Re: Can we help this poor woman??

November 27, 2010

Hi :

Could you supply the link to your article in the paper? I would love to read it.

This whole story is such a shame, the abuse people take from their so called

*medical advisors* is just horrific and getting worse every day....

Thanks.

Cheers,

JOT

November 27, 2010

Hi Jot,

I sent the local paper the Dorset Echo, a short email and a link to the news

story on the BBc which we heared about on here on Thursday.

What the Echo have printed is not anything I have written, they have taken

the BBc Story, and cut it down slightly and added a couple of quotes from the

woman's Husband and Daughter as well as photographs.

Here's the link, and you can add a comment, so I will....

http://www.dorsetecho.co.uk/news/8706225.Dorchester_woman_s_ME_ordeal/

>

> Hi :

>

> Could you supply the link to your article in the paper? I would love to read

it.

>

> This whole story is such a shame, the abuse people take from their so called

*medical advisors* is just horrific and getting worse every day....

>

> Thanks.

>

> Cheers,

> JOT

>

November 28, 2010

Have you read this comment from one idiotic writer. Sounds like

she could be a member of the hypothyroid 'guidance' committee: http://www.dorsetecho.co.uk/news/8706225.Dorchester_woman_s_ME_ordeal/?ref=mr

and , the url for TPA is www.tpa-uk.org.uk

-

Luv - Sheila

ohec, Dorset says...

2:13pm Sat 27 Nov 10

Whilst I sympathise with Libby

Meyers and her family there has to be a cut off point when the N.H.S says

enough is enough as hard as that may sound, unfortunately the N.H.S is not a

bottomless pit and with limited resources hard choices have to be made. With

life expectancy getting ever greater and heavier demands being made on the

N.H.S for new drugs and treatments that are often very expensive, it is

unfortunate that she finds herself in this position but at 62 you have to be

realistic, yes we all want to live as long as we can but she is in her twilight

years and that has to be taken into consideration also the fact that the

treatment might not be of great benefit to her. It would be nice if we could

have everything we want in life but that is not possible now and never will be

I am sure that Dorset has and is doing the best for her that they consider appropriate.

Maybe it is time to raise the question of voluntary euthanasia because I am

sure there are many people like myself who think that once your quality of life

has declined to a certain level it’s time to switch the lights off.

I sent the local paper the Dorset Echo, a short email and a link to the news

story on the BBc which we heared about on here on Thursday.

What the Echo have printed is not anything I have written, they have taken the

BBc Story, and cut it down slightly and added a couple of quotes from the

woman's Husband and Daughter as well as photographs.

Here's the link, and you can add a comment, so I will.... http://www.dorsetecho.co.uk/news/8706225.Dorchester_woman_s_ME_ordeal/

.._,___

November 28, 2010

I have reported the extremely cruel and thoughtless comment from

'ohec' to the site administrators of the online Dorset Echo and asked for it to

be removed with immediate effect. http://www.dorsetecho.co.uk/news/8706225.Dorchester_woman_s_ME_ordeal/?ref=mr

Luv - Sheila

______________________

November 28, 2010

Hi Sheila: I was a bit taken aback with that comment as well.

I hope they do remove it....Sheesh !!!!

Thanks Gala, your comment was wonderful....thank you so much for the link.

Cheers,

JO

November 28, 2010

I put a reply on the article, using the name snakefollower.

Fiona

November 28, 2010

Regardless of if that person was part of the hypothyroid 'guidance' committee,

it's certainly written in a controversial way: i.e. talking about euthanasia. I

have to say, that did annoy me and spurred me on to write a reply on the article

as well as here.

It's all well and good people like that going on about euthanasia, they are

probably talking about issues that they couldn't even begin to understand or

relate to.

Plus it's one thing talking about it, if you can honestly say that all treatment

options and tests have been investigated. Sadly with all the controversies,

there is a big chance that this isn't the case.

It also reaks of a lot of idealistic views, that the NHS doesn't have a

bottomless pit of resources. Keeping people that ill, and pushing them to

euthenasia has got to be wrong, when there are treatment options and tests

available. It's far from satisfactory to deny tests and treatment, keep people

ill, costing all that money in care and symptom control and then wonder why some

years down the line somebody seeks suicide or euthanasia.

I just hope the patient and the family seek out TPA or appropriate thyroid and

adrenals options rather than the above.

I replied as snakefollower on the site.

Fiona

November 28, 2010

HI FIONA

In the past many patients have been given overdoses of morphine when a Doctor

decided, but now they are giving the patient the option to decide.

There is a crafty side to this though, as there are many drugs that cause

patients to feel so ill that they may well take that decision.

It also looks like they are going to refuse to give patients treatment which

forces them into the option of euthanasia.

I have felt that this would be bought about in this way.

Some are treated badly in homes that they do not want to live, and in some cases

there own families.

Is this there way of cutting down the population due to Global Warming, as the

world will not be able to suport any where near the population.

Kathleen

November 28, 2010

Thanks for putting a message there Fiona. I have also just

written my own comments - mainly by addressing Ohec. I am Campaigner77. http://www.dorsetecho.co.uk/news/8706225.Dorchester_woman_s_ME_ordeal/?ref=mr

.. Anybody else want to have their say?

Luv - Sheila

I put a reply on the article, using the name

snakefollower.

Fiona

November 28, 2010

I just read your reply Sheila and it was excellent.

People like ohec are annoying: so ignorant. fancy mentioning euthanasia. what

a thing to say, reminds me of some people who say the same thing about

depression and letting / helping poeple end their own lives. never mind

exploring all the other options like hormonal solutions etc. i am lost for

polite words!

chris

>

> Thanks for putting a message there Fiona. I have also just written my own

> comments - mainly by addressing Ohec. I am Campaigner77.

>

November 29, 2010

I have just received a response from Oliver Letwin's (MP) Secretary.

Dear Ms ,

Thank you for your email which I have passed on, as requested, to Mr Meyer.

Thank you for bringing this information to his attention.

Regards

McGowan

Office of Rt Hon Oliver Letwin MP

November 29, 2010

On Mon, 29 Nov 2010 11:03:13 -0000, you wrote:

>

>Dear Ms ,

>

>Thank you for your email which I have passed on, as requested, to Mr

>Meyer.

>

>Thank you for bringing this information to his attention.

Well done, I left a message on his answerphone but have not heard from

him.

Nick

November 29, 2010

I have also just written my own comments - mainly by addressing Ohec. I am

Campaigner77.

> http://www.dorsetecho.co.uk/news/8706225.Dorchester_woman_s_ME_ordeal/?ref=m

Sheila, I just clicked the link. Although the article is still there, I don't

see any comments any more. Is it that they removed the comments and preventing

anybody adding anything? Whereas any other time I clicked links from this

discussion, I was able to see prior comments.

Fiona

November 29, 2010

Hmmm! no idea Fiona. All I can think is that they leave their

comments open for so long on any one particular subject and then they have to

get comments for other stories. Other than that, perhaps drop them a line and

ask why they have removed them. Not even had time for the Editor to read my

invitation to him to perhaps publish our story DUH!

Luv - Sheila

I have also just written my own comments -

mainly by addressing Ohec. I am Campaigner77.

> http://www.dorsetecho.co.uk/news/8706225.Dorchester_woman_s_ME_ordeal/?ref=m

Sheila, I just clicked the link. Although the article is still there, I don't

see any comments any more. Is it that they removed the comments and preventing

anybody adding anything? Whereas any other time I clicked links from this discussion,

I was able to see prior comments.

Fiona

November 29, 2010

>All I can think is that they leave their comments open for so long on >any one

particular subject and then they have to get comments for >other stories.

I assume comments are archived. Just trying to find an appropriate e-mail to

address it to. Int the meantime though, have you seen this?

http://www.dorsetecho.co.uk/news/ If you click on " most comments " in the

middle...

Dorchester woman's ME ordeal (25) has the third highest number of comments.

Fiona

November 29, 2010

Hi

I saw a video report on http://www.bbc.co.uk/news/uk-england-dorset-11830123 and

see that her daughter is called Fiona. A bit of detective work on Google and I

think this looks like her daughter.

http://www.facebook.com/people/Fiona-Meyers/523111168

t mentions Dorset, it looks like her from the video report. Worth contacting

her to see if you can help.

Margaret

>

> I have also just written my own comments - mainly by addressing Ohec. I am

Campaigner77.

> > >

November 29, 2010

I got a chance to read the comments before they were deleted and they were

great. Sheila, your comment was wonderful and informative, as always....

Sheila, if I could get someone to do a story on you and the forum from the

States, would you be interested in participating? or would you just prefer the

UK? I'm not promising anything, but you never know who I'll run into...:0)

I liked the part about you mentioning that this was an international

thyroid/adrenal forum as well. I've given your forum web address to many people

all over the world, but I don't know if they signed up or not.

Cheers,

JOT

November 29, 2010

Well, that would be good if you could actually see the comments.

I think it has probably just run its course and they have moved on to something

else. Anyway, I hope her husband has now received the info that I sent to

Oliver Letwin and that he contacts me.

Luv - Sheila

>All I can think is that they leave their

comments open for so long on >any one particular subject and then they have

to get comments for >other stories.

I assume comments are archived. Just trying to find an appropriate e-mail to

address it to. Int the meantime though, have you seen this?

http://www.dorsetecho.co.uk/news/

If you click on " most comments " in the middle...

Dorchester woman's ME ordeal (25) has the third highest number of comments.

Fiona

November 29, 2010

You bet I would be interested Jot - that would be wonderful. TPA

is no longer just UK, we went International months ago and dropped the UK from

the original TPA-UK. Yes, I will be interested in participating.

Hope to hear from somebody if this is going to happen. It is SO

difficult getting ANYBODY genuinely interested.