RE: RE:PLEASE HELP US TO HELP YOU! - Janet

[Guest guest]

Regarding

our Register of Counterexamples Questionnaire: When you complete such a

questionnaire, it remembers your ISP number so you cannot go back and complete

it again - this stops those who believe adding going back and using several

names will help boost the numbers.

There is such opposition from doctors within the UK to prescribe

T3 because of the Royal College of Physicians, British Thyroid Association et

al. because of the most recent guidance on The Diagnosis and Management of

Primary Hypothyroidism, where they are virtually boycotting all T3 containing

products, telling doctors that levothyroxine is the only thyroid therapy they

need to use because it works for everybody and that T3 can be 'dangerous' and

GP's should not prescribe it, except in 'special' cases and only then when an 'accredited'

endocrinologist had recommended it. Doctors know that other doctors have been

reported to the General Medical Council for daring to diagnose and treat

outside of their 'guidelines' so no doctor wants to put his career and

livelihood at risk - so the patient continues to suffer. TPA is campaigning to

bring about changes in the BTA statements, but they ignore scientific evidence and

carry on regardless of the effect their opposition to using T3 has on tens of

thousands of patients.

The idea of our present survey is to find those who remained

with symptoms when on levothyroxine only therapy, yet who did eventually start

taking either synthetic T3 or natural thyroid extract and found their symptoms

diminishing. We are looking for counterexamples to t4 only. The register you

are proposing is something entirely different and has been covered previously

in our UK Patients Hypothyroid Survey http://www.tpa-uk.org.uk/tpauk_survey.pdf

.. Hopefully, we will be doing a European Hypothyroid Patients Survey in the not

too distant future and should learn whether other countries have the same

opposition to T3 as there is in the UK.

Luv - Sheila

Is

there a possibility that in the UK there are very few of us who have fought

through this unbelievable and for most individuals I would imagine overwhelming

opposition to prescribe T3 to thyroid patients through the National Health?

My

experiences would lead me to question that:

Perhaps

you might consider asking how many people have requested T3 combination, and

have or are still refused this through the National Health? Including some

means of ascertaining the degree of resistance to prescribing T3 combination in

the National Health.

I

really wish you well in your endeavours and although have never expressed this

before am very grateful to you.