Re: my acth test etc

[Guest guest]

> you are in a very difficult place

tell me about it !

and it is beyond a forum like this to probably help you out.

with respect I don't think that is for you to say john. Do other members feel

like this? If so pse say so and I will go away.

I was given these meds to help because of thyroid/adrenal symptoms of severe

insomnia so why would this forum not be a place to support me.

Is anyone else on the forum taking sleeping meds to h elp with insomnia or is it

just me?

>

> I dont know what you could do. This is primarily a problem with the sleeping

pills at the moment. is there no way you can get through to dr M ?

The problem is the GP reducing my meds in a way that is dangerous to me. I wrote

this in the email you are responding to john -

Yes I did ask the good dr if there was any other dr who could help me and I got

told NO, wierd that there is not a single dr in the UK that could ne

recommended?

>

> Failing that can you address the withdrawl symptoms as a heroin user would do

- speak to a councellor about this maybe?

this is iatrogenic dependence and the only connection with heroin is that

the withdrawals are muvch, much, much worse. It is beng dealt with all wrongly

by the GP and the NICE guidelines are a kload of rubish whgich further comounds

the problem.\

The GP is making me ick up my meds every week rather than the usual monthly

script and I am being treated like someone with a recreational drug habit which

is a vcause of great embarrassment when i ghave to9 go to the chemist where \i

have always been v friendoly with all the staff and now i get wierd looks

because of what the GP is doing.

I did not prescribe thrse meds for myswelf and I am getting no help from any

quarter, edically, to safely reduce them and get off them. It is a living

nightrmare.

which is being dealth with all wrongly and likely to cause me long-term damage

in so doing. It is critical I find a doctor who9 knows what they ar doing as i

see my GP this Thirs whenhe is all set to reduce and this could causer serious

danage to me,

A ciounsellor does not deal with these matters, what ius needed is a dr who can

oreswcribe and who understand how benzo withdrawl works and the dangers

inhgerent in withdraqwing the wrong way, there is the possibility of being in

withdrawal FOR LIFE.

I am waiting to hear back from the Priory.\\

Mo

[Guest guest]

Your problems are to do with the withdrawl of a med not related to

thyroid/adrenal. but that is also a problem for you as well.

you have asked for help on here and people have tried to answer your

questions, but no one can get you a doctor which you seem to need. it is not

that people dont want to help you, it is a case of there may be better people to

speak to on another forum more specific to your withdrawl program.

I have emailed dr myhills daughter via facebook to see if she can pass on a

message to dr M. It seems you need to get through to her somehow as she may be

able to put you on to someone.

[Guest guest]

Hi Mo, what meant was that we, as thyroid sufferers, don't

really have the level of expertise needed to be able to advise what you should

do to help you apart from giving you links to web sites that might be able to

help you. nobody feels that you should " go away " and we will continue

to do what we can, but our experience, unfortunately, is limited.

How did your GP advise you to reduce your medication Mo as I am

not sure you have actually told us this. How much epam are you taking right

now.

Has The Priory telephoned you yet?

Luv - Sheila

this is iatrogenic dependence and the only connection with heroin is that

the withdrawals are muvch, much, much worse. It is beng dealt with all wrongly

by the GP and the NICE guidelines are a kload of rubish whgich further comounds

the problem.\

The GP is making me ick up my meds every week rather than the usual monthly

script and I am being treated like someone with a recreational drug habit which

is a vcause of great embarrassment when i ghave to9 go to the chemist where \i

have always been v friendoly with all the staff and now i get wierd looks

because of what the GP is doing.

I did not prescribe thrse meds for myswelf and I am getting no help from any

quarter, edically, to safely reduce them and get off them. It is a living

nightrmare.

which is being dealth with all wrongly and likely to cause me long-term damage in

so doing. It is critical I find a doctor who9 knows what they ar doing as i see

my GP this Thirs whenhe is all set to reduce and this could causer serious

danage to me,

A ciounsellor does not deal with these matters, what ius needed is a dr who can

oreswcribe and who understand how benzo withdrawl works and the dangers

inhgerent in withdraqwing the wrong way, there is the possibility of being in

withdrawal FOR LIFE.

I am waiting to hear back from the Priory.\\

Mo

[Guest guest]

thanks guys

nick both play havoc with the drenals, a lot of the withdrawal symptoms are

actualloy from cortisol dips, the blacking out from oostural hypotension, the

onaic ataqcks, etc

cold turkey can kill you so my go is killing mre softly

but not anymore as chris has pointed me in the direction of a orivate dr who can

help.

Mo

>

> SNAP Nick! I just sent exactly the same link to Mo. Must be good!

>

> Luv - Sheila

>

> On Tue, 30 Nov 2010 10:11:59 -0000, you wrote:

>

> >

> >The priority at the moment is finding dr who will oversee the diazeam

> withdrawals as the GP is v rigid, ignorant and I am not in good hands tyo

> say the v least.

>

> Are you trying this cold turky or weaning off very slowly??

>

> http://www.non-benzodiazepines.org.uk/diazepam.html

>

> If it's cold turky iy will play havock with your adrenals

>

> Nick

>

[Guest guest]

Dear

I have found the dr I need through the good auspices of a kind member on this

list.

Time is of the essence here I am seeing the GP now on /friday with an

advocate and on /friday he is cutting the neds down which will cause me even

more serious problenms.

There is NO time to co9nsult other forums |johnm, this is URGENT and thankfully

I now have a doctor which is whaty I( have been asking for all along.

I have mentioned to you a couple of tims that /dr \M seems to be distsnvcing

herself from me though perhaps i was being too subtle for you to see what |I was

saying? She has said that she knows of no doctor in the |UK who she could

suggest to help me with the withdrawaks from the nmeds she rescribed me. Hmmm.

\

It was kind of yoyur to ask her relative but I have already asked the doctor and

then I went to Sheila in desperation who kindloy asked the three deocs and none

of them could recommend anyone either.

So I felot distanced, abandoned and left to get on with it on my own with the

urgencvy staring me in the face of the /gp going ahead with his merry plan to

reduce me even in the state that |I am in,

So let's hope it all works out for me.

It is true that tyhis list has helped me as i said through the kind ausoices of

Young /chrios which is a human angel as far as I am concerned.

Mo

>

> you have asked for help on here and people have tried to answer your

questions, but no one can get you a doctor which you seem to need. it is not

that people dont want to help you, it is a case of there may be better people to

speak to on another forum more specific to your withdrawl program.

>

> I have emailed dr myhills daughter via facebook to see if she can pass on a

message to dr M. It seems you need to get through to her somehow as she may be

able to put you on to someone.

>

[Guest guest]

Hi /sheila

I wasn't looking for advice re withdrawals, I was simply looking for a private

doctror who knew what they were doing before this fool of a GP ruins my life.

And some kind words always help when in hell and all alone.

It is a long and complicated story sheila and |i am unable toi relate it v well

because of the state \i am inm, you can see for yourself hoew hard it is for me

to type, iy id ervern harder to think,.

I have spoken to the Priory and they are saying nothing till Jan,, well \i

casnnot be like this until Jan so the advocate will put pressure on the /gp to

raise the dose which he will not because of his stoopid guidelines but the

priory guy will not be so constrained and his secretary could hear the state \i

am in when we spoke on the phone and said she will emohasise this to the doc

which operates a clinic in /exeter woulf u believe? \he only has tewo sessions

between now and new year and he is fully booked so people please say a prayer,

or wish me luck, or whatever that he can squeeze me in and get nme out of ther

clutches of the increadsingly insane NHS.

I now have to find 250 to see him and of course I do not havre 250 and that is

for the first session only, further sessions wiull be required at half that rice

for half an hour.

I am looking into a private medical insurance deal which would cover up to 300

and other stuff as werll and would cost me 20 pw which would make it doable.

I \mv weak but now that I have this dr i feel my fighting spirit returning~!

Thanks ?Sheila and all.

Mo

>

> Has The Priory telephoned you yet?

>

> Luv - Sheila

>

> this is iatrogenic dependence and the only connection with heroin is

> that the withdrawals are muvch, much, much worse. It is beng dealt with all

> wrongly by the GP and the NICE guidelines are a kload of rubish whgich

> further comounds the problem.\

[Ed]

[Guest guest]

Hi Mo,

" I have spoken to the Priory and they are saying nothing till Jan, well I cannot

be like this until Jan "

Hope things work out with the Priory.

" I wasn't looking for advice re withdrawals, I was simply looking for a private

doctror who knew what they were doing before this fool of a GP ruins my life "

I wanted to say the reason I posted those links to Forums, Support Groups was

not necessarily to get advice on withdrawals, but to post & ask for Doc

recommendations.

Perhaps you could do that anyway & if cannot get into Priory quickly you may

find out more options. You may even post & get some feedback about the Priory &

if it's good/bad & worth the money?

Regards Lethal Lee

[Guest guest]

On Thu, 02 Dec 2010 09:02:49 -0000, you wrote:

>

> " I wasn't looking for advice re withdrawals, I was simply looking for a private

doctror who knew what they were doing before this fool of a GP ruins my life "

>

>I wanted to say the reason I posted those links to Forums, Support Groups was

not necessarily to get advice on withdrawals, but to post & ask for Doc

recommendations.

If any of us knew one we would have given you their name like a shot.

Why are they pushing you to come off that before your thyroid and

adrenals are straightened out??? The adrenal stress will be enormous

and you will be lacking the reserves to deal with it

Nick

[Guest guest]

Oh LL I did not mean to come across as ungrateful, I was v touched at you going

to the bother to get the info for me and I see the sense of joining and have!

Mo xx

>

> Hi Mo,

>

> " I have spoken to the Priory and they are saying nothing till Jan, well I

cannot be like this until Jan "

>

> Hope things work out with the Priory.

>

> " I wasn't looking for advice re withdrawals, I was simply looking for a

private doctror who knew what they were doing before this fool of a GP ruins my

life "

>

> I wanted to say the reason I posted those links to Forums, Support Groups was

not necessarily to get advice on withdrawals, but to post & ask for Doc

recommendations.

>

> Perhaps you could do that anyway & if cannot get into Priory quickly you may

find out more options. You may even post & get some feedback about the Priory &

if it's good/bad & worth the money?

>

> Regards Lethal Lee

>

[Guest guest]

Because Nick, they are fools, dangerous fools!

I appreciate your support and if I am coming across as grumpy then let me

explain that rages is one of the withdrawal symptoms!

Mo

>

> On Thu, 02 Dec 2010 09:02:49 -0000, you wrote:

>

> >

> > " I wasn't looking for advice re withdrawals, I was simply looking for a

private doctror who knew what they were doing before this fool of a GP ruins my

life "

> >

> >I wanted to say the reason I posted those links to Forums, Support Groups was

not necessarily to get advice on withdrawals, but to post & ask for Doc

recommendations.

>

> If any of us knew one we would have given you their name like a shot.

>

> Why are they pushing you to come off that before your thyroid and

> adrenals are straightened out??? The adrenal stress will be enormous

> and you will be lacking the reserves to deal with it

>

> Nick

>

[Guest guest]

On Thu, 02 Dec 2010 14:14:17 -0000, you wrote:

>

>Because Nick, they are fools, dangerous fools!

That doesn't surprise me, just aseeing what they do on the thyroid

side of it makes me realise how poor the trainign is (it's the

training, not the individuals)

>I appreciate your support and if I am coming across as grumpy then let me

explain that rages is one of the withdrawal symptoms!

Thanks, we just wish we could help more.

Can you get them to give you enough to let you taper at the right

speed? Did that link that Sheila and myself found give you any new

information?

They got you in this mess and need to get you out of it.

Nick

[Guest guest]

EDITED TO REMOVE NAME

Moderator

I had no idea DR M was not helping you anymore.

Anyway i have had a reply from Ruth M on the facebook group and she has asked

for an email. Do you want me to pass on your email address ? I suppose there

is no point really.

I wont do anything unless you tell me.

Cheers

[Guest guest]

Edited to remove name.

Moderator

I had no idea DR M was not helping you anymore.

Anyway i have had a reply from Ruth M on the facebook group and she has asked

for an email. Do you want me to pass on your email address ? I suppose there

is no point really.

I wont do anything unless you tell me.

Cheers

[Guest guest]

No Nick they will not gve nme enough toi let me taper at the correct speed and

that is why I am going orivate so I can havee some cointrol over the process.

Their idea (NICE) of the correct speed and that of experts in the field are

miles apart and a lorra lorra lorra damage is being done to patients when GPs

meddle with an area they know nothing about.

MY GP told me that patient experience of withdrawal was irrelevant, it is the

SCIENCE that is important!

Mo

>

> That doesn't surprise me, just aseeing what they do on the thyroid

> side of it makes me realise how poor the trainign is (it's the

> training, not the individuals)

>

> >I appreciate your support and if I am coming across as grumpy then let me

explain that rages is one of the withdrawal symptoms!

>

> Thanks, we just wish we could help more.

>

> Can you get them to give you enough to let you taper at the right

> speed? Did that link that Sheila and myself found give you any new

> information?

>

> They got you in this mess and need to get you out of it.

>

> Nick

>

[Guest guest]

Dr m cannot prescribe anymore which is how I got into this pickle.

But thanks for trying to help

I have asked my GP for a referral to the Priory consultant and fingers crossed I

get to see him soon.

Mo

>

> I had no idea DR M was not helping you anymore.

>

> Anyway i have had a reply from Ruth M on the facebook group and she has asked

for an email. Do you want me to pass on your email address ? I suppose there

is no point really.

>

> I wont do anything unless you tell me.

>

> Cheers

>

[Guest guest]

so actually then, ben goldacre and his cohorts are responsible for your

predicament ..they were key in getting dr m's licence to prescribe suspended

....they are very very dangerous people with callous disregard for anything other

than their own vain-glory and/or remuneration. in my book they behave like

psychopaths and so does the authorities (bma etc).

i do hope you soon get the help you need...will keep all fingers and toes

crossed!

just wondering out loud but have you checked out naltrexone ...it was originally

formulated to treat withdrawal from opiates and or alcohol and was subsequently

found to be very effective for multiple sclerosis and other autoimmune diseases

but at a dosage of MAX 4.5mg (rather than the 50mg+ dose) and is often used at

doeses of 1.5 to 3mg. in its early use it can make candida flare up so that

would be a major consideration to take into account. it might be of assistance

to *get over the hump* ...could you speak to your gp about it i wonder?

i cold-turkeyed once from tofranil tricyclic antidepressant and librium ...(this

was nearly forty years ago) and the effects were appalling ...didn't know which

way was up, total nervous system collapse so i have a sense of what you are

going through and withdrawal really does need to be very very slow.

best wishes.

trish

>

> Dr m cannot prescribe anymore which is how I got into this pickle.

> But thanks for trying to help

> I have asked my GP for a referral to the Priory consultant and fingers crossed

I get to see him soon.