Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Yusuf: I am not sure the time of the day matters that much. I am of the philosophy that it is more important to take it after a meal (full stomach), with a full glass of water and at a time where you will be upright for the next several hours. That is why I take mine after breakfast and at a time where I will be the most active. The worst for me was taking it right before bedtime where I would be laying down after I took the medicine, although I have read where other people prefer it that way. Ultimately, you will have to try the things that make it easier for you to manage your side effects. How long have you been taking Gleevec? Matt In a message dated 10/30/2006 12:34:01 P.M. Eastern Standard Time, ÿffffe7ipecipeyusuf@... writes: Do you take gleevec at the same time everyday? Is it important to take it always at the same hour? I'm trying to take it at the same hour everyday but my doctor did not make me a warning about it. Yusuf Cipe Dx march 2006 400 mg gl. Istanbul Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Shalyn: There are many things you can do to limit the side effects. I made a post on Sunday night that covers a lot of these. My first oncologist did not recommend Gleevec, said that I would need a Bone Marrow Transplant and said Gleevec would not help. I had a friend who put me in touch with his client who had Leukemia and it ends up that this same doctor misdiagnosed him. It was the Leukemia Society who indirectly got information to me that the course of action was wrong. It is my understanding that you need a Hematologist/Oncologist to fully understand Leukemia. However, all the cutting edge stuff is being done at the Leukemia Clinics like MD , Dana Farber, and the like. Here is a link to the NCI page that outlines Cancer Institutes by state. It is best to get a second opion at one of them. _Click here: NCI - Cancer Centers Program - Cancer Centers List_ (http://www3.cancer.gov/cancercenters/centerslist.html) I go to MD and they set my treatment protocols. My oncologist reviews what they suggest and goes through and follows those protocols. I have my biopsies and aspirations done there once a year and my oncologist is just there to help me between visits. Good luck. Let me know if I can be of help. Matt In a message dated 10/30/2006 1:36:18 P.M. Eastern Standard Time, shalyn@... writes: Thanks Matt- for all your Gleevec taking tips. My husband Tim starts his Gleevec tomorrow and we are using your tips. He has alot of acid reflux issues so morning will likely be best - just got to get him to eat a full meal. He begins a new job today (oh boy eh?) and is leading a big group (oh boy twice!) That being said , we hope the side effects are minimal but he did get a rx for anti-nauseau drugs. We have little faith in his hematologist.We have little faith i that?? She has only had 2 other CML patients and seems to know very little about Gleevec - side effects or things you should not be taking with...Is it reasonable to request a different Dr?? Has anyone here done this? We are in an amazing cancer treatment province - so I feel we should have the advantages to this. Anyhow- sorry for blabbing on here- just red lights going up about care. Thanks Shalyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Thanks Matt- for all your Gleevec taking tips. My husband Tim starts his Gleevec tomorrow and we are using your tips. He has alot of acid reflux issues so morning will likely be best - just got to get him to eat a full meal. He begins a new job today (oh boy eh?) and is leading a big group (oh boy twice!) That being said , we hope the side effects are minimal but he did get a rx for anti-nauseau drugs. We have little faith in his hematologist...I mean how important is that?? She has only had 2 other CML patients and seems to know very little about Gleevec - side effects or things you should not be taking with...Is it reasonable to request a different Dr?? Has anyone here done this? We are in an amazing cancer treatment province - so I feel we should have the advantages to this. Anyhow- sorry for blabbing on here- just red lights going up about care. Thanks Shalyn > I am not sure the time of the day matters that much. I am of the philosophy > that it is more important to take it after a meal (full stomach), with a > full glass of water and at a time where you will be upright for the > next several > hours. > > That is why I take mine after breakfast and at a time where I will be the > most active. The worst for me was taking it right before bedtime > where I would > be laying down after I took the medicine, although I have read where other > people prefer it that way. > > Ultimately, you will have to try the things that make it easier for you to > manage your side effects. How long have you been taking Gleevec? > > Matt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 I take mine at the same time each day (or try too). It helps me to remember it. If I switched it around, I would probably forget. dx May 2005 400 mg yusuf ÿffffe7ipe <cipeyusuf@...> wrote: Do you take gleevec at the same time everyday? Is it important to take it always at the same hour? I'm trying to take it at the same hour everyday but my doctor did not make me a warning about it. Yusuf Cipe Dx march 2006 400 mg gl. Istanbul --------------------------------- Cheap Talk? Check out Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Hello, Yusuf. I typically take my Gleevec around the same time every day -- after my evening meal. Sometimes, if I have a big lunch and I don't anticipate having a large dinner, I will take it after lunch. (If I've had a large lunch, I don't like feeling obligated to also have a big dinner.) For me, I have to take my Gleevec after a good-size meal, along with an anti-nausea medication.) My doctor has never addressed whether it's necessary to take it the same time each day. Hope this helps. Warmest regards. (Dov) --- In , yusuf " ÿffffe7ipe " <cipeyusuf@...> wrote: > > Do you take gleevec at the same time everyday? Is it important to take it always at the same hour? I'm trying to take it at the same hour everyday but my doctor did not make me a warning about it. > > > Yusuf Cipe > Dx march 2006 > 400 mg gl. > Istanbul > > > > > > > > > --------------------------------- > Cheap Talk? Check out Messenger's low PC-to-Phone call rates. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Matt, I've been taking gleevec for 7 months. And ,thanks God, i have a good response. I believe that taking it at the same time everyday makes a positive effect to the treatment. And as you say its very important too, to take it after meal. But also it can cause nausea if you take it with a very full stomach. Of course these are just my opinions depend on my experiences at last 7 months. mtmaynor@... wrote: Yusuf: I am not sure the time of the day matters that much. I am of the philosophy that it is more important to take it after a meal (full stomach), with a full glass of water and at a time where you will be upright for the next several hours. That is why I take mine after breakfast and at a time where I will be the most active. The worst for me was taking it right before bedtime where I would be laying down after I took the medicine, although I have read where other people prefer it that way. Ultimately, you will have to try the things that make it easier for you to manage your side effects. How long have you been taking Gleevec? Matt In a message dated 10/30/2006 12:34:01 P.M. Eastern Standard Time, ÿffffe7ipecipeyusuf@... writes: Do you take gleevec at the same time everyday? Is it important to take it always at the same hour? I'm trying to take it at the same hour everyday but my doctor did not make me a warning about it. Yusuf Cipe Dx march 2006 400 mg gl. Istanbul Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Yusef, Try and take your Gleevec around the same time every day. Gleevec has a half life about 18 hours. This way your levels stay about the same. I always take mine after dinner. --------------------------------- Get your email and see which of your friends are online - Right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2006 Report Share Posted October 30, 2006 Hi Shalyn, Having an experienced CML doctor is critical. Even if you have to travel to see one. It will be the most important move you make. Once you have established a relationship with the CML expert, you can let your local doctor monitor you, but any change in treatment would need to be discussed and approved by the expert. I was in a clinical trial in Portland, OR in 2001 with Dr. Druker and Dr. Mauro. Even though I am no longer being followed by them, any time I have a question, they are quick to respond. Where are you located? Zavie Zavie (age 68) 67 Shoreham Avenue Ottawa, Canada, dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club PCRU 5/02 at RVH 2.8 log reduction Sep/05 3.0 log reduction Jan/06 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem Re: [ ] Gleevec time Thanks Matt- for all your Gleevec taking tips. My husband Tim starts his Gleevec tomorrow and we are using your tips. He has alot of acid reflux issues so morning will likely be best - just got to get him to eat a full meal. He begins a new job today (oh boy eh?) and is leading a big group (oh boy twice!) That being said , we hope the side effects are minimal but he did get a rx for anti-nauseau drugs. We have little faith in his hematologist...I mean how important is that?? She has only had 2 other CML patients and seems to know very little about Gleevec - side effects or things you should not be taking with...Is it reasonable to request a different Dr?? Has anyone here done this? We are in an amazing cancer treatment province - so I feel we should have the advantages to this. Anyhow- sorry for blabbing on here- just red lights going up about care. Thanks Shalyn > I am not sure the time of the day matters that much. I am of the philosophy > that it is more important to take it after a meal (full stomach), with a > full glass of water and at a time where you will be upright for the > next several > hours. > > That is why I take mine after breakfast and at a time where I will be the > most active. The worst for me was taking it right before bedtime > where I would > be laying down after I took the medicine, although I have read where other > people prefer it that way. > > Ultimately, you will have to try the things that make it easier for you to > manage your side effects. How long have you been taking Gleevec? > > Matt Quote Link to comment Share on other sites More sharing options...
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