9 months

[Guest guest]

Hi everyone..its been solong since ive come on the site...ive been

so busy with my new life. For those who don't know I was on Gleevec

for three years..Life for me was zero...zilch... I was bed ridden

with vomiting atleast three times a day...severe diareah and such

joint ache...I wanted to die. I didn't have a life. Then Nov last

year I took myself off Gleevec with the doctors permission for

atleast a months holiday. (Within going of Gleevec the first two

weeks I lost 8 kilo's)..a month turned into 2 then suddenly I was 4

months without medication. My doctor tried to get me on the AMN

trial without no avail..(In Australia we are behind USA) even to the

last day he had no hope...then thankfully they were letting me on

the BMS trial. Its been a journey..I started on March 8th and im on

100mg once a day. I probably have one sick day a week...and in the

last 9 months ive vomited maybe 3 times. I no longer have IBS and

now I want to live life to the fallest. I now am a qualified

Parent and loving it. Its something I knew I couldn't do on Gleevec

but Disatinib has given me hope...

So now instead of my family looking after me and trying to give me

constant hope...I look after my family including my disable son..and

as well as my other children and husband I give lots of hope, hugs

and love to a 15 year old, 5 year old and a 1 year old...and loving

it. Its very healing...to be able to give back.

Susie Leech

Dx Nov 2002

Gleevec 3 Years

Disatinib March 8th 2006

# Zero 765