Any Thycan's experienced successful TSH suppression with T4/T3, T3 or Amour

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Hi, can anyone help? Is there anyone here who's had Thyca & is keeping their TSH

suppressed on treatment with T4/T3 combination, T3 or Amour? (sp) If I can show

my consultant evidence of successful suppression, it might help convince him a

trial on T3 will not put me at risk.

When I saw him last week I gave him the literature I'd printed out, along with

my Genova results. I could see he had no idea what to make of them. He'd once

told me TF could only be measured by blood testing & until someone came up with

an alternative method, he'd continue with TF blood testing. I explained what my

Genova 24 hour T4/T3 results indicated He had a quick look through some of the

info I'd given him & I told him what I understood from the research I`d done on

T4 conversion/T3, receptor uptake failure & Adrenal insufficiency.

He listened & asked what I wanted him to do? When I said, 'a trial of T4/T3

combination'! He just said 'NO'! I said, 'well what if you have a read of all

this information & then we talk about it at my next appointment'? He said,

'Caroline, you are taking me out of my comfort zone! How can I treat you with a

protocol I have no experience in'? I said, `I've done all this research & read

of so many cases where people who take T4 only are so ill. Yet once they try

T4/T3, or T3 or Amour, their lives are changed & they feel better than they`ve

done in years. I just want to get better & I'm willing to try anything`. He

asked, `And who is going to over see this`? I said `You're my consultant, I'm

happy with you & I respect what you are saying, too many Dr's hand out drugs

without understanding or caring what they are. But I don't mind being your

Guinea Pig'. Inside, I was struggling to stay calm because I'd been building up

to this discusion for about 9 months. I knew if I said the wrong thing, it could

all go wrong.

Then he said, `I want to get you better but you will not be a Guinea Pig. All

this probably relates to patients with Thyroid disfunction. You have had cancer,

I cannot put you at risk of re-occurrence. But I'll read through all this & then

I'll discuss it with my Endocrine colleagues'. Not really knowing if I was

right, I said, 'I'm sure there's information that relates to TSH suppression too

& this is a teaching hospital so maybe this could be something they could look

into as research'. He just smiled & said, 'alright, I really am out of my

comfort zone here but let me read this & once I've talked to my colleagues, I'll

get back to you in the next 10 to 14 days.

I'm trying to be positive, he didn't dismiss my requests outright, on the other

hand, I don't want to get too excited or even think what I'll do if he is unable

to give me a trial on T3. I can see he genuinely wants to do the best for me but

he wont consider anything he believes could risk a re-occurrence of my cancer.

As a Thyca patient, I don't know I could self treat with no supervision, I need

a consultant & I know my GP's wouldn't take over my care.

The more evidence I can give him the better. Thanks, Caroline