated 11/8/2006 3:55:34 P.M. Eastern Standard Time, > vettewomanmi@... writes: > > > > > Hello all, I've been lurking here for about 6months but have never > posted, I was dx nov 05 with cml. have been on Gleevec 400mg then > 300mg for a yr now, minimal side effects, tired all the time, I too > have had such severe spleen pain I ended up in the ER, after CT scans > and ultrasounds they were not conclusive but thought I may have had a > spleen infarct, my onc says this is common. The worst is last month my > insurance changed, apparantly my company chose a different plan, still > is HAP but the benefits have changed, they now have a 2,000$ a yr cap > on prescription, and well we all know the cost of our golden pill, so > now trying to find help with the 2,700$ a month cost. I have filled > out all the stuff for Novartis but have not heard back, took my last G > yesterday and am a bit scared. If anyone has any ideas please pass > them on. Thanks, Donna > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2006 Report Share Posted November 9, 2006 Be sure you check with state department of insurance in whatever state you reside. Most states have supplemental plans or at least can help you if your benefits have been cut. mtmaynor@... wrote: Donna: I am sorry to hear you have insurance issues, but I have seen information on financial assistance and insurance assistance from the following organizations: Leukemia and Lymphoma Society (maximum $500 per year) (_Click here: The Leukemia & Lymphoma Society_ (http://www.lls.org/hm_lls) ) Lance Armstrong Foundation (_Click here: Home - LIVESTRONG - livestrong.org_ (http://www.livestrong.org/site/c.jvKZLbMRIsG/b.594849/k.CC7C/Home.htm) ) Cancercare (_Click here: CancerCare :: Professional Support for People Affected by Cancer_ (http://www.cancercare.org/) ) People with Cancer (_Click here: Financial Resources for People With Cancer - National Cancer Institute_ (http://www.cancer.gov/cancertopics/factsheet/support/financial-assistance) ) Hope this is helpful. With warm regards, Matt ville, FL DX January of 2005 Gleevec Since May 2005 Father of 3 _mtmaynor@..._ (mailto:mtmaynor@...) In a message dated 11/8/2006 3:55:34 P.M. Eastern Standard Time, vettewomanmi@... writes: Hello all, I've been lurking here for about 6months but have never posted, I was dx nov 05 with cml. have been on Gleevec 400mg then 300mg for a yr now, minimal side effects, tired all the time, I too have had such severe spleen pain I ended up in the ER, after CT scans and ultrasounds they were not conclusive but thought I may have had a spleen infarct, my onc says this is common. The worst is last month my insurance changed, apparantly my company chose a different plan, still is HAP but the benefits have changed, they now have a 2,000$ a yr cap on prescription, and well we all know the cost of our golden pill, so now trying to find help with the 2,700$ a month cost. I have filled out all the stuff for Novartis but have not heard back, took my last G yesterday and am a bit scared. If anyone has any ideas please pass them on. Thanks, Donna Quote Link to comment Share on other sites More sharing options...
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