RE: I'm leaving

[Guest guest]

Best wishes, Ms Muse. You will stay in my heart.

Margaret

muse_dwr <muse_dwr@...> wrote:

Good morning Folk,

I want to say goodbye and thank you for all of your help to me. You know I had

not been finally diagnosed. The technician who did my bone marrow and bone

biopsy told me that it was CML.

However, I kept my appointment with my doctor, at the Uof C in Chicago and my so

far diagnosis is leukocytosis/polycythemia. My white and red blood cells are

multiplying too much and she will be watching them and took more blood. She also

said that she was sorry that that happened.

Anyway, since I don't have CML at all, I will be leaving the group. I do wish

each of you well. You have been so nice and helpful to me. Thank you, thank you,

thank you and God bless.

Muse

Ms. Muse

" I believe that unarmed truth and unconditional love will have final word in

reality. This is why right, temporarily defeated, is stronger than evil

triumphant. "

Luther King, Jr.

[Guest guest]

Well good luck to you Muse, normally people leave the group under worse

conditions(if you get my meaning..hehe) So take care of yourself.

Terry

On 10/31/06, muse_dwr <muse_dwr@...> wrote:

>

> Good morning Folk,

> I want to say goodbye and thank you for all of your help to me. You know

> I had not been finally diagnosed. The technician who did my bone marrow and

> bone biopsy told me that it was CML.

>

> However, I kept my appointment with my doctor, at the Uof C in Chicago and

> my so far diagnosis is leukocytosis/polycythemia. My white and red blood

> cells are multiplying too much and she will be watching them and took more

> blood. She also said that she was sorry that that happened.

>

> Anyway, since I don't have CML at all, I will be leaving the group. I do

> wish each of you well. You have been so nice and helpful to me. Thank you,

> thank you, thank you and God bless.

>

> Muse

> Ms. Muse

> " I believe that unarmed truth and unconditional love will have final word

> in reality. This is why right, temporarily defeated, is stronger than evil

> triumphant. "

> Luther King, Jr.

>

>

[Guest guest]

Thank you Terry.

This group is amazing and I am blessed to be part of it.

Ms. Muse

" I believe that unarmed truth and unconditional love will have

final word in reality. This is why right, temporarily defeated, is stronger than

evil triumphant. "

Luther King, Jr.

[Guest guest]

I will be praying for you guy to because I know that God is able to perform

miracles and loves each and everyone of us.

thank you

Ms. Muse

" I believe that unarmed truth and unconditional love will have final word in

reality. This is why right, temporarily defeated, is stronger than evil

triumphant. "

Luther King, Jr.

[Guest guest]

Ms. Muse:

I am interested in your case--my husband was diagnosed with CML in July. But

after having suffered a stroke and a blood clot in his brain (at age of 33,

both thought to have happened due to the CML), he is doing great now, and

recovering quickly. He is living pretty normally right now, and is on

Gleevec (only 200mg right now and is working back up to hopefully 400/500mg.

He was on 500mg/day but it kept pushing him into a neutropenic state, having

NO neutrophils and hardly any white blood cells). The thing is, his body has

responded so strangely to Gleevec over the past few months (no bad side

affects, really, but his WBC count keep dropping to literally 0, putting him

in the hospital for weeks at a time). We are lucky to live in Los Angeles

area and we are lucky to have been referred to City of Hope Cancer Center

(we have Kaiser health insurance and they, too, have been awesome). Anyway,

the City of Hope specialists there have requested my husband's BMB (from

when he was diagnosed), because their comments based on how strangely his

body has reacted to Gleevec was: " I wonder if he even HAS CML. " Some of the

specialists in the beginning thought his body was reacting to Gleevec just

like someone would who does not actually have CML! These specialists were

involved with the trials of Gleevec and have never seen anyone respond to it

the way my husband has.

So--from being on the forum, etc....do you know if anyone else has been

mis-diagnosed? Just wondering...it seems like it would be hard to

mis-diagnose CML since it is a chromosomal change...isnt that a pretty

obvious thing to a BMB technician? I am asking because I truly dont know...

Regards

Cervera

>From: " muse_dwr " <muse_dwr@...>

>Reply-

>< >

>Subject: [ ] I'm leaving

>Date: Tue, 31 Oct 2006 05:34:55 -0600

>

>Good morning Folk,

>I want to say goodbye and thank you for all of your help to me. You know I

>had not been finally diagnosed. The technician who did my bone marrow and

>bone biopsy told me that it was CML.

>

>However, I kept my appointment with my doctor, at the Uof C in Chicago and

>my so far diagnosis is leukocytosis/polycythemia. My white and red blood

>cells are multiplying too much and she will be watching them and took more

>blood. She also said that she was sorry that that happened.

>

>Anyway, since I don't have CML at all, I will be leaving the group. I do

>wish each of you well. You have been so nice and helpful to me. Thank

>you, thank you, thank you and God bless.

>

>Muse

>Ms. Muse

> " I believe that unarmed truth and unconditional love will have final word

>in reality. This is why right, temporarily defeated, is stronger than evil

>triumphant. "

> Luther King, Jr.

>

>

[Guest guest]

Dear Ari,

It's so sad that parents are made to feel so afraid.

As for your PS - that is really sweet of you.

There are lots of positives in DS's life, but, wow, I certainly failed to

protect him. One day I hope he will understand enough to forgive me.

Love,

Mara

From: <carriefincher>

Subject: Never mind I'm leaving

Vaccinations

Date: Tuesday, February 10, 2009, 5:14 AM

After seeing that nobody wants to help they just want to change my

mind I am leaving this group.

Please remove me.

When I joined I was told that I could recieve support even though I

have decided to selectively vax rather than go completely vax free.

With my husband in the military and fighting a loosing battle

againest terrorism of all kinds, including bio terrorism, I am more

aware of the potential hazard of some diseases being used as weapons.

He too is painfully aware of this everytime he gets the Anthrax

vax...But maybe it would be better for him to tell them no thanks, I

take the disease instead. He has seen what the mutated forms of

diseases can do and I am not willint to take that chance.

Since I recieved judgement instead I wold rather find a more

welcoming and less judgemental crowd. I won't pretend to know what

it's like to have a family member injured by vax's and I would never

dream of telling you to vax after the experiences you have had. But

don't tell me I am doing my child a dis-service by selective vaxing.

I spent a LONG time researching and made my educated desicion based

on that. I am not some young thing who doesn't know. I am a college

educated, intelligent, 33yr old woman and would appreeciate respect

for my parenting choices.

Thank you and good luck to those of you trying to change the way

vax's are made so they can be safer for my grandchildren. Keep

fighting the good fight.

[Guest guest]

Hi , I too came on this group to learn more and for support. I

was thinking I would selectively vaccinate as well. In fact, my son

received Hib, prevnar, dtap, and rotavirus vax at 2 months (although

not completely my choice.) Then I studied more and realized the

vaccines I did not want in fact never had a role in decreasing

disease mortality and could be very dangerous. Then I discovered the

same was true for the vaccines that I was planning on continuing

with. Plus, I learned meningitis was 5 times more common in the

vaccinated (and meningitis was the thing I was truly scared about.)

So no more vaxxes after 2 months for my son. As time passes you

study more and feel more confident and realize you made the best

decision. Plus, during that time my son was never sick, no colds or

anything, he only had a mild case of roseola at 12 months and was

fine with no doctor intervention. He has not been sick in the

slightest since and he is 22 months. So as time passes you realize

that yes, children can survive without vaccines, and in most cases

are much healthier.

With people in the military, I think it's aweful they inject them

with experimental vaccines and they don't have any freedoms to

refuse. I have a friend who was in Iraq for a while and the whole

time she was there and now even, she is miserable. She is in

constant pain, is depressed, and has all kinds of symptoms. She is

constantly fighting with doctors to get some beneficial treatment.

Telling them her symptoms started right after the vaccinations they

completely dismiss her and basically tell her she is just crazy and

give her anti-depressant pills which of course, do not help her at

all.

It is horrible how vaccine injured people are treated.

Also, I understand the threat of mutaded diseases that may be used

for biowarfare. But in this case, if it is mutated, even the best,

most poweful vaccine will not do anything for it. If lets say you

get a measles vaccines and assuming it works 100% it will not secure

you against a mutated measles virus. I really don't think that if a

terrorist group is going to use some mutated virus against us, that

they will first contact the U.S. and tell them what they will be

using and give time to make a vaccine. Plus, I know people are very

afraid of anthrax and smallpox being used for this purpose, but there

are countless other diseases that can be used so vaccinating for all

of them would be impossible.

Even if you leave this group, keep researching yourself. I did not

believe anything coming from this group at first and had to look

everything up for myself.

When I first read something about monkey kidney virus contaminated

polio vaccines, I started laughing and thought it was just ludicrous

and like science fiction. I did not believe it and wondered how all

the crazy anti-vaccine people could believe it. Turns out it was

absolutely true!

So keep learning and good luck.

Vida